Some good news

[Guest guest]

That IS good news, Jan C! I hope it lasts.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Some good news

>

>

> I had my rhemicade infusion on Tuesday afternoon and by that evening I

> was already feeling relief from the flare I'd been having.Yeah!! Hope

> everyone else that is flaring finds some relief soon as well.

>

> Janc

[Guest guest]

That IS good news, Jan C! I hope it lasts.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Some good news

>

>

> I had my rhemicade infusion on Tuesday afternoon and by that evening I

> was already feeling relief from the flare I'd been having.Yeah!! Hope

> everyone else that is flaring finds some relief soon as well.

>

> Janc

[Guest guest]

In a message dated 2/14/2006 9:59:21 AM Eastern Standard Time,

adnan_rafiq@... writes:

he is also doing his potty on the toilet now.

although, we have to keep an eye on him, otherwise he

still prefers to go to a secluded corner. my wife just

follows him around all day just to make sure that he

doesnt do it in his diapers. but the fact that he can

at least sit down on the toilet and get a bowel

movement is awesome.

WOW! This is a major accomplishment! Congrats to him (and you parents

too!)

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

[Guest guest]

I watched the video of Josh onstage Pam! So great! Please tell him hi from

Noah and I.

Ellen

Ellen Garber Bronfeld

egskb@...

some good news

http://www.some-dreams.com/digital/HisLines.mov

http://www.pioneerlocal.com/westernsprings/news/671357,ws-shtjungle-112907-s1.ar\

ticle

Josh joined a community theatre group for adults with special needs. He is the

first actor (in 14 years) who uses AAC. Josh did a wonderful job and OH did he

LOVE being on stage. We are fortunate to have found this group who meets at our

local high school.

Enjoy the video clip and the break from discussing word prediction - which BTW

Josh uses LOL

Pam & Josh

--

Strengthening the Family's Voice of AAC /

Check out our FLICKR

http://www.flickr.com/photos/aacfamily/

[Guest guest]

Many of us enjoyed the play, Jungle Book! The actors performed beautifully,

sharing their gifts of theatre with a very enthusiastic audience. Jungle

book at LT performed by actors with disabilities showed exactly how much

people with disabilities have to share with their community. The narrator

was tireless in her effort to encourage the most from her actors. My son,

who would never be interested in stage, he does everything SPORTS, was

nearly off his chair watching , he knows many of the actors, with the

biggest smile on his face. One of the best evenings I have spent.

Congratulations to all the performers and director, etc. Cindi Swanson

[Guest guest]

Cindi -

I would have enjoyed meeting you. It was Josh's first play and I was so nervous.

Josh's anxiety can sometimes spiral out of his control and he can respond in so

many different ways - some not so pretty. Supporting Josh can be it's own

challenge - what works one day won't the next or even later that same day. And

here he was going to be ON STAGE.

This was a very positive experience for both of us. Rehak-Grohne, the

Director, has such a sincere respect for all people and a huge source of energy.

Her sister is also an actor and has been participating for the 14 years.

We are so fortunate to have this program available to us. told us that

about 25 actors with special needs signed up to join next fall. This is part of

Lyons Township Adult and Continuing Education programming.

Thanks for your kind words, Cindi.

Pam & Josh

Western Springs, IL

--

Strengthening the Family's Voice of AAC /

Check out our FLICKR

http://www.flickr.com/photos/aacfamily/

-------------- Original message --------------

From: " Cindi Swanson " <cbswanson@...>

Many of us enjoyed the play, Jungle Book! The actors performed beautifully,

sharing their gifts of theatre with a very enthusiastic audience. Jungle

book at LT performed by actors with disabilities showed exactly how much

people with disabilities have to share with their community. The narrator

was tireless in her effort to encourage the most from her actors. My son,

who would never be interested in stage, he does everything SPORTS, was

nearly off his chair watching , he knows many of the actors, with the

biggest smile on his face. One of the best evenings I have spent.

Congratulations to all the performers and director, etc. Cindi Swanson

[Guest guest]

This is great news just give it time and as for the sex give it a try if it does

not work don't let it upset you. Just keep trying in time you will get there.

wantmylifeback85 <wantmylifeback85@...> wrote: Well I have some

positive news - I'm not as impotent as I thought I

was. I was able to " get it up " while making out/fooling around with

my gf which has provided me a huge amount of relief. I think I'm

confident enough to have sex... I had a Viagra in my pocket but I

don't think I'll need it. I even had slight morningwood the next

morning! The numbness, however, is still an issue but at least I

don't have 100% ED.

I'm in lighter spirits today because of this but I'm not fully

celebrating yet as I still need to regain all the muscle mass I've

lost. I've lost nearly 10-12 pounds in such little time – the face

is the most noticeable. I still have a lingering pain in my groin.

The eye floaters/vision problems are still a presence and a

nuisance. The depression has lifted a bit - I'm mainly depressed

because of all these symptoms. Sleep has improved a bit too. I used

to wake up really early in the morning and not be able to get back to

bed but now I can get up at a reasonable hour – still lacking the

ability to sleep in like I used to though. I'm still going to see

the urologist but today is the first day I've felt GOOD in quite

awhile. Hopefully things will continue to improve.

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

[Guest guest]

I'm happy to report that my sleep has somewhat improved as I no

longer wake up in the middle of the night and unable to get to bed.

I'll wake up an hour before my alarm goes off sometimes but can still

fall back to sleep. I started taking ZMA at night to see if that

helps any (got some wacky dreams on it). I no longer need Tylenol PM

or Ambien though. The first few weeks were a living nightmare. Still

can't sleep in till noon like I used to nor do I drool (I used to

drool in my sleep all the time before Saw Palmetto).

