Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Slow Dance - PLEASE READ!!!!! This will touch your > >>heartstrings.. > >>. > >> > >>This poem was written by a terminally ill young girl in a New York > >>Hospital. > >> > >> > >>It was sent by a medical doctor - Make sure to read what is in the > >>closing > >> > >>statement AFTER THE POEM. > >> > >> > >> > >> > >> > >>SLOW DANCE > >> > >> > >> > >>Have you ever watched kids > >> > >> > >> > >>On a merry-go-round? > >> > >> > >> > >>Or listened to the rain > >> > >> > >> > >>Slapping on the ground? > >> > >> > >> > >>Ever followed a butterfly's erratic flight? > >> > >> > >> > >>Or gazed at the sun into the fading night? > >> > >> > >> > >>You better slow down. > >> > >> > >> > >>Don't dance so fast. > >> > >> > >> > >>Time is short. > >> > >> > >> > >>The music won't last. > >> > >> > >> > >>Do you run through each day > >> > >> > >> > >>On the fly? > >> > >> > >> > >>When you ask How are you? > >> > >> > >> > >>Do you hear the reply? > >> > >> > >> > >>When the day is done > >> > >> > >> > >>Do you lie in your bed > >> > >> > >> > >>With the next hundred chores > >> > >> > >> > >>Running through your head? > >> > >> > >> > >>You'd better slow down > >> > >> > >> > >>Don't dance so fast. > >> > >> > >> > >>Time is short. > >> > >> > >> > >>The music won't last. > >> > >> > >> > >>Ever told your child, > >> > >> > >> > >>We'll do it tomorrow? > >> > >> > >> > >>And in your haste, > >> > >> > >> > >>Not see his sorrow? > >> > >> > >> > >>Ever lost touch, > >> > >> > >> > >>Let a good friendship die > >> > >> > >> > >>Cause you never had time > >> > >> > >> > >>To call and say, " hi " > >> > >> > >> > >>You'd better slow down. > >> > >> > >> > >>Don't dance so fast. > >> > >> > >> > >>Time is short. > >> > >> > >> > >>The music won't last. > >> > >> > >> > >>When you run so fast to get somewhere > >> > >> > >> > >>You miss half the fun of getting there. > >> > >> > >> > >>When you worry and hurry through your day, > >> > >> > >> > >>It is like an unopened gift.... > >> > >> > >> > >>Thrown away. > >> > >> > >> > >>Life is not a race. > >> > >> > >> > >>Do take it slower > >> > >> > >> > >>Hear the music > >> > >> > >> > >>Before the song is over. > >> > >> > >> > >>PLEASE FORWARD THIS TO HELP THIS LITTLE GIRL. > >> > >> > >> > >>ALL FORWARDED E-MAILS ARE TRACKED TO OBTAIN THE TOTAL COUNT. > >> > >> > >> > >>Dear All: > >> > >> > >> > >>PLEASE pass this mail on to everybody you know. > >> > >> > >> > >>It is the request of a special little girl who > >> > >> > >> > >>will soon leave this world as she has cancer. > >> > >> > >> > >>Please send this to everyone you know or don't know. > >> > >> > >> > >>This little girl has 6 months left to live, and as her dying wish, > >> > >> > >> > >>She wanted to send a letter telling everyone to live > >> > >> > >> > >>their life to the fullest, since she never will. > >> > >> > >> > >>She'll never make it to prom, graduate from high > >> > >> > >> > >>school, or get married and have a family of her own. > >> > >> > >> > >>By you sending this to as many people as possible, > >> > >> > >> > >>you can give her and her family a little hope, > >> > >> > >> > >>because with every name that this is sent to, > >> > >> > >> > >>The American Cancer Society > >> > >> > >> > >>will donate 3 cents per name to her treatment and recovery plan. > >> > >> > >> > >>One guy sent this to 500 people! So I know that we can > >> > >> > >> > >>send it to at least 5 or 6. > >> > >> > >> > >>Just think it could be you one day. It's not even > >> > >> > >> > >>your money, just your time! > >> > >> > >> > >>PLEASE PASS ON AS A LAST REQUEST > >> > >> > >> > >>Dr. Dennis Shields, Professor > >> > >> > >> > >>Department of Developmental and Molecular Biology > >> > >> > >> > >>1300 Park Avenue > >> > >> > >> > >>Bronx, New York 10461 > > > > > >Barbara J. DuClos > >Revenue Manager > >University of Wisconsin-Whitewater > >(4l4) 472-4947 > >(4l4) 472-3901 (Fax) > >email:duclsob@... > > > > > > Mavis K. Salske > Student Account Collector > Student Accounts Hyer 110 > 472-1909 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 " Welcome to Holland " I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this: When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo . The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, " Welcome to Holland. " " Holland?!? " you say. " What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy. " But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say " Yes, that's where I was supposed to go. That's what I had planned. " And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. - Pearl Kingsley ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Ironically, my 8 year old son with autism was born in Leiderdorp. It is a beautiful place. All the best, Jill --- kavita mallik <kavita_d_mallik@...