Beth's Scourge

[Guest guest]

Beth, I know you are wondering where all of this is going. Everything running

like clockwork and the next moment you are in limbo. Monday I went to the local

oncologist who said I was doing well and to stay the course. Yesterday his

office called and said my newest CBC showed that I had a drastic drop in my

platelets and to stop the Ariad for a week. Now I have to call MDACC to see

what is going on and what do they have for plan " B " . At the moment, this does

not seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I

don't think are related to Ariad, but she is off Ariad as well. We should all

take pause and remember what you said about every day being a single gift. Bobby

and I have been around a long time and we have seen many things happen that came

and went and lots of changes in drugs, so I hope that this is temporary for all

of us. I know that you give thanks every day, as well as Bobby and many other

folks do, with all the myriad of diseases that abound the planet, but they are

not as fortunate to live in a country where these drugs are available to us and

the means to get them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes

shopping in the supermarket with his wife to buy groceries, now that is my kind

of man. LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

Warm thoughts and fervent prayers for good outcomes for all of us on this CML

journey of ours ,

Eva

From: Lottie Duthu

Sent: Wednesday, January 19, 2011 2:49 PM

CML

Subject: [ ] Beth's Scourge

Beth, I know you are wondering where all of this is going. Everything running

like clockwork and the next moment you are in limbo. Monday I went to the local

oncologist who said I was doing well and to stay the course. Yesterday his

office called and said my newest CBC showed that I had a drastic drop in my

platelets and to stop the Ariad for a week. Now I have to call MDACC to see what

is going on and what do they have for plan " B " . At the moment, this does not

seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I don't

think are related to Ariad, but she is off Ariad as well. We should all take

pause and remember what you said about every day being a single gift. Bobby and

I have been around a long time and we have seen many things happen that came and

went and lots of changes in drugs, so I hope that this is temporary for all of

us. I know that you give thanks every day, as well as Bobby and many other folks

do, with all the myriad of diseases that abound the planet, but they are not as

fortunate to live in a country where these drugs are available to us and the

means to get them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes shopping

in the supermarket with his wife to buy groceries, now that is my kind of man.

LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

Have been on the brink ... doctors fearing pneumonia .... no neutrophils - very

dangerous stage at which a lot of people die, but have pulled through and WBC

now coming up! Light a the end of the tunnel? Dr said " You must have strong

genes' I reckon its all the those prayers and blessings and love and support

carrying me through!

So thanks for holding me so close.

Love you all

Beth

From: Lottie Duthu <lotajam@...>

Subject: [ ] Beth's Scourge

" CML " < >

Date: Wednesday, 19 January, 2011, 19:49

 

Beth, I know you are wondering where all of this is going. Everything

running like clockwork and the next moment you are in limbo. Monday I went to

the local oncologist who said I was doing well and to stay the course.

Yesterday his office called and said my newest CBC showed that I had a drastic

drop in my platelets and to stop the Ariad for a week. Now I have to call MDACC

to see what is going on and what do they have for plan " B " . At the moment, this

does not seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I

don't think are related to Ariad, but she is off Ariad as well. We should all

take pause and remember what you said about every day being a single gift. Bobby

and I have been around a long time and we have seen many things happen that came

and went and lots of changes in drugs, so I hope that this is temporary for all

of us. I know that you give thanks every day, as well as Bobby and many other

folks do, with

all the myriad of diseases that abound the planet, but they are not as

fortunate to live in a country where these drugs are available to us and the

means to get them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes

shopping in the supermarket with his wife to buy groceries, now that is my kind

of man. LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

That is great news Beth,

I assume your ANC is improving, hope you will have over 2000 soon and this

will be behind you

SkipD

dx'ed 33 yrs ago

 

________________________________

From: Beth Shay <bethshay22@...>

Sent: Thu, January 27, 2011 5:32:17 AM

Subject: Re: [ ] Beth's Scourge

 

Have been on the brink ... doctors fearing pneumonia .... no neutrophils - very

dangerous stage at which a lot of people die, but have pulled through and WBC

now coming up! Light a the end of the tunnel? Dr said " You must have strong

genes' I reckon its all the those prayers and blessings and love and support

carrying me through!

So thanks for holding me so close.