I honestly haven't noticed much change from the Oxytocin nor the

Selegiline. Not sure if it's helped my libido at all. I went to the

urologist in NYC on Monday and he said it's a waiting game - checked

my prostate, was OK. Didn't find anything abnormal even though I

pointed out the tissue changes. He said as long as I'm getting

nocturnal erections (which I am) that I shouldn't worry, especially

since I can get it up for sex. Doesn't think 9 days of SP would cause

this much damage, but it's been almost 3 months since quitting.

Speaking of which, I had sex for the first time with my girlfriend

last weekend since this incident, and I have to say, it was the best

sex the two of us had as we both " hit the same note at the same time "

so to say. That rarely happened during our relationship so I found

that ironic. I didn't have a problem getting it up although I felt my

erection wasn't 100%, but still, I was able to have sex successfully

without assistance, and hopefully won't have to in the future. I even

had time to put a condom on without losing it. Everything was good a

few days later when she gave me oral as well. I'm still not getting

morning erections but at least I am getting nocturnal ones. Still

having numbness issues though and tissue changes are still present.

The pain in my groin has slowly subsided – it hurt the most when

sitting down since I'm at a cube all day. Masturbation is more of a

chore though and I'm trying to abstain from it.

I need to make sure my adrenals are OK since my DHEA (especially) and

Cortisol is over range. I'm going to get an ACTH Stimulation test and

an adrenal MRI. DHEA is through the roof and I want to make sure I

don't have Cushing's or an adrenal tumor, etc. Also doing a saliva

DHEA/Cortisol 24 hour test (my endo has been great about this). I get

lower back pain where the adrenals are located so I'm concerned about

that. After I get that straightened out, I also asked for Free T3 and

T4 tests to make sure my thyroid is in check.

As long as I'm able to get it up for sex I guess there isn't a major

sexual problem, though I would like my penile sensitivity, libido,

and morning/spontaneous erections back. My depression/anxiety has

decreased significantly after knowing that I can at least perform.

I'll get bouts of depression, but because of what I'm experiencing,

but at least the crying spells have diminished. I want to be who I

used to be – a fun guy that likes to drink, outgoing, muscular, be

social etc.

My appetite still isn't great (but that could be because of the

Wellbutrin since I read it can suppress appetite). This week is the

best I've felt since this whole thing. The groin pain has slightly

diminished (not 100% gone) and I'm not as physically/mentally

sluggish. I can actually function at work and school. Hopefully

things will improve with time. Maybe switching to name brand

Wellbutrin has helped as well (was on the generic before). The

wrinkles under my eyes and around my face really annoy me - I didn't

have those months ago and may consider creams and/or plastic surgery

if they don't go away... it looks weird when I smile now which I

don't like though many might not even notice it - but I shouldn't

have these aging features at 26. Hopefully my face regains its

structure - I lost facial fat around the eyes/cheeks and people

notice I lost weight (which I did, but mostly muscle). Face isn't as

oily as it used to be but still produces oil, just not as much. Hair

is dry and brittle.

Some have mentioned sensitivity returning around the six month mark

so I'm hoping I'll fall into that category. I can at least know that

I don't have 100% ED as I once thought. Still, manual stimulation is

tough and ejaculate volume isn't what it used to be.

Trying to go to the gym more and regain my lost muscle mass but I've

read I won't make gains with over the range Cortisol since it hinders

muscle growth. So basically it's my adrenals I need to work on before

anything else then take it from there. I have my birthday coming up

in a couple of weeks and it may not be as sour as I originally

thought it would be.

This is the longest stretch (7 days) I have made without crying

hysterically (I rarely broke down before this) and hopefully that

will continue, because frankly, I'm sick and tired of being sick and

tired. I will get an MRI done and an ACTH Stimulation test to make

sure I don't have Cushing's or another endocrine disorder.

This is utter torture for someone in my age, in my prime, etc. All I

know is that I'll be a much stronger person when I hopefully recover

from this nightmare. Things have very slowly got better over time. I

was literally suicidal the first two months and damn near psychotic.

Hopefully more progress will be made. I got morningwood twice within

the last month, albeit short-lived, but I'll be doing backflips when

it's a daily occurrence.

Well I have

some positive news - I'm not as impotent as I thought I

> was. I was able to " get it up " while making out/fooling around with

> my gf which has provided me a huge amount of relief. I think I'm

> confident enough to have sex... I had a Viagra in my pocket but I

> don't think I'll need it. I even had slight morningwood the next

> morning! The numbness, however, is still an issue but at least I

> don't have 100% ED.

>

> I'm in lighter spirits today because of this but I'm not fully

> celebrating yet as I still need to regain all the muscle mass I've

> lost. I've lost nearly 10-12 pounds in such little time – the face

> is the most noticeable. I still have a lingering pain in my groin.

> The eye floaters/vision problems are still a presence and a

> nuisance. The depression has lifted a bit - I'm mainly depressed

> because of all these symptoms. Sleep has improved a bit too. I used

> to wake up really early in the morning and not be able to get back

to

> bed but now I can get up at a reasonable hour – still lacking the

> ability to sleep in like I used to though. I'm still going to see

> the urologist but today is the first day I've felt GOOD in quite

> awhile. Hopefully things will continue to improve.

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

>

>

[Guest guest]

I'm happy to report that my sleep has somewhat improved as I no

longer wake up in the middle of the night and unable to get to bed.

I'll wake up an hour before my alarm goes off sometimes but can still

fall back to sleep. I started taking ZMA at night to see if that

helps any (got some wacky dreams on it). I no longer need Tylenol PM

or Ambien though. The first few weeks were a living nightmare. Still

can't sleep in till noon like I used to nor do I drool (I used to

drool in my sleep all the time before Saw Palmetto).

