Re: Digest Number 2406

[Guest guest]

Hi All,

A few weeks ago we were talking about breaking out in sweats. I seem to get extremely overheated in the warm weather and it takes an hour or more with ice and a fan to get cooled down. It doesn't seem related to what I do - I can be sitting or doing light chores - hormones are not a factor as far as possible menopause. Then the really weird part is that I get an odor that is pretty bad, that usually comes with the sweats and I feel awkward if it happens away from home My husband has finally agreed to tell me if he notices it so that I can shower and change but he hadn't wanted to hurt my feelings since he figured there wasn't much I could do about it anyway. It seems to happen more when my ammonia level is up, so I thougt perhaps that might be a factor, but not always. Perhaps the meds I'm on? The drs haven't been able to tell me anything but I think I may show up in full stink one day so they know what I"m talking about

Anyone else have this happen? It could also be related to my lupus or sjogrens, so I have more exploring to do.

Thanks!

Amy

[Guest guest]

Amy,

I am dying with the sweats. I thought it was medicine. It takes me forever to cool off and it comes anytime. I feel it start on my upper lip and under the back of my hair. I have been using baby powder to help with the sweats, haven't noticed any order yet though.

Chris

[Guest guest]

Amy,

I had to call my doctor's office last week because of the sweats; they

were so bad I wanted to scream...but that would have made me sweat

more. Even though I was in a well air conditioned office, I was so

hot and melting that I had to wet some paper towels and alternate

using them on my neck and face. THe sweats felt exactly like the hot

flashes I had after having my hysterectomy ..a sauna from the inside

out. According to the doc's office, prednisone can cause that effect,

and uufortunately, there was nothing they could offer in the way of

meds or advice other that to just hang in there and do what I could to

stay cool. I had previously noticed that since starting prednisone

my tolerance for heat vanished.... I never used to mind the heat too

much...cold had always bothered me more but not any longer.

nne

-- In @y..., holzboog@a... wrote:

> Hi All,

> A few weeks ago we were talking about breaking out in sweats.

I seem to

> get extremely overheated in the warm weather and it takes an hour or

more

> with ice and a fan to get cooled down. It doesn't seem related to

what I do

> - I can be sitting or doing light chores - hormones are not a factor

as far

> as possible menopause. Then the really weird part is that I get an

odor that

> is pretty bad, that usually comes with the sweats and I feel awkward

if it

> happens away from home My husband has finally agreed to tell me

if he

> notices it so that I can shower and change but he hadn't wanted to

hurt my

> feelings since he figured there wasn't much I could do about it

anyway. It

> seems to happen more when my ammonia level is up, so I thougt

perhaps that

> might be a factor, but not always. Perhaps the meds I'm on? The

drs haven't

> been able to tell me anything but I think I may show up in full

stink one day

> so they know what I " m talking about

> Anyone else have this happen? It could also be related to my

lupus or

> sjogrens, so I have more exploring to do.

>

> Thanks!

> Amy

[Guest guest]

I get those sweats also but am not on prednisone.

Shireen

>From: " seathestars " <nneW5@...>

>Reply-

>

>Subject: [ ] Re: Digest Number 2406

>Date: Sat, 20 Jul 2002 00:01:56 -0000

>

>Amy,

>

>I had to call my doctor's office last week because of the sweats; they

>were so bad I wanted to scream...but that would have made me sweat

>more. Even though I was in a well air conditioned office, I was so

>hot and melting that I had to wet some paper towels and alternate

>using them on my neck and face. THe sweats felt exactly like the hot

>flashes I had after having my hysterectomy ..a sauna from the inside

>out. According to the doc's office, prednisone can cause that effect,

>and uufortunately, there was nothing they could offer in the way of

>meds or advice other that to just hang in there and do what I could to

>stay cool. I had previously noticed that since starting prednisone

>my tolerance for heat vanished.... I never used to mind the heat too

>much...cold had always bothered me more but not any longer.

>

>nne

>

>

>-- In @y..., holzboog@a... wrote:

> > Hi All,

> > A few weeks ago we were talking about breaking out in sweats.

>I seem to

> > get extremely overheated in the warm weather and it takes an hour or

>more

> > with ice and a fan to get cooled down. It doesn't seem related to

>what I do

> > - I can be sitting or doing light chores - hormones are not a factor

>as far

> > as possible menopause. Then the really weird part is that I get an

>odor that

> > is pretty bad, that usually comes with the sweats and I feel awkward

>if it

> > happens away from home My husband has finally agreed to tell me

>if he

> > notices it so that I can shower and change but he hadn't wanted to

>hurt my

> > feelings since he figured there wasn't much I could do about it

>anyway. It

> > seems to happen more when my ammonia level is up, so I thougt

>perhaps that

> > might be a factor, but not always. Perhaps the meds I'm on? The

>drs haven't

> > been able to tell me anything but I think I may show up in full

>stink one day

> > so they know what I " m talking about

> > Anyone else have this happen? It could also be related to my

>lupus or

> > sjogrens, so I have more exploring to do.

> >

> > Thanks!

> > Amy

>

_________________________________________________________________

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[Guest guest]

In a message dated 2/11/2004 5:24:57 AM Central Standard Time,

writes:

> essage: 1

> Date: Wed, 11 Feb 2004 02:49:45 -0000

> From: " jana5522 " <jana5522@...>

> Subject: Re: Weird goal, but means alot to me

>

> Wow. And wow. And oh....wow.

