Jump to content
RemedySpot.com

Beth

Rate this topic


Guest guest

Recommended Posts

Guest guest

Hi Beth

I had found those same exact molds at a few different sites. I hadn't

gone to eBay, though. The mold at Horton Supply's ebay site says

they'll be closing their ebay store soon (no date given). I am waiting

for a reply from Brambleberry I sent them last night regarding the " baby

feet " mold. I wanted to know if the feet are indented enough in the mold

to actually pour the colored soap in when you do two colors. It's hard

to tell if it's poured colored soap in the feet or if its been painted

on a solid colored soap afterwards. I don't want to do the " paint "

thing. I hope they answer soon. The ebay price is $.70 cheaper and

they at least tell you the s/h charge which other sites don't so that

helps, too.

Re: Need some assistance

Hi ,

Here's what I thought was cute and feasible:

_http://cgi.ebay.

<http://cgi.ebay.com/BABY-FEET-Mini-Mold-Soap-Craft-Oreos-Molds_W0QQitem

Z25023> com/BABY-FEET-Mini-Mold-Soap-Craft-Oreos-Molds_W0QQitemZ25023

0535308QQihZ015QQcategoryZ28116QQcmdZViewItem?refid=store_

(http://cgi.ebay.

<http://cgi.ebay.com/BABY-FEET-Mini-Mold-Soap-Craft-Oreos-Molds_W0QQitem

Z250230535308QQihZ015QQca>

com/BABY-FEET-Mini-Mold-Soap-Craft-Oreos-Molds_W0QQitemZ250230535308QQih

Z015QQca

tegoryZ28116QQcmdZViewItem?refid=store)

_http://www.goplanet

<http://www.goplanetearth.com/novelty_molds_baby.html_>

earth.com/novelty_molds_baby.html_

(http://www.goplanet

<http://www.goplanetearth.com/novelty_molds_baby.html>

earth.com/novelty_molds_baby.html)

HTH,

Beth

_www.soapandgarden.com_ (http://www.soapandg

<http://www.soapandgarden.com/> arden.com/)

Be good to your skin!

www.saponifier.com

In a message dated 4/29/2008 12:22:55 A.M. Eastern Daylight Time,

jmurray2twcny (DOT) <mailto:jmurray2%40twcny.rr.com> rr.com writes:

Has anybody got any favorites that

they've purchased or seen online that can pass some websites along to me

that I may not have seen yet?

**************Need a new ride? Check out the largest site for U.S. used

car

listings at AOL Autos.

(http://autos. <http://autos.aol.com/used?NCID=aolcmp00300000002851>

aol.com/used?NCID=aolcmp00300000002851)

Link to comment
Share on other sites

Guest guest

They certainly do carry a lot of stuff. I think I found them linked to

another site. Oh, I remember now. I was looking for a certain f/o on

fragranceoilfinder.com

Re: question

Hmm, I've heard of them before, but never even visited the site. They

certainly carry a lot of products.

Beth

_www.soapandgarden.com_ (http://www.soapandg

<http://www.soapandgarden.com/> arden.com/)

Be good to your skin!

www.saponifier.com

In a message dated 5/2/2008 11:11:42 A.M. Eastern Daylight Time,

jmurray2twcny (DOT) <mailto:jmurray2%40twcny.rr.com> rr.com writes:

http://www.alabaste <http://www.alabastercandlesupply.com>

rcandlesupply.com

**************Wondering what's for Dinner Tonight? Get new twists on

family

favorites at AOL Food.

(http://food.

<http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001>

aol.com/dinner-tonight?NCID=aolfod00030000000001)

Link to comment
Share on other sites

  • 1 month later...
Guest guest

Beth

Yup, I have a fabric softener cup. I never used softener because I heard

it makes your clothes

wear out faster because it breaks down the fibers. I guess I'll try the

vinegar trick.

Re: Vinegar

, I put my vinegar in the cup for fabric softener. Do you have one

of

those? Mine also has a pause button if I need to open the door, so it

will

open at various times during the wash cycle. Can you do that? Would a

fabric

softener dispenser ball work in your washer?

I have a Whirlpool frontloader, but haven't tried a ball since I have

the

dispenser cup on top.

Beth

_www.soapandgarden.com_ (http://www.soapandg

<http://www.soapandgarden.com/> arden.com/)

Be good to your skin!

www.saponifier.com

In a message dated 6/8/2008 4:57:27 P.M. Eastern Daylight Time,

jmurray2twcny (DOT) <mailto:jmurray2%40twcny.rr.com> rr.com writes:

But I can honestly say I've

never used it in my clothes washer because I never knew when I should

add it. The front-loading Neptune washing machines doors lock after

about the first 30 seconds so it's not like you can open the lid (like

other machines) and throw some in. If anyone knows of ways to do it let

me know.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.

<http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002>

aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

Link to comment
Share on other sites

  • 2 weeks later...
Guest guest

I would hope a good rheumatologist could diagnosis it, as Dr. Lehman referred to

it as a " different type of " rheumatalogical disease.  I checked an article on

Mayo Clinic site and it says a blood test can determine the presence of a

specific antibody (U1-RNP) that indicates mixed connective tissue disease. Do

you think this is something you can talk to her ped about?  Perhaps after the

conference it might be time to find another rheumatologist? I wish I had some

answers...I thought of Hannah when I saw you said she was RH+ and remembered

that article, but I don't know any more than what I have read. 

How are you and Hannah feeling? Looking forward to meeting you and your family

in a few weeks!

 

From: Beth Yohnk <yohnkmom@...>

Subject: NANCY

Date: Wednesday, June 18, 2008, 6:00 PM

" Beth - haven't you wondered if perhaps Hannah has a mixed

connective tissue disease? And that is still not to say Hannah doesn't have

jra. "

Yes, I have wondered this on numerous occasions. This would explain a lot of

her symtoms and can go along with hypermobility. Who diagnoses this? Our

former rheumy only seemed interested in testing for JRA, Lupus & Limes disease.

She never explored any other possibility, just would explain everything away

like it was no big deal. How do they diagnose MCTD?

Sending prayers & happy thoughts,

Beth :-)

Link to comment
Share on other sites

  • 3 weeks later...
Guest guest

Hi Beth,

so pleased she is showing improvement!  I hope Hannah's labs are all good

today. 

