Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 I'm pulling for you Donna, how great to not live with side effects. That's why I like this Ariad drug, I live a normal life! Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: donnaberry99 <no_reply > Subject: [ ] Tasigna Reduction Date: Thursday, November 11, 2010, 8:41 AM  Hi all, I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) and I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I still have no hair growing at all (incl legs etc) which I still find weird, but have NO side effects at all, I am able to finally carry on with my life after 3 1/2 years post dx. But don't get too excited for me yet... I will get my bcr/abl results this Friday after being on this dosage. I wait with baited breathe. I know some of you have asked your Oncs if you can reduce your dosage and they have advised against it. Remember too I still wasn't at PCRU even on the full dose but could no longer stand the side effects. I have noticed my WBC is a little elevated for me (8.4) so hopefully that is not a bad indicator. Watch this space for the results! Donna x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 Dear Donna I too wait with baited breathe!!! I am so happy for you and I sure hope yout PCR gives you good results. sharon _____ From: [mailto: ] On Behalf Of donnaberry99 Sent: Thursday, November 11, 2010 5:41 AM Subject: [ ] Tasigna Reduction Hi all, I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) and I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I still have no hair growing at all (incl legs etc) which I still find weird, but have NO side effects at all, I am able to finally carry on with my life after 3 1/2 years post dx. But don't get too excited for me yet... I will get my bcr/abl results this Friday after being on this dosage. I wait with baited breathe. I know some of you have asked your Oncs if you can reduce your dosage and they have advised against it. Remember too I still wasn't at PCRU even on the full dose but could no longer stand the side effects. I have noticed my WBC is a little elevated for me (8.4) so hopefully that is not a bad indicator. Watch this space for the results! Donna x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 You bet I will! Very best of luck on the reduced dose, Donna. I've got my fingers crossed! On Thu, Nov 11, 2010 at 5:41 AM, donnaberry99 <no_reply >wrote: > > > Hi all, > I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) and > I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I > still have no hair growing at all (incl legs etc) which I still find weird, > but have NO side effects at all, I am able to finally carry on with my life > after 3 1/2 years post dx. But don't get too excited for me yet... I will > get my bcr/abl results this Friday after being on this dosage. I wait with > baited breathe. I know some of you have asked your Oncs if you can reduce > your dosage and they have advised against it. Remember too I still wasn't at > PCRU even on the full dose but could no longer stand the side effects. I > have noticed my WBC is a little elevated for me (8.4) so hopefully that is > not a bad indicator. > Watch this space for the results! > Donna x > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 Good Luck Donna . Eva -------------------------------------------------- From: " Rosen Lum " <rrosenlum@...> Sent: Thursday, November 11, 2010 3:58 PM < > Subject: Re: [ ] Tasigna Reduction > You bet I will! Very best of luck on the reduced dose, Donna. I've got my > fingers crossed! > > > > On Thu, Nov 11, 2010 at 5:41 AM, donnaberry99 > <no_reply >wrote: > >> >> >> Hi all, >> I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) >> and >> I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I >> still have no hair growing at all (incl legs etc) which I still find >> weird, >> but have NO side effects at all, I am able to finally carry on with my >> life >> after 3 1/2 years post dx. But don't get too excited for me yet... I will >> get my bcr/abl results this Friday after being on this dosage. I wait >> with >> baited breathe. I know some of you have asked your Oncs if you can reduce >> your dosage and they have advised against it. Remember too I still wasn't >> at >> PCRU even on the full dose but could no longer stand the side effects. I >> have noticed my WBC is a little elevated for me (8.4) so hopefully that >> is >> not a bad indicator. >> Watch this space for the results! >> Donna x >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 I am happy for you Donna. Hope to hear good news on your PCR countM I am on. 600 mg I do have side effect such as high cholestrol and liver function but I love Tasigna I feel normal compare to gleevec. Good luck T Sent from my Verizon Wireless BlackBerry [ ] Tasigna Reduction Hi all, I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) and I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I still have no hair growing at all (incl legs etc) which I still find weird, but have NO side effects at all, I am able to finally carry on with my life after 3 1/2 years post dx. But don't get too excited for me yet... I will get my bcr/abl results this Friday after being on this dosage. I wait with baited breathe. I know some of you have asked your Oncs if you can reduce your dosage and they have advised against it. Remember too I still wasn't at PCRU even on the full dose but could no longer stand the side effects. I have noticed my WBC is a little elevated for me (8.4) so hopefully that is not a bad indicator. Watch this space for the results! Donna x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 *Hi Donna * *I am happy for you on less mg tasigna. I was on 300 mg gleevec before switching to Tasigna. My oncologist put me on 400 mg and I have been there for 3 years in January. I slowly have the side effects coming back and the same ones. I hve oint pain, muscle cramps all the time, back pain, hair loss, runnny nose, etreme fatigue and a cough all the time. I am thinking now that no matter what the TKI I take, my body will react in this way.I am fortunate that I have enjoyed PCRU foe 8 years now no matter the dosage. I am so happy for your reduced side effects. * *Best to you* *Barb in AZ * -- ** ** *There came a time when the risk to remain tight in the bud was more painful than the risk it took to blossom. ~Anaïs Nin* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Sent from my Verizon Wireless BlackBerry [ ] Tasigna Reduction Sent: Nov 11, 2010 8:41 AM Hi all, I am going on to 7 weeks on the half reduction of Tasigna (400mg daily) and I feel FABULOUS!!!! Wow what a difference dropping that 400mg has made. I still have no hair growing at all (incl legs etc) which I still find weird, but have NO side effects at all, I am able to finally carry on with my life after 3 1/2 years post dx. But don't get too excited for me yet... I will get my bcr/abl results this Friday after being on this dosage. I wait with baited breathe. I know some of you have asked your Oncs if you can reduce your dosage and they have advised against it. Remember too I still wasn't at PCRU even on the full dose but could no longer stand the side effects. I have noticed my WBC is a little elevated for me (8.4) so hopefully that is not a bad indicator. Watch this space for the results! Donna x Sent from my Verizon Wireless BlackBerry -- You received this message because you are subscribed to the Google Groups " TASIGNA SUPPORT GROUP CML " group. To post to this group, send email to tasigna-support-group-cmlgooglegroups. Quote Link to comment Share on other sites More sharing options...
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