Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Thursday is my MTX day. It's also a pretty heavy work day for me - and now that I've read these posts, I wonder how much of my being completely exhausted by Thursday night has something to do with the MTX rather than my work schedule that day. Duh. Maybe I'll change my dosage day!! Thanks for the heads up. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Sierra, I would check with your doc, but I would think you could take it a day early or a day late. But ask the doc first. Hugs, Jacy -----Original Message-----From: snowdrift52003 [mailto:snowdrift52003@...]Sent: Monday, June 07, 2004 19:03Rheumatoid Arthritis Subject: MTX questionHello,I've been on MTX a month now, and it's going well. I'm quite wiped out the day after taking it, though, so I've kept my "day after" unscheduled. I have a wedding coming up on a "day after" in two weeks however, and I'm a little worried about how I'll hold up. Any advice? Thanks!Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Sierra When I was on MTX, my doc told me that I could take the drug anytime within a 24 hour period. Check with your doc of course, but I would wait until after the wedding to take it so that you still have your energy and can enjoy it. Beth > Hello, > I've been on MTX a month now, and it's going well. I'm quite wiped > out the day after taking it, though, so I've kept my " day after " > unscheduled. I have a wedding coming up on a " day after " in two weeks > however, and I'm a little worried about how I'll hold up. Any advice? > > Thanks! > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward... zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects... > > Hello, > > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my " day after " > > unscheduled. I have a wedding coming up on a " day after " in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks! > > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Try taking it at night. You are going to sleep anyway... Hugs, Jacy -----Original Message-----From: gloriarex@... [mailto:gloriarex@...]Sent: Monday, June 07, 2004 22:35Rheumatoid Arthritis Subject: Re: Re: MTX question Thursday is my MTX day. It's also a pretty heavy work day for me - and now that I've read these posts, I wonder how much of my being completely exhausted by Thursday night has something to do with the MTX rather than my work schedule that day. Duh. Maybe I'll change my dosage day!! Thanks for the heads up. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~Spencer <pachelbel1949@...> wrote: I've noticed increased tiredness in the 48 hours after mtx. I take a split dose of 20 mg. because I'd also noticed unexplained irritability. Had this urge to clobber my husband who has been nothing but wonderful to me throughout, lol. Read this was a possible side effect on pharmacy printout. So take 4 tabs one day, and 4 more within 24 hours at rheumy's suggestion. Does anyone else get unusually cranky? I love this list. So reassuring to find others having the same experiences. Hugs, (in Western NY) lem820 <lem820@...> wrote: Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward...zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects...> > Hello,> > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my "day after" > > unscheduled. I have a wedding coming up on a "day after" in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks!> > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 > Thursday is my MTX day. It's also a pretty heavy work day for me - and now > that I've read these posts, I wonder how much of my being completely exhausted > by Thursday night has something to do with the MTX rather than my work schedule > that day. Duh. Maybe I'll change my dosage day!! Thanks for the heads up. > > gloria Wow--I can't even imagine working the day after! You deserve applause! S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Many people, including me, take it at bedtime to sleep through immediate side effects. I think it's a good idea. S. --- In Rheumatoid Arthritis , " Jacy " <jacymail@c...> wrote: > Try taking it at night. You are going to sleep anyway... > > Hugs, > Jacy > > -----Original Message----- > From: gloriarex@a... [mailto:gloriarex@a...] > Sent: Monday, June 07, 2004 22:35 > Rheumatoid Arthritis > Subject: Re: Re: MTX question > > > Thursday is my MTX day. It's also a pretty heavy work day for me - and now > that I've read these posts, I wonder how much of my being completely > exhausted by Thursday night has something to do with the MTX rather than my > work schedule that day. Duh. Maybe I'll change my dosage day!! Thanks for > the heads up. > > gloria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 , I take enbrel twice a week: Tues. & Fri. no headaches - but increased appetite - my bedtime pill of elavil also increases appetite - and , of course, prednisone packs on the pounds - I am 25 lbs. heavier than before I started all these drugs - I'll trade you 25 lbs. for your headache - gentle hugs, Marciashelly smiegal <shelsmieg2000@...