Love you all

Beth

From: Lottie Duthu <lotajam@...>

Subject: [ ] Beth's Scourge

" CML " < >

Date: Wednesday, 19 January, 2011, 19:49

 

Beth, I know you are wondering where all of this is going. Everything running

like clockwork and the next moment you are in limbo. Monday I went to the local

oncologist who said I was doing well and to stay the course. Yesterday his

office called and said my newest CBC showed that I had a drastic drop in my

platelets and to stop the Ariad for a week. Now I have to call MDACC to see what

is going on and what do they have for plan " B " . At the moment, this does not

seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I don't

think are related to Ariad, but she is off Ariad as well. We should all take

pause and remember what you said about every day being a single gift. Bobby and

I have been around a long time and we have seen many things happen that came and

went and lots of changes in drugs, so I hope that this is temporary for all of

us. I know that you give thanks every day, as well as Bobby and many other folks

do, with

all the myriad of diseases that abound the planet, but they are not as fortunate

to live in a country where these drugs are available to us and the means to get

them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes shopping

in the supermarket with his wife to buy groceries, now that is my kind of man.

LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

Beth;

Yaaaaa

Eva B

From: Beth Shay

Sent: Thursday, January 27, 2011 4:32 AM

Subject: Re: [ ] Beth's Scourge

Have been on the brink ... doctors fearing pneumonia .... no neutrophils - very

dangerous stage at which a lot of people die, but have pulled through and WBC

now coming up! Light a the end of the tunnel? Dr said " You must have strong

genes' I reckon its all the those prayers and blessings and love and support

carrying me through!

So thanks for holding me so close.

Love you all

Beth

From: Lottie Duthu <lotajam@...>

Subject: [ ] Beth's Scourge

" CML " < >

Date: Wednesday, 19 January, 2011, 19:49

Beth, I know you are wondering where all of this is going. Everything running

like clockwork and the next moment you are in limbo. Monday I went to the local

oncologist who said I was doing well and to stay the course. Yesterday his

office called and said my newest CBC showed that I had a drastic drop in my

platelets and to stop the Ariad for a week. Now I have to call MDACC to see what

is going on and what do they have for plan " B " . At the moment, this does not

seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I don't

think are related to Ariad, but she is off Ariad as well. We should all take

pause and remember what you said about every day being a single gift. Bobby and

I have been around a long time and we have seen many things happen that came and

went and lots of changes in drugs, so I hope that this is temporary for all of

us. I know that you give thanks every day, as well as Bobby and many other folks

do, with

all the myriad of diseases that abound the planet, but they are not as fortunate

to live in a country where these drugs are available to us and the means to get

them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes shopping

in the supermarket with his wife to buy groceries, now that is my kind of man.

LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

Beth

You are always in my thoughts

Cyber Hugs from my elastic arms.

Sue

#1197

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database 5823 (20110127) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

[Guest guest]

Hi Lottie,

Thank you for the nice note below and I'm sorry for the long delay in

responding. I've been feeling awful, slowly crawling back (and have about 700

e-mails to go through :-)). Been on a drug holiday for about 2 1/2 weeks now. I

have a pain in my side so I'm having an ultrasound next week, and I now have

high blood pressure. I feel like my body is letting me down at the moment.

Yes, I am in the very capable hands of Dr. Shah and he does " have my back. " He

really cares about his patients and fights hard for them. (and, yes, he's the

kind of guy who would go grocery shopping with his wife).

Onward and forward!

Beth

[ ] Beth's Scourge

 

Beth, I know you are wondering where all of this is going. Everything running

like clockwork and the next moment you are in limbo. Monday I went to the local

oncologist who said I was doing well and to stay the course. Yesterday his

office called and said my newest CBC showed that I had a drastic drop in my

platelets and to stop the Ariad for a week. Now I have to call MDACC to see what

is going on and what do they have for plan " B " . At the moment, this does not

seem real to me at all, it's like deja vu.