Thank you. And thank you. And oh....Thank you. =)

[Guest guest]

In a message dated 2/11/2004 5:24:57 AM Central Standard Time,

writes:

> sage: 4

> Date: Wed, 11 Feb 2004 05:25:08 -0000

> From: " Dorina " <primosoccermama@...>

> Subject: Re: Weird goal, but means alot to me

>

> Glo, when I wrote in yesterday about my worries and fears I had no

> idea I would " meet " someone like you who has done what I want to

> do!! I am in awe. I find so much inspiration in your journey. If

> anything, I imagine there is some sadness in thinking if you did it

> now, why not before? I beat myself up all the time thinking if I

> had just stuck with a program -any program any of the times in the

> past years that I tried and failed, I would be where I want to be

> ALREADY! But I am not, and I am starting now. But be proud of

> yourself. Like someone else who posted said, your life in this new

> body begins NOW. Enjoy it. You are still the same on the inside.

> And from the sounds of it, you are a great person. I can only

> imagine how happy for you your kids and husband are. You can keep

> up with those kids so much easier now can't you? And aren't you

> enjoying them more now!! See all the wonderful things you have?

> And now you have ME supporting and PUSHING you too!!! LOL

> Keep it up girl!!

> Here's to you and the last stretch...Let's do it!!!

> Dorina

>

Oh my goodness Dorina, you hit the nail on the head, you don't know how many

times I have tried diets and never stuck with them or they didn't work and

the fact I am 34 I have wondered so many times, geesh this took a year, maybe it

will be a year and half by the time I hit my goal, why the hell didn't I do

it at 22 or 23 or even 25 or 30 why now???? But the past is the past, I am

here for a reason, ya never know maybe God has me right here for a reason, for

a

purpose, maybe he wanted to learn something that I had to go through

everything to become the person I am to help someone else??? I don't know. I am

just a

regular Joe...but I will learn in time what my purpose is, but it is okay,

because I am doing it, finally, and I for once in my life, I like me......and

that is a good thing. =)

Glo

[Guest guest]

In a message dated 2/11/2004 5:24:57 AM Central Standard Time,

writes:

> From: sighsweetsigh

> Subject: Re: Weird goal, but means alot to me

>

> glo,

>

> i get where you're coming from. you feel sad for the girl that you

> were and remember all that she felt and went through prior to

> deciding to change things for the better. i suggest you speak to the

> girl that you were and tell her something along the lines of, " we

> made it, babe... we're doing this thing and it's working " . no more

> feelings of helplessness and sorrow now, but so damned much to look

> forward to.

>

> what a triumph! i'm really thankful that you decided to post and

> share all of that. your experience and all that you've overcome means

> so much to me and to so many others here. you're such an inspiration

> and frankly, i think that you totally ROCK ASS. you go, girl.

>

> =D

>

> lia

>

Oh all, just thought I would let you know that I am crying, your unbelievable

support and love here is just overwhelming me...I am so got...I rock???

Wow....I mean???? Wow...Tears are running down my face and I am having trouble

reading post after post of support, I wish I could give all of you a

hug.........I

am overwhelmed....wow

Glo

[Guest guest]

CML SUPPORT AND INFORMATIONThank you Zavie, I was not familiar with the name

" Stravos " , he evidently does not post often. I sent him plenty of information

he can look over and maybe there is something that will help his son. He has a

low number, so that means he has been here a while. When I went to MDACC last

time, they said you must have been coming here a long time and I said yes, why?

They said it was because I only had 6 digits in my patient number. LOL

Carpe Diem,

Lottie Duthu

[ ] Digest Number 2406

CML SUPPORT AND INFORMATION

Messages In This Digest (12 Messages)

1a. Re: O'Neal From: Ted Fontenot

1b. Re: O'Neal From: virginiagarner2

1c. Re: O'Neal From: Rosen Lum

1d. Re: O'Neal From: Rosen Lum

1e. Re: O'Neal From: Armour

1f. Re: O'Neal From: Rosen Lum

2a. people that promotes CML From: Skip Duffie

2b. Re: people that promotes CML From: Zavie

2c. Re: people that promotes CML From: Rosen Lum

3. akathisia From: beriatos@...

4a. Raising money for CML From: Lottie Duthu

5a. Gout From: Lottie Duthu

View All Topics | Create New Topic Messages

1a. Re: O'Neal

Posted by: " Ted Fontenot " mortycausa@... mortycausa

Fri Oct 15, 2010 5:58 am (PDT)

I know what you're getting at, but the fact is: 9/11 has affected everyone

in the U.S. directly, as well as other place, and many many others indirectly.

Many deaths and injuries have followed, many countries have been affected, and

this country, for instance, has been driven to the brink of bankruptcy and the

edge of mass dementia because of it.

But, carry on.

>

>

> I think Virginia Garner has a story to tell about how uninterested is

> in getting the CML subject to patients and others as well. I think it is a

> slap in the face to all the people like Virginia in CA and Sue in AU, who

> work their butts off raising money for CML causes for LLS and others, when

> the rich and famous who are affected do little to nothing to even give it

a

> nod. Their voices could be so powerful. Clooney raised billions for

> the people of 9/11. I don't want to take anything away from that group,

but

> couldn't they do that for cancer as well? Stand Up For Cancer didn't rake

in

> that kind of money. I think they received $100 million in pledges in 2008

> and let us remember that not everyone honors their pleges; that was

evident

> in Haiti. I haven't found out how much they made in 2010, but I'm sure

> someone who is smarter than me will know.

> Carpe Diem,

> Lottie Duthu

>

>