hi all

January 23, 2003

This may work better for all interested:

http://www.paains.org.uk/

> An open invitation for you to view our uk-based website/forum at

> http://www.paains.org.uk.

> We have many sections covering autism, related disorders,

> diagnosis,education and more. A 24 hour live news feed will keep

you

> updated about autism related news from around the world. Please

pop

> by and say hello.

March 11, 2003

Hi Judi,

I think some REST is what the doctor is going to prescribe ASAP for you.

With all the maternity and NICU activity, Grandma's health has suffered.

PLEASE take care of yourself and we will keep sending prayers your way for

God to watch over you all and give you all the strength needed to face these

trying days!

Love and angel hugs,

Debs

March 11, 2003

(((((((((((((Judi)))))))))))....I'm sorry you've been so sick. I hope

you get some rest today. I''m glad you've got your Guardian Angels, Ron

& Rev. Fred, to encourage you to take care.

I'm so glad the 3 sweet-peas are doing well. Em was so excited to see

their pictures. Please know you all are in my heart & in my prayers.

Love Always....

Tess

March 11, 2003

It's a shame that you are so sick, Judi! Please don't worry about

catching up with the mail.

Glad to hear that all is well with those babies.

Hope you can get the rest you need and feel better soon,

[ ] Hi All

> Hi there,

>

> I know I have missed a lot of posts, and I just don't have the energy

> to sit and read them all, sorry. Have been awfully sick since Sunday

> with fever, vomiting, dizzy (moreso than normal!) and headache.

> Wouldn't have been so bad if all my joints weren't on fire too! It

> finally let up last night, so I am at work today but Ron made me

> promise to come home at noon, and I'm sure Rev. Fred will make sure I

> do. Didn't get to see the babies, but they are doing well. Allan

> may come home tomorrow. Becky still on a feeding tube, as she falls

> asleep and won't finish the bottle, but her lungs have cleared up.

> Randy is eating like a horse, no feeding tube, but he has to stay

> until he is 4 lb., which probably won't be long. TJ just wants " his

> babies " home! I'll try and catch up with everything tonight, but

> just know I am thinking about you all.

>

> Love you guys,

> Judi the Mess

March 11, 2003

yes judy please get some rest. i too have been feeling under the weather. i

am going to a double dr appt today!! rheumi and dermi!! i am so tired and

sore. i know it will take me some time to get back into the swing of things,

i haven't worked at all in 2 years. but i could hardly move last night, make

dinner and i was in bed at 8:30. i definatly work at the zoo!!! they had a

funeral yesterday, 2 kids under 5, and the dr and his wife got into a fight.

then she was late to pick up the other children from school and in the rush

the little one rebelled a little and ended up getting a spanking. i worked

over 4 hours. left a note reminding her about my appts today and that i

planned on being back at 9 on thursday. i just hope i can do this and i am

not wasting their time. kathy in il

March 12, 2003

Hi Kathy,

When are you seeing ? I see her at 4.

Hugs,

Alan

> yes judy please get some rest. i too have been feeling under the

weather. i

> am going to a double dr appt today!! rheumi and dermi!! i am so

tired and

> sore. i know it will take me some time to get back into the swing

of things,

> i haven't worked at all in 2 years. but i could hardly move last

night, make

> dinner and i was in bed at 8:30. i definatly work at the zoo!!!

they had a

> funeral yesterday, 2 kids under 5, and the dr and his wife got into

a fight.

> then she was late to pick up the other children from school and in

the rush

> the little one rebelled a little and ended up getting a spanking. i

worked

> over 4 hours. left a note reminding her about my appts today and

that i

> planned on being back at 9 on thursday. i just hope i can do this

and i am

> not wasting their time. kathy in il

March 19, 2003

Just a short note to say hi to all, and that you are in my thoughts.

I have spent a couple of days in the hospital, I woke up Sunday

morning with a temp of 104...my husband rushed me to the ER and my

white cell count was over 18,000.....they said pnemonia again, but

the Xray was clear.....they still treated as if pnemonia....soooo

noooo enbrel again just when I was starting to feel so good.....

Sue: I have two rooms left to paint then I will be more than happy to

head your way with paint roller in hand......have to admit I am a

sloppy painter though...spend as much time cleaning up as

painting.....

Aunt Blabbie " Thanks for them kind words and I also miss those late

night chats.....it is so great to see you posting

Tess: I didnt read all the emails, just tried to catch the RE: Do

they think you have pulmonary fibrosis? I hope that is not the case,

and have my fingers crossed for you...

a: I see your back......I hope you are well and rested.....

