Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Christene . . . I'm so sorry you're feeling so bad. . . Hopefully understanding why will be helpful, even though you still have a way to go. Are you taking any medications yet? You're not working, are you? Can you go on sick leave until you're feeling better? What does the doctor say? . . . Can he/she give you any estimate for how long it will be before you can be explanted? Hugs and prayers, Rogene --- usmcprincess3002 <usmcprincess3002@...> wrote: > > Hello Ladies, > > The lab results show which bacteria it is > specifically. It starts with > an " A " I don't have the exact spelling as of yet, > but will keep you > posted. I'm feeling like crap with nausea, fever > etc. I just want to > crawl underneath the blankets... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Christene, I'm sorry you've got to deal with this along with so many other issues. I still wouldn't be surprised if your implants contained this same bacteria. It's amazing that you've been dealing with this for a year and no doctors have diagnosed it (although it doesn't surprise me, because I've received the run around by doctors more than once). Sis > > It turns out that I have acinetobacter baumannii...a very rare bacteria that is usually contracted while a patient in the hospital. Oddly enough, I stopped working prior to this junk emerging on my skin. Most recently there has been an increase in reports of this bacteria among military members serving in Iraq. Hmmm....I'm wondering if I got it via mail? Not on purpose, but obviously from mail I have received from Iraq. The transmission of germs is a peculiar thing, but intriguing to someone like me. There is no way to know with certainty where it came from, but I won't dismiss any possibilities at this point. > As for the " baumannii " part, that means it's a very difficult strain to successfully treat as it is highly resistant to abx. > Honestly, after having this type of infection for over a year, it's a wonder that I'm still alive. > I believe I belong in the hospital on IV abx because its spread too far to be conquered with oral meds (think Sue). So here I sit at 2100 at the after hours care waiting to be seen and hoping for an admission into the hospital to get resolution. However, I'm sure that won't happen for me. It would make too much sense....Yep, nothing like managed healthcare at its finest moment...T is is only another example of how it works for the patient! What I wouldn't give to be free of it once more! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Christene, I hope they have found a bed for you and have you on antibiotics already! . . . With your knowledge, I know you won't get the bum's rush! . . . Was this hubby a soldier in Iraq? . . . Colleen's hubby had a problem when he got back . . . He left her. We'll be praying for you! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Actually, I truly am surprised that this stuff hasn't already killed me. Lately I'm feeling like I just don't care. I don't care about any of the BS that's going on in my life. It seems that everytime I try to get a handle on things it just backfires in my face anyway. Whatever will be will be. I'm mentally exhausted by it all and my husband just keeps adding to it. I think maybe I belong in the looney bin? > >> > It turns out that I have acinetobacter baumannii...a very rare > bacteria that is usually contracted while a patient in the > hospital. Oddly enough, I stopped working prior to this junk > emerging on my skin. Most recently there has been an increase in > reports of this bacteria among military members serving in Iraq. > Hmmm....I'm wondering if I got it via mail? Not on purpose, but > obviously from mail I have received from Iraq. The transmission of > germs is a peculiar thing, but intriguing to someone like me. There > is no way to know with certainty where it came from, but I won't > dismiss any possibilities at this point. > > As for the "baumannii" part, that means it's a very difficult > strain to successfully treat as it is highly resistant to abx.> > Honestly, after having this type of infection for over a year, > it's a wonder that I'm still alive. > > I believe I belong in the hospital on IV abx because its spread > too far to be conquered with oral meds (think Sue). So here I sit > at 2100 at the after hours care waiting to be seen and hoping for an > admission into the hospital to get resolution. However, I'm sure > that won't happen for me. It would make too much sense....Yep, > nothing like managed healthcare at its finest moment...T is is only > another example of how it works for the patient! What I wouldn't > give to be free of it once more!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I was hoping they would have a bed for me too...but as it turns out my hopes were met with resistance and ignorance. Typical of managed care....have I told anyone lately how much I despise managed healthcare? No, the husband was not there, he's a federal agent now. Actually, we're both Desert Storm Vets (yes, this Princess with her long blonde hair and perfectly manicured nails). Christene axony01@...> wrote:>> Christene,> > I hope they have found a bed for you and have you on> antibiotics already! . . . With your knowledge, I know> you won't get the bum's rush! . . . > > Was this hubby a soldier in Iraq? . . . Colleen's> hubby had a problem when he got back . . . He left> her.> > We'll be praying for you!> > Hugs and prayers,> > Rogene> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Christene, Has the doctor started you on ANYTHING? . . . Surely you're not supposed to manage this stuff by yourself! . . . If the doctor isn't helping, I'd suggest at least trying Oil of Oregano or raw, crushed, fresh garlic. . .. Neither may be the entire solution, but they would at least do something to quash the bacteria that's making you so sick. I know natural treatments are a leap for many whose careers have been mainstream medicine for years . . . But . . . after the implant experience, one learns to question everything. IMHO, if something doesn't hold the possiblity of harming me, I'll try it! . . . So many things HAVE worked, it's given me the courage to try more! