Beth

[Guest guest]

Beth

Yup, I am SOOOOO sick of the pop-ups and such. But it was even worse

before I purchased a pop-up stopper disc to install. Gee, I was just in

my " favorites " listing and couldn't believe all the folders that got

added in by some damn site. I must have just deleted 10 folders that

weren't there the other day and that I NEVER added. You talk about an

invasion of privacy - the internet is getting awful!!!

Re: Gathering attendees?

In a message dated 4/19/2004 8:02:04 PM Eastern Daylight Time,

shaye@... writes:

do have RR. hmmm The ohter night my hubby was also saying that the net

was slow too.

~~~~~~~~~~~~

We have RR and ours occasionally runs slowly, although we usually

attribute

it to adware. Sometimes, the cable traffic gets heavy, though, and

things get

very slow.

Beth

[Guest guest]

In a message dated 4/19/2004 10:05:33 PM Eastern Daylight Time,

jmurray2@... writes:

Yup, I am SOOOOO sick of the pop-ups and such. But it was even worse

before I purchased a pop-up stopper disc to install. Gee, I was just in

my " favorites " listing and couldn't believe all the folders that got

added in

~~~~~~~~~~~~~

It's incredible, for sure--and not in a good way! We're amazed when we run

our spybot and such what has been loaded onto our computer. We even had some

porn loaded on once. . .

Beth

[Guest guest]

Beth,

If your babe has congenital or infantile scoliosis, I agree with your doc. I would NOT take her to the chiropractor, for fear of causing more problems. (they know nothing about infantile/congenital scoliosis.) If they did, they wouldnt touch your child.

About Copes. They know NOTHING about infantile or congenital scoliosis. They claim to specialize in adolescent. Believe me, I did my research on them 5 yrs ago.

They can maintain very small adolescent curves for a while with their brace. They are a temporary solution for these adolescents. Thats about it. I bet their making a lot of $, though...................

You said your babe was born with it. Do you know what type, and was he/she given that diagnosis by a pediatric orthopaedic doc that specializes in scoliosis (or atleast claims to).?

Sincerely,

H.

[Guest guest]

Beth,

I don't know anything about AMC, but we do have a few Mom's here who children have that. Have you checked out Infants and Children at ? I have been on that group a little but it is not really for Idiopathic Infantile Scoliosis. Mainly those kids are congenital, etc. Hope that helps.

Crista

[Guest guest]

Yes, it is. I can't remember how I got there though.

Celia, do you remember how to get there?

[Guest guest]

Beth,

I am glad that you are taking a pro-active approach to all of this, and looking into alternatives.

It sounds like you have "been there, done that," so to speak, and have seeked out more than one opinion.

Obviously, you already know that you are truly the best one to advocate for your child.

I'm sure you will enjoy this group. It's pretty active, and everyone is really genuine.

I am not at all comfortable with chiro care on infants (congenital or infantile), but I have always believed that moms and dads know best, and that we should always follow our own intuition/feelings on the care of our childen.

Thanks for joining the group!

sincerely,

H.

[Guest guest]

Beth,

I am glad that you are taking a pro-active approach to all of this, and looking into alternatives.

It sounds like you have "been there, done that," so to speak, and have seeked out more than one opinion.

Obviously, you already know that you are truly the best one to advocate for your child.

I'm sure you will enjoy this group. It's pretty active, and everyone is really genuine.

I am not at all comfortable with chiro care on infants (congenital or infantile), but I have always believed that moms and dads know best, and that we should always follow our own intuition/feelings on the care of our childen.

Thanks for joining the group!

sincerely,

H.

[Guest guest]

Beth,

Perfect. Who told you it was a 3 month wait? just got her daughter Madison in and that was a month off just like . Hmmm...

Crista

[Guest guest]

F.Y.I. - an infants scoliotic curve due to their overall flexibility at this age, can increase/decrease approx. 10 degrees in one day. Im suprised that your ortho didnt mention that...(Instead of attributing this correction to chiro work.) Ask him/her about it.

The 2 inch increase in height could be attributed to normal growth. Remember, children grow the most their 1st 2 yrs of life.

"He also feels casting would not be a "cure" for her tho it may help her he did not see how not taking a bath for months and having poop on her cast could possibly be more comfortable than a brace she can take off."

What a ridiculous thing for him/her to say. Its obvious by that ignorant statement that this doc knows nothing of early treatment with serial corrective plaster casts.

Ask any mom on this group if those issues have made them change their minds on getting their children casted.

Children in casts can bathe, just not completely submerged in water. They take sponge bathes for a while (big deal).