Have a great flight! Call when you get settled.

From: Beth Yohnk <yohnkmom@...>

Subject: Re: change happy thoughts to prayers

Date: Sunday, July 6, 2008, 8:55 AM

Hi :

She is starting to feel a little better. She still have pain in ther

tummy/abdomen, but its no as instense. Not sure if its the Carafate, but she ate

really good for the first time in a week yesterday. We are going into the

clinic today for more lab work (they have a walk-in so the lab is open). The

ped may want to see her on Wednesday just to be sure everything is ok before

Thursday. The kids (and mom & dad) are getting really excited. It will be

first time in a plane for both the kids.

Sending prayers & happy thoughts,

Beth :-)

Re: change happy thoughts to prayers

Hi Beth,

checking in to see if Hannah is experiencing any improvement with the Carafate?

I hope she is able to enjoy the excitement of preparation for travel this

Thursday. Keep us posted.

Hugs,

Link to comment
Share on other sites

  • 2 weeks later...
Guest guest

Oh, Beth, I am about in tears reading your message. I am SO GLAD that you were

able to go to conference! Can't wait till we hear your plans! ENJOY your trip!

and Rob 19 JAS

AJAO must be a Blast any Updates?

> @group s.com

> Date: Friday, July 11, 2008, 8:07 PM

>

> The AJAO must be a Blast as I have not seen a report on how it

> is going

> there. lololol

> Hope someone can give us who did not attend a email letting us

> know if

> everyone is having fun and how many from the group have met.

> Robbin

>

> ************ **Get the scoop on last night's hottest shows and

> the live music

> scene in your area - Check out TourTracker. com!

> (http://www.tourtrac ker.com?NCID= aolmus0005000000 0112)

>

>

Link to comment
Share on other sites

  • 2 weeks later...
Guest guest

Hi Beth,

been trying to find a few extra minutes to write you...no, she hasn't seen the

new rheumy yet, that appt is Tues, and it seems forever to her at this point as

she is not doing any better.  She has given in to taking Vicoden, which she was

something she DID NOT want to do, and even that only takes the edge off.

Those rings are are very similar to 's, only her do not have the

stabilizing ring at the top.  I guess if that one lady had seven, we should be

able to fit four more on her fingers.

I am so sorry to hear Miss Hannah is hurting so much - I'm glad Monday is almost

here and hope you will be having some answers this week. 

Till I can find a few more minutes to chat, please give Miss Hannah the gentlest

of hugs...and tell her Jayden saw her pic on the bulletin from conference and

exclaimed, " Hannah!! "

Hugs to all,

From: Beth Yohnk <yohnkmom@...>

Subject:

Date: Friday, July 25, 2008, 6:48 PM

Hi :

We have been thinking a lot about this week, wondering how she is doing.

Did she have the appt with the rheumy from the conference yet? I can't remember

when you said that was.

Sending hugs to guys...why can't we live closer???

Beth

Sending prayers & happy thoughts,

Beth :)

Link to comment
Share on other sites

Guest guest

Hi :

Hugs right back at ya!  Hoping Tuesday appt goes very well.  I hope the new doc

has some better answers for you than what her current rheumy has been doing (or

not doing).  I will absolutely be thinking of both of you on Tuesday.

 

Monday can't come fast enough.  Hannah is on the couch as I type with an ice

pack on both knees.  She has already done 4 shows since Thursday (2 today) and

has 2 more tomorrow.  She is physically exhausted and hurting, but she loves

performing and if that means she has to wear both knee braces, that is what she

will do.  And she will do it with a smile on her face.  She so amazes me!

 

I will update sometime on Monday.  Hugs!  Tell sweet Jayden that Hannah is

sending an extra special hug just for her.

 

Sending prayers & happy thoughts,

Beth :)

@group s.com

Date: Friday, July 25, 2008, 6:48 PM

Hi :

We have been thinking a lot about this week, wondering how she is doing.

Did she have the appt with the rheumy from the conference yet? I can't remember

when you said that was.

Sending hugs to guys...why can't we live closer???

Beth

Sending prayers & happy thoughts,

Beth :)

Link to comment
Share on other sites

Guest guest

For me it's the opposite.. no matter how much eating this way sucks, the stuff I

deal with when I go off plan are much worse. The weight gain, fatigue,

depression, etc. are way worse than having to eat this way for me. Also I look

on the bright side.. while I may have to be strict on quality, at least I can

eat as much as I want for the most part, and I LOVE steak!

Luv,

Debby in San , CA

147 pounds lost! 100% of health issues reversed!

Currently studying for Nutrition license and PhD in Psychology

Group: curingcandida/

Website: http://www.naturallythriving.com

----- Original Message ----

> From: Helen deHavilland

>

> Hi Beth

> For what its worth, in regard to the deserts, you can use stevia instead of

> sugar as sweetener and hence make a desert with it, and there are a few

recipes

> around on the net using stevia. But you are right about this diet. Life is

> miserable on this sort of diet, and I feel my whole quality of life has gone

> down the drain having to stick to it.

> Helen

Link to comment
Share on other sites

Guest guest

RIGHT ON Debby.

 

we ALL need to have this kind of mentality a lot more than anything else. I feel

the same way. I stopped being bitter about this diet a while ago. What is the

point of keep telling myself how horrible this diet is  & all the negative aspect

of it. In reality there is really not much negative about it except not being

able to eat sweet things &  a lot of useless carbs. Those foods are not really

good for you after all. I am looking at the positives of this diet & exactly as

you wrote i can eat as much as i want  & I do but i do not gain any fat . I am

also looking around more closely & the ones who are eating supposedly all the

delicious foods like ice cream, cakes  or pasta have so much fat on them  & i do

not . i used to have a little tummy but not any more & it is because of this

diet that my body looks a lot better than even in my 20's. I never thought i

will ever see my abdominal muscles. now i have started seeing them. the hell

with sugar,

sweets & pasta or bread.  The only minus is not to be able to eat fruits  & at

some point i am sure i can have the " safe " ones & I will be very happy. This is

all coming from someone who was a major addict to sweets  & contrary to what i

thought at the very beginning of this diet how depressed i will be not to be

able to eat any more sweets i am actually grateful that i have no choice other

than not to eat them any more. It will be very helpful to us all if we

ONLY share what we are eating if it falls into MOVES diet rather than non MOVES

foods.

