Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi , No such thing as dumb questions! Deb w/ Aidan DOC 10/21 Hi all Sorry to intrude. I am kind of new here, just checking out this group and trying to learn a little bit about plagio. I am just gonna hang out and read for a while, so if i ask dumb ?'s im sorry i know NOTHING about this!Thank youFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi and welcome to the group! Do you have a baby with plagio? Tell us a little bit about your experience thus far. Dustie, mom to , DOCGrad'03 Texas > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Thank you for all the warm welcomes. Well i'm not sure lol I have a three month old baby and a three year old girl, and a 5 yr old boy. My second child always had an eye thing, which i thought was a lazy eye, but i guess i was wrong, and the baby has the same eye thing. I was talking to a WONDERFULL friend (sorry i have to tell her how much i love her all the time) and she mentioned plagio, so i decided to look into it and try and learn a little about it. I live in Oregon. Umm well i guess thats it~! once agian thanks! - In Plagiocephaly , " twothirdscracked " <twothirdscracked@y...> wrote: > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi , Welcome to the group. You certainly found the best place to learn about plagio! I also came here knowing nothing and now, nine months and 2 bands later I've even taught classes on it! Feel free to ask anything, nobody will think of any question as dumb. It's alot to learn and digest, so ask away! Be sure to check out our photo before and after section. , mom to Hannah, DOCgrad Cape Cod, Ma > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 , There are NO dumb questions here, and if there are, then I already asked them!! I came to this board back in September when my daughter was diagnosed with plagio and have found the parents here to be extremely kind, supportive and helpful. I know that you'll find the same. Please feel free to ask anything at all! & Jordyn (DOCband Grad 12/03) Dallas > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Welcome =) I don't say much in way of advice cause many know MUCH more then me-- but I sure appreciate them all! Again-- welcome to the list! Ali Re: Hi all Thank you for all the warm welcomes. Well i'm not sure lol I have a three month old baby and a three year old girl, and a 5 yr old boy. My second child always had an eye thing, which i thought was a lazy eye, but i guess i was wrong, and the baby has the same eye thing. I was talking to a WONDERFULL friend (sorry i have to tell her how much i love her all the time) and she mentioned plagio, so i decided to look into it and try and learn a little about it. I live in Oregon. Umm well i guess thats it~! once agian thanks!- In Plagiocephaly , "twothirdscracked" <twothirdscracked@y...> wrote:> Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this!> > Thank you> For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi , Welcome to the group. Three months is a great age to begin correcting plagio. Do you have any pictures you can post - we love pictures of kids. Have you discussed any of this with your ped? & na Re: Hi all Thank you for all the warm welcomes. Well i'm not sure lol I have a three month old baby and a three year old girl, and a 5 yr old boy. My second child always had an eye thing, which i thought was a lazy eye, but i guess i was wrong, and the baby has the same eye thing. I was talking to a WONDERFULL friend (sorry i have to tell her how much i love her all the time) and she mentioned plagio, so i decided to look into it and try and learn a little about it. I live in Oregon. Umm well i guess thats it~! once agian thanks!- In Plagiocephaly , "twothirdscracked" <twothirdscracked@y...> wrote:> Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this!> > Thank you> For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Never a dumb question! Ask away and welcome to the group, Natasha > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi , You're not intruding!!! Welcome to the group, we're happy to have you with us. > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hi Jill! How are you and the boys? How is Tommy doing these days? Weren't you expecting a baby? What did you have? --- In Plagiocephaly , " Jill Ramos " <ahappycamp4@n...> wrote: > Hello everyone, I've been out of the loop for about a year or so, > just wanted to drop a line! > This is Jill, Tommy's mom... I joined in 2001. > Howdy, all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hiya Jill!! How have you been? How are the twins? Tommy and ?? I'm blank on the other one's name! Hope things are well. Debbie Abby's mom MI --- In Plagiocephaly , " Jill Ramos " <ahappycamp4@n...> wrote: > Hello everyone, I've been out of the loop for about a year or so, > just wanted to drop a line! > This is Jill, Tommy's mom... I joined in 2001. > Howdy, all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 >>>Thanks to and Suze for the links to other of interest. I was about to ask what the name of the brix group was, as that really interests me. I joined both groups. I've been feeding my two cats a raw-meat-and-bone diet for nearly two years.<<< Cool!!! I noticed a couple of others have just joined as well (I'm a mod. over there). I hope you all get a lot out of it. Cheers, Tas'. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 , I hear ya on the getting tired of going to doc after doc! YUCK! It sometimes seems as if your whole life is consumed with doc offices! Sorry your blood work did not turn out well. I love your dream of winning the lottery, beaches, drinks and ahh the oh so cute cabana boy! I want my own cabana boy too! LOL Thanks for sharing how you are doing. Here's to better tomorrow's! Sincerely, Barb -- In , " Climer " <climers4@a...