> wrote: > " Welcome to Holland " > > I am often asked to describe the experience of > raising a child with a disability - to try to help > people who have not shared that unique experience to > understand it, to imagine how it would feel. It's > like this: > When you're going to have a baby, it's like planning > a fabulous vacation trip - to Italy. You buy a bunch > of guide books and make your wonderful plans. The > Coliseum. The Michelangelo . The gondolas in > Venice. You may learn some handy phrases in Italian. > It's all very exciting. > > After months of eager anticipation, the day finally > arrives. You pack your bags and off you go. Several > hours later, the plane lands. The stewardess comes > in and says, " Welcome to Holland. " > > " Holland?!? " you say. " What do you mean Holland?? I > signed up for Italy! I'm supposed to be in Italy. > All my life I've dreamed of going to Italy. " > > But there's been a change in the flight plan. > They've landed in Holland and there you must stay. > > The important thing is that they haven't taken you > to a horrible, disgusting, filthy place, full of > pestilence, famine and disease. It's just a > different place. > > So you must go out and buy new guide books. And you > must learn a whole new language. And you will meet a > whole new group of people you would never have met. > > It's just a different place. It's slower-paced than > Italy, less flashy than Italy. But after you've been > there for a while and you catch your breath, you > look around.... and you begin to notice that Holland > has windmills....and Holland has tulips. Holland > even has Rembrandts. > > But everyone you know is busy coming and going from > Italy... and they're all bragging about what a > wonderful time they had there. And for the rest of > your life, you will say " Yes, that's where I was > supposed to go. That's what I had planned. " And the > pain of that will never, ever, ever, ever go away... > because the loss of that dream is a very, very > significant loss. > > But... if you spend your life mourning the fact that > you didn't get to Italy, you may never be free to > enjoy the very special, the very lovely things ... > about Holland. > > - Pearl Kingsley > > > > ________________________________________________________________________________\ ____ > Pinpoint customers who are looking for what you > sell. > http://searchmarketing./ > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Choose the right car based on your needs. Check out Autos new Car Finder tool. http://autos./carfinder/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Great analogy, the only thing is it can take years or even decades to process the loss of Italy, then acknowledge your in Holland, then start to see the blessing in Holland, then accept there may actually be beauty in Holland, then, if your lucky, be thankful your path led you to Holland instead of Italy. I hate to be the pessimist, but I sure miss Italy even with Holland being beautiful. >From: Jill Boyer <sjillboyer@...> >Date: 2007/08/12 Sun PM 04:25:25 CDT > >Subject: Re: Poem > >Ironically, my 8 year old son with autism was born in >Leiderdorp. It is a beautiful place. > >All the best, > >Jill >--- kavita mallik <kavita_d_mallik@...> wrote: > >> " Welcome to Holland " >> >> I am often asked to describe the experience of >> raising a child with a disability - to try to help >> people who have not shared that unique experience to >> understand it, to imagine how it would feel. It's >> like this: >> When you're going to have a baby, it's like planning >> a fabulous vacation trip - to Italy. You buy a bunch >> of guide books and make your wonderful plans. The >> Coliseum. The Michelangelo . The gondolas in >> Venice. You may learn some handy phrases in Italian. >> It's all very exciting. >> >> After months of eager anticipation, the day finally >> arrives. You pack your bags and off you go. Several >> hours later, the plane lands. The stewardess comes >> in and says, " Welcome to Holland. " >> >> " Holland?!? " you say. " What do you mean Holland?? I >> signed up for Italy! I'm supposed to be in Italy. >> All my life I've dreamed of going to Italy. " >> >> But there's been a change in the flight plan. >> They've landed in Holland and there you must stay. >> >> The important thing is that they haven't taken you >> to a horrible, disgusting, filthy place, full of >> pestilence, famine and disease. It's just a >> different place. >> >> So you must go