Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Hey everyone, I went back to my Oncologist last Friday following my latest phenomenal PCR results, after 3 mos on Tasigna I had dropped almost a whole log bringing me to almost PCRU (being 'almost' PCRU is kind of like being 'almost' pregnant though I was so hoping for the big ZERO). I went along to my appointment expecting a big fight on my hands I was having such awful side effects from the Tasigna including the dreadful hair loss that I had decided I just had to reduce the dosage. (downunder) takes 400mg Tasigna at night every night and 200mg in the am every other day so I was going to suggest this same drop (I was on 400mg 2 x day). I was shocked when the Onc said he wanted me to just be on 400mg once a day, that means only one bout of fasting a day yay!!!I am having my PCR checked in 6 weeks instead of the usual 12 just to check the lower dosage is keeping me in check. The reason I am posting this is I thought it may be useful to know that this is an option. It never made sense to me that a 140lb person could be on the same dosage as a 200lb one??? After 3 mos of Tasignamy hair was falling out and I had no hair growing anywhere (legs etc). After the morning dose I was having to go to bed as I was so Nauseas and felt generally unwell. I have been on the lower dose for one week now and already feel so much better. In the end I was feeling as bad as I did when I was on intravenous chemo (the real deal stuff). Hope this may help some of you Regards Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Yes that is surprising. When I started Tasigna I started on 400 and after 3 weeks I had not reached pcru yet but I was so close! .0075 but they increased it to 600 and within 2 weeks I was pcru. I sometimes wonder if I had stayed at 400 if I would have gotton to pcru. My doctor may have been hasty? I don't know! Good luck and keep us posted. Sharon Sent via BlackBerry by AT & T [ ] Tasigna > > Hey everyone, > I went back to my Oncologist last Friday following my latest phenomenal PCR results, after 3 mos on Tasigna I had dropped almost a whole log bringing me to almost PCRU (being 'almost' PCRU is kind of like being 'almost' pregnant though I was so hoping for the big ZERO). I went along to my appointment expecting a big fight on my hands I was having such awful side effects from the Tasigna including the dreadful hair loss that I had decided I just had to reduce the dosage. (downunder) takes 400mg Tasigna at night every night and 200mg in the am every other day so I was going to suggest this same drop (I was on 400mg 2 x day). I was shocked when the Onc said he wanted me to just be on 400mg once a day, that means only one bout of fasting a day yay!!!I am having my PCR checked in 6 weeks instead of the usual 12 just to check the lower dosage is keeping me in check. > The reason I am posting this is I thought it may be useful to know that this is an option. It never made sense to me that a 140lb person could be on the same dosage as a 200lb one??? > After 3 mos of Tasignamy hair was falling out and I had no hair growing anywhere (legs etc). After the morning dose I was having to go to bed as I was so Nauseas and felt generally unwell. I have been on the lower dose for one week now and already feel so much better. In the end I was feeling as bad as I did when I was on intravenous chemo (the real deal stuff). > Hope this may help some of you > Regards Donna > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Isn't there a blood test we can do to see how much medication os in our system? Sent via BlackBerry by AT & T [ ] Tasigna > > Hey everyone, > I went back to my Oncologist last Friday following my latest phenomenal PCR results, after 3 mos on Tasigna I had dropped almost a whole log bringing me to almost PCRU (being 'almost' PCRU is kind of like being 'almost' pregnant though I was so hoping for the big ZERO). I went along to my appointment expecting a big fight on my hands I was having such awful side effects from the Tasigna including the dreadful hair loss that I had decided I just had to reduce the dosage. (downunder) takes 400mg Tasigna at night every night and 200mg in the am every other day so I was going to suggest this same drop (I was on 400mg 2 x day). I was shocked when the Onc said he wanted me to just be on 400mg once a day, that means only one bout of fasting a day yay!!!I am having my PCR checked in 6 weeks instead of the usual 12 just to check the lower dosage is keeping me in check. > The reason I am posting this is I thought it may be useful to know that this is an option. It never made sense to me that a 140lb person could be on the same dosage as a 200lb one??? > After 3 mos of Tasignamy hair was falling out and I had no hair growing anywhere (legs etc). After the morning dose I was having to go to bed as I was so Nauseas and felt generally unwell. I have been on the lower dose for one week now and already feel so much better. In the end I was feeling as bad as I did when I was on intravenous chemo (the real deal stuff). > Hope this may help some of you > Regards Donna > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.