I honestly haven't noticed much change from the Oxytocin nor the

Selegiline. Not sure if it's helped my libido at all. I went to the

urologist in NYC on Monday and he said it's a waiting game - checked

my prostate, was OK. Didn't find anything abnormal even though I

pointed out the tissue changes. He said as long as I'm getting

nocturnal erections (which I am) that I shouldn't worry, especially

since I can get it up for sex. Doesn't think 9 days of SP would cause

this much damage, but it's been almost 3 months since quitting.

Speaking of which, I had sex for the first time with my girlfriend

last weekend since this incident, and I have to say, it was the best

sex the two of us had as we both " hit the same note at the same time "

so to say. That rarely happened during our relationship so I found

that ironic. I didn't have a problem getting it up although I felt my

erection wasn't 100%, but still, I was able to have sex successfully

without assistance, and hopefully won't have to in the future. I even

had time to put a condom on without losing it. Everything was good a

few days later when she gave me oral as well. I'm still not getting

morning erections but at least I am getting nocturnal ones. Still

having numbness issues though and tissue changes are still present.

The pain in my groin has slowly subsided – it hurt the most when

sitting down since I'm at a cube all day. Masturbation is more of a

chore though and I'm trying to abstain from it.

I need to make sure my adrenals are OK since my DHEA (especially) and

Cortisol is over range. I'm going to get an ACTH Stimulation test and

an adrenal MRI. DHEA is through the roof and I want to make sure I

don't have Cushing's or an adrenal tumor, etc. Also doing a saliva

DHEA/Cortisol 24 hour test (my endo has been great about this). I get

lower back pain where the adrenals are located so I'm concerned about

that. After I get that straightened out, I also asked for Free T3 and

T4 tests to make sure my thyroid is in check.

As long as I'm able to get it up for sex I guess there isn't a major

sexual problem, though I would like my penile sensitivity, libido,

and morning/spontaneous erections back. My depression/anxiety has

decreased significantly after knowing that I can at least perform.

I'll get bouts of depression, but because of what I'm experiencing,

but at least the crying spells have diminished. I want to be who I

used to be – a fun guy that likes to drink, outgoing, muscular, be

social etc.

My appetite still isn't great (but that could be because of the

Wellbutrin since I read it can suppress appetite). This week is the

best I've felt since this whole thing. The groin pain has slightly

diminished (not 100% gone) and I'm not as physically/mentally

sluggish. I can actually function at work and school. Hopefully

things will improve with time. Maybe switching to name brand

Wellbutrin has helped as well (was on the generic before). The

wrinkles under my eyes and around my face really annoy me - I didn't

have those months ago and may consider creams and/or plastic surgery

if they don't go away... it looks weird when I smile now which I

don't like though many might not even notice it - but I shouldn't

have these aging features at 26. Hopefully my face regains its

structure - I lost facial fat around the eyes/cheeks and people

notice I lost weight (which I did, but mostly muscle). Face isn't as

oily as it used to be but still produces oil, just not as much. Hair

is dry and brittle.

Some have mentioned sensitivity returning around the six month mark

so I'm hoping I'll fall into that category. I can at least know that

I don't have 100% ED as I once thought. Still, manual stimulation is

tough and ejaculate volume isn't what it used to be.

Trying to go to the gym more and regain my lost muscle mass but I've

read I won't make gains with over the range Cortisol since it hinders

muscle growth. So basically it's my adrenals I need to work on before

anything else then take it from there. I have my birthday coming up

in a couple of weeks and it may not be as sour as I originally

thought it would be.

This is the longest stretch (7 days) I have made without crying

hysterically (I rarely broke down before this) and hopefully that

will continue, because frankly, I'm sick and tired of being sick and

tired. I will get an MRI done and an ACTH Stimulation test to make

sure I don't have Cushing's or another endocrine disorder.

This is utter torture for someone in my age, in my prime, etc. All I

know is that I'll be a much stronger person when I hopefully recover

from this nightmare. Things have very slowly got better over time. I

was literally suicidal the first two months and damn near psychotic.

Hopefully more progress will be made. I got morningwood twice within

the last month, albeit short-lived, but I'll be doing backflips when

it's a daily occurrence.

Well I have

some positive news - I'm not as impotent as I thought I

> was. I was able to " get it up " while making out/fooling around with

> my gf which has provided me a huge amount of relief. I think I'm

> confident enough to have sex... I had a Viagra in my pocket but I

> don't think I'll need it. I even had slight morningwood the next

> morning! The numbness, however, is still an issue but at least I

> don't have 100% ED.

>

> I'm in lighter spirits today because of this but I'm not fully

> celebrating yet as I still need to regain all the muscle mass I've

> lost. I've lost nearly 10-12 pounds in such little time – the face

> is the most noticeable. I still have a lingering pain in my groin.

> The eye floaters/vision problems are still a presence and a

> nuisance. The depression has lifted a bit - I'm mainly depressed

> because of all these symptoms. Sleep has improved a bit too. I used

> to wake up really early in the morning and not be able to get back

to

> bed but now I can get up at a reasonable hour – still lacking the

> ability to sleep in like I used to though. I'm still going to see

> the urologist but today is the first day I've felt GOOD in quite

> awhile. Hopefully things will continue to improve.

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

>

>

[Guest guest]

It all sounds like your coming back and it does take time I hope the tests are

ok and your levels are just high do to the stress your feeling. Just keep up

the good work and try not to think about it keep your mind on happy things.

Your doing good better then most so soon.

wantmylifeback85 <wantmylifeback85@...> wrote: I'm happy to

report that my sleep has somewhat improved as I no

longer wake up in the middle of the night and unable to get to bed.

I'll wake up an hour before my alarm goes off sometimes but can still

fall back to sleep. I started taking ZMA at night to see if that

helps any (got some wacky dreams on it). I no longer need Tylenol PM

or Ambien though. The first few weeks were a living nightmare. Still

can't sleep in till noon like I used to nor do I drool (I used to

drool in my sleep all the time before Saw Palmetto).