 

Shar

From: Debby Padilla-Hudson <debbypadilla@...>

Subject: Re: BETH

>For me it's the opposite.. no matter how much eating this way sucks, the stuff

I deal with when I go off plan are much worse. The weight gain, fatigue,

depression, etc. are way worse than having to eat this way for me. Also I look

on the bright side.. while I may have to be strict on quality, at least I can

eat as much as I want for the most part, and I LOVE steak!

Luv,

Debby in San , CA

 Helen deHavilland

>

> Hi Beth

> For what its worth, in regard to the deserts, you can use stevia instead of

> sugar as sweetener and hence make a desert with it, and there are a few

recipes

> around on the net using stevia. But you are right about this diet. Life is

> miserable on this sort of diet, and I feel my whole quality of life has gone

> down the drain having to stick to it.

> Helen

Link to comment
Share on other sites

Guest guest

Something I've found very helpful in overcoming the craving for carbs, sweets &

other junk food is the Amino Acid, Glutamine.  I take a 500mg capsule 30 or so

minutes before meals and find it really helps!  I buy a 200-capsule bottle from

Swanson Health Foods for less than $8.  Has anyone else done much with Glutamine

or other Amino Acids?  What results did you have?

Mike

Re: BETH

>For me it's the opposite.. no matter how much eating this way sucks, the stuff

I deal with when I go off plan are much worse. The weight gain, fatigue,

depression, etc. are way worse than having to eat this way for me. Also I look

on the bright side.. while I may have to be strict on quality, at least I can

eat as much as I want for the most part, and I LOVE steak!

Luv,

Debby in San , CA

 Helen deHavilland

>

> Hi Beth

> For what its worth, in regard to the deserts, you can use stevia instead of

> sugar as sweetener and hence make a desert with it, and there are a few

recipes

> around on the net using stevia. But you are right about this diet. Life is

> miserable on this sort of diet, and I feel my whole quality of life has gone

> down the drain having to stick to it.

> Helen

Link to comment
Share on other sites

Guest guest

how do u keep your energy levels up when u are not eating carbs and sugar and

only eating meats and veggies I feel even worst now then when i had then things

in my diets.

candidiasis@...: debbypadilla@...: Wed, 30 Jul

2008 11:08:40 -0700Subject: Re: BETH

For me it's the opposite.. no matter how much eating this way sucks, the stuff I

deal with when I go off plan are much worse. The weight gain, fatigue,

depression, etc. are way worse than having to eat this way for me. Also I look

on the bright side.. while I may have to be strict on quality, at least I can

eat as much as I want for the most part, and I LOVE steak!Luv,Debby in San ,

CA147 pounds lost! 100% of health issues reversed!Currently studying for

Nutrition license and PhD in PsychologyGroup:

curingcandida/Website:

http://www.naturallythriving.com----- Original Message ----> From: Helen

deHavilland > > Hi Beth> For what its worth, in regard to the deserts, you can

use stevia instead of > sugar as sweetener and hence make a desert with it, and

there are a few recipes > around on the net using stevia. But you are right

about this diet. Life is > miserable on this sort of diet, and I feel my whole

quality of life has gone > down the drain having to stick to it.> Helen

_________________________________________________________________

Keep your kids safer online with Windows Live Family Safety.

http://www.windowslive.com/family_safety/overview.html?ocid=TXT_TAGLM_WL_family_\

safety_072008

Link to comment
Share on other sites

Guest guest

I take L-Glutamine daily and find it helpful, but the one supplement I *can't*

be without is chromium. Over years of living with candida and eating high carb,

I damaged my cells and they are very insulin resistant. Chromium helps me with

the insulin sensitivity.

Luv,

Debby in San , CA

147 pounds lost! 100% of health issues reversed!

Currently studying for Nutrition license and PhD in Psychology

Group: curingcandida/

Website: http://www.naturallythriving.com

----- Original Message ----

> From: Mike Timmons

>

> Something I've found very helpful in overcoming the craving for carbs, sweets

&

> other junk food is the Amino Acid, Glutamine. I take a 500mg capsule 30 or so

> minutes before meals and find it really helps! I buy a 200-capsule bottle

from

> Swanson Health Foods for less than $8. Has anyone else done much with

Glutamine

> or other Amino Acids? What results did you have?

> Mike

Link to comment
Share on other sites

Guest guest

This topic is not about me so please change the subject line.

Beth

Re: BETH

I take L-Glutamine daily and find it helpful, but the one supplement I *can't*

be without is chromium. Over years of living with candida and eating high carb,

I damaged my cells and they are very insulin resistant. Chromium helps me with

the insulin sensitivity.

Luv,

Debby in San , CA

147 pounds lost! 100% of health issues reversed!

Currently studying for Nutrition license and PhD in Psychology

Group: curingcandida/

Website: http://www.naturallythriving.com

----- Original Message ----

> From: Mike Timmons

>

> Something I've found very helpful in overcoming the craving for carbs,

sweets &

> other junk food is the Amino Acid, Glutamine. I take a 500mg capsule 30 or

so

> minutes before meals and find it really helps! I buy a 200-capsule bottle

from

> Swanson Health Foods for less than $8. Has anyone else done much with

Glutamine

> or other Amino Acids? What results did you have?

> Mike

Link to comment
Share on other sites

  • 4 months later...

Hi Beth,

I have meant to e-mail you - I am pretty sure I even have one started in my

drafts...

Anyway, is still having her ups and downs.  She saw the rheumatologist

about two weeks ago and she added Arava to her Enbrel, since mtx gives her the

cellulitis due to her pidd.  She has referred her to a hand surgeon as both

pointer fingers continue to deviate (oddly - from the middle joint out, then

back sideways towards the next finger so her finger resembles a boomerang.  Two

OT's and the rheumy cannot figure out what to do to slow the progression as to

splint this deviation prevents all mobility of the fingers.  She has had four

rounds (3 months) of various antibiotics for sinus infections but CT scan shows

she still has infection so will consult with ENT after Christmas. She saw a new

allergist she sees again in two weeks who thinks all her hives and rashes may be

caused by Celebrex and anti-inflammatories in general.  The appointments (and

Jayden) keep us very busy.