out and buy new guide books. And you >> must learn a whole new language. And you will meet a >> whole new group of people you would never have met. >> >> It's just a different place. It's slower-paced than >> Italy, less flashy than Italy. But after you've been >> there for a while and you catch your breath, you >> look around.... and you begin to notice that Holland >> has windmills....and Holland has tulips. Holland >> even has Rembrandts. >> >> But everyone you know is busy coming and going from >> Italy... and they're all bragging about what a >> wonderful time they had there. And for the rest of >> your life, you will say " Yes, that's where I was >> supposed to go. That's what I had planned. " And the >> pain of that will never, ever, ever, ever go away... >> because the loss of that dream is a very, very >> significant loss. >> >> But... if you spend your life mourning the fact that >> you didn't get to Italy, you may never be free to >> enjoy the very special, the very lovely things ... >> about Holland. >> >> - Pearl Kingsley >> >> >> >> >__________________________________________________________ >> Pinpoint customers who are looking for what you >> sell. >> http://searchmarketing./ >> >> [Non-text portions of this message have been >> removed] >> >> > >__________________________________________________________ >Choose the right car based on your needs. Check out Autos new Car Finder tool. >http://autos./carfinder/ > Sincerely, Juarez, M.S., Marriage and Family Therapist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 I know. Very well said. Sigh. - Jill ________________________________________________________________________________\ ____ Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Poems with sentiment in coping and coming around to appreciating misdirected paths stir up a lot of different feelings, ya know? It seems to me that the majority of us respond with a hint of rage (like " I'll fight to the death to get to Italy " lol). So I tend not to touch on them much. What I am most honest about - for the sake of the other people I know have felt like me - are how very bad and often ugly my feelings were re autism. Boy was I pissed, and I felt like there was no way I could endure this life, no way I was equipped to handle it. I didn't even initiate parenthood with any level of certainty that I was going to be equipped for it! My childhood and early adult history was so that I couldn't fathom having " neurotypical children " in the first place, so I started out scared ****less. And EVEN then, little did I know. I will always have to be honest to other moms suffering difficult parenting experiences that I began this route with a great deal of very very undescribably bad feelings. I am one of the fortunate ones who are not seeing the full horror of my expectations realized, as my child has certainly improved significantly, and even then, I wait for the other shoe to drop when puberty hits and he begins to suffer the teenage years the way I did. God willing, maybe help will be around the corner and it won't be as terrible for him as it was for me. God willing, maybe I'll be able to help him through it with a better understanding than was given me. Now that my son is 8 (and 6), looking back at the terror and desperation I felt when he was 2, I can see that I have come a very very long way. I have been absolutely forced out of necessity to cope and understand aspects of my life that needed changing before I could function as at minimal expectations. It was die or find a way to live. Without this level of suffering and having to find a way to deal with it, I may never have undergone some of the changes I'm experiencing these days that I believe will give me a much richer life in the future. But I can't say that if every day was still like it was when he was 1 - 4 years old, that I could say that. I really don't know. I'm not in those shoes right now. I think the most important wish I have for all of us families - the one thing I want to offer anyone suffering like we do - is the gift of hope. Love you all- --- and Sal Juarez <jamieandsal@...> wrote: > Great analogy, the only thing is it can take years > or even decades to process the loss of Italy, then > acknowledge your in Holland, then start to see the > blessing in Holland, then accept there may actually > be beauty in Holland, then, if your lucky, be > thankful your path led you to Holland instead of > Italy. I hate to be the pessimist, but I sure miss > Italy even with Holland being beautiful. > > > >From: Jill Boyer <sjillboyer@...