I honestly haven't noticed much change from the Oxytocin nor the

Selegiline. Not sure if it's helped my libido at all. I went to the

urologist in NYC on Monday and he said it's a waiting game - checked

my prostate, was OK. Didn't find anything abnormal even though I

pointed out the tissue changes. He said as long as I'm getting

nocturnal erections (which I am) that I shouldn't worry, especially

since I can get it up for sex. Doesn't think 9 days of SP would cause

this much damage, but it's been almost 3 months since quitting.

Speaking of which, I had sex for the first time with my girlfriend

last weekend since this incident, and I have to say, it was the best

sex the two of us had as we both " hit the same note at the same time "

so to say. That rarely happened during our relationship so I found

that ironic. I didn't have a problem getting it up although I felt my

erection wasn't 100%, but still, I was able to have sex successfully

without assistance, and hopefully won't have to in the future. I even

had time to put a condom on without losing it. Everything was good a

few days later when she gave me oral as well. I'm still not getting

morning erections but at least I am getting nocturnal ones. Still

having numbness issues though and tissue changes are still present.

The pain in my groin has slowly subsided – it hurt the most when

sitting down since I'm at a cube all day. Masturbation is more of a

chore though and I'm trying to abstain from it.

I need to make sure my adrenals are OK since my DHEA (especially) and

Cortisol is over range. I'm going to get an ACTH Stimulation test and

an adrenal MRI. DHEA is through the roof and I want to make sure I

don't have Cushing's or an adrenal tumor, etc. Also doing a saliva

DHEA/Cortisol 24 hour test (my endo has been great about this). I get

lower back pain where the adrenals are located so I'm concerned about

that. After I get that straightened out, I also asked for Free T3 and

T4 tests to make sure my thyroid is in check.

As long as I'm able to get it up for sex I guess there isn't a major

sexual problem, though I would like my penile sensitivity, libido,

and morning/spontaneous erections back. My depression/anxiety has

decreased significantly after knowing that I can at least perform.

I'll get bouts of depression, but because of what I'm experiencing,

but at least the crying spells have diminished. I want to be who I

used to be – a fun guy that likes to drink, outgoing, muscular, be

social etc.

My appetite still isn't great (but that could be because of the

Wellbutrin since I read it can suppress appetite). This week is the

best I've felt since this whole thing. The groin pain has slightly

diminished (not 100% gone) and I'm not as physically/mentally

sluggish. I can actually function at work and school. Hopefully

things will improve with time. Maybe switching to name brand

Wellbutrin has helped as well (was on the generic before). The

wrinkles under my eyes and around my face really annoy me - I didn't

have those months ago and may consider creams and/or plastic surgery

if they don't go away... it looks weird when I smile now which I

don't like though many might not even notice it - but I shouldn't

have these aging features at 26. Hopefully my face regains its

structure - I lost facial fat around the eyes/cheeks and people

notice I lost weight (which I did, but mostly muscle). Face isn't as

oily as it used to be but still produces oil, just not as much. Hair

is dry and brittle.

Some have mentioned sensitivity returning around the six month mark

so I'm hoping I'll fall into that category. I can at least know that

I don't have 100% ED as I once thought. Still, manual stimulation is

tough and ejaculate volume isn't what it used to be.

Trying to go to the gym more and regain my lost muscle mass but I've

read I won't make gains with over the range Cortisol since it hinders

muscle growth. So basically it's my adrenals I need to work on before

anything else then take it from there. I have my birthday coming up

in a couple of weeks and it may not be as sour as I originally

thought it would be.

This is the longest stretch (7 days) I have made without crying

hysterically (I rarely broke down before this) and hopefully that

will continue, because frankly, I'm sick and tired of being sick and

tired. I will get an MRI done and an ACTH Stimulation test to make

sure I don't have Cushing's or another endocrine disorder.

This is utter torture for someone in my age, in my prime, etc. All I

know is that I'll be a much stronger person when I hopefully recover

from this nightmare. Things have very slowly got better over time. I

was literally suicidal the first two months and damn near psychotic.

Hopefully more progress will be made. I got morningwood twice within

the last month, albeit short-lived, but I'll be doing backflips when

it's a daily occurrence.

Well I have

some positive news - I'm not as impotent as I thought I

> was. I was able to " get it up " while making out/fooling around with

> my gf which has provided me a huge amount of relief. I think I'm

> confident enough to have sex... I had a Viagra in my pocket but I

> don't think I'll need it. I even had slight morningwood the next

> morning! The numbness, however, is still an issue but at least I

> don't have 100% ED.

>

> I'm in lighter spirits today because of this but I'm not fully

> celebrating yet as I still need to regain all the muscle mass I've

> lost. I've lost nearly 10-12 pounds in such little time – the face

> is the most noticeable. I still have a lingering pain in my groin.

> The eye floaters/vision problems are still a presence and a

> nuisance. The depression has lifted a bit - I'm mainly depressed

> because of all these symptoms. Sleep has improved a bit too. I used

> to wake up really early in the morning and not be able to get back

to

> bed but now I can get up at a reasonable hour – still lacking the

> ability to sleep in like I used to though. I'm still going to see

> the urologist but today is the first day I've felt GOOD in quite

> awhile. Hopefully things will continue to improve.

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

>

>

[Guest guest]

Thanks Phil,

I was having sex with my gf Saturday night but lost the erection when

I changed positions and could not get hard again. I was drunk,

however, so this may have been a factor. I was able to have sex the

next morning OK though.

Another thing.... I had a nocturnal emission (wet dream) last Friday.

I haven't had one of those since this whole thing started... I take

it that this is a positive sign?

