Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Sorry Jim... your woes are all too real, just not as prominent in the posts today as those mentioned. . Betsy some good news Amidst Mel's fibro attack, Marta and Cindee's teeth ,Joe's swollen grapefruit, 's uncle's cancer and Lilyen's persistent traumas, I received a piece of good news- my DEXA bone scan came back at 2.4. The Dr was very surprised that it was so high- guess there is some truth the the idea that fat people build strong bones to carry all our weight. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Sorry Jim... your woes are all too real, just not as prominent in the posts today as those mentioned. . Betsy some good news Amidst Mel's fibro attack, Marta and Cindee's teeth ,Joe's swollen grapefruit, 's uncle's cancer and Lilyen's persistent traumas, I received a piece of good news- my DEXA bone scan came back at 2.4. The Dr was very surprised that it was so high- guess there is some truth the the idea that fat people build strong bones to carry all our weight. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/16/2003 2:07:48 PM Pacific Daylight Time, bjahncke@... writes: > I received a piece of good news- my DEXA bone scan came back at 2.4. Congratulations, Betsey! Amid all the current rough stuff, a ray of sunshine! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/18/2003 12:22:40 AM Central Daylight Time, palewitch@... writes: Amidst Mel's fibro attack, Marta and Cindee's teeth ,Joe's swollen grapefruit, 's uncle's cancer and Lilyen's persistent traumas, I received a piece of good news- my DEXA bone scan came back at 2.4. The Dr was very surprised that it was so high- guess there is some truth the the idea that fat people build strong bones to carry all our weight. Betsy That is why almost all the broken hips we see in Ortho are mostly Skinny women...LOL. They are notorious for broken hips. All the fat people were total knee replacements! in Bama My story- http://hometown.aol.com/mdl1031/myhomepage/profile.html Pictures- http://f2.pg.photos./Melleedawn Surgery- RNY to DS revision on12/6 -377.5 12/17 - 346.5 ( minus 31lbs) 08/30- 281.1 (minus 96.1) BMI 44 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Very Cool Betsy! Cinda > Amidst Mel's fibro attack, Marta and Cindee's teeth ,Joe's swollen grapefruit, 's uncle's cancer and Lilyen's persistent traumas, I received a piece of good news- my DEXA bone scan came back at 2.4. The Dr was very surprised that it was so high- guess there is some truth the the idea that fat people build strong bones to carry all our weight. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 GREAT news, Tina!!!! I'm thrilled for you guys!!!! She has come a long way since last year!!!! Hugs, Sheila tina83862 <tina83862@...> wrote:Well some good news from M today, after all this time she hit 98.5 degrees, she just can't believe it. She had her P last month as well. (that's two full periods in two years (one was in Dec) (and a drip for a day or two this past March)and a real one in April---so she is on her way to getting her health back!!!! And guess what those digestive enzymes are making her feel fuller faster so she said she is not eating so much. I told her she is digesting her food better and absorbing the nutrients---thus she is getting a lot more out of her food instead of it just sitting there. Thus she is getting better!!!! So basically it's been 9 months of adrenal supplements, she is off of them now--- only 5 months of armour---(she goes for new testing this week) it appears the digestive enzymes have been a big help, and the yeast seems to be gone as well. She was sweating today for the first time and she kept on thinking wow what is that??? what is going on and then she realized she was actually sweating!!!! so she has really improved!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 you know I am sitting here with tears in my eyes---it's been a long journey for all of us!!!!!! if M's numbers come out good---she is off armour now for a month (because of the extensive tesing this week)--- that will mean she has healed her adrenals and possibly her thyroid--- I think we are too optimistic for the thryoid---but she is actually thinking she is. We will know when we get the new results---it could be ????? she sure has taken a ton of supplements and vitamins---big time--what 20 year old do you know that walks around with seaweed in her purse--- hahaha---among all the other vitamins she takes--- cross your fingers!!!! Well some good news from M today, after all this time she hit 98.5 > degrees, she just can't believe it. She had her P last month as well. > (that's two full periods in two years (one was in Dec) (and a drip > for a day or two this past March)and a real one in April---so she is > on her way to getting her health back!!!! > > And guess what those digestive enzymes are making her feel fuller > faster so she said she is not eating so much. I told her she is > digesting her food better and absorbing the nutrients---thus she is > getting a lot more out of her food instead of it just sitting there. > > Thus she is getting better!!!! > > So basically it's been 9 months of adrenal supplements, she is off of > them now--- > > only 5 months of armour---(she goes for new testing this week) > > it appears the digestive enzymes have been a big help, and the yeast > seems to be gone as well. > > She was sweating today for the first time and she kept on thinking > wow what is that??? what is going on and then she realized she was > actually sweating!!!! > > so she has really improved!!