I am glad to hear Hannah has had no more fainting episodes; there are so many

factors that can contribute....if she had taken her Tramadol (but as you say

doesn't take it often), and was tired, or had not eaten recently, stood up too

quickly, wasn't feeling well (e.g. she did feel a need to take the Tramadol),

etc.  Hopefully it was a one time deal, and fortunately she did not hit her

head, as you said.  I know it is scary, especially when they are not a fainter

and you have no warning (e.g. has classically low b.p. so it isn't a

stretch for her).  I am glad she is still able to perform and hope the holiday

programs don't take too much out of her!  (Have you tried sending the energy

bars with her?) 

How have you been with your arthritis?  I would imagine the weather getting so

cold there is difficult!  How are the boys?

Thank you for the suggestion for the VAS as I would always go with a personal

recommendation.  Do you know if you can purchase it from Amazon?

Please give Hannah a hug.

From: Ruth <telemwill (DOT) com>

Subject: Scleroderma ?

@group s.com

Date: Tuesday, December 9, 2008, 7:57 AM

Jemma had an appointment this morning. Her dermatologist now suggests

she may have scleroderma. I did call her pediatrician today to ask for

a referral to a rheumy. I am now scouring the internet for information

on scleroderma. It seems like it is taking a long time to get this

figured out. All this auto-immune stuff is a bit scary.

Ruth in TN

Link to comment
Share on other sites

  • 5 weeks later...

Hi Beth -

Happy New Year!  How is Hannah doing? 

From: Beth Yohnk <yohnkmom@...>

Subject: Re: surgery again

Date: Friday, January 9, 2009, 10:31 AM

We tell the parents here they are their kids best advocates.  I'm

glad you are your own best advocate! Best of luck on your surgery.  Keep us

posted!  Hugs..

 

Beth :)

" We can't direct the wind, but we can adjust our sails " -author unknown

____________ _________ _________ __

From: " ajaoky@... " <ajaoky@...>

ajao_young_adults; @group s.com

Sent: Friday, January 9, 2009 11:57:08 AM

Subject: surgery again

eenie meenie minee mo....which joint is next to go? I wish I may I wish I might

know the answer that will be right!

Last May, after a few days of horrible pain stopping me in my tracks.....for me

that means I could'nt go shopping or when I did I had to cut the trip short, I

called my?-at that time-?ortho surgeon. After looking at my hip xrays it was

decided my 16 year old hip replacements needed some revision. The left, which he

said was worse, would go first and surgery was scheduled for June 19th. As many

of you know that didn't come to be. I went to the hospital that morning. The

anesthesia team came in the room to talk with me of their plans. After seeing my

limited neck movement and mouth opening they seemed a bit bewildered and

honestly put?alot of?fear in me. The attempt to intubate was made, but failed

with poor results for me. Short of death, I was admitted to the hospital due to

the torture committed to my body, leaving me with bloody fluid in my lungs.

After 3 days I was released and left to plot for another attempt. I rescheduled

for July 17th but with my

hip feeling fine and being very skeptic I cancelled and never rescheduled.

Imagine that!

One of the reasons for my skepticism was not that my doctor had insisted on a

revision of the left hip but that he wouldn't listen to me when I said

repeatedly my left knee hurts. AND it hurt bad all the time and left me unable

to do my favorite pastimes, window shop at the local malls and go for walks at

my favorite parks. Worse than that it would wake me at night, make me stand 3

minutes on the left leg before I could even think of putting the right leg to

the floor. Then seveal minutes of " whoa, wow and please " followed but eventually

the foot made it to the floor, I could walk and the knee allowed me 30 - 60

minutes of walk time before saying sit the hell down but don't sit for more than

15 because the procedure would start again. Left leg first......the best I could

get was an injection of steroid in the knee and let me say, those don't feel

good, last only a little while, and?then the ritual starts again. Pain,

injection, feel good, thenz back to

pain....you get the picture. I had 8 injections in about 4 years but not one

xray. Why did I not say anything or do anything is because I thought the doc

knew what he was doing yet, I knew better.

The peculiar thing is, prior to my June 19 attempt at hip revision I told family

and friends I didn't understand how the right knee was going to see me through

the rehab of a left hip revision. I was very concerned about this.

Now, as I look back , I once again can say things happen for a reason......

......

Two months ago, I was reduced to taking the demonic prednisone dose pack?to see

if it could help my knee and it did until I went off of it. Last week I could

not take anymore and played with the decision what ortho do I call? My old ortho

who now has as his assistant my very old ortho. My very old ortho was my doc

from time of diagnosis in 1970 until his retirement a few years ago. Damn

him....to leave me like that! Well he is back on?a part time basis and only

assist in surgeries but hey, he is back and he knows me and knows me well. He

did my original bi lateral hip surgery in 1993 as well as all of my other ortho

surgeries. It didnt take me long to decide to go see my old and very old orthos

for a second opinion, if you will.

I told Tony before we went into the orthos office to not say anything about my

failed hip revision because when I made the?appointment phone call I told them

my knees and hips were bothering me. My hips were 16 years old and needed to be

looked at anyway. Upon arrival I was escorted to the wonderfully hard and cold

xray table for what was a trip of curiousity and hopefully a resolution.

With anticipation I waited for what is now, once again, my ortho to come in and

go over the xrays. Tony and I both were wondering what the conclusion would be

and hoped for an answer to what was causing me to hurt. Was it the hip(s) making

the knee(s) hurt or vice versa or was it just sciatica??The doc?looked at the

hips first and his first 'make-my-jaw' drop comment was, " the hips do not look

that bad but eventually will need some revising " . I looked at Tony, Tony looked

at me and I said " which one appears to be the worst? " , like I didn't know. His

response, which is what I thought, was, " the right hip is a little more worn and

has some wearing that has created cysts and will likely need to go before the

left " . WOW... less than a year ago it was the left! What the hell???? Ok so lets

move on to the knees....... " Hmm " , he said, " the right knee is hurting alot " .

No crap doc thats why I am here!! Bone on Bone, no cartilage, leaning to one

side and will

not come close to being straight, the doc says it needs to be replaced. Wow,

can ya believe that? I knew all along even back last June it was the Rt Knee not

the left hip and for this reason I postponed and postponed the hip revision.

Needless to say I have shook my head alot the last few days and I have been

telling myself what I have always known.... I do know my body and its alarm

system better than any doc on this planet. I listened to my intuition and did

not have the revision and I did follow my knees plea to call the old ortho.