> wrote: > Just when you start having a nice day...your feeling a little better, the > kids are behaving (a little), you have a nice afternoon planned..... > something has to come along and just mess it up for you. I just got a call > from my internist and he told me one of my samples I sent in for occult > blood is positive. I'm afraid to ask whats next anymore, cuz I usually find > out.LOL! My blood work last week showed I was anemic and this is why he did > the occult tests, but I honestly thought it was going to come back negative. > Boy was I surprised. The only problem I have been having is alot of acid > reflux lately. So I am hoping this is where the blood is coming from. I don > t want to think of the alternative. > > Now I have to go and see a GI specialist. Can't get into see him until > November 8. I am so tired of going from one specialist to another. I wish > there was only one doctor that could take care of everything. Like in the > good ol days. And when you could pay them with chickens. LOL! > > Well thats my daily update. I hope tomorrows update is that I won the > lottery and I will be sending my emails to my groups from Cancun, while > sitting on the beach with my cabana boy fanning me and rubbing me with > suntan oil, and refilling my pina colada. Aaaaahhhhhh.....what an update > that would be;) > > > > Hugs to all > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 > > Just when you start having a nice day...your feeling a little > better, the > > kids are behaving (a little), you have a nice afternoon planned..... > > something has to come along and just mess it up for you. I just got > a call > > from my internist and he told me one of my samples I sent in for > occult > > blood is positive. I'm afraid to ask whats next anymore, cuz I > usually find > > out.LOL! My blood work last week showed I was anemic and this is > why he did > > the occult tests, but I honestly thought it was going to come back > negative. > > Boy was I surprised. The only problem I have been having is alot of > acid > > reflux lately. So I am hoping this is where the blood is coming > from. I don > > t want to think of the alternative. > > > > Now I have to go and see a GI specialist. Can't get into see him > until > > November 8. I am so tired of going from one specialist to another. > I wish > > there was only one doctor that could take care of everything. Like > in the > > good ol days. And when you could pay them with chickens. LOL! > > > > Well thats my daily update. I hope tomorrows update is that I won > the > > lottery and I will be sending my emails to my groups from Cancun, > while > > sitting on the beach with my cabana boy fanning me and rubbing > me with > > suntan oil, and refilling my pina colada. Aaaaahhhhhh.....what an > update > > that would be;) > > > > > > > > Hugs to all > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Dear , I sure understand where you're coming from! How 'bout I send you a nice big feather fan (sorry, can't help with the cabana boy) and I'll go scrounge up a couple of chickens for you? I hope things go better. Take care, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 LOL!!!!! THE CABANA BOY IS THE MOST IMPORTANT INGREDIENT!! BUT WE WILL MAKE DO WITH WHAT WE HAVE, AND HAVE A GRAND OL TIME HUGGERS SUSAN -- [ ] Re: Hi all Dear , I sure understand where you're coming from! How 'bout I send you a nice big feather fan (sorry, can't help with the cabana boy) and I'll go scrounge up a couple of chickens for you? I hope things go better. Take care, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 That's pretty much the way my RA started. I woke up with overall pain, but not intolerable. I went that day to my doc and he saw what it was even without blood tests. He knew enough to start treatments but soon referred me to a Rheumy who wasn't as aggressive as he should have been, but this is all in hindsight. Now, he's doing well for me and I can get around well enough. Dennis [ ] Hi all >I am a 38 year old female and I was diagnosed with RA in April 2005. > One January morning I woke up in HORRIBLE pain and could not move the > whole right side of my body.I felt like I had been hit by a truck and > had a major 'flu at the same time...the night before I was perfectly > fine, no problems, but since that January morning my life has > drastically changed. I went to my family doc and he thought maybe I > had tendonitis or something like that. A few weeks later I went back > to him with a very swollen hand that I could hardly move! I was then > sent to an orthopedic doc who looked at my hand and said I had > arthritis...he did an x-ray, then I was sent back to the family doc > for blood tests. The RH factor was off the chart and I had extreme > inflammation in my blood. I've been through MRI's, x-rays, cat scans, > dozens of doctor visits, and so many blood tests that I've lost count > of them! I got in to see one of the best rheumy docs in upstate South > Carolina. She was shocked to see how fast the RA took hold of me and > started me out aggresively on med therapy within a few weeks! > I am now taking 5mg. Prednisone every morning, along with Relafin 2X > a day, at least 1000mg. of Calcium a day, a One-A-Day vitamin, and > Remicade every 8 weeks, and I alternate between Darvocet and Oxycodone. > Back in April my rheumy doc had me on MTX, it made me very SICK-I > felt like I had the 'flu all day, every day- with major > nausea...because of that, I had to go on FMLA at my work. I'm feeling > much better now-but I still have to live with permanent joint damage > in my wrist and bad days when I don't feel so well. > I go for my next Remicade infusion on the 24th, and so far it works > great for me. On my last visit, two other ladies had a bad reaction to > the Remicade and threw up. I sure hope that doesn't ever happen to me, > but I'm told it's a very real possibility. Has anyone else had a bad > reaction to Remicade? Has anyone else had RA to pop up overnight? > ' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi : I worked with my hands a lot over the years, being a medical transcriber, and then working with designing and making jewelry. It was when I was making the jewelry that I began to feel aches and pains in my hands and fingers, but put it down to working too hard. One night, while reading a book, I began to notice that my bottom thumb joints were becoming very painful, and thought that I had been reading too long and the book was too heavy for me to hold like I had been (it was not that big a book, but that is what I thought). Anyway, during the night, the pain became intense in both thumbs, and then spread into my hands, so much so that I could not open the bottle of Motrin and had to ask my husband for help. By the morning, my hands looked like balloons, were red, hot, and very painful. My doctor took one look, and immediately put me on Prednisone and Motrin. After blood work came back with positive RF factor, she dx RA, and she also started Plaquenil. Yes, it happened literally overnight, and when I was dx, I was so shocked. I now know that I probably had the beginnings of RA for many years, but thought of it as aches and pains because of my work and that I was getting older. I was dx at 45. I knew I would no doubt get " arthritis " , but RA was a complete surprise, even though my grandmother had RA. I had never realized just what she had been going through for years, thinking well she is old and she had " arthritis " , until my RA dx. It's a world differrent than just " arthritis " as we all know. She was a very strong woman and never complained - well, I do lol. I am glad that your doctor is treating your RA aggressively - that is so important in getting control of the disease process. Sorry about your wrist already being damaged before dx. You obviously have a very aggressive type of RA, and you are lucky to have found a doctor who is really helping you. Best of luck - Kathe in CA --- <dakirb1@...