Well I have

some positive news - I'm not as impotent as I thought I

> was. I was able to " get it up " while making out/fooling around with

> my gf which has provided me a huge amount of relief. I think I'm

> confident enough to have sex... I had a Viagra in my pocket but I

> don't think I'll need it. I even had slight morningwood the next

> morning! The numbness, however, is still an issue but at least I

> don't have 100% ED.

>

> I'm in lighter spirits today because of this but I'm not fully

> celebrating yet as I still need to regain all the muscle mass I've

> lost. I've lost nearly 10-12 pounds in such little time – the face

> is the most noticeable. I still have a lingering pain in my groin.

> The eye floaters/vision problems are still a presence and a

> nuisance. The depression has lifted a bit - I'm mainly depressed

> because of all these symptoms. Sleep has improved a bit too. I used

> to wake up really early in the morning and not be able to get back

to

> bed but now I can get up at a reasonable hour – still lacking the

> ability to sleep in like I used to though. I'm still going to see

> the urologist but today is the first day I've felt GOOD in quite

> awhile. Hopefully things will continue to improve.

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

>

>

[Guest guest]

This is a good sign looks like your getting better.

wantmylifeback85 <wantmylifeback85@...> wrote: Thanks Phil,

I was having sex with my gf Saturday night but lost the erection when

I changed positions and could not get hard again. I was drunk,

however, so this may have been a factor. I was able to have sex the

next morning OK though.

Another thing.... I had a nocturnal emission (wet dream) last Friday.

I haven't had one of those since this whole thing started... I take

it that this is a positive sign?

Well I have

some positive news - I'm not as impotent as I thought I

> was. I was able to " get it up " while making out/fooling around with

> my gf which has provided me a huge amount of relief. I think I'm

> confident enough to have sex... I had a Viagra in my pocket but I

> don't think I'll need it. I even had slight morningwood the next

> morning! The numbness, however, is still an issue but at least I

> don't have 100% ED.

>

> I'm in lighter spirits today because of this but I'm not fully

> celebrating yet as I still need to regain all the muscle mass I've

> lost. I've lost nearly 10-12 pounds in such little time – the face

> is the most noticeable. I still have a lingering pain in my groin.

> The eye floaters/vision problems are still a presence and a

> nuisance. The depression has lifted a bit - I'm mainly depressed

> because of all these symptoms. Sleep has improved a bit too. I used

> to wake up really early in the morning and not be able to get back

to

> bed but now I can get up at a reasonable hour – still lacking the

> ability to sleep in like I used to though. I'm still going to see

> the urologist but today is the first day I've felt GOOD in quite

> awhile. Hopefully things will continue to improve.

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

>

>

[Guest guest]

Phil,

Would my low estrogens be causing any of these problems? I get

erections at night but morningwood is still not present as well as

spontaneous erections during the day and libido is still non-

existent. I will say that a few weeks after stopping SP I did the

Broccoli treatment for a couple days since I was freaked out but it

may have made my problems worse, though I highly doubt broccoli water

would make things worse (my estrogens had to have been high on SP as

I did have bigger nipples - they're back to normal size and no signs

of gyno.... also all the extra test from SP is aromatized into

estrogen). Results again:

Estrone (E1) 5.6 (3 - 12.0)

Estradiol (E2) 1.6 (0 - 7.0)

Estriol 1.8 (1 - 16)

Total Estrogens 9.0 (4 -22)

Estrogens on the low-end are just as bad as being in the high-end,

right? I read that you don't want low E2 as that's bad for the

arteries.

Anyway, I will be getting results from my adrenal MRI, 24 hour saliva

test, and some bloodwork back from my endo tomorrow to shed some

light on this matter. I feel like I'm prematurely aging as my face

has dried up and there are fine lines below and around my eyes - I

now look terrible when I smile.

Shippen is going to start putting me on low-dose Ritalin (to raise

libido) as well as Testosterone drops (again, for libido). He said

to take then 2-3 hours before sexual activity, going to the gym,

etc. The muscle wastage is very depressing and I've never seen my

wrists so skinny in my entire life - though I'm still able to lift

the same amount of weights. I'm not sure if weight training with

high cortisol is healthy though. I even tried to lift more and was

able to - I bench pressed 235lbs (a first) and I weigh 165lbs (very

little body fat, hopefully this remains the same).

I'm still perplexed how 9 days could do this to me...

Well I have

> some positive news - I'm not as impotent as I thought I

> > was. I was able to " get it up " while making out/fooling around

with

> > my gf which has provided me a huge amount of relief. I think I'm

> > confident enough to have sex... I had a Viagra in my pocket but I

> > don't think I'll need it. I even had slight morningwood the next

> > morning! The numbness, however, is still an issue but at least I

> > don't have 100% ED.

> >

> > I'm in lighter spirits today because of this but I'm not fully

> > celebrating yet as I still need to regain all the muscle mass

I've

> > lost. I've lost nearly 10-12 pounds in such little time – the

face

> > is the most noticeable. I still have a lingering pain in my

groin.

> > The eye floaters/vision problems are still a presence and a

> > nuisance. The depression has lifted a bit - I'm mainly depressed

> > because of all these symptoms. Sleep has improved a bit too. I

used

> > to wake up really early in the morning and not be able to get

back

> to

> > bed but now I can get up at a reasonable hour – still lacking the

> > ability to sleep in like I used to though. I'm still going to see

> > the urologist but today is the first day I've felt GOOD in quite

> > awhile. Hopefully things will continue to improve.