Medicine is a science and it is just that that it not always a given nor is it

always correct but I believe the intuition the resides in us all is sometimes

the best alert system we have, so follow that and precede, which is what I am

doing.

Although, I am still a bit confused by it all, I have a sense of satisfaction

and on February 16 I will start my bodies repair work by having a new right knee

put in which I know will put me back in the malls and back on my walks in the

park. I know the road will be long because I also know eventually?the left knee

will need replaced? along with the hip revisions but at least for now I feel I

am on the right road.....

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

Link to comment
Share on other sites

Hi , Happy New Year to you also!  Hannah is doing pretty well.  She has a

shoulder that has bothering her and I'm not sure why.  Not sure if its related

to the fall she took when she sprained her neck/back or not.  We are headed to a

waterpark tomorrow for an overnight family trip.  I hope she does ok.  I'm sure

it will be lots of stairs (for all the water rides) and of course she can't wear

her knee braces.  So I'll be packing the pharmacy and the microwavable heating

pads.

How is Miss feeling?  Any improvement since we last talked?

 

Beth :)

" We can't direct the wind, but we can adjust our sails " -author unknown

________________________________

From: nancy barnes <nancyb315@...>

Sent: Friday, January 9, 2009 12:39:52 PM

Subject: Re: Beth

Hi Beth -

Happy New Year!  How is Hannah doing? 

From: Beth Yohnk <yohnkmomsbcglobal (DOT) net>

Subject: Re: surgery again

@group s.com

Date: Friday, January 9, 2009, 10:31 AM

We tell the parents here they are their kids best advocates.  I'm glad you are

your own best advocate! Best of luck on your surgery.  Keep us posted!  Hugs..

 

Beth :)

" We can't direct the wind, but we can adjust our sails " -author unknown

____________ _________ _________ __

From: " ajaoky@... " <ajaoky@...>

ajao_young_adults; @group s.com

Sent: Friday, January 9, 2009 11:57:08 AM

Subject: surgery again

eenie meenie minee mo....which joint is next to go? I wish I may I wish I might

know the answer that will be right!

Last May, after a few days of horrible pain stopping me in my tracks.....for me

that means I could'nt go shopping or when I did I had to cut the trip short, I

called my?-at that time-?ortho surgeon. After looking at my hip xrays it was

decided my 16 year old hip replacements needed some revision. The left, which he

said was worse, would go first and surgery was scheduled for June 19th. As many

of you know that didn't come to be. I went to the hospital that morning. The

anesthesia team came in the room to talk with me of their plans. After seeing my

limited neck movement and mouth opening they seemed a bit bewildered and

honestly put?alot of?fear in me. The attempt to intubate was made, but failed

with poor results for me. Short of death, I was admitted to the hospital due to

the torture committed to my body, leaving me with bloody fluid in my lungs.

After 3 days I was released and left to plot for another attempt. I rescheduled

for July 17th but with my

hip feeling fine and being very skeptic I cancelled and never rescheduled.

Imagine that!

One of the reasons for my skepticism was not that my doctor had insisted on a

revision of the left hip but that he wouldn't listen to me when I said

repeatedly my left knee hurts. AND it hurt bad all the time and left me unable

to do my favorite pastimes, window shop at the local malls and go for walks at

my favorite parks. Worse than that it would wake me at night, make me stand 3

minutes on the left leg before I could even think of putting the right leg to

the floor. Then seveal minutes of " whoa, wow and please " followed but eventually

the foot made it to the floor, I could walk and the knee allowed me 30 - 60

minutes of walk time before saying sit the hell down but don't sit for more than

15 because the procedure would start again. Left leg first......the best I could

get was an injection of steroid in the knee and let me say, those don't feel

good, last only a little while, and?then the ritual starts again. Pain,

injection, feel good, thenz back to

pain....you get the picture. I had 8 injections in about 4 years but not one

xray. Why did I not say anything or do anything is because I thought the doc

knew what he was doing yet, I knew better.

The peculiar thing is, prior to my June 19 attempt at hip revision I told family

and friends I didn't understand how the right knee was going to see me through

the rehab of a left hip revision. I was very concerned about this.

Now, as I look back , I once again can say things happen for a reason......

......

Two months ago, I was reduced to taking the demonic prednisone dose pack?to see

if it could help my knee and it did until I went off of it. Last week I could

not take anymore and played with the decision what ortho do I call? My old ortho

who now has as his assistant my very old ortho. My very old ortho was my doc

from time of diagnosis in 1970 until his retirement a few years ago. Damn

him....to leave me like that! Well he is back on?a part time basis and only

assist in surgeries but hey, he is back and he knows me and knows me well. He

did my original bi lateral hip surgery in 1993 as well as all of my other ortho

surgeries. It didnt take me long to decide to go see my old and very old orthos

for a second opinion, if you will.

I told Tony before we went into the orthos office to not say anything about my

failed hip revision because when I made the?appointment phone call I told them

my knees and hips were bothering me. My hips were 16 years old and needed to be

looked at anyway. Upon arrival I was escorted to the wonderfully hard and cold

xray table for what was a trip of curiousity and hopefully a resolution.

With anticipation I waited for what is now, once again, my ortho to come in and

go over the xrays. Tony and I both were wondering what the conclusion would be

and hoped for an answer to what was causing me to hurt. Was it the hip(s) making

the knee(s) hurt or vice versa or was it just sciatica??The doc?looked at the

hips first and his first 'make-my-jaw' drop comment was, " the hips do not look

that bad but eventually will need some revising " . I looked at Tony, Tony looked

at me and I said " which one appears to be the worst? " , like I didn't know. His

response, which is what I thought, was, " the right hip is a little more worn and

has some wearing that has created cysts and will likely need to go before the

left " . WOW... less than a year ago it was the left! What the hell???? Ok so lets

move on to the knees....... " Hmm " , he said, " the right knee is hurting alot " .

No crap doc thats why I am here!! Bone on Bone, no cartilage, leaning to one

side and will

not come close to being straight, the doc says it needs to be replaced. Wow, can

ya believe that? I knew all along even back last June it was the Rt Knee not the

left hip and for this reason I postponed and postponed the hip revision.

Needless to say I have shook my head alot the last few days and I have been

telling myself what I have always known.... I do know my body and its alarm

system better than any doc on this planet. I listened to my intuition and did

not have the revision and I did follow my knees plea to call the old ortho.