> > >Date: 2007/08/12 Sun PM 04:25:25 CDT > > > >Subject: Re: Poem > > > > >Ironically, my 8 year old son with autism was born > in > >Leiderdorp. It is a beautiful place. > > > >All the best, > > > >Jill > >--- kavita mallik <kavita_d_mallik@...> > wrote: > > > >> " Welcome to Holland " > >> > >> I am often asked to describe the experience of > >> raising a child with a disability - to try to > help > >> people who have not shared that unique experience > to > >> understand it, to imagine how it would feel. It's > >> like this: > >> When you're going to have a baby, it's like > planning > >> a fabulous vacation trip - to Italy. You buy a > bunch > >> of guide books and make your wonderful plans. The > >> Coliseum. The Michelangelo . The gondolas in > >> Venice. You may learn some handy phrases in > Italian. > >> It's all very exciting. > >> > >> After months of eager anticipation, the day > finally > >> arrives. You pack your bags and off you go. > Several > >> hours later, the plane lands. The stewardess > comes > >> in and says, " Welcome to Holland. " > >> > >> " Holland?!? " you say. " What do you mean Holland?? > I > >> signed up for Italy! I'm supposed to be in Italy. > >> All my life I've dreamed of going to Italy. " > >> > >> But there's been a change in the flight plan. > >> They've landed in Holland and there you must > stay. > >> > >> The important thing is that they haven't taken > you > >> to a horrible, disgusting, filthy place, full of > >> pestilence, famine and disease. It's just a > >> different place. > >> > >> So you must go out and buy new guide books. And > you > >> must learn a whole new language. And you will > meet a > >> whole new group of people you would never have > met. > >> > >> It's just a different place. It's slower-paced > than > >> Italy, less flashy than Italy. But after you've > been > >> there for a while and you catch your breath, you > >> look around.... and you begin to notice that > Holland > >> has windmills....and Holland has tulips. Holland > >> even has Rembrandts. > >> > >> But everyone you know is busy coming and going > from > >> Italy... and they're all bragging about what a > >> wonderful time they had there. And for the rest > of > >> your life, you will say " Yes, that's where I was > >> supposed to go. That's what I had planned. " And > the > >> pain of that will never, ever, ever, ever go > away... > >> because the loss of that dream is a very, very > >> significant loss. > >> > >> But... if you spend your life mourning the fact > that > >> you didn't get to Italy, you may never be free to > >> enjoy the very special, the very lovely things > ... > >> about Holland. > >> > >> - Pearl Kingsley > >> > >> > >> > >> > >__________________________________________________________ > >> Pinpoint customers who are looking for what you > >> sell. > >> http://searchmarketing./ > >> > >> [Non-text portions of this message have been > >> removed] > >> > >> > > > >__________________________________________________________ > >Choose the right car based on your needs. Check > out Autos new Car Finder tool. > >http://autos./carfinder/ > > > > > Sincerely, > Juarez, M.S., Marriage and Family Therapist > ________________________________________________________________________________\ ____ Got a little couch potato? Check out fun summer activities for kids. http://search./search?fr=oni_on_mail & p=summer+activities+for+kids & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Many years ago, was in a OT with a few autistic children about 7-8. Two of them spend the 1.5 hour runing, around and screaming. The finially stopped when they really tired. They lay on floor outof breath. One of them had a 5 year old sister, she try to talk to his elder brother, and make him feel better, he was lying there, catching his breath, and stir into blank. You look at their parents, you know they have to take care of their son for reast fo their live. you look at the little girl, she will have to take care of her brother rest of her life too. I know you want to make you and others feel better about situation, but autism is not a wrong destination at vacation. Even with HFA, or asperger kids, after a very hard day in school, you hear him tell you that you do not know how hard he had..., he just got bullied again after many days, monthes, years. It is not a short vacation. He want to be friend with some body, he does not know how, he want to live like others, do thing others do, he can not, he is smart, but can not achive as much as he can, This is not short vacation. Take care, Jin > > > >> " Welcome to Holland " > >> > >> I am often asked to describe the experience of > >> raising a child with a disability - to try to help > >> people who have not shared that unique experience to > >> understand