danger numbers? MF and CML

[Guest guest]

I have not written before. I am member of MF support group since 98. I have

not been able to really look at CML since dx 08. I have double dx.

Question: So when you have the BCL Abl test, what is considered high?

dangerous? deadly? How high have you gone? I know normal people would be " o " .

I took Gleevec for last two years and have given up on it because of side

effects not being tolerable, but hometown doc is pushing me to do something! I

do take hydrea because of high white count with MF and having spleen removed. I

would appreciate your thoughts.

Annette Livingston, 67 yrs old MF and CML double dx, HYDREA 500.