The mothers who have casts on their infants probably keep their "casted child" cleaner than their other children, because they are aware of what problems can arise with dirty skin under a cast. All children poop, and all parents clean it up, no matter what the situation of the child. This doc makes it sound as if there is no way to keep the casted child clean. Thats laughable. I would love to send this doc a video for free, too.!

Anyway Beth, I am not challenging your choices...I am just sharing info with you that may help someone else make their decision on what type of care they pursue for their child.

ISOP is advocating early treatment with serial corrective plaster jackets. There is a perfect window of time (usually before the curve reaches 50) for this treatment to be effective on infants/young children. If parents of i.s. children waste too much time on other treatments, this window of time is lost and it may be too late to benefit/get straight with EDF casts.

Sincerely,

HRH

[Guest guest]

Jacki,

What is your date again?

Crista

[Guest guest]

Hi (H)

Our experience also indicates that the curves can go up and down....

Siobhan was 35 degree's last June, then in the September her curve

was 26!!!!!! Three months later it was back up to 38!!!!

When I asked our Ortho about casting, he talked about rib damage, and

when I mentioned that braces too can cause rib damage, he then went

onto say how casts aren't so 'convenient', how they don't come off,

and how Siobhan couldn't bathe or swim!!!!!! Errrr, like I think that

that would take presedence over controlling a curve! Geez! Talk

about 'scrapping the barrel' for excuses!!!!

The other thing he mentioned was, that as Siobhan has a Connective

Tissus Disorder, it may or may not work (50/50 he said). I thought

they seemed like pretty good odds!!!

He basically would cast Siobhan at 70+ degree's, in fibreglass (I too

would want plaster!!), which basically (in my humble opinion) would

be the 'last ditch' theory, as opposed to Min Mehta's idea

of " Corrective Serial Casting " ! Hence our trip to SLC in a couple of

weeks!

As always, , I thank you for imparting your knowledge, and

hopefully saving Siobhan from a Spinal Fusion at 8 years old.

I'll call before we leave.

Jacki and Siobhan xxx

> F.Y.I. - an infants scoliotic curve due to their overall

flexibility at this

> age, can increase/decrease approx. 10 degrees in one day. Im

suprised that

> your ortho didnt mention that...(Instead of attributing this

correction to chiro

> work.) Ask him/her about it.

> The 2 inch increase in height could be attributed to normal

growth.

> Remember, children grow the most their 1st 2 yrs of life.

>

> " He also feels casting would not be a " cure " for her tho it may

help her he

> did not see how not taking a bath for months and having poop on her

cast could

> possibly be more comfortable than a brace she can take off. "

>

> What a ridiculous thing for him/her to say. Its obvious by that

ignorant

> statement that this doc knows nothing of early treatment with

serial corrective

> plaster casts.

> Ask any mom on this group if those issues have made them change

their minds

> on getting their children casted.

> Children in casts can bathe, just not completely submerged in

water. They

> take sponge bathes for a while (big deal).

> The mothers who have casts on their infants probably keep

their " casted

> child " cleaner than their other children, because they are aware of

what problems

> can arise with dirty skin under a cast. All children poop, and all

parents

> clean it up, no matter what the situation of the child. This doc

makes it sound

> as if there is no way to keep the casted child clean. Thats

laughable. I

> would love to send this doc a video for free, too.!

> Anyway Beth, I am not challenging your choices...I am just sharing

info with

> you that may help someone else make their decision on what type of

care they

> pursue for their child.

> ISOP is advocating early treatment with serial corrective plaster

jackets.

> There is a perfect window of time (usually before the curve reaches

50) for

> this treatment to be effective on infants/young children. If

parents of i.s.

> children waste too much time on other treatments, this window of

time is lost and

> it may be too late to benefit/get straight with EDF casts.

>

> Sincerely,

>

> HRH

[Guest guest]

Christa

We should leave June 22nd (if Angel Flights come thru!!). Are you

still going early June?

Jacki

>

>

> Jacki,

> What is your date again?

>

> Crista

[Guest guest]

Hi

No I do not have the tremors or the throat problem, however I would be concerned

about 20 g of prednisone everyday as the side effects are not good. Even getting

1 mg tablets and weaning off 1 mg a week would be better than staying on 20

mg....

I am sorry but I do not know what the throat problem could be but prednisone

surely can cause tremors...and irritability..and depression..and cataracts and

bone loss...on an on.. I know as I take 5 mg a day and am trying to get off

that.

Joanne

[Guest guest]

Hi

No I do not have the tremors or the throat problem, however I would be concerned

about 20 g of prednisone everyday as the side effects are not good. Even getting

1 mg tablets and weaning off 1 mg a week would be better than staying on 20

mg....

I am sorry but I do not know what the throat problem could be but prednisone

surely can cause tremors...and irritability..and depression..and cataracts and

bone loss...on an on.. I know as I take 5 mg a day and am trying to get off

that.

