Guest guest Posted November 19, 2010 Report Share Posted November 19, 2010 Thanks Bobby for sharing. Everyone has been wondering how Lottie is doing. That is great about the free apartment for her and Jimmy. She is a feisty lady, and I am sure she will have some great news to share when she can. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Lottie " " < > Date: Friday, November 19, 2010, 4:47 PM  Hi, I went back in all my emails, to aug. of last year and finally got a number for Lottie. she is fine, she is in the trial, 45 mg, and the best news, she and Jimmy got a FREE apartment. they will be there a few more weeks, then they can go home and return once a month. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2010 Report Share Posted November 19, 2010 Thanks Bobby I did not want to sent to many e-mail to her account so I have sitting and wondering SkipD ________________________________ From: Armour <suzzienovember@...> Sent: Fri, November 19, 2010 6:21:30 PM Subject: Re: [ ] Lottie  Thanks Bobby for sharing. Everyone has been wondering how Lottie is doing. That is great about the free apartment for her and Jimmy. She is a feisty lady, and I am sure she will have some great news to share when she can. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Lottie " " < > Date: Friday, November 19, 2010, 4:47 PM  Hi, I went back in all my emails, to aug. of last year and finally got a number for Lottie. she is fine, she is in the trial, 45 mg, and the best news, she and Jimmy got a FREE apartment. they will be there a few more weeks, then they can go home and return once a month. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2010 Report Share Posted November 19, 2010 I forgot to mention, Lottie is having a problem connecting to the internet, said it must be the apartment complex, said she was going to take her lap top to MDACC and try there. a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Lottie " " < > Date: Friday, November 19, 2010, 4:47 PM  Hi, I went back in all my emails, to aug. of last year and finally got a number for Lottie. she is fine, she is in the trial, 45 mg, and the best news, she and Jimmy got a FREE apartment. they will be there a few more weeks, then they can go home and return once a month. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2010 Report Share Posted November 20, 2010 Hi Bobby, Thank you so much for the news. I certainly miss her posts on this site. Could you share her number with me. I will call her. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 4.3 log reduction Oct/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: November-19-10 4:47 PM Subject: [ ] Lottie Hi, I went back in all my emails, to aug. of last year and finally got a number for Lottie. she is fine, she is in the trial, 45 mg, and the best news, she and Jimmy got a FREE apartment. they will be there a few more weeks, then they can go home and return once a month. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2010 Report Share Posted November 20, 2010 Hi again, After posting I decided to try her cell phone. It worked and I spoke with her for a while. She sounds terrific. We chatted about everything. I think that she will soon be able to use her computer. Her number is 985-232-4181. She said that it was OK to call her. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 4.3 log reduction Oct/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: November-19-10 4:47 PM Subject: [ ] Lottie Hi, I went back in all my emails, to aug. of last year and finally got a number for Lottie. she is fine, she is in the trial, 45 mg, and the best news, she and Jimmy got a FREE apartment. they will be there a few more weeks, then they can go home and return once a month. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 I hope Lottie gets back real soon. We all miss her so much. A From: Zavie <zmiller@...> Subject: [ ] Lottie Date: Wednesday, December 1, 2010, 10:40 PM  Hi all, I spoke to Lottie this evening. She sounded terrific. She ran into a problem with her potassium levels. It was not clear if this was something new or simply part of the Ariad drug side effects. She is a real trooper and as soon as she can get a decent hook-up for her computer she will be posting again. We wish her well and kudos to her husband Jimmy who takes such good care of her. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 4.3 log reduction Oct/10 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Can I have Lotties address pls? Sharon Sent via BlackBerry by AT & T [ ] Lottie Hi all, I spoke to Lottie this evening. She sounded terrific. She ran into a problem with her potassium levels. It was not clear if this was something new or simply part of the Ariad drug side effects. She is a real trooper and as soon as she can get a decent hook-up for her computer she will be posting again. We wish her well and kudos to her husband Jimmy who takes such good care of her. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 4.3 log reduction Oct/10 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2010 Report Share Posted December 19, 2010 Wow. That is good news about the Ariad, Bobby. It's also good to hear " from " Lottie, however roundabout! Good holidays to you too. On Sun, Dec 19, 2010 at 6:09 AM, ROBERTA DOYLE <rcd1929@...>wrote: > > > Hi folks, well, poor Lottie still cannot get connected to our group. what > a dilemma, she can post to me, and to others I guess, but not the group. > How weird is that. she is home in Houma, LA, but goes back to MDACC, I > think she said Wed. She is not without some discomfort from the Ariad > dosage, but is getting through it. And speaking of the Ariad trial, I have > finally got permission to go every 3 months. I go tomorrow, then in two > months, then it will be every 3 months. That is great news, especially > considering this terrible winter we are having. We still have almost a foot > of snow on the ground. I still feel great on Ariad, I have some GI issues > and some diverticulosis issues, but am being very careful what I eat. Do not > know if this is Ariad, or if it was going to happen anyway, will ask about > that tomorrow at my visit to U of Mich. > Have a Merry Xmas everyone , love, Bobby > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2010 Report Share Posted December 19, 2010 Glad to hear you are doing so well a. Thanks for the update on Lottie. Good luck at you appt and Happy holidays. Eva From: ROBERTA DOYLE Sent: Sunday, December 19, 2010 9:09 AM Subject: [ ] Lottie Hi folks, well, poor Lottie still cannot get connected to our group. what a dilemma, she can post to me, and to others I guess, but not the group. How weird is that. she is home in Houma, LA, but goes back to MDACC, I think she said Wed. She is not without some discomfort from the Ariad dosage, but is getting through it. And speaking of the Ariad trial, I have finally got permission to go every 3 months. I go tomorrow, then in two months, then it will be every 3 months. That is great news, especially considering this terrible winter we are having. We still have almost a foot of snow on the ground. I still feel great on Ariad, I have some GI issues and some diverticulosis issues, but am being very careful what I eat. Do not know if this is Ariad, or if it was going to happen anyway, will ask about that tomorrow at my visit to U of Mich. Have a Merry Xmas everyone , love, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2010 Report Share Posted December 28, 2010 I would have been up a tree without a paddle if I had > listened when they said I only had to go once a week. Ha ha. I knew better from > other trials. ___________________________ Hi Lottie, I am glad to see you back posting here. I didn't email you because I figured your emails would be all stacked up. When you have time, and if this system is really working for you now, I would love to hear the details of your trial....how it went from the start taking the drug, are you still on the full dose? what side effects have you had, etc? I am sure that you were the life of the party down there....sorry it had to be for so long, but that's the price of getting in on the cutting edge drugs, and I hope this one is the winner for you. Hope we get to hear lots more from you. C. Quote Link to comment Share on other sites More sharing options...
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