The last trial I was in, ended on the rubbish pile, because the local doctors

took it upon themselves to take matters into their own hands without consulting

MDACC and for what other reason than some kind of sick pride, I don't know, but

it caused me to be kicked out of the trial that finally gave me a grade of CCR

(like an A+ in spelling class). I don't want this to happen again, and I will

certainly take up arms to prevent it from happening, as this is the last train

and it has already left the station. Bobby also has complications, which I don't

think are related to Ariad, but she is off Ariad as well. We should all take

pause and remember what you said about every day being a single gift. Bobby and

I have been around a long time and we have seen many things happen that came and

went and lots of changes in drugs, so I hope that this is temporary for all of

us. I know that you give thanks every day, as well as Bobby and many other folks

do, with all the myriad of diseases that abound the planet, but they are not as

fortunate to live in a country where these drugs are available to us and the

means to get them is also material.

I think you said you are seeing Dr. Shah and I know of his reputation, so I

would think he will protect you to the best of his ability and not blow you off

as some doctors do, once they have reached the limits of their expertise, such

as it is. Some have little to none, only egos. Someone told me he goes shopping

in the supermarket with his wife to buy groceries, now that is my kind of man.

LOL

Ladies of the Ariad trial, let's pick up our tool boxes and get back to work on

this giant CML project we are all involved in. We have got to make it work for

our fellows as well as ourselves.

God bless and may the wind be always at your back,

Lottie

[Guest guest]

Beth and Beth, we're all going through a bit of a rough patch right now,

but it won't last. I wish you both the quickest recovery, hang in there ,

I'm praying for all 3 of us!!! Bobby

On Sun, Jan 30, 2011 at 7:34 PM, <bethgalliart@...> wrote:

>

>

>

>

> Hi Lottie,

>

> Thank you for the nice note below and I'm sorry for the long delay in

> responding. I've been feeling awful, slowly crawling back (and have about

> 700 e-mails to go through :-)). Been on a drug holiday for about 2 1/2 weeks

> now. I have a pain in my side so I'm having an ultrasound next week, and I

> now have high blood pressure. I feel like my body is letting me down at the

> moment.

>

> Yes, I am in the very capable hands of Dr. Shah and he does " have my back. "

> He really cares about his patients and fights hard for them. (and, yes, he's

> the kind of guy who would go grocery shopping with his wife).

>

> Onward and forward!

>

> Beth

> [ ] Beth's Scourge

>

>

>

> Beth, I know you are wondering where all of this is going. Everything

> running like clockwork and the next moment you are in limbo. Monday I went

> to the local oncologist who said I was doing well and to stay the course.

> Yesterday his office called and said my newest CBC showed that I had a

> drastic drop in my platelets and to stop the Ariad for a week. Now I have to

> call MDACC to see what is going on and what do they have for plan " B " . At

> the moment, this does not seem real to me at all, it's like deja vu.

>

> The last trial I was in, ended on the rubbish pile, because the local

> doctors took it upon themselves to take matters into their own hands without

> consulting MDACC and for what other reason than some kind of sick pride, I

> don't know, but it caused me to be kicked out of the trial that finally gave

> me a grade of CCR (like an A+ in spelling class). I don't want this to

> happen again, and I will certainly take up arms to prevent it from

> happening, as this is the last train and it has already left the station.

> Bobby also has complications, which I don't think are related to Ariad, but

> she is off Ariad as well. We should all take pause and remember what you

> said about every day being a single gift. Bobby and I have been around a

> long time and we have seen many things happen that came and went and lots of

> changes in drugs, so I hope that this is temporary for all of us. I know

> that you give thanks every day, as well as Bobby and many other folks do,

> with all the myriad of diseases that abound the planet, but they are not as

> fortunate to live in a country where these drugs are available to us and the

> means to get them is also material.

>

> I think you said you are seeing Dr. Shah and I know of his reputation, so I

> would think he will protect you to the best of his ability and not blow you

> off as some doctors do, once they have reached the limits of their

> expertise, such as it is. Some have little to none, only egos. Someone told

> me he goes shopping in the supermarket with his wife to buy groceries, now

> that is my kind of man. LOL

>

> Ladies of the Ariad trial, let's pick up our tool boxes and get back to

> work on this giant CML project we are all involved in. We have got to make

> it work for our fellows as well as ourselves.

>

> God bless and may the wind be always at your back,

> Lottie

>

>

[Guest guest]

Yes, here's to brighter days ahead for all of us!

Re: [ ] Beth's Scourge

Beth and Beth, we're all going through a bit of  a rough patch right now,

but it won't last.  I wish you both the quickest recovery, hang in there ,

I'm praying for all 3 of us!!!  Bobby