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 > what 20 year old do you know that walks around with seaweed in her purse Well, I've heard of 20yo's with WEED in their purse, but not SEAweed! LOL Man, I gotta get to bed....I'm pretty loopy tonight! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I am on the west coast---so it's early here----and yes this was funny!!!! she has been such a good girl dealing with all of this at school!!!!!! it's been so hard on her you can only imagine---from freezing to swelling up all over (salt/potassium problems) to no period--no drinking at college she would die---to no late nights--- hardly a memory to study with---dry skin, bleeding from her bottom (another set of dr's for that)--yeast---losing her hair--weird things on her skin---to dr's not being able to find her veins---to gyn's poking her to death--(that is another nightmare in itself)--begging the doctors for tests!!! that is another good one!!! going to a MRI brain scan all by herself late at night too!!!!trying to hide all her supplements from other students who think she is nuts ( other med students)--and trying to read all the stuff I sent her everyday!!!! and taking medication from Europe and Mexico---even though she is taught not too---it's been a ordeal that is for sure!!!!!!!!!!!!! and somehow she made it this year---only a few breakdowns (two)-- - In hypothyroidism , " Debbi Heiser " <heiser@t...> wrote: > > what 20 year old do you know that walks around with seaweed in her purse > > Well, I've heard of 20yo's with WEED in their purse, but not SEAweed! LOL > > Man, I gotta get to bed....I'm pretty loopy tonight! > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 I'm so happy for you guys ----Original Message Follows---- From: " tina83862 " <tina83862@...> Reply-hypothyroidism hypothyroidism Subject: some good news Date: Thu, 06 May 2004 04:33:44 -0000 Well some good news from M today, after all this time she hit 98.5 degrees, she just can't believe it. She had her P last month as well. (that's two full periods in two years (one was in Dec) (and a drip for a day or two this past March)and a real one in April---so she is on her way to getting her health back!!!! _________________________________________________________________ Getting married? Find tips, tools and the latest trends at MSN Life Events. http://lifeevents.msn.com/category.aspx?cid=married Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 thanks karen--been busy lately hardly have time for the group---I'll try in the next few days find some of that info for you----tina > I'm so happy for you guys > > > ----Original Message Follows---- > From: " tina83862 " <tina83862@y...> > Reply-hypothyroidism > hypothyroidism > Subject: some good news > Date: Thu, 06 May 2004 04:33:44 -0000 > > Well some good news from M today, after all this time she hit 98.5 > degrees, she just can't believe it. She had her P last month as well. > (that's two full periods in two years (one was in Dec) (and a drip > for a day or two this past March)and a real one in April---so she is > on her way to getting her health back!!!! > > _________________________________________________________________ > Getting married? Find tips, tools and the latest trends at MSN Life Events. > http://lifeevents.msn.com/category.aspx?cid=married Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 That is a bunch of good news, Judi! Glad you found a good doctor willing to go the extra mile. Did he have any ideas about treatment for Dercum's (aside from excising the tumors)? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] some good news > Hello all, > > Well, I endured those horrible EMG tests on both legs yesterday. I > asked the neurologist if he trained under the Marquis de Sade. He > said no, he trained at the prison in Iraq (his name is Abdulkarim > Sharba, but he is the sweetest man! I would trust him with my life.) > > The good news is, no MS, and if so only in its very earliest stages. > There is a slight brain lesion, but all my MRI's show no signs of > it. No spinal stenosis, but he did say moderate to severe > degenerative arthritis of the upper spine, and hips. He reviewed the > xrays of my ankle from last year's fracture, and noted some > deterioration there, ordered xrays of the other ankle and both hands, > elbows, and shoulders (remember, this is a neurologist here!) as he > knows I am currently without a general physician (mine has gone back > into the ministry full time.) My orthopedic surgeon will only treat > one limb at a time, and the neuro is doing this to help us both. He > also diagnosed " small fiber neuropathy " due to the Dercum tumors > pressing on nerves in arms and legs, but unfortunately there's > nothing much that can be done about that except surgery to remove the > tumors when they get too troublesome. > > Not only has this man reinforced my belief that it is ok to trust > people of all nationalities (and he has had a rough time in the past > few years with intolerance) but he has also been the single physician > who has treated me the best, very gentle and patient and sincere. > He's also a real babe! > > So, guys, don't give up hope--you may find good doctors in the most > unexpected places! And this woman is a very happy lady today--sore, > but happy! > > Blessings to you all, > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Hey