Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 ________________________________ From: Lottie Duthu <lotajam@...> CML < > Sent: Thu, November 4, 2010 7:37:38 PM Subject: [ ] Beth Shay  This was sent to me by Beth November 4, 2010 @ 3:30 PM, Central time. Just so we don't have any disparities about what I said and what she said, I am posting her message verbatim. There is always a possibility that this could change from day to day. We all wish her well, without a doubt and hundreds of prayers will be going her way. Hugs back to you Beth, it's been a short while, but you have managed to make many friends who believe you will pull through this bump in the road as we sometimes call it. We are here 24/7, our doors never close, there is always someone around the world reading these posts and uttering prayers in countless languages and ways, on their knees or with hands folded. I know you will keep your wits about you and your sense of humor. xoxoxox ================================== Let me set the books right first ... I have gone from CML very rapidly to ALL. They are very mystified and I have opted tonight to start on the heavy drugs, plus Dasatinib to see if we can achieve a remission. Yesterday I had 3 Doctors taking 1 hour to do 5BMB and they still didn't get a sample and yet despite this my long term commitment to wisdom, serenity and all that has certainly paid off - I am as bouyant as ever and actually finding the whole thing quite fascinating to 'watch'. May have a sense of humour failure next week LOL I had wanted to just be able to go home and die quietly, but know such thing with leukemia ... I would have needed constant palliative care and would run the risk of dying from infection... so I opted to stay in the hands of these good people! I have the internet, masses of support and love, really good food, so am in a fine establishment! Thank you so much for personally reaching out and I will try to keep you updated. Love and gentle hugs Love, Beth ==================== FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Dear Beth: What wonderful courage you are showing. My wife and I wish you all the very best. Many of us have faced a similar situation in our long journey with CML and are still here and doing well. Please keep that wonderful spirit going and let's hope that you will have better news in the next few weeks. We are all rooting for you! Guy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 Hi Beth, I have 3 beautiful scarfs and can not figure out how to wear them! lol. They are larger ones that would wrap around my head a few times, so I might just put them around my neck and look stylish that way! Any suggestions? It's so good to hear that you're doing well. God Bless, Jackie S. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] (unknown) " " < > Date: Wednesday, 24 November, 2010, 13:19  Happy Thanksgiving to everyone, Jackie I tried to wish you a happy turkey day too on your care site but could not sign in. (most likely using the wrong password!) I am sure you are especially thankful this year, even if you can't be home with your family. Have a great day everyone, blessings, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 You need a gorgeous handsome Toureg (men of the desert in Africa) to help you!!! they will great around the neck though... Love Beth From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] (unknown) " " < > Date: Wednesday, 24 November, 2010, 13:19  Happy Thanksgiving to everyone, Jackie I tried to wish you a happy turkey day too on your care site but could not sign in. (most likely using the wrong password!) I am sure you are especially thankful this year, even if you can't be home with your family. Have a great day everyone, blessings, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
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