> >

> >

> >

> >

> >

> >

> > Co-Moderator " Don't believe anything you hear and only half of

what

> you see. "

> > Phil

> >

> >

> >

[Guest guest]

Are them labs for your E's saliva if so they are not any good never seen one

that was good for sex hormones. I take a Ritalin type drug concerta it's slow

release he gave it to me for my fatigue works dam good. If your going to test

sex hormones do blood work or 24 urine tests. Saliva are only good for

cortisol. People can say what they want but I see a lot of saliva tests for low

cortisol and with the test are sex hormones and none are anything at all like a

blood test shows.

wantmylifeback85 <wantmylifeback85@...> wrote: Phil,

Would my low estrogens be causing any of these problems? I get

erections at night but morningwood is still not present as well as

spontaneous erections during the day and libido is still non-

existent. I will say that a few weeks after stopping SP I did the

Broccoli treatment for a couple days since I was freaked out but it

may have made my problems worse, though I highly doubt broccoli water

would make things worse (my estrogens had to have been high on SP as

I did have bigger nipples - they're back to normal size and no signs

of gyno.... also all the extra test from SP is aromatized into

estrogen). Results again:

Estrone (E1) 5.6 (3 - 12.0)

Estradiol (E2) 1.6 (0 - 7.0)

Estriol 1.8 (1 - 16)

Total Estrogens 9.0 (4 -22)

Estrogens on the low-end are just as bad as being in the high-end,

right? I read that you don't want low E2 as that's bad for the

arteries.

Anyway, I will be getting results from my adrenal MRI, 24 hour saliva

test, and some bloodwork back from my endo tomorrow to shed some

light on this matter. I feel like I'm prematurely aging as my face

has dried up and there are fine lines below and around my eyes - I

now look terrible when I smile.

Shippen is going to start putting me on low-dose Ritalin (to raise

libido) as well as Testosterone drops (again, for libido). He said

to take then 2-3 hours before sexual activity, going to the gym,

etc. The muscle wastage is very depressing and I've never seen my

wrists so skinny in my entire life - though I'm still able to lift

the same amount of weights. I'm not sure if weight training with

high cortisol is healthy though. I even tried to lift more and was

able to - I bench pressed 235lbs (a first) and I weigh 165lbs (very

little body fat, hopefully this remains the same).

I'm still perplexed how 9 days could do this to me...

Well I have

> some positive news - I'm not as impotent as I thought I

> > was. I was able to " get it up " while making out/fooling around

with

> > my gf which has provided me a huge amount of relief. I think I'm

> > confident enough to have sex... I had a Viagra in my pocket but I

> > don't think I'll need it. I even had slight morningwood the next

> > morning! The numbness, however, is still an issue but at least I

> > don't have 100% ED.

> >

> > I'm in lighter spirits today because of this but I'm not fully

> > celebrating yet as I still need to regain all the muscle mass

I've

> > lost. I've lost nearly 10-12 pounds in such little time – the

face

> > is the most noticeable. I still have a lingering pain in my

groin.

> > The eye floaters/vision problems are still a presence and a

> > nuisance. The depression has lifted a bit - I'm mainly depressed

> > because of all these symptoms. Sleep has improved a bit too. I

used

> > to wake up really early in the morning and not be able to get

back

> to

> > bed but now I can get up at a reasonable hour – still lacking the

> > ability to sleep in like I used to though. I'm still going to see

> > the urologist but today is the first day I've felt GOOD in quite

> > awhile. Hopefully things will continue to improve.

> >

> >

> >

> >

> >

> >

> > Co-Moderator " Don't believe anything you hear and only half of

what

> you see. "

> > Phil

> >

> >

> >

[Guest guest]

No, they're from my 24 urine analysis (before Clomid test):

Estrone (E1) 5.6 (3 - 12.0)

Estradiol (E2) 1.6 (0 - 7.0)

Estriol 1.8 (1 - 16)

Total Estrogens 9.0 (4 -22)

Testosterone 84 (45 - 85)

DHT 6.6 (0 - 13)

Androstanediol 73 (48 - 578)

Androstenedione 97 (0 - 50) = HIGH

DHEA 7821 (5 - 1476) = REALLY HIGH

Androstenetriol 423 (42 - 710)

Androsterone 1912 (798 - 4705)

11b-OH Androsterone 1213 (461 - 1692)

Etiocholanolone 2324 (689 - 3252)

11b-OH Etiocholanolone 114 (134 - 1186) = LOW

Pregenanediol 135 (32 - 501)

5-Pregnenetriol 715 (28-1062)

Cotristone 287 (92 - 366)

THE 4470 (1365 - 5788)

THB 157 (32 - 238)

5a-THB 456 (135 - 588)

THA 174 (52 - 277)

Cortisol 189 (35 - 168) = HIGH

THF 2677 (942 - 2800)

5a-THF 1510 (796 - 2456)

Well I have

> > some positive news - I'm not as impotent as I thought I

> > > was. I was able to " get it up " while making out/fooling around

> with

> > > my gf which has provided me a huge amount of relief. I think I'm

> > > confident enough to have sex... I had a Viagra in my pocket but I

> > > don't think I'll need it. I even had slight morningwood the next

> > > morning! The numbness, however, is still an issue but at least I

> > > don't have 100% ED.

> > >

> > > I'm in lighter spirits today because of this but I'm not fully

> > > celebrating yet as I still need to regain all the muscle mass

> I've

> > > lost. I've lost nearly 10-12 pounds in such little time � the

> face

> > > is the most noticeable. I still have a lingering pain in my

> groin.

