pain

[Guest guest]

keep us up to date.

Phil

Brown <kidsxx5@...> wrote:

I have joint and muscle pain, kind of like the body ache you feel when you have

the flu. I found a great doc who amazingly know all about hypogonadism and hope

to get on the right track with all of this soon. Right now doing some

preliminary tests, thyroid, E2, T…just about everything.

steve5452 wrote:

I see a lot of people mentioning pain, do many people with primary H

suffer pain and if so what sort of pain?

Sorry if this is a silly question.

Steve

[Guest guest]

Phil,

Will keep you guys up to date.

I will be calling him tonight (he actually gave me his home phone number to

call) and hopefully he will have all the test results in.

philip georgian <pmgamer18@...> wrote:

keep us up to date.

Phil

Brown wrote:

I have joint and muscle pain, kind of like the body ache you feel when you have

the flu. I found a great doc who amazingly know all about hypogonadism and hope

to get on the right track with all of this soon. Right now doing some

preliminary tests, thyroid, E2, T…just about everything.

steve5452 wrote:

I see a lot of people mentioning pain, do many people with primary H

suffer pain and if so what sort of pain?

Sorry if this is a silly question.

Steve

[Guest guest]

Phil,

Will keep you guys up to date.

I will be calling him tonight (he actually gave me his home phone number to

call) and hopefully he will have all the test results in.

philip georgian <pmgamer18@...> wrote:

keep us up to date.

Phil

Brown wrote:

I have joint and muscle pain, kind of like the body ache you feel when you have

the flu. I found a great doc who amazingly know all about hypogonadism and hope

to get on the right track with all of this soon. Right now doing some

preliminary tests, thyroid, E2, T…just about everything.

steve5452 wrote:

I see a lot of people mentioning pain, do many people with primary H

suffer pain and if so what sort of pain?

Sorry if this is a silly question.

Steve

[Guest guest]

The thing that blows my mind what is left of it is why the gels don't help but

going on shots I have relief. I did a lot of work yesterday in my kitchen after

the painters were done that I would have never been able to do on the gels.

Today I am not sore after doing all of this work If I was still on the gels I

would be crippled today.

Phil

dano2718 <no_reply > wrote:

I was feeling the same kind of muscle " ache " all over the body, plus

getting a sore lower back by the end of the day, maybe from muscle

atrophy. I assume the original question was about physical pain, so I

will forego: the severed friendships, marginalized at the workplace,

feeling like your best years are behind you, etc- that's the worst

pain of all!

> I see a lot of people mentioning pain, do many people with primary H

> suffer pain and if so what sort of pain?

>

> Sorry if this is a silly question.

>

> Steve

>

>

>

>

>

[Guest guest]

Hi Phil

I think this is purely that Testosterone is a large molecule and is not

easily passed through the skin. Alcohol delivery is used for the gels and

this only works on a %age of people. The injection / depot is passed into

the muscle and so is more easily passed into the blood supply.

_________________________________________

Randle

_________________________________________

Re: pain

The thing that blows my mind what is left of it is why the gels don't help

but going on shots I have relief. I did a lot of work yesterday in my

kitchen after the painters were done that I would have never been able to do

on the gels. Today I am not sore after doing all of this work If I was

still on the gels I would be crippled today.

Phil

dano2718 <no_reply > wrote:

I was feeling the same kind of muscle " ache " all over the body, plus

getting a sore lower back by the end of the day, maybe from muscle

atrophy. I assume the original question was about physical pain, so I

will forego: the severed friendships, marginalized at the workplace,

feeling like your best years are behind you, etc- that's the worst

pain of all!

> I see a lot of people mentioning pain, do many people with primary H

> suffer pain and if so what sort of pain?

>

> Sorry if this is a silly question.

