Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Hi All. I notice that alot of you have been on Gleevec for a long time. Do you still get eyebleed? Robyn had it in both eyes this weekend. She has been taking Gleevec for about 2 years. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 I defintely agree with you. I also get eye bleeds every so often. You are right that it is a nusiance but better red than dead. I have been on 400 mgs gleevec since June 2006 and went out of remission Oct 2009. the doctor then put me on 800mgs gleevec and so far so good. Just that the water rentention got worse, bathroom going got worse, but I am here. Kudos to all of us. Ceil NYC dx June 2006 77 yrs old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Hi Everyone, I've been on Gleevec about 5 years and yes, I still get eye bleeds. They turn up randomly and unannounced but I don't think they do any harm, just a bloody nuisance. I'd rather have eye bleeds, cramps, funny poo and all the rest of it than be dead! Shelagh (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Ceil, Question for you when you went out of remission and they put you on 800mg of gleevec did you go back into remission? Karine My mom is #1366 in the zero club ________________________________ From: " ceils401@... " <ceils401@...> Sent: Thu, November 11, 2010 10:53:48 PM Subject: Re: [ ] Re:Eye Bleed  I defintely agree with you. I also get eye bleeds every so often. You are right that it is a nusiance but better red than dead. I have been on 400 mgs gleevec since June 2006 and went out of remission Oct 2009. the doctor then put me on 800mgs gleevec and so far so good. Just that the water rentention got worse, bathroom going got worse, but I am here. Kudos to all of us. Ceil NYC dx June 2006 77 yrs old. Quote Link to comment Share on other sites More sharing options...
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