Judi, Sounds like that babe of a doctor made your day, that is so great to here. I'm glad that your tests came back alright, what a relief. I'm so happy you have good news, and some eye candy too, T > Hello all, > > Well, I endured those horrible EMG tests on both legs yesterday. I > asked the neurologist if he trained under the Marquis de Sade. He > said no, he trained at the prison in Iraq (his name is Abdulkarim > Sharba, but he is the sweetest man! I would trust him with my life.) > > The good news is, no MS, and if so only in its very earliest stages. > There is a slight brain lesion, but all my MRI's show no signs of > it. No spinal stenosis, but he did say moderate to severe > degenerative arthritis of the upper spine, and hips. He reviewed the > xrays of my ankle from last year's fracture, and noted some > deterioration there, ordered xrays of the other ankle and both hands, > elbows, and shoulders (remember, this is a neurologist here!) as he > knows I am currently without a general physician (mine has gone back > into the ministry full time.) My orthopedic surgeon will only treat > one limb at a time, and the neuro is doing this to help us both. He > also diagnosed " small fiber neuropathy " due to the Dercum tumors > pressing on nerves in arms and legs, but unfortunately there's > nothing much that can be done about that except surgery to remove the > tumors when they get too troublesome. > > Not only has this man reinforced my belief that it is ok to trust > people of all nationalities (and he has had a rough time in the past > few years with intolerance) but he has also been the single physician > who has treated me the best, very gentle and patient and sincere. > He's also a real babe! > > So, guys, don't give up hope--you may find good doctors in the most > unexpected places! And this woman is a very happy lady today-- sore, > but happy! > > Blessings to you all, > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Hurrah! A nice doctor out there. I hope he helps, Judi. Noreen [ ] some good news Hello all, Well, I endured those horrible EMG tests on both legs yesterday. I asked the neurologist if he trained under the Marquis de Sade. He said no, he trained at the prison in Iraq (his name is Abdulkarim Sharba, but he is the sweetest man! I would trust him with my life.) The good news is, no MS, and if so only in its very earliest stages. There is a slight brain lesion, but all my MRI's show no signs of it. No spinal stenosis, but he did say moderate to severe degenerative arthritis of the upper spine, and hips. He reviewed the xrays of my ankle from last year's fracture, and noted some deterioration there, ordered xrays of the other ankle and both hands, elbows, and shoulders (remember, this is a neurologist here!) as he knows I am currently without a general physician (mine has gone back into the ministry full time.) My orthopedic surgeon will only treat one limb at a time, and the neuro is doing this to help us both. He also diagnosed " small fiber neuropathy " due to the Dercum tumors pressing on nerves in arms and legs, but unfortunately there's nothing much that can be done about that except surgery to remove the tumors when they get too troublesome. Not only has this man reinforced my belief that it is ok to trust people of all nationalities (and he has had a rough time in the past few years with intolerance) but he has also been the single physician who has treated me the best, very gentle and patient and sincere. He's also a real babe! So, guys, don't give up hope--you may find good doctors in the most unexpected places! And this woman is a very happy lady today--sore, but happy! Blessings to you all, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Great news Judi. It makes such a difference when you have a doctor that you like so much. It doesn¹t hurt that he is so appealing to the eye either LOL! Maybe he will be a good investigator and find something to help the dercums. a > Hello all, > > Well, I endured those horrible EMG tests on both legs yesterday. I > asked the neurologist if he trained under the Marquis de Sade. He > said no, he trained at the prison in Iraq (his name is Abdulkarim > Sharba, but he is the sweetest man! I would trust him with my life.) > > The good news is, no MS, and if so only in its very earliest stages. > There is a slight brain lesion, but all my MRI's show no signs of > it. No spinal stenosis, but he did say moderate to severe > degenerative arthritis of the upper spine, and hips. He reviewed the > xrays of my ankle from last year's fracture, and noted some > deterioration there, ordered xrays of the other ankle and both hands, > elbows, and shoulders (remember, this is a neurologist here!) as he > knows I am currently without a general physician (mine has gone back > into the ministry full time.) My orthopedic surgeon will only treat > one limb at a time, and the neuro is doing this to help us both. He > also diagnosed " small fiber neuropathy " due to the Dercum tumors > pressing on nerves in arms and legs, but unfortunately there's > nothing much that can be done about that except surgery to remove the > tumors when they get too troublesome. > > Not only has this man reinforced my belief that it is ok to trust > people of all nationalities (and he has had a rough time in the past > few years with intolerance) but he has also been the single physician > who has treated me the best, very gentle and patient