Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 I think we forgot our own here on , we have two and more that do a lot for our cause. They are not hockey stars, nor movie stars, they are just plain folks. Zavie comes to mind, he attends most major CML gatherings, we have Lottie who trys to keep us informed. and that is just two. In my case Zavie helped me get started in this group, he taked to Dr. about me and gave me advice. Lottie what can I say about Lottie, her caring and love for the group shines from the inside out. I am sure you can add to the list. You who live with CML are a light to all, old cml'er and newbies. Hero's I am not sure about but saints yess indeed you all are. SkipD Dx'ed 33 years been on Bulsufan (Myleran) Gleevec, nilotinib,dasatinib and back on nilotinib been off all meds now for aprox one year.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 Hi Skip, Thank you for your kind words. What I do for fellow CMLers is nothing more than payback for what they did for me in my darkest hours. Zavie From: [mailto: ] On Behalf Of Skip Duffie Sent: October-15-10 10:18 AM Subject: [ ] people that promotes CML I think we forgot our own here on , we have two and more that do a lot for our cause. They are not hockey stars, nor movie stars, they are just plain folks. Zavie comes to mind, he attends most major CML gatherings, we have Lottie who trys to keep us informed. and that is just two. In my case Zavie helped me get started in this group, he taked to Dr. about me and gave me advice. Lottie what can I say about Lottie, her caring and love for the group shines from the inside out. I am sure you can add to the list. You who live with CML are a light to all, old cml'er and newbies. Hero's I am not sure about but saints yess indeed you all are. SkipD Dx'ed 33 years been on Bulsufan (Myleran) Gleevec, nilotinib,dasatinib and back on nilotinib been off all meds now for aprox one year.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 YES! Lottie ... Bobby ... Zavie ... Tracey ... so many more We have plenty of " star power " ! On Fri, Oct 15, 2010 at 7:17 AM, Skip Duffie <skipd_2002@...> wrote: > > > I think we forgot our own here on , we have two and more that do a lot > for > our cause. > They are not hockey stars, nor movie stars, they are just plain folks. > Zavie > comes > > to mind, he attends most major CML gatherings, we have Lottie who trys to > keep > us informed. > and that is just two. In my case Zavie helped me get started in this > group, he > taked to Dr. > about me and gave me advice. Lottie what can I say about Lottie, her > caring and > love for > the group shines from the inside out. I am sure you can add to the list. > > You who live with CML are a light to all, old cml'er and newbies. Hero's I > am > not sure > about but saints yess indeed you all are. > > SkipD > Dx'ed 33 years been on Bulsufan (Myleran) Gleevec, nilotinib,dasatinib and > back > on nilotinib > > been off all meds now for aprox one year.. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 Very to the point Skip. We don't have to be famous, rich or powerful to make a difference in peoples lives. We just have to choose to do so. My father used to tell me and my siblings that the only impact any of us can have is in our own " little pond " . Each kind act creates ripples in the pond and we cannot imagine how far they will go. We all experience that in these lists and the support they give us. I think, though, that it is difficult to see people who have the means to create an impact in a much bigger " pond " make the choice to do nothing. The G Komen foundation was created by 's sister, and through her efforts and the celebrities that joined the cause, it has snow balled into the biggest cancer money maker in the world. Imagine the difference that could be made in the (much smaller) CML world if we had just one celebrity put in a little energy. I raised close to $3000 for Light the Night, just by emailing my friends. What kind of email or facebook list does O'neil or Kareem Abdul Jabbar have? Imagine how much they could do if they cared to, or if they were willing to make a fund raising commercial for free.... Leah > > I think we forgot our own here on , we have two and more that do a lot for > our cause. > They are not hockey stars, nor movie stars, they are just plain folks. Zavie > comes > > to mind, he attends most major CML gatherings, we have Lottie who trys to keep > us informed. > and that is just two. In my case Zavie helped me get started in this group, he > taked to Dr. > about me and gave me advice. Lottie what can I say about Lottie, her caring and > love for > the group shines from the inside out. I am sure you can add to the list. > > You who live with CML are a light to all, old cml'er and newbies. Hero's I am > not sure > about but saints yess indeed you all are. > > SkipD > Dx'ed 33 years been on Bulsufan (Myleran) Gleevec, nilotinib,dasatinib and back > on nilotinib > > been off all meds now for aprox one year.. > Quote Link to comment Share on other sites More sharing options...
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