> wrote: Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~Spencer <pachelbel1949@...> wrote: I've noticed increased tiredness in the 48 hours after mtx. I take a split dose of 20 mg. because I'd also noticed unexplained irritability. Had this urge to clobber my husband who has been nothing but wonderful to me throughout, lol. Read this was a possible side effect on pharmacy printout. So take 4 tabs one day, and 4 more within 24 hours at rheumy's suggestion. Does anyone else get unusually cranky? I love this list. So reassuring to find others having the same experiences. Hugs, (in Western NY) lem820 <lem820@...> wrote: Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward...zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects...> > Hello,> > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my "day after" > > unscheduled. I have a wedding coming up on a "day after" in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks!> > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Sierra, Shift your dose day. Or if you think you can handle then don't change anything. I frequently shift my dose day which is friday around to accommodate important events in my life. I may take it Thursday this week and a few weeks later need to shift to a Saturday or sunday cause we have family plans. Unfortunately I think MTX is one med that people tend to be the most UNcomplient due to side effects and day to day life disruption. Someone had posted a study done on patients on MTX long term that listed how the failure rate for those on MTX was so high and most patients failed to follow the therapy for more than 2 yrs. I certainly can unstand that, cause I hate mine and actually was suppose to restart MTX along with Enbrel and the rest of my meds a week ago. I restarted my Enbrel and remaining meds...but so far can't bring myself around to taking the dreaded MTX injection. I am going to see how long I can survive off this Poison!!!! I really hate this drug and its side effects. I know there are plenty of people that really get no side effects and they are so lucky. I am not one of those people. I hate the mouth, throat and eye sores, nausea, diarrhea and vomiting. I cancelled my last rheummy appnt cause I just didn't feel up to seeing him. when I rescehdule it I plan on telling him where to shove this MTX. I plan to take no more of this. I have been on it for a year and have had enough. I just recently had weight loss surgery and I am doing well. I do not want to take anything that might make me vomit or nauseated while my stomach is healing. that would really upset me to have to slow my weight loss down. toni In a message dated 6/8/04 7:15:54 AM Central Daylight Time, Rheumatoid Arthritis writes: Date: Tue, 08 Jun 2004 01:03:07 -0000 From: "snowdrift52003" <snowdrift52003@...> Subject: MTX question Hello, I've been on MTX a month now, and it's going well. I'm quite wiped out the day after taking it, though, so I've kept my "day after" unscheduled. I have a wedding coming up on a "day after" in two weeks however, and I'm a little worried about how I'll hold up. Any advice? Thanks! Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I take Enbrel and I noticed a slight headache when I started. I have been on it a year now and so far no problems. The headache goes away after time. If you can take Aleve (naproxen sodium) or Motrin that might help. The other thing is drink plenty of water. I have noticed most times if i get a headache its cause I have not drank enough water. I do get very cranky on MTX. I hate the stuff. But mine is caused from nausea, diarrhea, dizziness, vomiting, mouth, throat and eye sores. MTX is nasty stuff. I plan to call my doc and tell him where to shove this stuff. I have tried for one year and I have had enought now. And yes I am on injections. Toni In a message dated 6/8/04 11:01:12 AM Central Daylight Time, Rheumatoid Arthritis writes: From: shelly smiegal <shelsmieg2000@...> Subject: Re: Re: MTX question Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Jacy, What do you call a low dose of MTX? I take 17.5 mg a week via injection. Toni In a message dated 6/8/04 11:01:12 AM Central Daylight Time, Rheumatoid Arthritis writes: From: "Jacy" <jacymail@...> Subject: RE: Re: MTX question I take a low dose of MTX so I can't tell if I am crankier than normal or not. I also take it at night before bed. Hugs, Jacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I take a low dose of MTX so I can't tell if I am crankier than normal or not. I also take it at night before bed. Hugs, Jacy -----Original Message-----From: shelly smiegal [mailto:shelsmieg2000@...]Sent: Tuesday, June 08, 2004 06:17Rheumatoid Arthritis Subject: Re: Re: MTX question Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~Spencer <pachelbel1949@...> wrote: I've noticed increased tiredness in the 48 hours after mtx. I take a split dose of 20 mg. because I'd also noticed unexplained irritability. Had this urge to clobber my husband who has been nothing but wonderful to me throughout, lol. Read this was a possible side effect on pharmacy printout. So take 4 tabs one day, and 4 more within 24 hours at rheumy's suggestion. Does anyone else get unusually cranky? I love this list. So reassuring to find others having the same experiences. Hugs, (in Western NY) lem820 <lem820@...