and sincere. > He's also a real babe! > > So, guys, don't give up hope--you may find good doctors in the most > unexpected places! And this woman is a very happy lady today--sore, > but happy! > > Blessings to you all, > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Went back to my dermatologist on Thursday. The weird looking mole within a mole wasn't even a mole, let alone melanoma. In his words: " They look similar enough to give most of us (dermatologists) pause, but they are symptoms of a circulatory failure. " Not a great answer, but better than melanoma. Circulatory problems are one of the long term effects of having hepatitis either A, B, or C. Particularly in people with venal systems that are close to the surface of the skin. Mine, it seems, is exacerbated by having been burned by concentrated sulfuric acid in college. So I breathed a sigh of relief. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Went back to my dermatologist on Thursday. The weird looking mole within a mole wasn't even a mole, let alone melanoma. In his words: " They look similar enough to give most of us (dermatologists) pause, but they are symptoms of a circulatory failure. " Not a great answer, but better than melanoma. Circulatory problems are one of the long term effects of having hepatitis either A, B, or C. Particularly in people with venal systems that are close to the surface of the skin. Mine, it seems, is exacerbated by having been burned by concentrated sulfuric acid in college. So I breathed a sigh of relief. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Glad the news wasn't worse.... Re: Some good news The weird looking mole within a mole wasn't even a mole, let alone melanoma. In his words: " They look similar enough to give most of us (dermatologists) pause, but they are symptoms of a circulatory failure. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Whew Anne! What a relief it isn't cancer. I was holding my breath and getting more than blue in the face, I can tell ya! haha I'm so relieved and happy for you. I know what a godsend that knews must be. Every little twinge of my body sends me into panic and I have to reason with myself constantly. God bless ya girly Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Whew Anne! What a relief it isn't cancer. I was holding my breath and getting more than blue in the face, I can tell ya! haha I'm so relieved and happy for you. I know what a godsend that knews must be. Every little twinge of my body sends me into panic and I have to reason with myself constantly. God bless ya girly Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 In a message dated 8/18/2004 1:01:56 AM Eastern Daylight Time, shshonee@... writes: Whew Anne! What a relief it isn't cancer. I was holding my breath and getting more than blue in the face, I can tell ya! haha I'm so relieved and happy for you. I know what a godsend that knews must be. Every little twinge of my body sends me into panic and I have to reason with myself constantly. God bless ya girly Thanks Alley, I will say that I was a nervous. One of those, " just one more thing and I'm going to lose it " type things. I was aware that the acid burn would, eventually cause circulatory problems, so, bad as that might be, it isn't melanoma. I can abate that problem with exercise. I can live with that. All's well that ends well. God bless you and all of us, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 In a message dated 8/18/2004 1:01:56 AM Eastern Daylight Time, shshonee@... writes: Whew Anne! What a relief it isn't cancer. I was holding my breath and getting more than blue in the face, I can tell ya! haha I'm so relieved and happy for you. I know what a godsend that knews must be. Every little twinge of my body sends me into panic and I have to reason with myself constantly. God bless ya girly Thanks Alley, I will say that I was a nervous. One of those, " just one more thing and I'm going to lose it " type things. I was aware that the acid burn would, eventually cause circulatory problems, so, bad as that might be, it isn't melanoma. I can abate that problem with exercise. I can live with that. All's well that ends well. God bless you and all of us, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Latest labs look wonderful. Viral Load is down and ALT is within normal range, although at the high end of normal. AST is slightly elevated, but much lower than it has been. So what am I doing differently? My diet hasn't changed much, but I have added coriander periodically, this has reduced the nausea. Of course I've been taking my vits and milk thistle. All I can say is thank you, God. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Anne, forgive me for not remembering, is the nausea from treatment? I'm glad your labs are good It's always reassuring to know we can get better. Alley Grand Prairie, Tx http://texasscribbler.home.comcast.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 In a message dated 1/13/2005 5:56:53 P.M. !!!First Boot!!!, shshonee@... writes: Anne, forgive me for not remembering, is the nausea from treatment? I'm glad your labs are good It's always reassuring to know we can get better. Dear Alley, No the nausea is just part of HCV. I haven't been on treatment since 1999. This has been my immune system with some added vits and " home remedies " . Anne Quote Link to comment Share on other sites More sharing options...
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