Medicine is a science and it is just that that it not always a given nor is it

always correct but I believe the intuition the resides in us all is sometimes

the best alert system we have, so follow that and precede, which is what I am

doing.

Although, I am still a bit confused by it all, I have a sense of satisfaction

and on February 16 I will start my bodies repair work by having a new right knee

put in which I know will put me back in the malls and back on my walks in the

park. I know the road will be long because I also know eventually?the left knee

will need replaced? along with the hip revisions but at least for now I feel I

am on the right road.....

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

Link to comment
Share on other sites

  • 8 months later...

Beth, it is interesting. is going to see Maggie's ped rheumy in Iowa on

Thursday. Out of curiousity, I looked at her profile...maybe it is meant to be

but here is what it said, note DIAGNOSTIC DILEMMAS...might be well worth the

trip!!!!

and Rob 20 JAS ( " I don't have arthritis anymore " lol)

Sandy Hong, MS, MD

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Thank you

> Thanks to everyone who responded. Great advice. Rusty, she

> loves the " wax baths " and I totally forgot about the silly

> putty..thank you!!

>

> Becki: I am taking you advice, I have aped I love and Hannah

> has appointment with him on Thursday. He knows her very well.

> I asked about hand xrays and all she's had is finger xrays..they

> don't xray the whole hand for that.

>

> For those of you who are new, Hannah has had joint issues since

> she was about 5 years old. Our experience with the ped rheumy

> (we've 2) has not been good at all. We also had a horrible

> experience with pain management and I will never put Hannah

> through that again. She absolutely has OA in her knees and has

> had numerous injuries due to her hyper-mobility. Yes kids can

> and do get OA, its just less common.

>

> Now, for the big question: If our ped really wants Hannah to

> see a new rheumy, do any of you have one that will think outside

> the box? She will need someone who will not diagnose strictly

> on labs and xrays. I always normal xrays were good, meaning

> there is not damage. Hannah's labs have always been all over

> the place. We are in WI, but we are to the point that we will

> do what we have to for Hannah.

>

> Beth & Hannah, 12 (13 in 4 days), OA, HMJS, asthma; vitamin d

> deficiency

> Beth

> " We can't direct the wind, but we can adjust our sails " -author

> unknown

>

Link to comment
Share on other sites

Ok, Iowa City is abot 4 1/2 hours from us.  That is doable.  Can't wait to

talk to after 's appointment.  We may just have to make that trip

too!  Thanks .  I'm going to ask Georgina to post the new pics I took of

Hannah's hands.  There is already a picture on there from a couple years ago.

 

Beth

" We can't direct the wind, but we can adjust our sails " -author unknown

________________________________

From: and Schulz <snooksmama@...>

Sent: Tuesday, October 6, 2009 8:13:28 PM

Subject: Re: BEth

Beth, it is interesting. is going to see Maggie's ped rheumy in Iowa on

Thursday. Out of curiousity, I looked at her profile...maybe it is meant to be

but here is what it said, note DIAGNOSTIC DILEMMAS...might be well worth the

trip!!!!

and Rob 20 JAS ( " I don't have arthritis anymore " lol)

Sandy Hong, MS, MD

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Thank you

> Thanks to everyone who responded.  Great advice.  Rusty, she

> loves the " wax baths " and I totally forgot about the silly

> putty..thank you!!

>

> Becki:  I am taking you advice, I have aped I love and Hannah

> has appointment with him on Thursday.  He knows her very well. 

> I asked about hand xrays and all she's had is finger xrays..they

> don't xray the whole hand for that.

>

> For those of you who are new, Hannah has had joint issues since

> she was about 5 years old.  Our experience with the ped rheumy

> (we've 2) has not been good at all.  We also had a horrible

> experience with pain management and I will never put Hannah

> through that again.  She absolutely has OA in her knees and has

> had numerous injuries due to her hyper-mobility.  Yes kids can

> and do get OA, its just less common.

>

> Now, for the big question:  If our ped really wants Hannah to

> see a new rheumy, do any of you have one that will think outside

> the box?  She will need someone who will not diagnose strictly

> on labs and xrays.  I always normal xrays were good, meaning

> there is not damage.  Hannah's labs have always been all over

> the place.  We are in WI, but we are to the point that we will

> do what we have to for Hannah.

>

> Beth & Hannah, 12 (13 in 4 days), OA, HMJS, asthma; vitamin d

> deficiency

> Beth

> " We can't direct the wind, but we can adjust our sails " -author

> unknown

>

Link to comment
Share on other sites

There are some awesome Doctors at the University of Minnesota.  Bryce Binstadt

is one, my daughter goes to him and she loves him!   He looks at everything. 

THere is also a Shriners hospital in the Twin Cities and they see kids with

JIA.  Everything is free of charge there.

 

Maureen J

From: Beth Yohnk <yohnkmom@...>

Subject: Re: BEth

Date: Wednesday, October 7, 2009, 1:22 AM

 

Ok, Iowa City is abot 4 1/2 hours from us.  That is doable.  Can't wait to

talk to after 's appointment.  We may just have to make that trip

too!  Thanks .  I'm going to ask Georgina to post the new pics I took of

Hannah's hands.  There is already a picture on there from a couple years ago.

 

Beth

" We can't direct the wind, but we can adjust our sails " -author unknown

____________ _________ _________ __

From: and Schulz <snooksmama@insightb b.com>

@group s.com

Sent: Tuesday, October 6, 2009 8:13:28 PM

Subject: Re: BEth

Beth, it is interesting. is going to see Maggie's ped rheumy in Iowa on

Thursday. Out of curiousity, I looked at her profile...maybe it is meant to be

but here is what it said, note DIAGNOSTIC DILEMMAS...might be well worth the

trip!!!!

and Rob 20 JAS ( " I don't have arthritis anymore " lol)

Sandy Hong, MS, MD

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Title

Clinical Assistant Professor of Pediatrics

Education

BA – Pomona College, CA & University of Edinburgh, Scotland; 1996

MS -- University of California, 1999

MD – University of California, 2001

Postgraduate Education

Residency – Harbor UCLA

Pediatric Rheumatology Fellowship – Children’s Hospital of Los Angeles

Clinical Interests

Systemic lupus erythematosus

All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

Vasculitis syndromes

Uveitis

Morphea, linear scleroderma, and systemic scleroderma

Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

Research Interests

Expression of B lymphocyte stimulator (BLyS) in children with rheumatic disease

MRI Findings in pediatric patients with spondyloarthropathy

Back to the Department of Pediatrics

Thank you

@group s.com

> Thanks to everyone who responded.  Great advice.  Rusty, she

> loves the " wax baths " and I totally forgot about the silly

> putty..thank you!!

