Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 hi lottie, u r still the sunflower sunshine in my life. i dont post very much as i have a lot going on in my life other than cml. my onc and nurse is going to work with me on getting help. i go in for a checkup and bloodwork on monday jan 17th at univ of chicago. yes i am still on 400mg gleevec daily since feb 2002 and in pcru for 8 years. just another hurdle i didnt need at this point in my life. it just seems when i get a little breathing room, something else gets thrown my way. i wont worry lottie, just a little discouraging. you think after being in a trial for 10years and being a good little patient and doing whatever they wanted me to do, we could get our drug for free for life like the earlier trials. the people in the early trials of gleevec are getting their gleevec for life free of charge. it would b nice if they could make a generic form. luv you and miss you lottie. gina xoxoxox p.s. has anyone heard from norma bidelman? lynn andrews? > > Dear , here you go worrying again. There are patient assistance companies that help you with your drugs. I would like to see everyone who gets assistance to tell where they get t heir drugs, how simple it is to apply, so she can stop worrying herself to death. Let's get her on the right path so she will know what to do next. What trial is that, , Gleevec. If so, Gleevec has patient assistance for about a year and then they sic you on to someone else like Patient Services, Incorporated. They will work with your plan D and pick up your co-pay. If anyone knows a person or corporation who wants to donate to a cancer cause, this is the place. They cannot do this without the support of these organizations. I am sure some of the donations come from workers. Take a deep breath and get on the net and you will figure something out. Let us know what you find out. I don't hear from you often, but you are still in my heart, my Sunflower. LOL > xoxox > Lottie > > Quote Link to comment Share on other sites More sharing options...
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