> wrote: > I am a 38 year old female and I was diagnosed with > RA in April 2005. > One January morning I woke up in HORRIBLE pain and > could not move the > whole right side of my body.I felt like I had been > hit by a truck and > had a major 'flu at the same time...the night before > I was perfectly > fine, no problems, but since that January morning my > life has > drastically changed. I went to my family doc and he > thought maybe I > had tendonitis or something like that. A few weeks > later I went back > to him with a very swollen hand that I could hardly > move! I was then > sent to an orthopedic doc who looked at my hand and > said I had > arthritis...he did an x-ray, then I was sent back to > the family doc > for blood tests. The RH factor was off the chart and > I had extreme > inflammation in my blood. I've been through MRI's, > x-rays, cat scans, > dozens of doctor visits, and so many blood tests > that I've lost count > of them! I got in to see one of the best rheumy docs > in upstate South > Carolina. She was shocked to see how fast the RA > took hold of me and > started me out aggresively on med therapy within a > few weeks! > I am now taking 5mg. Prednisone every morning, > along with Relafin 2X > a day, at least 1000mg. of Calcium a day, a > One-A-Day vitamin, and > Remicade every 8 weeks, and I alternate between > Darvocet and Oxycodone. > Back in April my rheumy doc had me on MTX, it made > me very SICK-I > felt like I had the 'flu all day, every day- with > major > nausea...because of that, I had to go on FMLA at my > work. I'm feeling > much better now-but I still have to live with > permanent joint damage > in my wrist and bad days when I don't feel so well. > I go for my next Remicade infusion on the 24th, and > so far it works > great for me. On my last visit, two other ladies had > a bad reaction to > the Remicade and threw up. I sure hope that doesn't > ever happen to me, > but I'm told it's a very real possibility. Has > anyone else had a bad > reaction to Remicade? Has anyone else had RA to pop > up overnight? > ' > > > > > > > Kathe " To ride a horse is to borrow freedom. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Kathe, Thanks for your response, and I want to respond to What you wrote to as well as to me. Have you gotten a second opinion from a good rheumatolgist? I don't think I've gotten a good first opinion. A few years back, about 5 I think I went to see this doctor for several months trying to get my sed rate down. At first she said it was probably fibro but after being on prednisone for a few months it was still double the norm. So she replaced the diagnosis with a " ? " At that time I had much of the present complaints so I think that has been a big negative for me. So, I had some of these problems before, with an increased sed rate and it didn't respond to the treatment, so this is just business as usual. I didn't know how bad her assessment was until my primary care doc gave me a copy of what she sent him. In essence, no problem found. But she scheduled another apt. in 3 months. I don't think there is any point in it. The reason I went to a Rheumatologist this time is sort of involved. I had developed a severe cough that made me stop breathing sometimes. I went to a pulmonary doctor and he did a CatScan and quiet a bit of lab work. I have been exposed to asbestosis. The scan showed multiple nodules in both lungs but that doctor said that the cough could not be connected to that. He said the cough was part of an inflammatory process and I should go to the Rheu. He also did a lung biopsy which was negative for microbes, molds and cancer. The Scan is to be repeated in 2 weeks from now and hopefully those nodules would have cleared. His lab indicated to me and I think to him also even though he didn't say so, that I have SLE or Lupus. I took the lab results to the Rheu and she wasn't familiar with the test enough to even know what they were. The lab had suggested specific other follow up test but she did not order any of them but did one test of her own. She told me I don't have Lupus and didn't mention the SLE. I know Lupus is not that easily ruled out. I will see the pulmonary doc in 2 weeks and I will try to get information from him although I think he will be overly cautious about things outside what he specifically is doing. I also have an apt. with my primary care before that apt. so I will see what he says. I think when I left the office when he had given me a copy of her report the impact of her report had not really sunk in yet. Now it has. As to Raynaud's there is no doubt in my mind at all that I have it and rather severely. I recently met a man who does not appear to show the signs as much as mine does and he has had several amputations, toes, fingers, feet.. My oxygen level cannot usually be taken because " there is something wrong with the equipment " no matter where or how many pieces of equipment they try. After a surgical procedure with a light anesthetic Coming out of the OR the doctor that had been fighting with the O2 level told me that I had better get the Raynauds seen about. As you know it is not always the same but it takes very little to make it rear its ugly head. Sounds like the hand problem could be related to Raynaud's which is also immune based and often connected to RA; I have it, but not to the extent that you describe. I, too, have severe hip I find that interesting. Do you have any insight as to any of this? Do you think that can mean that the problems that we are having now had it's beginning then. The first money I made on my first job bought a heating pad and that was like heaven to me. This sort of thing is best treated by a rheumatologist who will know the right treatment for you. I am treated by a rheumy for my RA, OA, Raynaud's and FM, with medications prescribed for the particular disease process. She is a great doctor, and really listens to me, and tries to help. I think most if not all of my problems would fall in the rheumatology department. However recent labs have led me to believe that my problems are