>

> Becki:  I am taking you advice, I have aped I love and Hannah

> has appointment with him on Thursday.  He knows her very well. 

> I asked about hand xrays and all she's had is finger xrays..they

> don't xray the whole hand for that.

>

> For those of you who are new, Hannah has had joint issues since

> she was about 5 years old.  Our experience with the ped rheumy

> (we've 2) has not been good at all.  We also had a horrible

> experience with pain management and I will never put Hannah

> through that again.  She absolutely has OA in her knees and has

> had numerous injuries due to her hyper-mobility.  Yes kids can

> and do get OA, its just less common.

>

> Now, for the big question:  If our ped really wants Hannah to

> see a new rheumy, do any of you have one that will think outside

> the box?  She will need someone who will not diagnose strictly

> on labs and xrays.  I always normal xrays were good, meaning

> there is not damage.  Hannah's labs have always been all over

> the place.  We are in WI, but we are to the point that we will

> do what we have to for Hannah.

>

> Beth & Hannah, 12 (13 in 4 days), OA, HMJS, asthma; vitamin d

> deficiency

> Beth

> " We can't direct the wind, but we can adjust our sails " -author

> unknown

>

Link to comment
Share on other sites

Beth - We see Dr. Rich Vehe (ped rheumy) at the Univ. of MN. We think that he

is great and I would definately reccommend him. He is very thorough on exams

making sure that he feels every joint for inflammation. Also - he will spend

time talking to you and never acts like he is in a hurry to get to his next

patient.

Hope Hannah has a great birthday!!!

& Grant (12/psoriatic/uveitis)

>

>

> From: Beth Yohnk <yohnkmom@...>

> Subject: Re: BEth

>

> Date: Wednesday, October 7, 2009, 1:22 AM

>

>

>  

>

>

>

> Ok, Iowa City is abot 4 1/2 hours from us.  That is doable.  Can't wait to

talk to after 's appointment.  We may just have to make that trip

too!  Thanks .  I'm going to ask Georgina to post the new pics I took of

Hannah's hands.  There is already a picture on there from a couple years ago.

>  

> Beth

> " We can't direct the wind, but we can adjust our sails " -author unknown

>

> ____________ _________ _________ __

> From: and Schulz <snooksmama@insightb b.com>

> @group s.com

> Sent: Tuesday, October 6, 2009 8:13:28 PM

> Subject: Re: BEth

>

> Beth, it is interesting. is going to see Maggie's ped rheumy in Iowa on

Thursday. Out of curiousity, I looked at her profile...maybe it is meant to be

but here is what it said, note DIAGNOSTIC DILEMMAS...might be well worth the

trip!!!!

> and Rob 20 JAS ( " I don't have arthritis anymore " lol)

>

> Sandy Hong, MS, MD

>

> Title

> Clinical Assistant Professor of Pediatrics

> Education

> BA †" Pomona College, CA & University of Edinburgh, Scotland; 1996

> MS -- University of California, 1999

> MD †" University of California, 2001

> Postgraduate Education

> Residency †" Harbor UCLA

> Pediatric Rheumatology Fellowship †" Children’s Hospital of Los Angeles

> Clinical Interests

> Systemic lupus erythematosus

> All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

> Vasculitis syndromes

> Uveitis

> Morphea, linear scleroderma, and systemic scleroderma

> Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

> Research Interests

> Expression of B lymphocyte stimulator (BLyS) in children with rheumatic

disease

> MRI Findings in pediatric patients with spondyloarthropathy

> Back to the Department of Pediatrics

>

> Clinical Interests

> Systemic lupus erythematosus

> All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

> Vasculitis syndromes

> Uveitis

> Morphea, linear scleroderma, and systemic scleroderma

> Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

> Research Interests

> Expression of B lymphocyte stimulator (BLyS) in children with rheumatic

disease

> MRI Findings in pediatric patients with spondyloarthropathy

> Back to the Department of Pediatrics

>

> Title

> Clinical Assistant Professor of Pediatrics

> Education

> BA †" Pomona College, CA & University of Edinburgh, Scotland; 1996

> MS -- University of California, 1999

> MD †" University of California, 2001

> Postgraduate Education

> Residency †" Harbor UCLA

> Pediatric Rheumatology Fellowship †" Children’s Hospital of Los Angeles

> Clinical Interests

> Systemic lupus erythematosus

> All forms of juvenile idiopathic arthritis including psoriatic arthritis &

spondyloarthropathy

> Vasculitis syndromes

> Uveitis

> Morphea, linear scleroderma, and systemic scleroderma

> Diagnostic dilemmas presenting with atypical rash, weakness or any unexplained

loss of joint function/mobility

> Research Interests

> Expression of B lymphocyte stimulator (BLyS) in children with rheumatic

disease

> MRI Findings in pediatric patients with spondyloarthropathy

> Back to the Department of Pediatrics

>

> Thank you

> @group s.com

>

> > Thanks to everyone who responded.  Great advice.  Rusty, she

> > loves the " wax baths " and I totally forgot about the silly

> > putty..thank you!!

> >

> > Becki:  I am taking you advice, I have aped I love and Hannah

> > has appointment with him on Thursday.  He knows her very well. 

> > I asked about hand xrays and all she's had is finger xrays..they

> > don't xray the whole hand for that.

> >

> > For those of you who are new, Hannah has had joint issues since

> > she was about 5 years old.  Our experience with the ped rheumy

> > (we've 2) has not been good at all.  We also had a horrible

> > experience with pain management and I will never put Hannah

> > through that again.  She absolutely has OA in her knees and has

> > had numerous injuries due to her hyper-mobility.  Yes kids can

> > and do get OA, its just less common.

> >

> > Now, for the big question:  If our ped really wants Hannah to

> > see a new rheumy, do any of you have one that will think outside

> > the box?  She will need someone who will not diagnose strictly

> > on labs and xrays.  I always normal xrays were good, meaning

> > there is not damage.  Hannah's labs have always been all over

> > the place.  We are in WI, but we are to the point that we will

> > do what we have to for Hannah.