>

> Steve

>

>

>

>

>

[Guest guest]

Loretta,

If the stomach pains continue I would sure let the doctor know. They

might need to change your meds. What type of meds are you on? I hope

that your holiday weekend goes well. Take care, Tawny

--- In , " teaforeight " <teaforeight@y...>

wrote:

> I know that most of you are in bed by now and hope you are able to

> get some sleep. My hubby is sleeping and I am up as I am not

working

> tomorrow, I just wish I felt better, I have had stomach pains for

> three weeks now after I eat the smallest amount of food and I

> wonder if it is my meds starting to eat away my gut.

>

> I think I should see my doctor but I feel he will just say you have

> a stomach cramps and I know that already. I have had a bad day at

> work today and sometimes I think that boss needs a swift kick, I

> think he has something against older ladies and he wants to work me

> to death.

>

> This weather is not helping me at all one day it is hot and now it

> is in the 50`s which is better than the 90`s we have been having.

>

> My daughter just left with the kids, she is expecting another one

in

> Jan 6 I just can not wait, this is her fourth one and they are so

> good and well behaved the youngest one is two and he has been

> begging to go to domma`s house. I love them so much, I have

> 8grandchildren in all and I will welcome more, they are just the

> greatest gift of all.

>

> Well just wanted to say hello and may you all have a good night.

>

> Loretta

[Guest guest]

Loretta,

If the stomach pains continue I would sure let the doctor know. They

might need to change your meds. What type of meds are you on? I hope

that your holiday weekend goes well. Take care, Tawny

> I know that most of you are in bed by now and hope you are able to

> get some sleep. My hubby is sleeping and I am up as I am not

working

> tomorrow, I just wish I felt better, I have had stomach pains for

> three weeks now after I eat the smallest amount of food and I

> wonder if it is my meds starting to eat away my gut.

>

> I think I should see my doctor but I feel he will just say you have

> a stomach cramps and I know that already. I have had a bad day at

> work today and sometimes I think that boss needs a swift kick, I

> think he has something against older ladies and he wants to work me

> to death.

>

> This weather is not helping me at all one day it is hot and now it

> is in the 50`s which is better than the 90`s we have been having.

>

> My daughter just left with the kids, she is expecting another one

in

> Jan 6 I just can not wait, this is her fourth one and they are so

> good and well behaved the youngest one is two and he has been

> begging to go to domma`s house. I love them so much, I have

> 8grandchildren in all and I will welcome more, they are just the

> greatest gift of all.

>

> Well just wanted to say hello and may you all have a good night.

>

> Loretta

[Guest guest]

It's good that you're not having to wait too awfully long to see a

rheumatologist. Sometimes it takes six months to get in to see one,

since there aren't enough. He will no doubt put you on a

disease-modifying arthritis drug, known as a DMARD. Many rheumys start

off with methotrexate. You'll just have to wait and see what he puts

you on. Without a DMARD, joint damage can occur. Sometimes it takes a

while to get the right combination of meds to control the pain and

inflammation. The thinking today is that early, aggressive treatment is

the best to prevent irreversible damage to the joints. Let us know what

he says. In the meantime, sorry that you're having all of that pain and

fatigue. Hopefully the time will pass fast until July 27. Good luck!

Sue

On Saturday, July 16, 2005, at 03:35 PM, cnberte wrote:

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain. Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

It's good that you're not having to wait too awfully long to see a

rheumatologist. Sometimes it takes six months to get in to see one,

since there aren't enough. He will no doubt put you on a

disease-modifying arthritis drug, known as a DMARD. Many rheumys start

off with methotrexate. You'll just have to wait and see what he puts

you on. Without a DMARD, joint damage can occur. Sometimes it takes a

while to get the right combination of meds to control the pain and

inflammation. The thinking today is that early, aggressive treatment is

the best to prevent irreversible damage to the joints. Let us know what

he says. In the meantime, sorry that you're having all of that pain and

fatigue. Hopefully the time will pass fast until July 27. Good luck!