it, to imagine how it would feel. It's > >> like this: > >> When you're going to have a baby, it's like planning > >> a fabulous vacation trip - to Italy. You buy a bunch > >> of guide books and make your wonderful plans. The > >> Coliseum. The Michelangelo . The gondolas in > >> Venice. You may learn some handy phrases in Italian. > >> It's all very exciting. > >> > >> After months of eager anticipation, the day finally > >> arrives. You pack your bags and off you go. Several > >> hours later, the plane lands. The stewardess comes > >> in and says, " Welcome to Holland. " > >> > >> " Holland?!? " you say. " What do you mean Holland?? I > >> signed up for Italy! I'm supposed to be in Italy. > >> All my life I've dreamed of going to Italy. " > >> > >> But there's been a change in the flight plan. > >> They've landed in Holland and there you must stay. > >> > >> The important thing is that they haven't taken you > >> to a horrible, disgusting, filthy place, full of > >> pestilence, famine and disease. It's just a > >> different place. > >> > >> So you must go out and buy new guide books. And you > >> must learn a whole new language. And you will meet a > >> whole new group of people you would never have met. > >> > >> It's just a different place. It's slower-paced than > >> Italy, less flashy than Italy. But after you've been > >> there for a while and you catch your breath, you > >> look around.... and you begin to notice that Holland > >> has windmills....and Holland has tulips. Holland > >> even has Rembrandts. > >> > >> But everyone you know is busy coming and going from > >> Italy... and they're all bragging about what a > >> wonderful time they had there. And for the rest of > >> your life, you will say " Yes, that's where I was > >> supposed to go. That's what I had planned. " And the > >> pain of that will never, ever, ever, ever go away... > >> because the loss of that dream is a very, very > >> significant loss. > >> > >> But... if you spend your life mourning the fact that > >> you didn't get to Italy, you may never be free to > >> enjoy the very special, the very lovely things ... > >> about Holland. > >> > >> - Pearl Kingsley > >> > >> > >> > >> > >__________________________________________________________ > >> Pinpoint customers who are looking for what you > >> sell. > >> http://searchmarketing./ > >> > >> [Non-text portions of this message have been > >> removed] > >> > >> > > > >__________________________________________________________ > >Choose the right car based on your needs. Check out Autos new Car Finder tool. > >http://autos./carfinder/ > > > > > Sincerely, > Juarez, M.S., Marriage and Family Therapist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Sorry didn't mean to offend anyone, it is no easy path but we can hope and learn to enjoy some of landmarks on our difficult journey. rgds Kavita Re: Poem Many years ago, was in a OT with a few autistic children about 7-8. Two of them spend the 1.5 hour runing, around and screaming. The finially stopped when they really tired. They lay on floor outof breath. One of them had a 5 year old sister, she try to talk to his elder brother, and make him feel better, he was lying there, catching his breath, and stir into blank. You look at their parents, you know they have to take care of their son for reast fo their live. you look at the little girl, she will have to take care of her brother rest of her life too. I know you want to make you and others feel better about situation, but autism is not a wrong destination at vacation. Even with HFA, or asperger kids, after a very hard day in school, you hear him tell you that you do not know how hard he had..., he just got bullied again after many days, monthes, years. It is not a short vacation. He want to be friend with some body, he does not know how, he want to live like others, do thing others do, he can not, he is smart, but can not achive as much as he can, This is not short vacation. Take care, Jin > > > >> " Welcome to Holland " > >> > >> I am often asked to describe the experience of > >> raising a child with a disability - to try to help > >> people who have not shared that unique experience to > >> understand it, to imagine how it would feel. It's > >> like this: > >> When you're going to have a baby, it's like planning > >> a fabulous vacation trip - to Italy. You buy a bunch > >> of guide books and make your wonderful plans. The > >> Coliseum. The Michelangelo . The gondolas in > >> Venice. You may learn some handy phrases in Italian. > >> It's all very exciting. > >> > >> After months of eager anticipation, the day finally > >> arrives. You pack your bags and off you go. Several > >> hours later, the plane lands. The stewardess comes > >> in and says, " Welcome to Holland. " > >> > >> " Holland?!? " you say. " What do you mean Holland?? I > >> signed up for Italy! I'm supposed to be in Italy. > >> All my life I've dreamed of going to Italy. " > >> > >> But there's been a change in the flight plan. > >> They've landed in Holland and there you must stay. > >> > >> The important thing is that they haven't taken you > >> to a horrible, disgusting, filthy place, full of > >> pestilence, famine and disease. It's just a > >> different place. > >> > >> So you must go out and buy new guide books. And you > >> must learn a whole new language. And you will meet a > >> whole new group of people you would never have met. > >> > >> It's just a different place. It's slower-paced than > >> Italy, less flashy than Italy. But after you've been > >> there for a while and you catch your breath, you > >> look around.... and you begin to notice that Holland > >> has windmills... .and Holland has tulips. Holland > >> even has Rembrandts. > >> > >> But everyone you know is busy coming and going from > >> Italy... and they're all bragging about what a > >> wonderful time they had there. And for the rest of > >> your life, you will say " Yes, that's where I was > >> supposed to go. That's what I had planned. " And the > >> pain of that will never, ever, ever, ever go away... > >> because the loss of that dream is a very, very > >> significant loss. > >> > >> But... if you spend your life mourning the fact that > >> you didn't get to Italy, you may never be free to > >> enjoy the very special, the very lovely things ... > >> about Holland. > >> > >> - Pearl Kingsley > >> > >> > >> > >> > >___________ _________ _________ _________ _________ _________ __ > >> Pinpoint customers who are looking for what you > >> sell. > >> http://searchmarket ing.. com/ > >> > >> [Non-text portions of this message have been > >> removed] > >> > >> > > > >___________ _________ _________ _________ _________ _________ __ > >Choose the right car based on your needs. Check out Autos new Car Finder tool. > >http://autos. / carfinder/ > > > > > Sincerely, > Juarez, M.S., Marriage and Family Therapist > ________________________________________________________________________________\ ____ Choose the right car based on your needs. Check out Autos new Car Finder tool. http://autos./carfinder/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 No, sweetie - don't worry. We do certainly tend to get upset and rail back at the expression of sentiments, though. I see it every time. Many of us even get upset when someone is rejoicing how thrilled someone is with a progress in a child, because the pain they are feeling is so intense that seeing hearing of 'it' happening for others but not for their child is downright devastating. And of course these people would never wish that a child wouldn't progress .... it is quite simply excruciating to them where they are at that time and what they anticipate for the future. I was furious once at my MIL for sending me a happy happy poem about autism once - I just boiled, and when she asked me if I liked it, I just about flipped out on her - a side of me she had never seen before. It was cathartic, though, began a long conversation that brought us closer, and she stopped judging me for my worries and instead just helped me by allowing me to share feelings without trying to fix them for me. But honestly, I think that is quite healthy for us - to be able to be angry somewhere where we know many others feel the same anger, frustration, etc. It's not that easy to voice our despair with parents who don't have the experience. If something posted brings that out of us, it's not necessarily a bad thing and doesn't mean you shouldn't post it. It can bring one person hope, and the other people that it doesn't touch can be touched by the fact that someone else shares the painful angry feelings that they do, and they don't feel so alone. I do certainly have the goal to make peace in myself, though, to have the ability to find spiritual comfort. I've made tons of progress in that area! But catch me at a hormonal time, and I just may go off. lol. I'll tell you - I celebrate things w/true joy that many people would perhaps not notice. I take more fascination in the miracle of human development and the complexity of our bodies. Even as I seek answers, I am amazed by the things I learn. (Not that I wouldn't enjoy some blissful ignorance sometimes - but still.) Counting our blessings is critical to our health, though. When I was ordered to start doing so, I couldn't think of anything. I couldn't thank for food, because