To everyone...Sorry if I missed some big news, I had to delete as I

was over again...hope you all are having some pain free

days.....Kathi in OK

March 20, 2003

kathi, i am so sorry you are so ill. i hope the treatments start working

soon. kathy in il

March 20, 2003

I am so sorry to hear that, Kathi! I hope you are feeling much better

now.

[ ] RE: Hi all

> Just a short note to say hi to all, and that you are in my thoughts.

> I have spent a couple of days in the hospital, I woke up Sunday

> morning with a temp of 104...my husband rushed me to the ER and my

> white cell count was over 18,000.....they said pnemonia again, but

> the Xray was clear.....they still treated as if pnemonia....soooo

> noooo enbrel again just when I was starting to feel so good.....

>

> Sue: I have two rooms left to paint then I will be more than happy to

> head your way with paint roller in hand......have to admit I am a

> sloppy painter though...spend as much time cleaning up as

> painting.....

>

> Aunt Blabbie " Thanks for them kind words and I also miss those late

> night chats.....it is so great to see you posting

>

> Tess: I didnt read all the emails, just tried to catch the RE: Do

> they think you have pulmonary fibrosis? I hope that is not the case,

> and have my fingers crossed for you...

>

> a: I see your back......I hope you are well and rested.....

>

> To everyone...Sorry if I missed some big news, I had to delete as I

> was over again...hope you all are having some pain free

> days.....Kathi in OK

March 20, 2003

on 3/20/03 1:00 AM, Kathi at iamladybird@... wrote:

>...my husband rushed me to the ER and my

> white cell count was over 18,000.....

> Sue: I have two rooms left to paint then I will be more than happy to

> head your way with paint roller in hand......have to admit I am a

> sloppy painter though...spend as much time cleaning up as

> painting.....

Kathi,

Sorry that you've been so sick. Hope you are better now.

When you come to paint my house, please bring me some of those white cells,

as my count was so low that I had to stop taking Arava.

Sue

March 20, 2003

Kathi,

Sorry you¹ve been so sick Kathi. Are you feeling any better today?

I hope you feel better soon.

a

> Just a short note to say hi to all, and that you are in my thoughts.

> I have spent a couple of days in the hospital, I woke up Sunday

> morning with a temp of 104...my husband rushed me to the ER and my

> white cell count was over 18,000.....they said pnemonia again, but

> the Xray was clear.....they still treated as if pnemonia....soooo

> noooo enbrel again just when I was starting to feel so good.....

>

> Sue: I have two rooms left to paint then I will be more than happy to

> head your way with paint roller in hand......have to admit I am a

> sloppy painter though...spend as much time cleaning up as

> painting.....

>

> Aunt Blabbie " Thanks for them kind words and I also miss those late

> night chats.....it is so great to see you posting

>

> Tess: I didnt read all the emails, just tried to catch the RE: Do

> they think you have pulmonary fibrosis? I hope that is not the case,

> and have my fingers crossed for you...

>

> a: I see your back......I hope you are well and rested.....

>

> To everyone...Sorry if I missed some big news, I had to delete as I

> was over again...hope you all are having some pain free

> days.....Kathi in OK

>

March 20, 2003

on 3/20/03 10:40 PM, Kathi in OK at iamladybird@... wrote:

> Sue: You can have as many as you would like.....then I

> can get back to the enbrel.....and finish those last

> two rooms.....can I federal express them?.......

Kathi, I'll take them anyway I can get them. <grin>

Sue

March 22, 2003

hey kathi, yes i have been working for 2 weeks at my foot dr's office. trying

to help them with a billing crisis. they are about 6 mos. behind. they are in

the process of a lawsuit with the old billing company who is still accepting

payments for him. then when he gets a stack. returns them to the insurance

companies. it is a big mess. but i have to be pretty careful there. i sit in

the wrong position for too long and i end up in trouble. i may have to back

down another hour per day. but not yet.... kathy in il

March 23, 2003

no it is fun to get out and be with people again. it was nice because i have

seen this dr for almost 2 years now, so i knew everyone there. i am just

wondering how long i'll be able to keep it all up!!! my son helped with some

cleaning today. so we got alot done this weekend. i know i will be sore

tomorrow, plus we are expecting more rain. kathy in il

May 27, 2003

((((((((((((((Sweet Jan))))))))))))... prayers flying Heavenward, dear

friend.

All my love....

Tess

June 17, 2003

Hello, Colleen!

Heidi and n's baby's name is Fabien. Life IS good.

Congratulations on your son's marriage! All of that seems fairly far off

for me (I hope). My oldest is almost 19 and I hope she waits a few

years.