Sue

On Saturday, July 16, 2005, at 03:35 PM, cnberte wrote:

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain. Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Hello there! Welcome! I'm sorry about the diagnoses! You have come

to the right place though! I'm glad that you are here. I am sure

sorry to hear about the relative situation. People are just that -

people. It is hell being human with everything going well let alone

being thrown a curve ball out of the left field! Some of us have a

great support system within our own homes, some have nobody other

this group, I guess it just varies. I hope that yours will come

around. A lot of us have some denial, some have dealt with it and

some not. It really varies among us. I for example do not have any

support other than my friend Shirley and this group. I go to

counseling for all the stress dealing with a non-treating doctor. I

finally came to terms that I am sick after a virtually 3+ year flare

in Feb. I sometimes go back and forth with it. My boyfriend of 6

years just doesn't get it. I get so frustrated at times. I do

however, realize that he isn't me and has to come to terms with it in

his own way in his own time frame. Doesn't really make it any easier

though. I know that I needed to be at the very least validated on my

feelings, worries, concerns, etc... and thank God I found this

group! They are my lifeline!!!! I vent all the time!!! Feel free to

here any time. We all usually do at some point. I think that you

will meet and make many friends here and the information that is

posted is wonderful! I am so sorry that you family dismisses your

pain and fatigue. I honestly looking back think that I, myself

didn't understand fully about this illness and its impact on others,

thus I wouldn't have got that my boyfriend was actually so tired or

in so much pain. Now if I could just convince myself of that - maybe

I would be more patient with him! Who knows? Anyhow, I'm glad that

you are here! Hope to talk to you again soon. Take care! XXX's

Kim

[Guest guest]

Hello there! Welcome! I'm sorry about the diagnoses! You have come

to the right place though! I'm glad that you are here. I am sure

sorry to hear about the relative situation. People are just that -

people. It is hell being human with everything going well let alone

being thrown a curve ball out of the left field! Some of us have a

great support system within our own homes, some have nobody other

this group, I guess it just varies. I hope that yours will come

around. A lot of us have some denial, some have dealt with it and

some not. It really varies among us. I for example do not have any

support other than my friend Shirley and this group. I go to

counseling for all the stress dealing with a non-treating doctor. I

finally came to terms that I am sick after a virtually 3+ year flare

in Feb. I sometimes go back and forth with it. My boyfriend of 6

years just doesn't get it. I get so frustrated at times. I do

however, realize that he isn't me and has to come to terms with it in

his own way in his own time frame. Doesn't really make it any easier

though. I know that I needed to be at the very least validated on my

feelings, worries, concerns, etc... and thank God I found this

group! They are my lifeline!!!! I vent all the time!!! Feel free to

here any time. We all usually do at some point. I think that you

will meet and make many friends here and the information that is

posted is wonderful! I am so sorry that you family dismisses your

pain and fatigue. I honestly looking back think that I, myself

didn't understand fully about this illness and its impact on others,

thus I wouldn't have got that my boyfriend was actually so tired or

in so much pain. Now if I could just convince myself of that - maybe

I would be more patient with him! Who knows? Anyhow, I'm glad that

you are here! Hope to talk to you again soon. Take care! XXX's

Kim

[Guest guest]

Welcome!

Sorry about your diagnose, but glad you found the group. We do

understand what your going through. We have wonderful support, and

great information. I hope on your rheumy visit, you can get some good

meds, and get you feeling better, Tawny

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Welcome!

Sorry about your diagnose, but glad you found the group. We do

understand what your going through. We have wonderful support, and

great information. I hope on your rheumy visit, you can get some good

meds, and get you feeling better, Tawny

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Hi and welcome to the group. It is very beneficial to have the

support and understanding of people who are " in the same boat " so to

speak. I, too, was diagnosed with RA at age 35.......I am now 40 and

doing relatively well. What I have found with the meds. is that I

have more variety, good days along with the fair and the ugly. I

noticed that you live in the DFW area. I live in Fort Worth so I

can certainly relate your issues with heat and humidity! And you

are correct.....most people do not understand the differences

between rheumatoid arthritis and osteoarthritis. I know I didn't

until my own diagnosis - what a way to be enlightened! I do not

talk much about my experiences with RA....though at times it is

difficult to hide - especially at work as a first-grade teacher!

