Re: LLS Statement

[Guest guest]

>

Hi Pat: That last statement says Essentially Cured, and that could throw some

people off if they do not understand that what it really means is that you could

live for a longer period of time with the new treatments available to us now. I

think we have a lot of people still confused over remission and response. I

guess thats why we are fortunate enough to have these boards to post and answer

questions.

In the long run, its great that so much money is being raised so that one day

people can say definitley I AM Cured.>

Hi all -

> Some 20,000 women were in the Nike Women's Marathon in San Francisco

yesterday, raising funds for LLS. An article in the San Francico Chronicle said

the race is in its seventh year and has raised more than $100 million dollars

for leukemia and lymphoma research. The article also included the following

information:

> ----------------------------

>

> Thanks in part to research grants from the Leukemia and Lymphoma Society, the

primary recipient of marathon funds, outlooks have improved dramatically for

those with blood cancer, society spokeswoman Liz Olsen said.

>

> Forty years ago, very few children survived leukemia, but now 85 percent live

five years or more after diagnosis. Chronic myelogenous leukemia, which once had

a survival rate of three years, is now essentially cured, she said.

>

>

> Read more:

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2010/10/18/BAMF1FU1CR.DTL#ixzz1\

2jqOw6WU

>

> -----------------------------------

>

> Some questions for you:

> Do you agree that CML is now " essentially cured? "

> Do you think an organization that views a disease as " essentially cured " will

contribute funds toward research in that disease?

> Other thoughts?

>

> Pat in Phoenix

>

[Guest guest]

> Some questions for you:

> Do you agree that CML is now " essentially cured? "

> Do you think an organization that views a disease as " essentially cured " will

contribute funds toward research in that disease?

> Other thoughts?

>

> Pat in Phoenix

_____________________________

Hi Pat,

I see NO problem with this statement, because it is written for the general

public, not for medical people or informed patients. The drugs that we have,

thanks to the LLS, are 'essentially' a functional cure....for most patients. IF

you were diagnosed before Gleevec, you 'essentially' had a death threat hanging

over your head...this disease was considered fatal....now it is considered a

treatable chronic disease for most patients (diagnosed in the early stage).

I think that LLS is giving grants to any researcher that has a worthwhile

proposal, including those working on CML, including Dr. Druker. When a cure is

found for CML, I think that LLS money will have played a part is that

also.....and that they will deserve to stand on a mountain top and yell.......we

helped cure CML!!

The LLS statement did not say 'cured' period.....I think this statement was a

way to show that progress against leukemia is being made and that these funds

are making a difference.

C.