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Christene, hang on!! You're the strong one here, not your husband. If you're sane enough to think you belong in a looney bin, you don't belong in a looney bin!!! I know it's hard to care when everything sucks, but your suffering is not all in vain, one day you will be ok again. Right now you're in the pits, but you will claw your way back to the top. Sis > > > > > > It turns out that I have acinetobacter baumannii...a very rare > > bacteria that is usually contracted while a patient in the > > hospital. Oddly enough, I stopped working prior to this junk > > emerging on my skin. Most recently there has been an increase in > > reports of this bacteria among military members serving in Iraq. > > Hmmm....I'm wondering if I got it via mail? Not on purpose, but > > obviously from mail I have received from Iraq. The transmission of > > germs is a peculiar thing, but intriguing to someone like me. There > > is no way to know with certainty where it came from, but I won't > > dismiss any possibilities at this point. > > > As for the " baumannii " part, that means it's a very difficult > > strain to successfully treat as it is highly resistant to abx. > > > Honestly, after having this type of infection for over a year, > > it's a wonder that I'm still alive. > > > I believe I belong in the hospital on IV abx because its spread > > too far to be conquered with oral meds (think Sue). So here I sit > > at 2100 at the after hours care waiting to be seen and hoping for an > > admission into the hospital to get resolution. However, I'm sure > > that won't happen for me. It would make too much sense....Yep, > > nothing like managed healthcare at its finest moment...T is is only > > another example of how it works for the patient! What I wouldn't > > give to be free of it once more! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Kristie, Dr. G has told us to use kyodophilus (others please mention what he has your kids on) because it contains ONLY bacteria which SHOULD be found in the GI tract anyway. Evidently some probiotics contain bacteria that would not normally be found there and can therefore throw a child way off. Caroline > From: aaron2kristie <aaron2kristie@...> > Reply-< > > Date: Mon, 30 Oct 2006 09:00:05 +0000 > < > > Subject: BACTERIA > > To help aid in bacteria overgrowth, do you guys use specific > probiotics? I am using one that has 18 billion. Other parents have > recommended a product called VSL#3 which contains 450 billion. What is > your opinion? > > Kristie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 My son has been on Kyodophilous for years and I'm wondering if it need to be changed. Anyone with experience with this? Thanks, Jerri Caroline Glover wrote: > Kristie, > > Dr. G has told us to use kyodophilus (others please mention what he has your > kids on) because it contains ONLY bacteria which SHOULD be found in the GI > tract anyway. Evidently some probiotics contain bacteria that would not > normally be found there and can therefore throw a child way off. > > Caroline > > > >> From: aaron2kristie <aaron2kristie@...> >> Reply-< > >> Date: Mon, 30 Oct 2006 09:00:05 +0000 >> < > >> Subject: BACTERIA >> >> To help aid in bacteria overgrowth, do you guys use specific >> probiotics? I am using one that has 18 billion. Other parents have >> recommended a product called VSL#3 which contains 450 billion. What is >> your opinion? >> >> Kristie >> > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Yes Dr G has always told us kyodophilus or a staright acidophilus. I switched him from kyo to a straight acidophilus earlier this year and I feel he has better stool consistency now. > > Kristie, > > > > Dr. G has told us to use kyodophilus (others please mention what he has your > > kids on) because it contains ONLY bacteria which SHOULD be found in the GI > > tract anyway. Evidently some probiotics contain bacteria that would not > > normally be found there and can therefore throw a child way off. > > > > Caroline > > > > > > > >> From: aaron2kristie <aaron2kristie@...> > >> Reply-< > > >> Date: Mon, 30 Oct 2006 09:00:05 +0000 > >> < > > >> Subject: BACTERIA > >> > >> To help aid in bacteria overgrowth, do you guys use specific > >> probiotics? I am using one that has 18 billion. Other parents have > >> recommended a product called VSL#3 which contains 450 billion. What is > >> your opinion? > >> > >> Kristie > >> > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Thanks, I think you gave me a link to a product you bought. I still have the link so I'm going to try it! Jerri meljackmom wrote: > Yes Dr G has always told us kyodophilus or a staright acidophilus. > > I switched him from kyo to a straight acidophilus earlier this year > and I feel he has better stool consistency now. > > > > >> >>> Kristie, >>> >>> Dr. G has told us to use kyodophilus (others please mention what >>> > he has your > >>> kids on) because it contains ONLY bacteria which SHOULD be found >>> > in the GI > >>> tract anyway. Evidently some probiotics contain bacteria that >>> > would not > >>> normally be found there and can therefore throw a child way off. >>> >>> Caroline >>> >>> >>> >>> >>>> From: aaron2kristie <aaron2kristie@...> >>>> Reply-< > >>>> Date: Mon, 30 Oct 2006 09:00:05 +0000 >>>> < > >>>> Subject: BACTERIA >>>> >>>> To help aid in bacteria overgrowth, do you guys use specific >>>> probiotics? I am using one that has 18 billion. Other parents >>>> > have > >>>> recommended a product called VSL#3 which contains 450 billion. >>>> > What is > >>>> your opinion? >>>> >>>> Kristie >>>> >>>> >>> >>> >>> Responsibility for the content of this message lies strictly with >>> the original author(s), and is not necessarily endorsed by or the >>> opinion of the Research Institute, the Parent >>> > Coalition, or the list moderator(s). > >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Thanks Ted, I think the speaker is brilliant and I enjoyed your website contribution. Sometimes we have gone the whole gamut of CML for a while, and we can touch on something else that is connected to some or all of us and this is one of them. Antibiotic resistance is worse than some of the things we worry so much about, so I am always interested in learning more about this subject. They offered this statement at a website: " Don't add to the drug resistance problem, experts say. Don't pressure your doctors for antibiotics if they say they aren't needed, use the ones you are given properly, and try to avoid infections by washing your hands. " More below: http://tinyurl.com/39k6sft http://tinyurl.com/2ddcjfr FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 > Could someone please refresh my memory as to what you use for bacteria, > olive leaf extract or colloidial silver. I used OLE. Dana Quote Link to comment Share on other sites More sharing options...
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