That's why it is so helpful to have this group to connect with

people on common ground. Best of luck with your rheumatologist

appointment.....are you seeing a doctor in Dallas or Fort Worth?

Hope you get relief soon.

> Thanks for all the support. I am taking 200 mg of Plaquenil per

day

> and 5mg of prednisone. It is not getting better but I anticipate

some

> med changes when I see the rheumatologist. Me EPo doc has put on

these

> meds until I see him. My Pulmonary function test is slightly

decreased

> (could be both RA and the pollution) I live in DFW area where it

is

> difficult to breath well in the summer. My bone density test is

> normal. I still have to get my eyes examined and I think thats

about

> it for now. Sudden barometric pressure changes seem to affect me

> significantly. We moved back to this area 2 years ago from the

Seattle

> area and I started noticing changes then but like many it took

awhile

> for all the changes to manifest in a way that forced me to seek

medical

> intervention. I attributed the early changes to getting older,

stress,

> the move, buying a house, etc, etc. I woke up one morning and

could

> barely move and that is when I went to the dr and here we are now.

[Guest guest]

Hi and welcome to the group. It is very beneficial to have the

support and understanding of people who are " in the same boat " so to

speak. I, too, was diagnosed with RA at age 35.......I am now 40 and

doing relatively well. What I have found with the meds. is that I

have more variety, good days along with the fair and the ugly. I

noticed that you live in the DFW area. I live in Fort Worth so I

can certainly relate your issues with heat and humidity! And you

are correct.....most people do not understand the differences

between rheumatoid arthritis and osteoarthritis. I know I didn't

until my own diagnosis - what a way to be enlightened! I do not

talk much about my experiences with RA....though at times it is

difficult to hide - especially at work as a first-grade teacher!

That's why it is so helpful to have this group to connect with

people on common ground. Best of luck with your rheumatologist

appointment.....are you seeing a doctor in Dallas or Fort Worth?

Hope you get relief soon.

> Thanks for all the support. I am taking 200 mg of Plaquenil per

day

> and 5mg of prednisone. It is not getting better but I anticipate

some

> med changes when I see the rheumatologist. Me EPo doc has put on

these

> meds until I see him. My Pulmonary function test is slightly

decreased

> (could be both RA and the pollution) I live in DFW area where it

is

> difficult to breath well in the summer. My bone density test is

> normal. I still have to get my eyes examined and I think thats

about

> it for now. Sudden barometric pressure changes seem to affect me

> significantly. We moved back to this area 2 years ago from the

Seattle

> area and I started noticing changes then but like many it took

awhile

> for all the changes to manifest in a way that forced me to seek

medical

> intervention. I attributed the early changes to getting older,

stress,

> the move, buying a house, etc, etc. I woke up one morning and

could

> barely move and that is when I went to the dr and here we are now.

[Guest guest]

Welcome! With a diagnosis made only six weeks ago, it would help me

to better help you if I had more information to go on. For instance,

how long have you had symptoms? Was the diagnosis made after years of

going from MD to MD - as most of us sufferred thru, or did you

actually have the good fortune of seeing an MD with:

EARS; -to better HEAR you with!

And not just THINK he already knows everything you're going

to say, anyways, lol.

EYES; -to better SEE your symptoms and signs!

And not just " rest his eyes " while you're " showing " him in

vain.

MOUTH; -to ASK PERTINENT questions!

And not just hurl insensitive accusations, or mouth the same

broken record you always hear: " You need to get more sleep

and exercise..and cut stress out of your life " .

HANDS; -to actually PHYSICALLY examine you! {rare}!

And not just " watch " you with a glazed over look as you

point to all your sore areas!

BRAIN; -to then PROCESS all the information in order to come up

with a REASONABLE diagnosis!

