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Hi Avis, not sure what you mean by someone being tossed by AARP.  I must have

missed a post.  I did not think anyone could lose AARP coverage, unless of

course they did not pay their bill.  I always thought once you had coverage

with them, they were " stuck " with you until you quit or died.  I am curious, if

your cousin Dona has so many severe side effects, has she asked her doctor 

about changing drugs?  Is Dr. Talpaz still her doctor?

He is my doctor, I go to the U of Mich once a month.  Please post more often 

it's nice to hear from everyone , no one cares if you repeat things others have

posted.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: avisallen@... <avisallen@...>

Subject: [ ] Ejected by insurance company

Date: Friday, October 22, 2010, 11:21 PM

 

Hi, to all -

Did I understand correctly that Jeannie was tossed by her AARP

supplemental?

Someone wrote not allowed, but I am not

sure that particular Obama item has become law.

My cousin Dona is very worried about this. She has many problems besides

the

CML. In the nine months she has been

living in an apt. in Minneapolis (her home

is Tucson, she has had several $10,000.

Medicare bills submitted.

For old timers, Dona has had all the side

effects since her starting of Gleevec in

April 2001. Clinical trial at MDACC with

Dr. Talpaz.

Sometimes I am tempted to comment on

posts in this group, but most of them would be repeats. Her sight about

gone,

tinnitus so bad, pain, recurrent C-diff

(and yes, it was Clindamycin). Hair loss,

lots of different rashes(almost sacs size and color of large red grapes

between her

fingers).

Could someone comment on whether I

misread the statement of losing

supplemental insurance??

Thanks to all. I have read every single

email since 2001 and feel I know you all.

Avis (Hertz nurtle)

Dona Dunn

Zavie's list #141

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These insurances can really confuse you. The best thing to do is to call AARP

if you do not understand the statement they sent. Your talking about Medicare

with AARP as secondary insurance. I am not on Medicare yet, but I go through

these things with my mothers insurance. She gets very confused with it all, and

has paid things she did not have to pay. I have to make phone calls to

straighten things out sometimes. Its always better to talk to someone in

person.

I also do not think they would drop you, unless they did not get a payment.

Hope you get it all taken care of.

A.

>

> Hi, to all -

> Did I understand correctly that Jeannie was tossed by her AARP

> supplemental?

> Someone wrote not allowed, but I am not

> sure that particular Obama item has become law.

> My cousin Dona is very worried about this. She has many problems besides

> the

> CML. In the nine months she has been

> living in an apt. in Minneapolis (her home

> is Tucson, she has had several $10,000.

> Medicare bills submitted.

> For old timers, Dona has had all the side

> effects since her starting of Gleevec in

> April 2001. Clinical trial at MDACC with

> Dr. Talpaz.

> Sometimes I am tempted to comment on

> posts in this group, but most of them would be repeats. Her sight about

> gone,

> tinnitus so bad, pain, recurrent C-diff

> (and yes, it was Clindamycin). Hair loss,

> lots of different rashes(almost sacs size and color of large red grapes

> between her

> fingers).

> Could someone comment on whether I

> misread the statement of losing

> supplemental insurance??

> Thanks to all. I have read every single

> email since 2001 and feel I know you all.

> Avis (Hertz nurtle)

> Dona Dunn

> Zavie's list #141

>

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Hi Avis,

If I remember correctly, it was her Part D drug plan that was dropped and she

has to find another plan. I believe a second person said she was dropped

also.

I'm sorry that Dona is having such a struggle. I will keep her in my thoughts.

What a wonderful support you have been for her.

Ellen

>

> Hi, to all -

> Did I understand correctly that Jeannie was tossed by her AARP

> supplemental?

> Someone wrote not allowed, but I am not

> sure that particular Obama item has become law.

> My cousin Dona is very worried about this. She has many problems besides

> the

> CML. In the nine months she has been

> living in an apt. in Minneapolis (her home

> is Tucson, she has had several $10,000.

> Medicare bills submitted.

> For old timers, Dona has had all the side

> effects since her starting of Gleevec in

> April 2001. Clinical trial at MDACC with

> Dr. Talpaz.

> Sometimes I am tempted to comment on

> posts in this group, but most of them would be repeats. Her sight about

> gone,

> tinnitus so bad, pain, recurrent C-diff

> (and yes, it was Clindamycin). Hair loss,

> lots of different rashes(almost sacs size and color of large red grapes

> between her

> fingers).

> Could someone comment on whether I

> misread the statement of losing

> supplemental insurance??