> wrote: Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward...zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects...> > Hello,> > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my "day after" > > unscheduled. I have a wedding coming up on a "day after" in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks!> > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 > Unfortunately I think MTX is one med that people tend to be the most > UNcomplient due to side effects and day to day life disruption. Someone had posted a > study done on patients on MTX long term that listed how the failure rate for > those on MTX was so high and most patients failed to follow the therapy for > more than 2 yrs. I think that is inaccurate. My research showed that MTX has the best compliance of all the DMARDs. I certainly can unstand that, cause I hate mine and actually > was suppose to restart MTX along with Enbrel and the rest of my meds a week ago. > I restarted my Enbrel and remaining meds...but so far can't bring myself > around to taking the dreaded MTX injection. I am going to see how long I can > survive off this Poison!!!! I really hate this drug and its side effects. Perhaps your dose is too high? > I hate the mouth, throat and eye > sores, nausea, diarrhea and vomiting. You've taken folic acid with the MTX and still had the sores? Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 > I do get very cranky on MTX. I hate the stuff. But mine is caused from > nausea, diarrhea, dizziness, vomiting, mouth, throat and eye sores. MTX is nasty > stuff. I plan to call my doc and tell him where to shove this stuff. I have > tried for one year and I have had enought now. To my great surprise, I love MTX! I haven't had any side effects at my low, low dose (other than next-day tiredness)and I'm feeling so better. Because I've always been sensitive to meds, I thought this one would really be trouble for me. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Sierra, With your history of drug reactions, I'll glad MXT is letting you off easy. Congrates! I'm at 20 mg and have been taking it this time since April. This week is the first time I have felt like doing something except for all day napping. Lynette-----Original Message----- From: snowdrift52003 Sent: Jun 8, 2004 4:07 PM Rheumatoid Arthritis Subject: Re: MTX question > I do get very cranky on MTX. I hate the stuff. But mine is caused from > nausea, diarrhea, dizziness, vomiting, mouth, throat and eye sores. MTX is nasty > stuff. I plan to call my doc and tell him where to shove this stuff. I have > tried for one year and I have had enought now. To my great surprise, I love MTX! I haven't had any side effects at my low, low dose (other than next-day tiredness)and I'm feeling so better. Because I've always been sensitive to meds, I thought this one would really be trouble for me.Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I had chemo in 1999 so my body reacts differently to drugs still. My doc started me on 2.5 a week then this last week doubled it to 5mg per week in a pill. I have to start very low and go slow or I can OD very easily. Hugs, Jacy -----Original Message-----From: aclavern33@... [mailto:aclavern33@...]Sent: Tuesday, June 08, 2004 13:33Rheumatoid Arthritis Subject: Re: Re: MTX questionJacy,What do you call a low dose of MTX? I take 17.5 mg a week via injection.ToniIn a message dated 6/8/04 11:01:12 AM Central Daylight Time, Rheumatoid Arthritis writes: From: "Jacy" <jacymail@...>Subject: RE: Re: MTX questionI take a low dose of MTX so I can't tell if I am crankier than normal ornot.I also take it at night before bed.Hugs,Jacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 When I was on MTX I always took it (or injected it) on Saturday night. That way I had one weekend day to feel good and get things done, and planned on Sunday as my day to veg out and take a long nap if I felt like it. By Monday I usually felt back to normal, but a couple of times had an upset stomach on Monday morning - the doc said he wasn't sure if it was from the MTX or the fact that it was Monday..... Beth > Thursday is my MTX day. It's also a pretty heavy work day for me - and now > that I've read these posts, I wonder how much of my being completely exhausted > by Thursday night has something to do with the MTX rather than my work schedule > that day. Duh. Maybe I'll change my dosage day!! Thanks for the heads up. > > gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Marcia, I have enough weight problems. I just lost 17 pounds now. I tell my doctor that I know it's bad when they go to weigh me and bring out the swinging beef hook. I understand the frustrations. Just like us chunky monkeys having to buy plus size clothes. Plus makes it sound like such an advantage, doesn't it? And why do they make clothes for us fat girls with large print? So we can walk around looking like a large garden? Things I think about! lol~Marcia Stoyle <marciastoyle@...