I was too sick from anxiety to eat it. I couldn't thank for shelter, because I would have given anything I had to help my child. I struggled so hard to find gratitude and couldn't, and when I decided to just write the fact I was glad the sun came up, I even argued that I wished it hadn't! But the one thing I had inherent in me was the HOPE that there was an answer, a possilibility for improvement, something that if I just kept searching for it- could help. So I just counted blessings that at least I must have optimism if I have worked so hard to look for answers. I'm still in for some heartache. I do finally see some rewards and some joys that I didn't expect, too. And dear God - what if they actually find a solution??!! --- kavita mallik <kavita_d_mallik@...> wrote: > Sorry didn't mean to offend anyone, it is no easy > path but we can hope and learn to enjoy some of > landmarks on our difficult journey. rgds Kavita > > ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Travel. http://travel./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 WHAT A WISE WOMAN YOU ARE :-) <thecolemans4@...> wrote: No, sweetie - don't worry. We do certainly tend to get upset and rail back at the expression of sentiments, though. I see it every time. Many of us even get upset when someone is rejoicing how thrilled someone is with a progress in a child, because the pain they are feeling is so intense that seeing hearing of 'it' happening for others but not for their child is downright devastating. And of course these people would never wish that a child wouldn't progress .... it is quite simply excruciating to them where they are at that time and what they anticipate for the future. I was furious once at my MIL for sending me a happy happy poem about autism once - I just boiled, and when she asked me if I liked it, I just about flipped out on her - a side of me she had never seen before. It was cathartic, though, began a long conversation that brought us closer, and she stopped judging me for my worries and instead just helped me by allowing me to share feelings without trying to fix them for me. But honestly, I think that is quite healthy for us - to be able to be angry somewhere where we know many others feel the same anger, frustration, etc. It's not that easy to voice our despair with parents who don't have the experience. If something posted brings that out of us, it's not necessarily a bad thing and doesn't mean you shouldn't post it. It can bring one person hope, and the other people that it doesn't touch can be touched by the fact that someone else shares the painful angry feelings that they do, and they don't feel so alone. I do certainly have the goal to make peace in myself, though, to have the ability to find spiritual comfort. I've made tons of progress in that area! But catch me at a hormonal time, and I just may go off. lol. I'll tell you - I celebrate things w/true joy that many people would perhaps not notice. I take more fascination in the miracle of human development and the complexity of our bodies. Even as I seek answers, I am amazed by the things I learn. (Not that I wouldn't enjoy some blissful ignorance sometimes - but still.) Counting our blessings is critical to our health, though. When I was ordered to start doing so, I couldn't think of anything. I couldn't thank for food, because I was too sick from anxiety to eat it. I couldn't thank for shelter, because I would have given anything I had to help my child. I struggled so hard to find gratitude and couldn't, and when I decided to just write the fact I was glad the sun came up, I even argued that I wished it hadn't! But the one thing I had inherent in me was the HOPE that there was an answer, a possilibility for improvement, something that if I just kept searching for it- could help. So I just counted blessings that at least I must have optimism if I have worked so hard to look for answers. I'm still in for some heartache. I do finally see some rewards and some joys that I didn't expect, too. And dear God - what if they actually find a solution??!! --- kavita mallik <kavita_d_mallik@...> wrote: > Sorry didn't mean to offend anyone, it is no easy > path but we can hope and learn to enjoy some of > landmarks on our difficult journey. rgds Kavita > > __________________________________________________________ Need a vacation? Get great deals to amazing places on Travel. http://travel./ Chantal --------------------------------- For ideas on reducing your carbon footprint visit For Good this month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 Hi group, Lottie said I should pass this on, it is to celebrate my son in law's father's 90th birthday this week! a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Lottie Duthu <lotajam@...> Subject: Re: poem " ROBERTA DOYLE " <rcd1929@...> Date: Friday, October 29, 2010, 3:29 PM THAT IS HILLARIOUS send it to the group, Bobby ----- Original Message ----- From: ROBERTA DOYLE Lottie Duthu ; Bobby Doyle Sent: Friday, October 29, 2010 2:23 PM A poem for Mickey's 90 yr. old Dad: REMEMBER WHEN A BEER OR TWO TOOK CARE OF ALL OUR WOES? TODAY WE HAVE TO TAKE A PILL, FOR OUR HEAD, OUR BUTT, OUR TOES WE EVEN HAVE TO TAKE A PILL TO REMEMBER TO TAKE THE PILL DON'T YOU WONDER HOW THESE PILLS, KNOW HOW TO CURE OUR ILLS? AND WHEN YOU HAVE TO TAKE SO MANY, HOW DO THEY REALLY KNOW WHICH ONE IS FOR THE HEAD, AND WHICH ONE IS FOR THE TOES? SOMEWHERE DOWN INSIDE OUR GUT, IS THERE A TRAFFIC COP WHO TELLS THE WHITE ONE WHERE TO GO, AND THE PINK ON WHERE TO STOP? WHO GIVES THEM ALL DIRECTIONS, WHO KEEPS THEM IN THE LOOP WHICH ONE TAKES THE PAIN AWAY,WHICH ONE MAKES YOU POOP? AND DID YOU KNOW THERE IS A TINY PILL, IT'S NAME IS " MARINOL " IT'S MEDICAL MARIJUANA BUT IN OHIO IT'S ILLEGAL. BUT I HEAR IT'S BETTER THAN ALL THE PILLS , IF YOU PUT THEM ALTOGETHER, YOUR ACHES AND PAINS WILL FLY AWAY, ON A MULTI COLORED FEATHER. DO NOT DESPAIR,IT'S NOT THE END, I HAVE A FRIEND OR TWO WITH A SMILE AND A BUCK OR TWO, I'LL GET A " JOINT " FOR YOU......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Bobby, I'm glad you posted the poem. This man must have always been the life of the party, and he still sounds like he can still raise a glass or two. He [rpbably attended a few Irish wakes, also. LOL We went to my oldest son's last night, also named Bobby (the one with TB & aspergillius). He hinted when I saw him earlier this week that it was time for my clam chowder. He lost 60# and is slowing gaining his strength back (if the disease doesn't kill you, the medicine will). Last night I saw him eat 3 servings of clam chowder. I also made the fixin's for egg rolls and Jimmy bought the wraps and sat there and made about 50. We all ate our fill and the rest he put in vacuum bags so they could munch whenever they wanted. My DIL brought out her best wine in the prettiest bottle and we all tipped our glasses and enjoyed out meal together. Nothing better than a good German white wine for me. Hail to Mickey's dad and bless Mickey with all his health problems and to you for keeping us laughing. We don't have to go to an Irish wake, Bobby always has something funny to say and that is how she looks at life and that is the way it is with her when she has said something. LOL Carpe Diem, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Thanks Lottie for the nice words. I went to the 90th party for Mr, Zemba, who's name is Mike. There were 70 invitations sent out, and I believe they all came! Mike has a sweet tooth, so they took him to lunch first, then had a dessert party for him. A bakery could not have had more carb filled goodies then were on those tables. I did not stay for all the goodies or the gift opening, or the reading of the poem, had to get home and put a chicken in for dinner. But it was a gala event, and I guess after 90 years you deserve a celebration, especially with a huge family. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Lottie Duthu <lotajam@...> Subject: [ ] Poem " CML " < > Date: Saturday, October 30, 2010, 8:20 PM  Bobby, I'm glad you posted the poem. This man must have always been the life of the party, and he still sounds like he can still raise a glass or two. He [rpbably attended a few Irish wakes, also. LOL We went to my oldest son's last night, also named Bobby (the one with TB & aspergillius). He hinted when I saw him earlier this week that it was time for my clam chowder. He lost 60# and is slowing gaining his strength back (if the disease doesn't kill you, the medicine will). Last night I saw him eat 3 servings of clam chowder. I also made the fixin's for egg rolls and Jimmy bought the wraps and sat there and made about 50. We all ate our fill and the rest he put in vacuum bags so they could munch whenever they wanted. My DIL brought out her best wine in the prettiest bottle and we all tipped our glasses and enjoyed out meal together. Nothing better than a good German white wine for me. Hail to Mickey's dad and bless Mickey with all his health problems and to you for keeping us laughing. We don't have to go to an Irish wake, Bobby always has something funny to say and that is how she looks at life and that is the way it is with her when she has said something. LOL Carpe Diem, Lottie Quote Link to comment Share on other sites More sharing options...
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