Re: CLL information request

[Guest guest]

Hi ,

CLL is a very different form of leukemia than CML. It's not unusual at all to

monitor a patient with CLL and withhold treatment until the counts get very

high. Then the patient is usually given a short course of chemotherapy and is

back in a wait and see pattern with no treatment which could last several months

and even years before another round of treatment is required. Gleevec does not

work for CLL.

If you search around, I'm sure you'll be able to find a support group somewhere.

They seem to exist for every ailment known to man.

Take care,

Tracey

>

> Does anyone have information on CLL treatment and if they are using gleevec

too. I have a friend of mine her husband was dxd w CLL few month ago. His white

blood cell is 17000 His Onc Dr did not give him any treatment and told her he

will monitor him. Her husband now has been in hospital sick w pneumonia. I asked

her to ask for second opinion. Does any one has information on CLL. I planning

to check intertnet and find if there is a CLL group she can benefit from. Thanks

>

> T

> Sent from my Verizon Wireless BlackBerry

>

[Guest guest]

Hi ,

Here are a couple of resources. I've been on the CLL Topics site before. The

other I have not fully explored.

CLLtopics.org - based in Sedona, Arizona

http://blog.preparedpatientforum.org/blog/tag/cll-leukemia/

Also, our friend Schorr, a CLL Survivor himself, is the head of Patient

Power www.patientpower.info. He has a wealth of information on the site for CLL

as well as many other cancers, etc.

Hope this helps,

Greg

>

> Does anyone have information on CLL treatment and if they are using gleevec

too. I have a friend of mine her husband was dxd w CLL few month ago. His white

blood cell is 17000 His Onc Dr did not give him any treatment and told her he

will monitor him. Her husband now has been in hospital sick w pneumonia. I asked

her to ask for second opinion. Does any one has information on CLL. I planning

to check intertnet and find if there is a CLL group she can benefit from. Thanks

>

> T

> Sent from my Verizon Wireless BlackBerry

>