autoimmune at the root. That includes diabetes and that makes the diabetes be a different critter from adult type 2. Don't ever feel that your pain or your complaints are not to be taken as seriously as that of others in the group - we do not judge each other's pain. Please get a second opinion, and don't give up trying to find out what is causing your pain. There are good doctors our there who will be able to help you - keep trying. Hang in there - I am reading all the post and getting bits of information. I have written too much already and I am very tired so I will hang it up for the night. I appreciate all of you. Bvan (Betty) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi - Wow- you sound similar to what I have gone through. I had not so drastic a case as you but I started out with knee pains over the summer of 2004 and then by October, I couldnt walk on my feet. My PCP diagnosed RA but she couldnt prescrive anything but prednisone. I was waiting to get in to see a Rheumy and by Feb I was in a wheelchair. My appointment was for june and luckily my Rheumy rushed me in as an emergency case. They tried me on Plaquinil, then Embrel but neither worked. I started Remicade in May of '05 and it worked really well for me for a while. But I started having to go in every 4 weeks and by November it had stopped working for me. It worked for about 10 days and thats it. So I go for my 1st dose of Orencia tomorrow. I am really excited and hoping that will work. If not- we go to Rituxin. I am currently on 80 mgs of prednisone a day- The doc would love to admit me for prednisone IV's and pain control but the insurance wont pay for it. We did an IV two weeks ago of 250 mg of prednisone. And then I tapered down on my pred. But we went back up this weekend. So tomorrow I do another IV of 250mg and start tapering down again. Anyway- I have heard of great things with the Remicade- I think I am just an unusual case. Dont base anything on me. Good luck and welcome. Jill On 3/7/06, <dakirb1@...> wrote: > > I am a 38 year old female and I was diagnosed with RA in April 2005. > One January morning I woke up in HORRIBLE pain and could not move the > whole right side of my body.I felt like I had been hit by a truck and > had a major 'flu at the same time...the night before I was perfectly > fine, no problems, but since that January morning my life has > drastically changed. I went to my family doc and he thought maybe I > had tendonitis or something like that. A few weeks later I went back > to him with a very swollen hand that I could hardly move! I was then > sent to an orthopedic doc who looked at my hand and said I had > arthritis...he did an x-ray, then I was sent back to the family doc > for blood tests. The RH factor was off the chart and I had extreme > inflammation in my blood. I've been through MRI's, x-rays, cat scans, > dozens of doctor visits, and so many blood tests that I've lost count > of them! I got in to see one of the best rheumy docs in upstate South > Carolina. She was shocked to see how fast the RA took hold of me and > started me out aggresively on med therapy within a few weeks! > I am now taking 5mg. Prednisone every morning, along with Relafin 2X > a day, at least 1000mg. of Calcium a day, a One-A-Day vitamin, and > Remicade every 8 weeks, and I alternate between Darvocet and Oxycodone. > Back in April my rheumy doc had me on MTX, it made me very SICK-I > felt like I had the 'flu all day, every day- with major > nausea...because of that, I had to go on FMLA at my work. I'm feeling > much better now-but I still have to live with permanent joint damage > in my wrist and bad days when I don't feel so well. > I go for my next Remicade infusion on the 24th, and so far it works > great for me. On my last visit, two other ladies had a bad reaction to > the Remicade and threw up. I sure hope that doesn't ever happen to me, > but I'm told it's a very real possibility. Has anyone else had a bad > reaction to Remicade? Has anyone else had RA to pop up overnight? > ' > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Oh and FYI- In addition to the prednisone, I am taking 1mg of folic acid per day, 12.5mgof methotrexate per week, celbrex 3x per day, 150mg of Lyrica 3 x per day and am prescribed 8 Lortab 10mgs per day. I also have taken 40mg oxycontin but I cant take them and work at the same time. Jill On 3/8/06, Jill Watkins <jill.watkins@...> wrote: > > Hi - > > Wow- you sound similar to what I have gone through. > > I had not so drastic a case as you but I started out with knee pains over > the summer of 2004 and then by October, I couldnt walk on my feet. My PCP > diagnosed RA but she couldnt prescrive anything but prednisone. I was > waiting to get in to see a Rheumy and by Feb I was in a wheelchair. My > appointment was for june and luckily my Rheumy rushed me in as an emergency > case. > > They tried me on Plaquinil, then Embrel but neither worked. I started > Remicade in May of '05 and it worked really well for me for a while. But I > started having to go in every 4 weeks and by November it had stopped working > for me. It worked for about 10 days and thats it. So I go for my 1st dose of > Orencia tomorrow. I am really excited and hoping that will work. If not- we > go to Rituxin. > > I am currently on 80 mgs of prednisone a day- The doc would love to admit > me for prednisone IV's and pain control but the insurance wont pay for it. > We did an IV two weeks ago of 250 mg of prednisone. And then I tapered down > on my pred. But we went back up this weekend. So tomorrow I do another IV of > 250mg and start tapering down again. > > Anyway- I have heard of great things with the Remicade- I think I am just > an unusual case. Dont base anything on me. > > Good luck and welcome. > > Jill > > > > On 3/7/06, <dakirb1@...