> >

> > Beth & Hannah, 12 (13 in 4 days), OA, HMJS, asthma; vitamin d

> > deficiency

> > Beth

> > " We can't direct the wind, but we can adjust our sails " -author

> > unknown

> >

Link to comment
Share on other sites

  • 6 months later...
Guest guest

I was told to stay away from eating a lot of dairy. Some dairy was okay but did not think a lot was good. Green vegetables. No red meats. Whole grain wheat bread if you had to have bread. Watch the intake of flour. Watch the carb intake. I eat a lot of soups. I eat a lot of beans. Sometimes I will eat a big helping of just broccoli or asparagus. I love asparagus with lemon on it. Then I will eat like a chicken breast with it or a piece of fish. I don't eat fried anything. No fast foods for me. I am on a weight loss diet though too. I am on weight loss plus the liver friendly. So it will be a lot more strict for me. No pop. No carbonated drinks. No caffiene. No coffee, tea that isn't decafe. No hot cocoa. Anyway I may have missed some of my can't haves. There seems to be so many. If it is good I can't have it.

Waaaa. I cheat sometimes. You can't be good all the time.

Cinder

Check out datagrey's photos and profile!

http://community.webshots.com/user/datagrey

Find me on MySpace and be my friend.

http://www.myspace.com/datagrey

From: Beth Frey <bethfrey42301@...>Subject: Re: [ ] Date: Wednesday, May 5, 2010, 6:09 PM

Does ice cream count. Ate alot of ice cream and milk shakes they seemed to help with the nausea.

Link to comment
Share on other sites

Guest guest

Uhm... after reading that... there is no way I am going to admit to what I eat..... I can tell you that a lot of what you eat I won't even touch..... chicken? ick. wheat bread..... oh man. Nobody ever said anything to me about changing my diet... I think the only thing on your list that I like is the asparagus... but not with lemon.... No carbonated drinks... I have a pepsi right next to me as we speak! No coffee? Okay, where was I that I missed all of this? No doctor ever told me anything about diet... and I had some really great doctors.... or was that the point where I put my hands over my ears and started singing la la la la

la?Teri From: Cinder <datagrey@...> Sent: Thu, May 6, 2010 4:13:07 PMSubject: Re: [ ]Beth

I was told to stay away from eating a lot of dairy. Some dairy was okay but did not think a lot was good. Green vegetables. No red meats. Whole grain wheat bread if you had to have bread. Watch the intake of flour. Watch the carb intake. I eat a lot of soups. I eat a lot of beans. Sometimes I will eat a big helping of just broccoli or asparagus. I love asparagus with lemon on it. Then I will eat like a chicken breast with it or a piece of fish. I don't eat fried anything. No fast foods for me. I am on a weight loss diet though too. I am on weight loss plus the liver friendly. So it will be a lot more strict for me. No pop. No carbonated drinks. No caffiene. No coffee, tea that isn't decafe. No hot cocoa. Anyway I may have missed some of my can't haves. There seems to be so many. If it is good I can't have

it.

Waaaa. I cheat sometimes. You can't be good all the time.

Cinder

Check out datagrey's photos and profile!

http://community. webshots. com/user/ datagrey

Find me on MySpace and be my friend.

http://www.myspace. com/datagrey

From: Beth Frey <bethfrey42301>Subject: Re: [ ] Date: Wednesday, May 5, 2010, 6:09 PM

Does ice cream count. Ate alot of ice cream and milk shakes they seemed to help with the nausea.

Link to comment
Share on other sites

Guest guest

Teri, and BethCertainly none of my Dr's ever suggested a special diet and most importantly, not during tx. However, my body itself dictated my food changes. I love Latte's and would have to splurge every day. Then my body decides it doesn't like them so much. Coffee, I'd lost my taste for regular coffee prior to and during the intake of Latte's. Red meat, again it was my body!! I suddenly couldn't tolerate the taste of it or anything. Except that of course, I eat the hamburger in a spagetti sauce. With the carbonated drinks - yup my pop of choice in Ginger Ale and I drink away too much of it.Then today, I don't know whatever possessed me, but while I was in

town, I ordered a plate of fries!!!! Usually, if they put fries on the side of anything I eat, I never get to them. So, as I was stuffing my face, I'm thinking, so what's up with this????Gloria

Uhm... after reading that... there is no way I am going to admit to what I eat..... I can tell you that a lot of what you eat I won't even touch..... chicken? ick. wheat bread..... oh man. Nobody ever said anything to me about changing my diet... I think the only thing on your list that I like is the asparagus... but not with lemon.... No carbonated drinks... I have a pepsi right next to me as we speak! No coffee? Okay, where was I that I missed all of this? No doctor ever told me anything about diet... and I had some really great doctors.... or was that the point where I put my hands over my ears and started singing la la la la

la?Teri From: Cinder <datagrey (DOT) com> Sent: Thu, May 6, 2010 4:13:07 PMSubject: Re: [ ] Beth

I was told to stay away from eating a lot of dairy. Some dairy was okay but did not think a lot was good. Green vegetables. No red meats. Whole grain wheat bread if you had to have bread. Watch the intake of flour. Watch the carb intake. I eat a lot of soups. I eat a lot of beans. Sometimes I will eat a big helping of just broccoli or asparagus. I love asparagus with lemon on it. Then I will eat like a chicken breast with it or a piece of fish. I don't eat fried anything. No fast foods for me. I am on a weight loss diet though too. I am on weight loss plus the liver friendly. So it will be a lot more strict for me. No pop. No carbonated drinks. No caffiene.

No coffee, tea that isn't decafe. No hot cocoa. Anyway I may have missed some of my can't haves. There seems to be so many. If it is good I can't have

it.

Waaaa. I cheat sometimes. You can't be good all the time.

Cinder

Check out datagrey's photos and profile!

http://community. webshots. com/user/ datagrey

Find me on MySpace and be my friend.

http://www.myspace. com/datagrey

From: Beth Frey <bethfrey42301>Subject: Re: [ ] Date: Wednesday, May 5, 2010, 6:09 PM

Does ice cream count. Ate alot of ice cream and milk shakes they seemed to help with the nausea.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...