And not some stupid 'catch-all'- like " Fibro, " or

" menstrual-related, " (lol); - or worse, " repeat " back to you

a completely different scenario than you just gave him!)

This " length of time " to diagnosis also helps me with the other

issues such as non-compassionate husband and in-laws! Also as far as

exercising, not generally a good idea, as it does provide you with

fatigue and pain, and not much else! Best to do slow stretches each

day (these should actually feel " good " or you are over-doing).

I have TONS of info as I have Lupus, Fibro, Osteo- and rheumy-

arthritis, DDD, post thyroid cancer, chronic tachycardia, etc - and

an RN w/ 17 years experience; AND my hubby has ankylosing spondalitis

(always spell it wrong!), RA, and has already had a knee replaced-

when he was 42 yo.

There are SOOOoooo many wonderful, knowledgable, compassionate people

here- You will be so glad you came!

Love,

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Welcome! With a diagnosis made only six weeks ago, it would help me

to better help you if I had more information to go on. For instance,

how long have you had symptoms? Was the diagnosis made after years of

going from MD to MD - as most of us sufferred thru, or did you

actually have the good fortune of seeing an MD with:

EARS; -to better HEAR you with!

And not just THINK he already knows everything you're going

to say, anyways, lol.

EYES; -to better SEE your symptoms and signs!

And not just " rest his eyes " while you're " showing " him in

vain.

MOUTH; -to ASK PERTINENT questions!

And not just hurl insensitive accusations, or mouth the same

broken record you always hear: " You need to get more sleep

and exercise..and cut stress out of your life " .

HANDS; -to actually PHYSICALLY examine you! {rare}!

And not just " watch " you with a glazed over look as you

point to all your sore areas!

BRAIN; -to then PROCESS all the information in order to come up

with a REASONABLE diagnosis!

And not some stupid 'catch-all'- like " Fibro, " or

" menstrual-related, " (lol); - or worse, " repeat " back to you

a completely different scenario than you just gave him!)

This " length of time " to diagnosis also helps me with the other

issues such as non-compassionate husband and in-laws! Also as far as

exercising, not generally a good idea, as it does provide you with

fatigue and pain, and not much else! Best to do slow stretches each

day (these should actually feel " good " or you are over-doing).

I have TONS of info as I have Lupus, Fibro, Osteo- and rheumy-

arthritis, DDD, post thyroid cancer, chronic tachycardia, etc - and

an RN w/ 17 years experience; AND my hubby has ankylosing spondalitis

(always spell it wrong!), RA, and has already had a knee replaced-

when he was 42 yo.

There are SOOOoooo many wonderful, knowledgable, compassionate people

here- You will be so glad you came!

Love,

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

I will going to UT southwestern,

> > Thanks for all the support. I am taking 200 mg of Plaquenil per

> day

> > and 5mg of prednisone. It is not getting better but I anticipate

> some

> > med changes when I see the rheumatologist. Me EPo doc has put on

> these

> > meds until I see him. My Pulmonary function test is slightly

> decreased

> > (could be both RA and the pollution) I live in DFW area where it

> is

> > difficult to breath well in the summer. My bone density test is

> > normal. I still have to get my eyes examined and I think thats

> about

> > it for now. Sudden barometric pressure changes seem to affect me

> > significantly. We moved back to this area 2 years ago from the

> Seattle

> > area and I started noticing changes then but like many it took

> awhile

> > for all the changes to manifest in a way that forced me to seek

> medical

> > intervention. I attributed the early changes to getting older,

> stress,

> > the move, buying a house, etc, etc. I woke up one morning and

> could

> > barely move and that is when I went to the dr and here we are now.