> wrote: > > > > I am a 38 year old female and I was diagnosed with RA in April 2005. > > One January morning I woke up in HORRIBLE pain and could not move the > > whole right side of my body.I felt like I had been hit by a truck and > > had a major 'flu at the same time...the night before I was perfectly > > fine, no problems, but since that January morning my life has > > drastically changed. I went to my family doc and he thought maybe I > > had tendonitis or something like that. A few weeks later I went back > > to him with a very swollen hand that I could hardly move! I was then > > sent to an orthopedic doc who looked at my hand and said I had > > arthritis...he did an x-ray, then I was sent back to the family doc > > for blood tests. The RH factor was off the chart and I had extreme > > inflammation in my blood. I've been through MRI's, x-rays, cat scans, > > dozens of doctor visits, and so many blood tests that I've lost count > > of them! I got in to see one of the best rheumy docs in upstate South > > Carolina. She was shocked to see how fast the RA took hold of me and > > started me out aggresively on med therapy within a few weeks! > > I am now taking 5mg. Prednisone every morning, along with Relafin 2X > > a day, at least 1000mg. of Calcium a day, a One-A-Day vitamin, and > > Remicade every 8 weeks, and I alternate between Darvocet and Oxycodone. > > Back in April my rheumy doc had me on MTX, it made me very SICK-I > > felt like I had the 'flu all day, every day- with major > > nausea...because of that, I had to go on FMLA at my work. I'm feeling > > much better now-but I still have to live with permanent joint damage > > in my wrist and bad days when I don't feel so well. > > I go for my next Remicade infusion on the 24th, and so far it works > > great for me. On my last visit, two other ladies had a bad reaction to > > the Remicade and threw up. I sure hope that doesn't ever happen to me, > > but I'm told it's a very real possibility. Has anyone else had a bad > > reaction to Remicade? Has anyone else had RA to pop up overnight? > > ' > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi All I just want to welcome all the newbies to the group I dont post often but read the posts everyday Love Joyce in the Uk Kathe Sabetzadeh <lv2ryd@...> wrote: Hi MA and welcome to the group. The people here have helped me more than they will ever know, and their personal stories have been sources of strength to me, and I really feel better for having joined. The moderators, and a, do their best to supply us with information gleened from their many hours of internet research. I have been a member now for about 4 years - just wish I had found it sooner! Wow, 25 years with the company. I am very sorry to hear that you are being demoted in your job, and it appears that you feel this is based on your having RA, and because of job time loss because of various medical reasons. That must be so hard for you to deal with - something completely out of your hands has dealt you this blow career-wise. I'm sorry your boss is not more understanding. Dale had a very good idea about contacting Americans with Disabilities - I don't think that it was right if you were demoted primarily because of your illness. There might be things you can do so check it out. I guess a positive way to look at it is that you still do have a job. So many have to stop working, or are fired, because of illness. I also have cataracts, actually my right cataract was operated on almost two yeas ago, but I still need to go through it on my left eye. My cataract surgery went very well, and I look forward to getting the other one done some time this year. You have come to the right place for support - we understand RA in a way no one who does not have it can, and I hope that you will find some good friends here, I know that I have. Hang in there - Kathe in CA --- ma42347us <mhockman@...> wrote: > Hi > I just joined today and I need some support. After > 25 years on my job > and a supervisor for 18 of them I am being demoted > and moved to > another dept. mostly because my illness has caused > me to be out of > work a lot. I kept struggling to keep up but just > couldn't always > pull it off. I have RA and just started treatment > with an RA doc who > has me on MTX. Two years ago it was iritis that led > to cataracts that > led to a vitrectomy. My boss, needless to say, > thinks I just use my > illness as an excuse for not doing my job. I feel > so depressed and > alone. I live alone and must support myself. Last > month I fell and > cut my leg so bad I almost removed a 6 inch chunk of > the leg. It was > repaired and I was on crutches and out of work for 2 > and i/2 weeks. I > guess that was the last straw for the boss. He told > me this week that > I'm out. > That's all for now. I'm just at a loss. > MA > > > > > > > > Kathe " To ride a horse is to borrow freedom. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 Thank you so much for sharing your story. I was explanted five months ago and I need the hope that a story like yours gives me. Can you tell me what your symptoms were before explant? I'm so happy for you that you healed so quickly after explant. God Bless you, Cherie > > Hi all > My name is michele and ive been reading alot of your post. > On Jan 20 2006 i had my explant surgery by DR kolb.I had implants > for 10 years im 33 .It was the best thing ive ever done.I did have > some problems but since i followed the makers diet it seem to help > alot and my girls follow it to.I have a 3 1/2 year old and a 20 > month old.They were brest feedto and show no signs of being sick. > Ive been doing the maker diet since i was pregnant with both and > praise god i did.What would they be like if i didnt .Sure someday i > go oh my what did i do to my girl it bad enough i did this to me but > i have to look at it all as a blessing .Sure i human and have > days.Through all this God has showed me so much. Today im alittle > brain fog. > I see alot of woman post about there kids and it make me really > sad. I will pass this info on.It might help someone.BUt my doctor > and Dr kolb said the makers diet has kept me and my girls > healthier.I give them primal defense(probitics),perfect food,cod > liver,goatein,super seed.They have never had > medicine ,vaccination .I dont use any chemicals in my house just > vinegar or seventh generation or earth friendly.Im a nontoxic > organic girl.Due to my chemical sensitives. I also choose to live > this way. I have friend say im extreme.I know God can heal us from > anything .But this is what i choose to do. > Where was i going with this.well I just wanted to tell you about my > surgery and how ive healed. > I was very impressed with Dr kolb she is a hard working woman.I love > her staff.dr mike is great to if any of you go to Dr kolb he can > help with angry ,pain and issue in your life,trauma, even allergys.I > had alot of angry with the implants. I dont know if any of you lady > have heard of EFT or TFT Dr mike does something like that and > naet here the websites www.emofree.com www.tftrx.com > www.naet.com I even do this on my daughter.I so recommend it. > I did alot of detoxing and eating right before surgery and after.I > agree with the sugar thing. It is a must. > One thing thathelped with healing and getting me better is i took > alot of primal defense .I did powdered so i took 6 scoops a day > before my surgery and after. The doctor said to increase