Best of luck for your visit to the rheumatologist tomorrow. Please let

us know what he says.

I'm glad you aren't feeling guilty about resting when you need to. Way

to go! Do mention your fatigue to your rheumatologist though.

I love DC, but I agree that, although it isn't as frantic as New York,

it is expensive and would present travel challenges.

[ ] Hi all

> I've been reading all you're posting with great interest!

Congratulations to n and Heide! Life is Good, and what is his name?

> I have had 3 MRI's last week with contrasts and a sonogram as well as

5 very large vials of blood taken. My GP is sure I have RA but the Remey

I've gone to once wanted all these tests run. I go back to that Remey

this Wed. and I have to admit I'm a little nervous. More than the pain,

I'm so aware of the fatique. One of my best friends out of state was

diagnosed with RA 3 years ago. She has 2 young children and told me how

lucky I am to have my children grown, no longer married and can

basically do what I want. I work split shifts a few days a week and I

often nap for 1 to 2 hours in the afternoon, then I'm still in bed at

night by 9:30 pm. Sure isn't like the old days. I do realize how

fortunately am to have an adjustable schedule. My youngest son was

married last weekend out of town, It was wonderful, but It has taken me

through this past weekend to not be exhausted. I slept a great deal of

the weekend away as well as read. I refuse to feel guilty about that. I

truly feel if I hadn't I would have had a very difficult time getting

through this week. Thanks for all the postings, it is sure helping me! I

have such a better understanding of RA than I would have any other way.

> By the way, I live in Northern VA, near DC and I think Wash. would be

expensive, hard to coordinate, and difficult to get around if we all met

here. I guess my vote would be for Vegas, somewhere in the middle of the

country where we could get cheaper rooms and food. Sounds like a great

idea!

> Colleen

June 18, 2003

Ha! So Heidi has little " Fab Tad " !!!

I still think of him as " Tad " ! Sometimes nic names " stick " !

Susie

wrote:

> Hello, Colleen!

>

> Heidi and n's baby's name is Fabien.

June 24, 2003

Welcome to the group. My involvement with this group is mostly reading and I

only respond occasionally. Your posting hit my heart.

I was diagnosed with RA in January and methotrexate is one of the meds I am

taking.

Like you, I felt tired and achy most of the time.

It took about 12 weeks or a little more for my body to respond to the mtx.

I am almost weaned off the prednisone ( which is great for the pain but not

good for the body long term). Bextra, Plaquenil, Fosamax, Fish oil and Folic

Acid round out my list of meds.

Currently, I feel about 90% and have been able to resume most of my pre-RA

activities.

The people in this group are great, have very big hearts and know what they

are talking about.

Sorry for the reason you are here, but glad you found the site. You'll

benefit no matter how much you get involved.

Hang in there,

You will be in my prayers,

Suzanne from PA

June 25, 2003

Hi. I was on oral mtx and it also made me sick. I also had diarrhea for

several days. I put up with it as long as I could and then quit taking it.

There is injectable mtx that is more effective and has less of the GI side

effects. What dose of mtx are you on? Are you taking folic acid with the

mtx?

If you stay with us, you'll be an expert on RA. We have many knowledgeable

people on the list that have been in your shoes. It's difficult to see

yourself being able to do less, but hopefully if you find the right meds you

will feel better and be able to do more.

a

> Hi to all... I'm new to this site and new to RA... 1st the Doctors

> said I had carpol tunnel..then one thing after another and now RA,

> I'm taking Methotrexaite, it seems to make me very tired and weak

> feeling, no energy... I take it once a week, oral, seems to make me

> sick to my stomach for the day.

> is anyone else taking this?? and what effects are you having?

> I must admit, I don't know much about RA...what to expect...I know

> that now, today, I'm sore in my joints....inflamation in my wrists,

> and top of my feet.... knees crack everytime I stand, back is sore.

> It's hard to sit long and in my job, I sit infront of a computer all

> day. hard to get down on the ground to play with my grand-daughter. I

> don't feel like I need to throw in the towel, I keep moving so I

> don't just fall apart, but there are days that I wonder if this will

> stop or get worse.

> Sorry to vent...just need someone to talk to that is going through

> this..my husband doesn't seem to understand that I can do what I did

> a few years ago...even last year

June 25, 2003

Welcome to the group!

Sorry about your RA diagnosis and that you are hurting.

I would ask your physician if you could try the injectable form of

methotrexate (MTX). Are you taking folic acid? That can help with MTX

side effects. If not, I would ask about that, too.

Come here to vent any time. That's why we're here.