[Guest guest]

I will going to UT southwestern,

> > Thanks for all the support. I am taking 200 mg of Plaquenil per

> day

> > and 5mg of prednisone. It is not getting better but I anticipate

> some

> > med changes when I see the rheumatologist. Me EPo doc has put on

> these

> > meds until I see him. My Pulmonary function test is slightly

> decreased

> > (could be both RA and the pollution) I live in DFW area where it

> is

> > difficult to breath well in the summer. My bone density test is

> > normal. I still have to get my eyes examined and I think thats

> about

> > it for now. Sudden barometric pressure changes seem to affect me

> > significantly. We moved back to this area 2 years ago from the

> Seattle

> > area and I started noticing changes then but like many it took

> awhile

> > for all the changes to manifest in a way that forced me to seek

> medical

> > intervention. I attributed the early changes to getting older,

> stress,

> > the move, buying a house, etc, etc. I woke up one morning and

> could

> > barely move and that is when I went to the dr and here we are now.

[Guest guest]

I had a vague pains. Feet hurt alot but I work on my feet, and I

also have flat feet so thought that was it. My shoulders hurt but

again, I use my arm all day in my career. I had been treated for a

year and half for the rt shoulder pain, it hurt the worst because of

my occupation. I was so tired and taking a lot tramadol for pain when

my three middle toes began to swell and hurt on each foot. I tried

everything to get it to go away, new shoes, epsom salts, other foot

soaks, . All the while I was SOOO tired. Washing the dog would

exhaust me and make my shoulders hurt so bad the next day. I had

become so limited to what I could do without exhaustion. I was just

getting by, very emotional. When I went to the DR the first time, it

was his partner, my reg doc was on vacation. He thought maybe I was

having a drug reaction. Took me off everthing and put me on

predisone, it went away but came right back so I went back to my dr

two weeks later, he thought RA but ran all the tests for anything

else to be sure. EVERYTHING! Lol

Looking back I have had vague symptoms for a few years but did not

put it together. I attributed it too getting older, stress, etc It

had become unbearable and was moving around from joint to joint. I

was relieved to get a diagnosis but fearful of the future. My three

middle toes are still swollen and hurt. I hurt all over. I felt

this week that I was going to die. Not really short of breath but

always feeling like I needed to take in more air. Using an inhaler

for the first time now I actually feel a little better. Feel like I

am getting a little more air

Every day is an evolution of the day before. Not sure what it is

going to be like until I wake up. Today, I woke up in pain which

seems to be the norm now. Looking forward to seeing the rheumy for

some relief.

My kids are awsome very helpful! Hubby doesnt understand.

So glad to have find this group. Thanks for your words of encouragent

> > It is very nice to read these posts. I am 35 years old, newly

> > diagnosed with RA (6 wks ago). Pain is intense and getting

worse.

> > Husband and in-laws don't understand. Always comparing it to

their

> > pain, etc. I am so tired but can't sleep because of the pain.

> Trying

> > to exercise but fatigue is overwhelming. I see a rheumatologist

> for

> > the first time on the 27th of July. Weather seems to make it

much

> > worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

I had a vague pains. Feet hurt alot but I work on my feet, and I

also have flat feet so thought that was it. My shoulders hurt but

again, I use my arm all day in my career. I had been treated for a

year and half for the rt shoulder pain, it hurt the worst because of

my occupation. I was so tired and taking a lot tramadol for pain when

my three middle toes began to swell and hurt on each foot. I tried

everything to get it to go away, new shoes, epsom salts, other foot

soaks, . All the while I was SOOO tired. Washing the dog would

exhaust me and make my shoulders hurt so bad the next day. I had

become so limited to what I could do without exhaustion. I was just

getting by, very emotional. When I went to the DR the first time, it

was his partner, my reg doc was on vacation. He thought maybe I was

having a drug reaction. Took me off everthing and put me on

predisone, it went away but came right back so I went back to my dr

two weeks later, he thought RA but ran all the tests for anything

else to be sure. EVERYTHING! Lol

Looking back I have had vague symptoms for a few years but did not

put it together. I attributed it too getting older, stress, etc It

had become unbearable and was moving around from joint to joint. I

was relieved to get a diagnosis but fearful of the future. My three

middle toes are still swollen and hurt. I hurt all over. I felt

this week that I was going to die. Not really short of breath but

always feeling like I needed to take in more air. Using an inhaler

for the first time now I actually feel a little better. Feel like I

am getting a little more air

Every day is an evolution of the day before. Not sure what it is

going to be like until I wake up. Today, I woke up in pain which

seems to be the norm now. Looking forward to seeing the rheumy for

some relief.