it so i > would get the medicine out of my body after surgery and it would > keep me strong.I agree with that it put allthe good bacteria back in > the body so your body can fight. FYI helped with pain and infection > in my breast even helps with brain fog and Rm10 .Jordan says > FYi,Rm10 and primal defense all together help fight anything. i took > seasonal relief for alittle before my surgery and then 7 days > after.It help the immune to.I didnt take any antibitic after surgery > or anything Dr kolb told me in the medincine .I told her i knew what > to do and this is what i wanted to do. She said that was fine. Not > many Doctors will do that. My other doctor is like that to.I did > have a bad breast infection Dr kolb said but it was gone whe nshe > got in there she said i had alot of scar tissue. > other things that helped my was perfect food,digestive enzymes,i > also do raw apple cider vinegar 3 times a day.garlic best antiobitic > you can get i did alot of and parsley. > yerba mate tea i do sometime and komboocha,kefir > I never had a pain pump or took any pain meds.I used surgical tone > from Dr kolb office homeopathy helped so much and helped with > sweeling,bruising and pain. I could even lay on my side after > surgery and in 5 days after drains were out i could lay on my > stomach.I found that out when i had a appointment with Dr mike. I > must say i felt great after surgery. I think being positive helped > me to and God on my side to. I did alot of praying and asking god > for guidance when i was in georgia.I went by myself to. I needed > that time though. > > rescue remedy flower essense i used for awhile great for calming the > nerves to before surgery and i know some people dont like to wait > and at Dr kolbs you do wait.But it open doors to so much more > things.I got to talk to other woman and even met a girl that was > there thinking about getting breast implants. I met on woman i cant > get out of my mind melissa and she has a 3 yrs old. I keep wanting > to she how i can get ahold of her or give my info. She really > touched me.She was there in jan > For my scars i used a salve or calendula cream. i starting using it > right away. My scars look great. This cream is great for rashes to. > You can get burts bees or www.supersalve.com has great stuff to. > here are some great website that helped me to from Jordan rubin new > book www.biblicalhealthinstitute.com just sign in it free 7 steps > to wellness. www.mercola.com has help me alot to. > thank you all for your stories and getting the word out. > sometime i thought about yesterday.YOu all know the movie erin > brokovich well she has implants.I wonder if she know all the > problems .I was thinking i wondering if she could help us to.If she > knew. WHo knows > god bless you all michele w > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi cherie , the symptoms.Well i had problems with headaches,migraines,ear infections,stomach problems,memory problems,mood swings bad and depression. I had alot of these problems before implants. But i wasnt eating right always on the go.I also was a hairdresser and did nails to.I know alot of my problems started there.Then i got implants so i kept over loading my body. As soon as i starting eating right and taking care of my body i didnt have headaches,migraine s,ear infections,depression mood swings i felt werent as bad.The only problems i seem to have is chemical sensitive.I was sensitive to smell my whole life.But wow ive never had brain fog.I got that in june 2005 when i took on a cleaning job and even using all nontoxic cleaner.It was the people perfume and cleaning a gym that put me over the edge. Now i cant handle anything.i can smell something a mile away and seem to get affected by it. One thing my husband say dont claim chemical sensitivies.ask god to take it from you.But you know i think he hasnt taken it from me because he teaching me to trust him and teaching me so many other things to.I can still function with everyday life. Some people say i appear to not have any problems. I dont seem like i have brain fog.But come in my head .I just thought about this my brain fog has gotten worse over the last couple weeks. I really think eating organic and not eating white flour and sugar is a must to get better .Sugar is like a poison in the body and my body cant handle it at all .Even maple syrup i react to at time.So honey and stevia is my best bet.I really try to follow phase 1 in the maker diet .This diet is a lifestyle change. so are you doing to get better?Who explanted you? I know one thing by getting all toxic products out of my life like cleaners,facial products,soaps all that has helped me alot to. Ive been looking at all that has happened as a blessing .I dont think i would be eating healthly doing all the nontoxic or organic products if this didnt happen to me. I use to be so negative .I have a new outlook on life. Ive met alot of great people on my journey. Im very greatful for that. When you think a door closes another always seem to open.My grandma use to say to me shelly walk by faith not by sight.well it stuck with me im walking by faith not sight. My husband said to me after i got my implants out wow what a differents.The mood swings i dont have.I deal with things so much differently even when i have a bad day. It like im a different person all around. I hope i answered your question. My head is fuzzy today.Today i plan to eat right ,drink lots of water and get lots of fresh air and sunshine. The computer really messes with me head. ugh god bless michele From: "Cherie" <funhome2@...>Reply- To: Subject: Re: hi allDate: Sun, 26 Mar 2006 03:27:09 -0000Thank you so much for sharing your story. I was explanted five months ago and I need the hope that a story like yours gives me. Can you tell me what your symptoms were before explant? I'm so happy for you that you healed so quickly after explant. God Bless you,Cherie>> Hi all> My name is michele and ive been reading alot of your post.> On Jan 20 2006 i had my explant surgery by DR kolb.I had implants > for 10 years im 33 .It was the best thing ive ever done.I did have > some problems but since i followed the makers diet it seem to help > alot and my girls follow it to.I have a 3 1/2 year old and a 20 > month old.They were brest feedto and show no signs of being sick. > Ive been doing the maker diet since i was pregnant with both and > praise god i did.What would they be like if i didnt .Sure someday i > go oh my what did i do to my girl it bad enough i did this to me but > i have to look at it all as a blessing .Sure i human and have > days.Through all this God has showed me so much. Today im alittle > brain fog.