Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 I second that! Go Beth! Jon > I was thrilled to hear from the Dr. R. Thank you for sharing with the > group and I am glad that he put some of the fears of failure to rest. > Continue to speak out, you are helping the rest of us Beth, regardless of > some of the others opinions, they are just that, " opinions " . God bless, > Larice 01/04/01 > > Larice White Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Nan, Have you asked Dr. Kolb what to do about losing so much weight? . . . It seems that, besides breast implants, the thing you ladies, who are having a hard time getting better have in common is a los MSH. I'd love to hear from someone whose MSH used to be low, now has a normal level. As many years as I'm been involved in this, this seems to be a relatively new discovery related to breast implants. I wonder why it didn't become public knowledge sooner? . .. OR was it, and we didn't understand. Anyone know? Rogene nnnttwilliams <nnnttwilliams@...> wrote: I posted to you a while back, I have low MSH too 8, and feel like I am a bit "stuck" in healing. I probably have the same genotype you were talking about. I ordered the footbath. How long have you had explant and what problems are you left with. I just realized today I have made progress. Before explant I was bumping into walls and very dizzy. That is gone. I still have extreme fatigue, muscle PAIN not aches, a general feeling of all over pain, I guess this is fibromyalgia from the biotoxin disease. Anyway, Dr Kolb just gave me the antifungal and a ton of supplements and I have been following the diet, not even cheating on the sugar but have had a few pieces of bread. I am at a very scary weight of about 115 and at 5'7 this is too thin. Write back, love Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 That is a wonderful Idea... Thanks ~AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2010 Report Share Posted October 5, 2010 > > I was thinking this just this morning ... it is early am in the UK and I can hear you snoring over there!!! Lol > My results yesterday from the HH were encouraging showing no gene changes, no mutations, PCR down to 4.3% (from supposedly 90% a few weeks ago! Mistake?) so will probably be put back on Glivec soon. Hurrah - what a relief .... > " What cracks the oyster cannot touch the pearl " > You ARE the pearl Lottie! > Love Beth _________________________ Great news Beth! There is nothing better than being garden variety CML and responding to your drug. I wonder why your local was so confused about things? I hope he/she is learning more. People do have the kind of response you have indicated above, and it might mean that you will be a very fast responder to Gleevec....and be CCR in no time.....and maybe be one of the lucky ones who gets to PCRU. Now relax and just enjoy your life. C. Quote Link to comment Share on other sites More sharing options...
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