My kids are awsome very helpful! Hubby doesnt understand.

So glad to have find this group. Thanks for your words of encouragent

> > It is very nice to read these posts. I am 35 years old, newly

> > diagnosed with RA (6 wks ago). Pain is intense and getting

worse.

> > Husband and in-laws don't understand. Always comparing it to

their

> > pain, etc. I am so tired but can't sleep because of the pain.

> Trying

> > to exercise but fatigue is overwhelming. I see a rheumatologist

> for

> > the first time on the 27th of July. Weather seems to make it

much

> > worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Welcome to the group.

I'm was diagnosed with RA and Sjogren's Syndrome this year, so am still

adjusting as well. Once you see the Rheumatologist and you're able to

find the right combo of meds, things will start to improve. Hang in there.

Also, I too was having a very difficult time sleeping with the pain. I use

the pain patch when things are really bad and I'm in the middle of a flare.

It provides steady pain relief for about 3 days. Also, I take a sleeping pill

at night as well. I find it's made all the difference in the world. I still

wake

up when I'm really not feeling well, but overall....I'm getting more rest which

is necessary when you're fighting this disease.

Glad you found us.

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain. Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

Welcome to the group.

I'm was diagnosed with RA and Sjogren's Syndrome this year, so am still

adjusting as well. Once you see the Rheumatologist and you're able to

find the right combo of meds, things will start to improve. Hang in there.

Also, I too was having a very difficult time sleeping with the pain. I use

the pain patch when things are really bad and I'm in the middle of a flare.

It provides steady pain relief for about 3 days. Also, I take a sleeping pill

at night as well. I find it's made all the difference in the world. I still

wake

up when I'm really not feeling well, but overall....I'm getting more rest which

is necessary when you're fighting this disease.

Glad you found us.

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain. Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

1Welcome to the group!! What's your name? I'm Marina and I was

diagnosed 3 years ago. I'm now 35 and feel 105. Actually, I know a

105 year old who feels better most days than I do!! LOL. Anyway, You

will find plenty of sympathy and empathy here. I felt the same way

when I was first diagnosed and I didn't think I would make it through

it. I just wish I had found this group sooner. Feel free to ask

questions or chit-chat or even vent. You will find many a shoulder to

cry on if needed. You're right, people who don't have RA or

Fibromyalgia just don't get it. I work in nursing and my own boss (a

nurse) doesn't get it!! I wish you well on your appointment with your

rheumatologist!! I pray you find some repreve soon!!....Marina

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!

[Guest guest]

1Welcome to the group!! What's your name? I'm Marina and I was

diagnosed 3 years ago. I'm now 35 and feel 105. Actually, I know a

105 year old who feels better most days than I do!! LOL. Anyway, You

will find plenty of sympathy and empathy here. I felt the same way

when I was first diagnosed and I didn't think I would make it through

it. I just wish I had found this group sooner. Feel free to ask

questions or chit-chat or even vent. You will find many a shoulder to

cry on if needed. You're right, people who don't have RA or

Fibromyalgia just don't get it. I work in nursing and my own boss (a

nurse) doesn't get it!! I wish you well on your appointment with your

rheumatologist!! I pray you find some repreve soon!!....Marina

> It is very nice to read these posts. I am 35 years old, newly

> diagnosed with RA (6 wks ago). Pain is intense and getting worse.

> Husband and in-laws don't understand. Always comparing it to their

> pain, etc. I am so tired but can't sleep because of the pain.

Trying

> to exercise but fatigue is overwhelming. I see a rheumatologist

for

> the first time on the 27th of July. Weather seems to make it much

> worse. It is hot and humid, yuc! Thanks for letting me vent!