> wrote: , I take enbrel twice a week: Tues. & Fri. no headaches - but increased appetite - my bedtime pill of elavil also increases appetite - and , of course, prednisone packs on the pounds - I am 25 lbs. heavier than before I started all these drugs - I'll trade you 25 lbs. for your headache - gentle hugs, Marciashelly smiegal <shelsmieg2000@...> wrote: Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~Spencer <pachelbel1949@...> wrote: I've noticed increased tiredness in the 48 hours after mtx. I take a split dose of 20 mg. because I'd also noticed unexplained irritability. Had this urge to clobber my husband who has been nothing but wonderful to me throughout, lol. Read this was a possible side effect on pharmacy printout. So take 4 tabs one day, and 4 more within 24 hours at rheumy's suggestion. Does anyone else get unusually cranky? I love this list. So reassuring to find others having the same experiences. Hugs, (in Western NY) lem820 <lem820@...> wrote: Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward...zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects...> > Hello,> > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my "day after" > > unscheduled. I have a wedding coming up on a "day after" in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks!> > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Oh , I know what you mean about the fat clothes. Since being on prednisone, I've really ballooned, and shopping for clothes is a very depressing task for me. There are more women in the plus category in this country than the little bits, but we have so little choice. And the big prints are one of my pet peeves too. I'd have to be 7' to even begin to look decent in some of those things. Hugs, (in Western NY)shelly smiegal <shelsmieg2000@...> wrote: Marcia, I have enough weight problems. I just lost 17 pounds now. I tell my doctor that I know it's bad when they go to weigh me and bring out the swinging beef hook. I understand the frustrations. Just like us chunky monkeys having to buy plus size clothes. Plus makes it sound like such an advantage, doesn't it? And why do they make clothes for us fat girls with large print? So we can walk around looking like a large garden? Things I think about! lol~Marcia Stoyle <marciastoyle@...> wrote: , I take enbrel twice a week: Tues. & Fri. no headaches - but increased appetite - my bedtime pill of elavil also increases appetite - and , of course, prednisone packs on the pounds - I am 25 lbs. heavier than before I started all these drugs - I'll trade you 25 lbs. for your headache - gentle hugs, Marciashelly smiegal <shelsmieg2000@...> wrote: Yea, I get all cranky from it too! Does anyone out there take Enbrel? That stuff gives me such a headache. Tylenol doesn't touch the headache and I am allergic to aspirin, so I'm limited on what I can take. Just curious. ~Spencer <pachelbel1949@...> wrote: I've noticed increased tiredness in the 48 hours after mtx. I take a split dose of 20 mg. because I'd also noticed unexplained irritability. Had this urge to clobber my husband who has been nothing but wonderful to me throughout, lol. Read this was a possible side effect on pharmacy printout. So take 4 tabs one day, and 4 more within 24 hours at rheumy's suggestion. Does anyone else get unusually cranky? I love this list. So reassuring to find others having the same experiences. Hugs, (in Western NY) lem820 <lem820@...> wrote: Yeppers, I agree too with the other respondents...I take that drug as well and it wipes me out maybe a couple of days afterward...zzzzzzzzzzzz, but, yes check with your doc bout taking it either a day before or a day later...I sometimes do and so far, does not cause me any ill side effects...> > Hello,> > I've been on MTX a month now, and it's going well. I'm quite wiped > > out the day after taking it, though, so I've kept my "day after" > > unscheduled. I have a wedding coming up on a "day after" in two > weeks > > however, and I'm a little worried about how I'll hold up. Any > advice? > > > > Thanks!> > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 > Marcia, I have enough weight problems. I just lost 17 pounds now. I tell my doctor that I know it's bad when they go to weigh me and bring out the swinging beef hook. I understand the frustrations. Just like us chunky monkeys having to buy plus size clothes. Plus makes it sound like such an advantage, doesn't it? And why do they make clothes for us fat girls with large print? So we can walk around looking like a large garden? Things I think about! lol~ LOL! , you are a hoot! Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 > Hi Sharon, > I find I am better taking it after food. > > hugs, Lynne I finally found a website that said to take it one to two hours after eating and don't eat for one hour after taking the MTX. Sharon Quote Link to comment Share on other sites More sharing options...
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