> > > The eye floaters/vision problems are still a presence and a

> > > nuisance. The depression has lifted a bit - I'm mainly depressed

> > > because of all these symptoms. Sleep has improved a bit too. I

> used

> > > to wake up really early in the morning and not be able to get

> back

> > to

> > > bed but now I can get up at a reasonable hour � still lacking the

> > > ability to sleep in like I used to though. I'm still going to see

> > > the urologist but today is the first day I've felt GOOD in quite

> > > awhile. Hopefully things will continue to improve.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Co-Moderator " Don't believe anything you hear and only half of

> what

> > you see. "

> > > Phil

> > >

> > >

> > >

[Guest guest]

Results from 5/9/08:

Bloodwork:

Progesterone .50 (<1.4 ngML)

T4 Free 1.25 (0.8-1.8 ng/dL)

TSH 0.84 (0.40-4.50 uIU/mL)

T3 Total 119 (60-181 ng/DL)

DHEA Sulfate 212 (110-510mcg/dL)

Cortisol (AM) 1.0L (4.0-22.0 mcg/dL)*

ACTH Plasma <5L (7-50 pg/mL)*

* = After Dexamethasone Suppression Test, hence the low reading

(which is good)

Salivary Cortisol: 0.70 [Not sure which vile out of the three this is

referring to or if this is an average, took at 3 different times]

Reference Range:

8-10AM 0.04-0.56

4-6PM < OR = 0.15

10-11PM < OR = 0.09

Adrenal MRI = OK, no problem found

[Guest guest]

Ok I would if I were you post these labs at Dr. 's forum I am a mod there

also and he does a lot of 24 hr. urine tests for sex hormones and the guys there

are up on them. I am just getting started learning about them.

http://www.musclechatroom.com/forum/forumdisplay.php?s= & daysprune= & f=2

wantmylifeback85 <wantmylifeback85@...> wrote:

No, they're from my 24 urine analysis (before Clomid test):

Estrone (E1) 5.6 (3 - 12.0)

Estradiol (E2) 1.6 (0 - 7.0)

Estriol 1.8 (1 - 16)

Total Estrogens 9.0 (4 -22)

Testosterone 84 (45 - 85)

DHT 6.6 (0 - 13)

Androstanediol 73 (48 - 578)

Androstenedione 97 (0 - 50) = HIGH

DHEA 7821 (5 - 1476) = REALLY HIGH

Androstenetriol 423 (42 - 710)

Androsterone 1912 (798 - 4705)

11b-OH Androsterone 1213 (461 - 1692)

Etiocholanolone 2324 (689 - 3252)

11b-OH Etiocholanolone 114 (134 - 1186) = LOW

Pregenanediol 135 (32 - 501)

5-Pregnenetriol 715 (28-1062)

Cotristone 287 (92 - 366)

THE 4470 (1365 - 5788)

THB 157 (32 - 238)

5a-THB 456 (135 - 588)

THA 174 (52 - 277)

Cortisol 189 (35 - 168) = HIGH

THF 2677 (942 - 2800)

5a-THF 1510 (796 - 2456)

Well I have

> > some positive news - I'm not as impotent as I thought I

> > > was. I was able to " get it up " while making out/fooling around

> with

> > > my gf which has provided me a huge amount of relief. I think I'm

> > > confident enough to have sex... I had a Viagra in my pocket but I

> > > don't think I'll need it. I even had slight morningwood the next

> > > morning! The numbness, however, is still an issue but at least I

> > > don't have 100% ED.

> > >

> > > I'm in lighter spirits today because of this but I'm not fully

> > > celebrating yet as I still need to regain all the muscle mass

> I've

> > > lost. I've lost nearly 10-12 pounds in such little time � the

> face

> > > is the most noticeable. I still have a lingering pain in my

> groin.

> > > The eye floaters/vision problems are still a presence and a

> > > nuisance. The depression has lifted a bit - I'm mainly depressed

> > > because of all these symptoms. Sleep has improved a bit too. I

> used

> > > to wake up really early in the morning and not be able to get

> back

> > to

> > > bed but now I can get up at a reasonable hour � still lacking the

> > > ability to sleep in like I used to though. I'm still going to see

> > > the urologist but today is the first day I've felt GOOD in quite

> > > awhile. Hopefully things will continue to improve.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Co-Moderator " Don't believe anything you hear and only half of

> what

> > you see. "

> > > Phil

> > >

> > >

> > >

[Guest guest]

Put this on Dr. 's site also.

wantmylifeback85 <wantmylifeback85@...> wrote: Results from

5/9/08:

Bloodwork:

Progesterone .50 (<1.4 ngML)

T4 Free 1.25 (0.8-1.8 ng/dL)

TSH 0.84 (0.40-4.50 uIU/mL)

T3 Total 119 (60-181 ng/DL)

DHEA Sulfate 212 (110-510mcg/dL)

Cortisol (AM) 1.0L (4.0-22.0 mcg/dL)*

ACTH Plasma <5L (7-50 pg/mL)*

* = After Dexamethasone Suppression Test, hence the low reading

(which is good)

Salivary Cortisol: 0.70 [Not sure which vile out of the three this is

referring to or if this is an average, took at 3 different times]

Reference Range:

8-10AM 0.04-0.56

4-6PM < OR = 0.15

10-11PM < OR = 0.09

Adrenal MRI = OK, no problem found

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

[Guest guest]

Thank GOD some good news after diagnosis. I see NEW rheumy tom. got the name

from a patient in this group right here in my city ! I got on the site

right after watching you on the show, & got schedudled the very NEXT day. So

thanks for keeping involved . I got bit scared after reading all the horror

stories of " living wt,\. Stills, so I needed to know your after math.

Know your busy so when you get the chance could you pls. let me know what

were you put on & did it work right away or did U had to try out dif . stuff ?

I'm still petrified I'll hear the new doc. say I'm NORMAL (like the dozens

of others I've been throught)

Congratulations on the NEW place, I don't over do.Also so happy to hear you

got a nice partner to enjoy life goods & bad with!

VIVI

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

[Guest guest]

Hi Deborah!

That is wonderful news!!!! Congrats to your son and congrats to you for having

the strength to go through another surgery!! How is your pain level right now?

Do they think this surgery is going to do the trick for you and get you to a

somewhat pain free life?

