Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Hello all, I was looking at the news and reading your email's, about donors. Sometimes I am placed in the apheresis room where stem cells are collected for transplants. I wonder at the gift these people give to their family or friends  and in fact strangers. Just to give stem cells, it takes a very long time. They are hooked up to a machine that removes the blood and after collecting the stem cells, the blood is returned to the donor.  In Bone marrow it is not something everyone is willing to do, after they know the procedure. http://www.livingdonorsonline.org/marrow/marrow5.htm. There is an injection that a donor must receive which increases the marrow.  It takes a fair amount of time to be a bone marrow donor, I hear that is was around 30 to 50 hours (except close family ). I have sympathy for those who have second thoughts about making a donation, It must weigh heavy on them, knowing that the patient may in fact die.  In my case, I get platelet apheresis which to me is a wonder why these people are willing to give up their time to donate. For me to get single donor platelets twice weekly, a group of people, I do not know them, they are just wonderful people, spending  2 to 4 hours every 28 days, to allow me to live for another week. I gave blood while in the service, but you could not call me a willing donor, it just meant we got a half day off. So before I judge those who backed out of the donor program, I would have to walk a mile in their shoes. SkipD dx 33 years ago ________________________________ From: Ted Fontenot <mortycausa@...> Sent: Fri, November 12, 2010 10:53:28 AM Subject: Re: [ ] Re: donors refused-  Perhaps we should keep in mind that everyone who agrees to be tested as a possible donor is assured that they can change their mind at anytime.  They, at the beginning, only agree to be tested.  They don't make a unqualified commitment to donate.  It's not like those potential donors commit themselves irrevocably at the beginning and nothing can change that.  That doesn't mean we don't have a right to our opinion on what people should do (especially people close to the afflicted).  We certainly are entitled to  judge them (on non-contractual grounds) for their ultimate refusal, it's just to say that we maybe don't know everything about the process and about the individual circs. (and character) of the potential donor.  And we may want to watch being too harsh--that can turn people off from even considering it. > > > > > > > > > > > > > > > Hi. > > > > I did hear the story. I believe one match was the > > > sister who didn't want to > > > > donate her bone marrow. I believe the news said that > > > the sister didn't want > > > > to feel any pain. I don't know how the sister can live > > > with her decision.It > > > > is really sad. Anyway, that is the one that I heard > > > about. I believe that > > > > the sister was a perfect match. I don't recall about 4 > > > other donors. The > > > > news channel focused on the sister. Is there another > > > case like that in New > > > > York? > > > > Sandi > > > > > > > > > > > > > > > > > > > > > > Did anyone else see the report on the news about > > > the FOUR donors who > > > > > refused to donate bone marrow to a woman on Long > > > Island, New York who > > > > then died? > > > > > This poor woman had only four matches in the > > > whole registry then all > > > > > refused to go through the procedure. Her family > > > is devastated. I missed > > > > the > > > > > beginning of the story and I don't know what type > > > of leukemia she had. > > > > Did > > > > > anyone else hear it? What type did she have? > > > > > in NY > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Blunt question: Is it painful? I mean, is it like having a 20-hour bone marrow biopsy? Just curious. On Fri, Nov 12, 2010 at 12:13 PM, Skip Duffie <skipd_2002@...> wrote: > > > Hello all, > I was looking at the news and reading your email's, about donors. > Sometimes I > am placed in the > apheresis room where stem cells are collected for transplants. I wonder at > the > gift these people give to their family or friends and in fact strangers. > Just > to give stem cells, it takes a very long time. They are hooked up to a > machine > that removes the blood and after collecting the stem cells, the blood is > returned to the donor. In Bone marrow it is not something everyone is > willing > to do, after they know the > procedure. http://www.livingdonorsonline.org/marrow/marrow5.htm. There is > an > injection that a donor must receive which increases the marrow. It takes a > fair > amount of time to be a bone marrow donor, I hear that is was around 30 to > 50 > hours (except close family ). I have sympathy for those who have second > thoughts about making a donation, It must weigh heavy on them, knowing > that the > patient may in fact die. In my case, I get platelet apheresis which to me > is a > wonder why these people are willing to give up their time to donate. For me > to > get single donor platelets twice weekly, a group of people, I do not know > them, > they are just wonderful people, spending 2 to 4 hours every 28 days, to > allow > me to live for another week. I gave blood while in the service, but you > could > not call me a willing donor, it just meant we got a half day off. So > before I > judge those who backed out of the donor program, I would have to walk a > mile in > their shoes. > > SkipD > dx 33 years ago > > ________________________________ > From: Ted Fontenot <mortycausa@... <mortycausa%40>> > <%40> > Sent: Fri, November 12, 2010 10:53:28 AM > Subject: Re: [ ] Re: donors refused- > > > Perhaps we should keep in mind that everyone who agrees to be tested as a > possible donor is assured that they can change their mind at anytime. > They, at > the beginning, only agree to be tested. They don't make a unqualified > commitment to donate. It's not like those potential donors commit > themselves > irrevocably at the beginning and nothing can change that. That doesn't > mean we > don't have a right to our opinion on what people should do (especially > people > close to the afflicted). We certainly are entitled to judge them (on > non-contractual grounds) for their ultimate refusal, it's just to say that > we > maybe don't know everything about the process and about the individual > circs. > (and character) of the potential donor. And we may want to watch being too > > harsh--that can turn people off from even considering it. > > > > > > > > > > > > > > > > > > > > > > > > > Hi. > > > > > > I did hear the story. I believe one match was the > > > > > sister who didn't want to > > > > > > donate her bone marrow. I believe the news said that > > > > > the sister didn't want > > > > > > to feel any pain. I don't know how the sister can live > > > > > with her decision.It > > > > > > is really sad. Anyway, that is the one that I heard > > > > > about. I believe that > > > > > > the sister was a perfect match. I don't recall about 4 > > > > > other donors. The > > > > > > news channel focused on the sister. Is there another > > > > > case like that in New > > > > > > York? > > > > > > Sandi > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Did anyone else see the report on the news about > > > > > the FOUR donors who > > > > > > > refused to donate bone marrow to a woman on Long > > > > > Island, New York who > > > > > > then died? > > > > > > > This poor woman had only four matches in the > > > > > whole registry then all > > > > > > > refused to go through the procedure. Her family > > > > > is devastated. I missed > > > > > > the > > > > > > > beginning of the story and I don't know what type > > > > > of leukemia she had. > > > > > > Did > > > > > > > anyone else hear it? What type did she have? > > > > > > > in NY > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 That's a very human, understanding way to look at it, especially coming from someone with your history. I may feel sorry if I see someone drowning in the middle of the ocean, and if I have a line and a life preserver, I will certainly throw it to them, but when it comes to jumping in and actually rescuing him, that's something else. Â That has a lot to do with special considerations that implicate things about me (my health, age, risks--I too have a family I'm responsible for--know-how, experience, etc.)--let's not simplify this into a black hat/white hat thing. Â > > > > > > > > > > > > > > > Hi. > > > > I did hear the story. I believe one match was the > > > sister who didn't want to > > > > donate her bone marrow. I believe the news said that > > > the sister didn't want > > > > to feel any pain. I don't know how the sister can live > > > with her decision.It > > > > is really sad. Anyway, that is the one that I heard > > > about. I believe that > > > > the sister was a perfect match. I don't recall about 4 > > > other donors. The > > > > news channel focused on the sister. Is there another > > > case like that in New > > > > York? > > > > Sandi > > > > > > > > > > > > > > > > > > > > > > Did anyone else see the report on the news about > > > the FOUR donors who > > > > > refused to donate bone marrow to a woman on Long > > > Island, New York who > > > > then died? > > > > > This poor woman had only four matches in the > > > whole registry then all > > > > > refused to go through the procedure. Her family > > > is devastated. I missed > > > > the > > > > > beginning of the story and I don't know what type > > > of leukemia she had. > > > > Did > > > > > anyone else hear it? What type did she have? > > > > > in NY > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 I understand it is quite uncomfortable, some people say its real bad, others say not to bad.. Guess one would have to find out for themselves/ SkipD Re: [ ] Re: donors refused- > > > Perhaps we should keep in mind that everyone who agrees to be tested as a > possible donor is assured that they can change their mind at anytime. > They, at > the beginning, only agree to be tested. They don't make a unqualified > commitment to donate. It's not like those potential donors commit > themselves > irrevocably at the beginning and nothing can change that. That doesn't > mean we > don't have a right to our opinion on what people should do (especially > people > close to the afflicted). We certainly are entitled to judge them (on > non-contractual grounds) for their ultimate refusal, it's just to say that > we > maybe don't know everything about the process and about the individual > circs. > (and character) of the potential donor. And we may want to watch being too > > harsh--that can turn people off from even considering it. > > > > > > > > > > > > > > > > > > > > > > > > > Hi. > > > > > > I did hear the story. I believe one match was the > > > > > sister who didn't want to > > > > > > donate her bone marrow. I believe the news said that > > > > > the sister didn't want > > > > > > to feel any pain. I don't know how the sister can live > > > > > with her decision.It > > > > > > is really sad. Anyway, that is the one that I heard > > > > > about. I believe that > > > > > > the sister was a perfect match. I don't recall about 4 > > > > > other donors. The > > > > > > news channel focused on the sister. Is there another > > > > > case like that in New > > > > > > York? > > > > > > Sandi > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Did anyone else see the report on the news about > > > > > the FOUR donors who > > > > > > > refused to donate bone marrow to a woman on Long > > > > > Island, New York who > > > > > > then died? > > > > > > > This poor woman had only four matches in the > > > > > whole registry then all > > > > > > > refused to go through the procedure. Her family > > > > > is devastated. I missed > > > > > > the > > > > > > > beginning of the story and I don't know what type > > > > > of leukemia she had. > > > > > > Did > > > > > > > anyone else hear it? What type did she have? > > > > > > > in NY > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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