> I see alot of woman post about there kids and it make me really > sad. I will pass this info on.It might help someone.BUt my doctor > and Dr kolb said the makers diet has kept me and my girls > healthier.I give them primal defense(probitics),perfect food,cod > liver,goatein,super seed.They have never had > medicine ,vaccination .I dont use any chemicals in my house just > vinegar or seventh generation or earth friendly.Im a nontoxic > organic girl.Due to my chemical sensitives. I also choose to live > this way. I have friend say im extreme.I know God can heal us from > anything .But this is what i choose to do.> Where was i going with this.well I just wanted to tell you about my > surgery and how ive healed.> I was very impressed with Dr kolb she is a hard working woman.I love > her staff.dr mike is great to if any of you go to Dr kolb he can > help with angry ,pain and issue in your life,trauma, even allergys.I > had alot of angry with the implants. I dont know if any of you lady > have heard of EFT or TFT Dr mike does something like that and > naet here the websites www.emofree.com www.tftrx.com > www.naet.com I even do this on my daughter.I so recommend it. > I did alot of detoxing and eating right before surgery and after.I > agree with the sugar thing. It is a must. > One thing thathelped with healing and getting me better is i took > alot of primal defense .I did powdered so i took 6 scoops a day > before my surgery and after. The doctor said to increase it so i > would get the medicine out of my body after surgery and it would > keep me strong.I agree with that it put allthe good bacteria back in > the body so your body can fight. FYI helped with pain and infection > in my breast even helps with brain fog and Rm10 .Jordan says > FYi,Rm10 and primal defense all together help fight anything. i took > seasonal relief for alittle before my surgery and then 7 days > after.It help the immune to.I didnt take any antibitic after surgery > or anything Dr kolb told me in the medincine .I told her i knew what > to do and this is what i wanted to do. She said that was fine. Not > many Doctors will do that. My other doctor is like that to.I did > have a bad breast infection Dr kolb said but it was gone whe nshe > got in there she said i had alot of scar tissue. > other things that helped my was perfect food,digestive enzymes,i > also do raw apple cider vinegar 3 times a day.garlic best antiobitic > you can get i did alot of and parsley.> yerba mate tea i do sometime and komboocha,kefir> I never had a pain pump or took any pain meds.I used surgical tone > from Dr kolb office homeopathy helped so much and helped with > sweeling,bruising and pain. I could even lay on my side after > surgery and in 5 days after drains were out i could lay on my > stomach.I found that out when i had a appointment with Dr mike. I > must say i felt great after surgery. I think being positive helped > me to and God on my side to. I did alot of praying and asking god > for guidance when i was in georgia.I went by myself to. I needed > that time though.> > rescue remedy flower essense i used for awhile great for calming the > nerves to before surgery and i know some people dont like to wait > and at Dr kolbs you do wait.But it open doors to so much more > things.I got to talk to other woman and even met a girl that was > there thinking about getting breast implants. I met on woman i cant > get out of my mind melissa and she has a 3 yrs old. I keep wanting > to she how i can get ahold of her or give my info. She really > touched me.She was there in jan > For my scars i used a salve or calendula cream. i starting using it > right away. My scars look great. This cream is great for rashes to. > You can get burts bees or www.supersalve.com has great stuff to.> here are some great website that helped me to from Jordan rubin new > book www.biblicalhealthinstitute.com just sign in it free 7 steps > to wellness. www.mercola.com has help me alot to.> thank you all for your stories and getting the word out.> sometime i thought about yesterday.YOu all know the movie erin > brokovich well she has implants.I wonder if she know all the > problems .I was thinking i wondering if she could help us to.If she > knew. WHo knows > god bless you all michele w>Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)See our photos website! Enter "implants" for access at this link:http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Miclele, Any chance you could get hold of an infrared sauna? . .. . It can really help with detoxing! . . . Something on the order of 15% of sweat generated by infrared heat is cholestrol or toxins. I found that my MCS gradually disappeared . . . I only react to big exposures now. Hugs, Rogene --- michele Wininger <sea_shell81@...> wrote: --------------------------------- Hi cherie , the symptoms.Well i had problems with headaches,migraines,ear infections,stomach problems,memory problems,mood swings bad and depression. I had alot of these problems before implants. But i wasnt eating right always on the go.I also was a hairdresser and did nails to.I know alot of my problems started there.Then i got implants so i kept over loading my body. As soon as i starting eating right and taking care of my body i didnt have headaches,migraine s,ear infections,depression mood swings i felt werent as bad.The only problems i seem to have is chemical sensitive.I was sensitive to smell my whole life.But wow ive never had brain fog.I got that in june 2005 when i took on a cleaning job and even using all nontoxic cleaner.It was the people perfume and cleaning a gym that put me over the edge. Now i cant handle anything.i can smell something a mile away and seem to get affected by it. One thing my husband say dont claim chemical sensitivies.ask god to take it from you.But you know i think he hasnt taken it from me because he teaching me to trust him and teaching me so many other things to.I can still function with everyday life. Some people say i appear to not have any problems. I dont seem like i have brain fog.But come in my head .I just thought about this my brain fog has gotten worse over the last couple weeks. I really think eating organic and not eating white flour and sugar is a must to get better .Sugar is like a poison in the body and my body cant handle it at all ..Even maple syrup i react to at time.So honey and stevia is my best bet.I really try to follow phase 1 in the maker diet .This diet is a lifestyle change. so are you doing to get better?Who explanted you? I know one thing by getting all toxic products out