 

I too have good news for everyone to hear... If you have ready my postings, you

know that I had the cervical epidural injection on Wed. Well, I am so HAPPY to

report that since yesterday I have ZERO pain!! I can hardly believe it. I am

wondering if maybe I am just in a dream or something. I even went for a 10 mile

bike ride this morning on the beach. I started feeling the pain a bit after the

first couple of miles but I hung in there, came back and put some ice on my

neck, and tonight I feel WONDERFUL! No pain killers or anything today!!! :) I

am still in shock and am going to hope and pray that my neck will continue to

feel like this for a while. I know the shot isn't a permanent fix but if it will

help me lead a somewhat normal life for a while, I WILL TAKE IT!!

 

Thank you so much everyone for you love and support. It has been a blessing

joining this message board. I tell all of my family and friends about you guys

and how wonderful it has been being part of a group of people, strangers that

can be so endearing.

 

I hope everyone enjoys the rest of the weekend and for all of you sturggling

with your pain everyday, you are in my thoughts and my prayers.

 

Hugs and Kisses!

From: prodgod1 <prodgod1@...>

Subject: Some Good news

neck pain

Date: Saturday, September 20, 2008, 11:51 AM

Hello Everyone,

I typically read and only have posted a few times. Aug 26th I have a

corrective surgery on C5-C7 posterior fusion etc etc. Almost 4 weeks I

am still in recovery but, I am hopefully and wanted to tell everyone!

I was blessed to be accepted at the Mayo Clinic Neuro Department. They

found I had two broken screws at C7 and thought it best to basically re-

do the whole surgery! I have to be in a neck collar for 3 months to

make sure the fusion is stable.. That stinks but, the alternative is

worse!

Also on Aug 21st 5 days before my surgery my 20 year old only son went

to the US NAVY for boot camp. He is doing wonderful and have already

started growing up and sending wonderful letters. His graduation is

Oct 17th and I will be going!!!

Thought everyone could use some good news!

Deborah

[Guest guest]

I just saw this from another group and thought it may be of some interest to

some of you.

 

 

By Therese J. Borchard

A woman who lives with chronic pain said to my mom the other day, " You can't sit

around and wait for the storm to be over. You've got to learn how to dance in

the rain. " That's a perfect description of living with depression, or any

chronic illness.

From: prodgod1 <prodgod1 (DOT) com>

Subject: [PainInTheNeck- Back] Some Good news

PainInTheNeck- Back@groups .com

Date: Saturday, September 20, 2008, 11:51 AM

Hello Everyone,

I typically read and only have posted a few times. Aug 26th I have a

corrective surgery on C5-C7 posterior fusion etc etc. Almost 4 weeks I

am still in recovery but, I am hopefully and wanted to tell everyone!

I was blessed to be accepted at the Mayo Clinic Neuro Department. They

found I had two broken screws at C7 and thought it best to basically re-

do the whole surgery! I have to be in a neck collar for 3 months to

make sure the fusion is stable.. That stinks but, the alternative is

worse!

Also on Aug 21st 5 days before my surgery my 20 year old only son went

to the US NAVY for boot camp. He is doing wonderful and have already

started growing up and sending wonderful letters. His graduation is

Oct 17th and I will be going!!!

Thought everyone could use some good news!

Deborah

[Guest guest]

wow thanks for that, what wonderful advice to live by!!!!

wendy

[PainInTheNeck- Back] Some Good news

PainInTheNeck- Back@groups .com

Date: Saturday, September 20, 2008, 11:51 AM

Hello Everyone,

I typically read and only have posted a few times. Aug 26th I have a

corrective surgery on C5-C7 posterior fusion etc etc. Almost 4 weeks I

am still in recovery but, I am hopefully and wanted to tell everyone!

I was blessed to be accepted at the Mayo Clinic Neuro Department. They

found I had two broken screws at C7 and thought it best to basically re-

do the whole surgery! I have to be in a neck collar for 3 months to

make sure the fusion is stable.. That stinks but, the alternative is

worse!

Also on Aug 21st 5 days before my surgery my 20 year old only son went

to the US NAVY for boot camp. He is doing wonderful and have already

started growing up and sending wonderful letters. His graduation is

Oct 17th and I will be going!!!

Thought everyone could use some good news!

Deborah

[Guest guest]

That is WONERFUL! And so very true! Thanks for sharing Rex!

From: prodgod1 <prodgod1 (DOT) com>

Subject: [PainInTheNeck- Back] Some Good news

PainInTheNeck- Back@groups .com

Date: Saturday, September 20, 2008, 11:51 AM

Hello Everyone,

I typically read and only have posted a few times. Aug 26th I have a

corrective surgery on C5-C7 posterior fusion etc etc. Almost 4 weeks I

am still in recovery but, I am hopefully and wanted to tell everyone!

I was blessed to be accepted at the Mayo Clinic Neuro Department. They

found I had two broken screws at C7 and thought it best to basically re-

do the whole surgery! I have to be in a neck collar for 3 months to

make sure the fusion is stable.. That stinks but, the alternative is

worse!

Also on Aug 21st 5 days before my surgery my 20 year old only son went

to the US NAVY for boot camp. He is doing wonderful and have already

started growing up and sending wonderful letters. His graduation is

Oct 17th and I will be going!!!

Thought everyone could use some good news!

Deborah

[Guest guest]

That is great that insurance is covering the band!!!!!

Angie

some good news

We just got the letter yesterday saying we won our appeal with the insurance. They are going to cover the $2500! Yay Plus, after yet another billionth adjustment at the ortho, 8 hours of the helmet and no red welts! I am so so happy that we can finally start my son Liam's treatment.Just had to share.

[Guest guest]

In a message dated 18/02/2010 18:42:17 GMT Standard Time, zoe@... writes:

Bright Futures has got a grant for the development of our dynamic thinking school. The hard work starts now!!

>>Awesome Zoe, only you could have pulled that off!

Mandi x