Re: ASH 2010 - Novartis Meeting

[Guest guest]

PRICE

Sent from my iPhone

On Nov 13, 2010, at 6:45 AM, Zavie <zmiller@...> wrote:

Hi all,

I will be attending ASH this year (Dec 3-7, Orlando, FL).

Novartis has invited me to attend an informal meeting to discuss the unmet

needs of patients with CML.

I have already brought up the Tasigna packaging issue with them and am

expecting an answer at this meeting.

I will bring up the question of Gleevec/Tasigna serum level testing. My

understanding is that Novartis has stopped providing this test free of

charge.

If you have other concerns, please let me know and I will present them at

this meeting.

Zavie

-----------------------

Dear Zavie

As you know, Novartis has a long term commitment to people with CML and

other hematological cancers and disorders. We also are committed to

developing and maintaining relationships and dialogue with patient advocacy

leaders in order to ensure that Novartis understands the patient perspective

and incorporates it into all that we do.

Since you will be attending the American Society of Hematology meeting in

Orlando, Florida next month, I would like to invite you to an informal

meeting followed by dinner on Saturday, December 4 to engage in a dialogue

about the perspectives and unmet needs of people with CML, including

informational needs regarding disease management.

I hope that you are able to join me on December 4th and look forward to

seeing you in Orlando.

Best regards,

Palacios, M.D.

Head, Global Patient Relations

Novartis Oncology

Novartis Pharmaceuticals Corporation

180 Park Av. Florham Park, NJ - USA

Phone: +1 862 7785481

Cell: +1862 2225299

Email : <mailto:david.palacios@...> david.palacios@...

[Guest guest]

Dear Zavie,

That sounds cheap the $7,000.00 a year. I am purchasing my stash

of Gleevec 400 mgs. pre-ordered once every 3 month of 360 pills

in the Novartis sealed bottles. Although the plastic bottles say 100mgs.

and 90 pills, I count every time I receive the 3 months worth,

and last year I was shorten by 60 pills.

Then the last time I open a bottle from Novartis, which was sealed and

it again is the 100 mgs. and the bottle stated 90 pills, I had only 80 pills

from Novartis.

So when you have your conversation from Novartis, asked them if they

really know how to count the pills they place in those plastic bottles which are

sealed?

The cost of my Gleevec, for 360 pills each quarter of the year, is $11,400.00

dollars each quarter. Multipy this by 4 quarters in 1 year, then I wonder who

is getting rip off?

Dory Doggie

________________________________

From: Zavie <zmiller@...>

Sent: Wed, December 1, 2010 9:34:54 AM

Subject: [ ] ASH 2010 - Novartis Meeting

Hi all,

I'm off to ASH on Friday and was wondering if I can get some more input on

the cost of Gleevec. There was only one response but I understand that the

problem is quite serious.

Could you send me some practical information as to how the cost of Gleevec

affects you and any suggestion as to how Novartis can help.

On last Tuesday's chat one of our CMLers said that it cost him $7,000 a year

for his Gleevec.

Also, if anyone is on the PAP or GIPAP program, could you indicate if this

works for you?

Thank you,

Zavie

Zavie (age 72)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

4.4 log reduction Apr/10

4.3 log reduction Oct/10

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem