Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 Bobby, what did Zavie say, it is not on the list anymore. Tracey must have thought it was offensive and taken it down. Can you send me a copy? xoxox Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Hi Zavie, My 2 cents ;-). Last time I saw Dr Druker, I had a BMB because he likes one at the 5 year mark. If everything stays stable, he says NO MORE BMB - EVER. (he said is I REALLY wanted, we could do one at 10 years " for giggles " - like THAT " S going to happen) And you have a deeper response than I do! Leah > > > > Zavie: > > > > That is a habit that I would like to see you break. A BMB opens you up for the chance of infection, plus most CML experts do not require them even annually anymore. > > > > But I know you already know all that, us a bunch more good stuff. So physician heal thyself:). > > > > Sincerely, > > > > Matt Maynor > ___________________________ > > Hi Zavie, > I agree with Matt 100%. This is totally unnecessary and I don't believe that any of the cml specialists would have you doing bmbs.....or annually at most! I think Dr. Druker might be doing them every 2-3 years when someone is stable with a good response. > > And this is an invasive procedure....and there are risks with it (infection, nerve irritation or damage, etc). I think maybe you have become addicted, not to the procedure, but getting the good report back???? I am really surprised that your oncologist has been going along with the every 3 months. You could also think of this as a waste of medical resources (someone pays for it). > > Give your poor pelvis a break. > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi All, Just on the BMB/BMA topic, being part of the STI571 113 trial, for the past ten years, it was a protocol for the first eight years then the Novartis testing was shifted to just PB. I continued to have the BMA done annually and it was in that annual aspirate in 2010, that myeloma was diagnosed. I'm not saying that it would not have been diagnosed without the BMA but, it has been detected earlier than it would if just left to PB analysis, as I have continued to have PB analysis done six monthly as part of the 113 trial protocol and no myeloma markers were detected in the mid year PB results. So, to put it perspective, no myeloma markers in the bone marrow in Sept 2009, no myeloma markers in the PB six month later, myeloma markers in the BMA in Oct 2010. I am pleased that I had continued to use this process as part of my continuing CML management regime; because, it has allowed for early detection of the myeloma and as we are all aware - early detection is a major benefit for future prognosis. BMA are an uncomfortable process, but if done in an appropriate setting are no more likely to result in infection or injure than any other invasive medical procedure, and I'm sure we all have enough of them done. Since being diagnosed with CML in Oct 2000, I have had 26 BMB/BMA procedures done and other than it becoming more difficult for the physician, because of bone scaring, to get through the bone, there has been no infection or injury at the sites. I don't know how the procedure is done in other facilities, but where I am treated at St 's hospital in Sydney, Australian; the procedure is done using a local anaesthetic and nitrous oxide gas support, so the procedure is quite bearable, if somewhat inconvenient and moderately painful. With Regards Beau _____ I am using the Free version of SPAMfighter <http://www.spamfighter.com/len> .. SPAMfighter has removed 164 of my spam emails to date. Do you have a slow PC? <http://www.spamfighter.com/SLOW-PCfighter?cid=sigen> Try free scan! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi and all who posted, I'm not sure what I was thinking when I posted my history about BMBs. I haven't had a BMB in about 2 years and get PCRs done every 6 months. My last negotiation with my hemo was to do PCRs every 4 months and a BMB every year or two. The frequency came from me, not her. I'm well aware of what the experts suggest but I guess the more frequent testing is/was a security blanket for me. My last PCR was a 4.3 log reduction done October 2010. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 4.3 log reduction Oct/10 ________________________________ From: [mailto: ] On Behalf Of hey00nanc Sent: February-14-11 1:09 PM Subject: [ ] Zavie > > Zavie: > > That is a habit that I would like to see you break. A BMB opens you up for the chance of infection, plus most CML experts do not require them even annually anymore. > > But I know you already know all that, us a bunch more good stuff. So physician heal thyself:). > > Sincerely, > > Matt Maynor ___________________________ Hi Zavie, I agree with Matt 100%. This is totally unnecessary and I don't believe that any of the cml specialists would have you doing bmbs.....or annually at most! I think Dr. Druker might be doing them every 2-3 years when someone is stable with a good response. And this is an invasive procedure....and there are risks with it (infection, nerve irritation or damage, etc). I think maybe you have become addicted, not to the procedure, but getting the good report back???? I am really surprised that your oncologist has been going along with the every 3 months. You could also think of this as a waste of medical resources (someone pays for it). Give your poor pelvis a break. C. Quote Link to comment Share on other sites More sharing options...
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