of my life like cleaners,facial products,soaps all that has helped me alot to. Ive been looking at all that has happened as a blessing .I dont think i would be eating healthly doing all the nontoxic or organic products if this didnt happen to me. I use to be so negative .I have a new outlook on life. Ive met alot of great people on my journey. Im very greatful for that. When you think a door closes another always seem to open.My grandma use to say to me shelly walk by faith not by sight.well it stuck with me im walking by faith not sight. My husband said to me after i got my implants out wow what a differents.The mood swings i dont have.I deal with things so much differently even when i have a bad day. It like im a different person all around. I hope i answered your question. My head is fuzzy today.Today i plan to eat right ,drink lots of water and get lots of fresh air and sunshine. The computer really messes with me head. ugh god bless michele --------------------------------- From: " Cherie " <funhome2@...> Reply- Subject: Re: hi all Date: Sun, 26 Mar 2006 03:27:09 -0000 Thank you so much for sharing your story. I was explanted five months ago and I need the hope that a story like yours gives me. Can you tell me what your symptoms were before explant? I'm so happy for you that you healed so quickly after explant. God Bless you, Cherie > > Hi all > My name is michele and ive been reading alot of your post. > On Jan 20 2006 i had my explant surgery by DR kolb.I had implants > for 10 years im 33 .It was the best thing ive ever done.I did have > some problems but since i followed the makers diet it seem to help > alot and my girls follow it to.I have a 3 1/2 year old and a 20 > month old.They were brest feedto and show no signs of being sick. > Ive been doing the maker diet since i was pregnant with both and > praise god i did.What would they be like if i didnt ..Sure someday i > go oh my what did i do to my girl it bad enough i did this to me but > i have to look at it all as a blessing .Sure i human and have > days.Through all this God has showed me so much. Today im alittle > brain fog. > I see alot of woman post about there kids and it make me really > sad. I will pass this info on.It might help someone.BUt my doctor > and Dr kolb said the makers diet has kept me and my girls > healthier.I give them primal defense(probitics),perfect food,cod > liver,goatein,super seed.They have never had > medicine ,vaccination .I dont use any chemicals in my house just > vinegar or seventh generation or earth friendly.Im a nontoxic > organic girl.Due to my chemical sensitives. I also choose to live > this way. I have friend say im extreme.I know God can heal us from > anything .But this is what i choose to do. > Where was i going with this.well I just wanted to tell you about my > surgery and how ive healed. > I was very impressed with Dr kolb she is a hard working woman.I love > her staff.dr mike is great to if any of you go to Dr kolb he can > help with angry ,pain and issue in your life,trauma, even allergys.I > had alot of angry with the implants. I dont know if any of you lady > have heard of EFT or TFT Dr mike does something like that and > naet here the websites www.emofree.com www.tftrx.com > www.naet.com I even do this on my daughter.I so recommend it. > I did alot of detoxing and eating right before surgery and after.I > agree with the sugar thing. It is a must. > One thing thathelped with healing and getting me better is i took > alot of primal defense .I did powdered so i took 6 scoops a day > before my surgery and after. The doctor said to increase it so i > would get the medicine out of my body after surgery and it would > keep me strong.I agree with that it put allthe good bacteria back in > the body so your body can fight. FYI helped with pain and infection > in my breast even helps with brain fog and Rm10 ..Jordan says > FYi,Rm10 and primal defense all together help fight anything. i took > seasonal relief for alittle before my surgery and then 7 days > after.It help the immune to.I didnt take any antibitic after surgery > or anything Dr kolb told me in the medincine .I told her i knew what > to do and this is what i wanted to do. She said that was fine. Not > many Doctors will do that. My other doctor is like that to.I did > have a bad breast infection Dr kolb said but it was gone whe nshe > got in there she said i had alot of scar tissue. > other things that helped my was perfect food,digestive enzymes,i > also do raw apple cider vinegar 3 times a day.garlic best antiobitic > you can get i did alot of and parsley. > yerba mate tea i do sometime and komboocha,kefir > I never had a pain pump or took any pain meds.I used surgical tone > from Dr kolb office homeopathy helped so much and helped with > sweeling,bruising and pain. I could even lay on my side after > surgery and in 5 days after drains were out i could lay on my > stomach.I found that out when i had a appointment with Dr mike. I > must say i felt great after surgery. I think being positive helped > me to and God on my side to. I did alot of praying and asking god > for guidance when i was in georgia.I went by myself to. I needed > that time though. > > rescue remedy flower essense i used for awhile great for calming the > nerves to before surgery and i know some people dont like to wait > and at Dr kolbs you do wait.But it open doors to so much more > things.I got to talk to other woman and even met a girl that was > there thinking about getting breast implants. I met on woman i cant > get out of my mind melissa and she has a 3 yrs old. I keep wanting > to she how i can get ahold of her or give my info. She really > touched me.She was there in jan > For my scars i used a salve or calendula cream. i starting using it > right away. My scars look great. This cream is great for rashes to. > You can get burts bees or www.supersalve.com has great stuff to. > here are some great website that helped me to from Jordan rubin new > book www.biblicalhealthinstitute.com just sign in it free 7 steps > to wellness. www.mercola.com has help me alot to. > thank you all for your stories and getting the word out. > sometime i thought about yesterday.YOu all know the movie erin > brokovich well she has implants.I wonder if she know all the > problems .I was thinking i wondering if she could help us to.If she > knew. WHo knows > god bless you all michele w > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) See our photos website! Enter " implants " for access at this link: http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
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