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Yes, when my husband 1st had CML the white of the eye would suddenly have a pool

of blood at one side of the iris or almost cover the white of the eye.  Later he

would feel it coming into the white of his eye. He used to be upset because he

didn't want to read or be out in public.  It sometimes hurt that's why he didn't

want to be out and about.

Also, his skin on his arms and legs got more and more fragile.  If he bumped the

sink in the bathroom, or his shins on the step of a stepladder, his skin would

tear or a huge bruise would come up under the skin.  The skin is still

discolored 7 years later. But at least the skin doesn't tear as easily as it did

in the 1st couple of years.  Liquid " skin " helps when most band-aids can't be

used.

Good luck to you all.  Woods

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It's just a side effect, they come and go, not to worry...

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Karine Vallier <karinevallier@...>

Subject: Re: [ ] eye bleeds

Date: Saturday, September 18, 2010, 9:37 PM

 

I'm wandering if it's do to a low platelet count.  Or just a side effect?

________________________________

From: NICK WOODS <ksnwoods@...>

Sent: Fri, September 17, 2010 11:17:15 PM

Subject: [ ] eye bleeds

 

Yes, when my husband 1st had CML the white of the eye would suddenly have a pool

of blood at one side of the iris or almost cover the white of the eye.  Later

he

would feel it coming into the white of his eye. He used to be upset because he

didn't want to read or be out in public.  It sometimes hurt that's why he

didn't

want to be out and about.

Also, his skin on his arms and legs got more and more fragile.  If he bumped

the

sink in the bathroom, or his shins on the step of a stepladder, his skin would

tear or a huge bruise would come up under the skin.  The skin is still

discolored 7 years later. But at least the skin doesn't tear as easily as it did

in the 1st couple of years.  Liquid " skin " helps when most band-aids can't be

used.

Good luck to you all.  Woods

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