> Thanks to all. I have read every single

> email since 2001 and feel I know you all.

> Avis (Hertz nurtle)

> Dona Dunn

> Zavie's list #141

>

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Do you know why her drug D plan was dropped?  I didn't know they could do that.

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: ets618 <ets618@...>

Subject: [ ] Re: Ejected by insurance company

Date: Saturday, October 23, 2010, 9:29 AM

 

Hi Avis,

If I remember correctly, it was her Part D drug plan that was dropped and she

has to find another plan. I believe a second person said she was dropped

also.

I'm sorry that Dona is having such a struggle. I will keep her in my thoughts.

What a wonderful support you have been for her.

Ellen

>

> Hi, to all -

> Did I understand correctly that Jeannie was tossed by her AARP

> supplemental?

> Someone wrote not allowed, but I am not

> sure that particular Obama item has become law.

> My cousin Dona is very worried about this. She has many problems besides

> the

> CML. In the nine months she has been

> living in an apt. in Minneapolis (her home

> is Tucson, she has had several $10,000.

> Medicare bills submitted.

> For old timers, Dona has had all the side

> effects since her starting of Gleevec in

> April 2001. Clinical trial at MDACC with

> Dr. Talpaz.

> Sometimes I am tempted to comment on

> posts in this group, but most of them would be repeats. Her sight about

> gone,

> tinnitus so bad, pain, recurrent C-diff

> (and yes, it was Clindamycin). Hair loss,

> lots of different rashes(almost sacs size and color of large red grapes

> between her

> fingers).

> Could someone comment on whether I

> misread the statement of losing

> supplemental insurance??

> Thanks to all. I have read every single

> email since 2001 and feel I know you all.

> Avis (Hertz nurtle)

> Dona Dunn

> Zavie's list #141

>

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Hi Bobby,

I think she said the insurance company she had chosen was dropping the drug plan

itself.

I'm guessing you're correct that they can't drop individuals.

>

> >

>

> > Hi, to all -

>

> > Did I understand correctly that Jeannie was tossed by her AARP

>

> > supplemental?

>

> > Someone wrote not allowed, but I am not

>

> > sure that particular Obama item has become law.

>

> > My cousin Dona is very worried about this. She has many problems besides

>

> > the

>

> > CML. In the nine months she has been

>

> > living in an apt. in Minneapolis (her home

>

> > is Tucson, she has had several $10,000.

>

> > Medicare bills submitted.

>

> > For old timers, Dona has had all the side

>

> > effects since her starting of Gleevec in

>

> > April 2001. Clinical trial at MDACC with

>

> > Dr. Talpaz.

>

> > Sometimes I am tempted to comment on

>

> > posts in this group, but most of them would be repeats. Her sight about

>

> > gone,

>

> > tinnitus so bad, pain, recurrent C-diff

>

> > (and yes, it was Clindamycin). Hair loss,

>

> > lots of different rashes(almost sacs size and color of large red grapes

>

> > between her

>

> > fingers).

>

> > Could someone comment on whether I

>

> > misread the statement of losing

>

> > supplemental insurance??

>

> > Thanks to all. I have read every single

>

> > email since 2001 and feel I know you all.

>

> > Avis (Hertz nurtle)

>

> > Dona Dunn

>

> > Zavie's list #141

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Hi Avis

I think you're mixing up the groups. Jeannie isn't part of this group, she's on

the Google Hope group.

Tracey

>

> Hi, to all -

> Did I understand correctly that Jeannie was tossed by her AARP

> supplemental?

> Someone wrote not allowed, but I am not

> sure that particular Obama item has become law.

> My cousin Dona is very worried about this. She has many problems besides

> the

> CML. In the nine months she has been

> living in an apt. in Minneapolis (her home

> is Tucson, she has had several $10,000.

> Medicare bills submitted.

> For old timers, Dona has had all the side

> effects since her starting of Gleevec in

> April 2001. Clinical trial at MDACC with

> Dr. Talpaz.

> Sometimes I am tempted to comment on

> posts in this group, but most of them would be repeats. Her sight about

> gone,

> tinnitus so bad, pain, recurrent C-diff

> (and yes, it was Clindamycin). Hair loss,

> lots of different rashes(almost sacs size and color of large red grapes

> between her

> fingers).

> Could someone comment on whether I

> misread the statement of losing

> supplemental insurance??

> Thanks to all. I have read every single

> email since 2001 and feel I know you all.

> Avis (Hertz nurtle)

> Dona Dunn

> Zavie's list #141

>

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