Joanne

[Guest guest]

Thanks for the information.

I realize the complications; but my rheumy and primary appear to believe that I

need it! I question them everytime I go.

Thanks again,

Beth

" easyspirit13@... " <Easyspirit13@...> wrote:

Hi

No I do not have the tremors or the throat problem, however I would be concerned

about 20 g of prednisone everyday as the side effects are not good. Even getting

1 mg tablets and weaning off 1 mg a week would be better than staying on 20

mg....

I am sorry but I do not know what the throat problem could be but prednisone

surely can cause tremors...and irritability..and depression..and cataracts and

bone loss...on an on.. I know as I take 5 mg a day and am trying to get off

that.

Joanne

[Guest guest]

Thanks for the information.

I realize the complications; but my rheumy and primary appear to believe that I

need it! I question them everytime I go.

Thanks again,

Beth

" easyspirit13@... " <Easyspirit13@...> wrote:

Hi

No I do not have the tremors or the throat problem, however I would be concerned

about 20 g of prednisone everyday as the side effects are not good. Even getting

1 mg tablets and weaning off 1 mg a week would be better than staying on 20

mg....

I am sorry but I do not know what the throat problem could be but prednisone

surely can cause tremors...and irritability..and depression..and cataracts and

bone loss...on an on.. I know as I take 5 mg a day and am trying to get off

that.

Joanne

[Guest guest]

Isn't Dr. Kolb great?

She put me on B-12, Super Milk Thistle, Probiotic Pearls, Ultra-Lipoic Forte, and Transfer Factor Plus. I'm also only eating foods according to the Silicone Immunology Protocol. I finished up my antibiotics today.

I feel great. For about three to four months before my implants were removed...I did not drink any alcohol, I don't smoke anyways, I limited my caffeine, have always exercised regularly, managed stress, etc. So...I give full credit to the explantation and everything Dr. Kolb gave me to my feeling better. I was healthy as I could potentially be before the surgery and I was still extremely ill. Now...after explant I feel so much better. I am not fully recovered, but I definitely think I am on my way to being 100% again someday.

How are you doing Beth?

Christy

[Guest guest]

-

Christy

that is wonderful to hear that you are doing so well! And to hear

good things about Dr.Kolb's protocols. I have followed parts of

them at times too. All of these changes so pay off for you.

Hugs,kathy

-- In , SodaRene2@a... wrote:

> Isn't Dr. Kolb great?

>

> She put me on B-12, Super Milk Thistle, Probiotic Pearls, Ultra-

Lipoic Forte,

> and Transfer Factor Plus. I'm also only eating foods according to

the

> Silicone Immunology Protocol. I finished up my antibiotics today.

>

> I feel great. For about three to four months before my implants

were

> removed...I did not drink any alcohol, I don't smoke anyways, I

limited my caffeine,

> have always exercised regularly, managed stress, etc. So...I give

full credit

> to the explantation and everything Dr. Kolb gave me to my feeling

better. I

> was healthy as I could potentially be before the surgery and I was

still

> extremely ill. Now...after explant I feel so much better. I am

not fully

> recovered, but I definitely think I am on my way to being 100%

again someday.

>

> How are you doing Beth?

>

>

> Christy

[Guest guest]

Dear Christy, Yes Christy I agree she is wonderful and I am so glad

you are experiencing good things. Dr. Kolb is expert in her field.

She is my explanting surgeon and I continue under her care and

guidance. I owe her my personal gratitude for the extra time she took

and her talents with 8 or 9 hours spent in OR picking out silicone

gel from my severe rupture. I am a fan of Transfer Factor and have

done or am doing many of the same things you are following. I have

been meaning to write but have been away from the computer for a few

days. Blessings and continued success in your healing, you might want

to check out the online vitamin order slot and Dr On Call and

her monthly calendars plus her new affiliation with breast cancer and

Avitar, I have the web addresses if interested email me, or you can

link up from

www.plasitkos.com I am not too far from her facility about 2 hours

if ever I can do anything for you - let me know, hugs

survivoretal

am very grateful for her

> Isn't Dr. Kolb great?

>

> She put me on B-12, Super Milk Thistle, Probiotic Pearls, Ultra-

Lipoic Forte,

> and Transfer Factor Plus. I'm also only eating foods according to

the

> Silicone Immunology Protocol. I finished up my antibiotics today.

>

> I feel great. For about three to four months before my implants

were

> removed...I did not drink any alcohol, I don't smoke anyways, I

limited my caffeine,

> have always exercised regularly, managed stress, etc. So...I give

full credit

> to the explantation and everything Dr. Kolb gave me to my feeling

better. I

> was healthy as I could potentially be before the surgery and I was

still

> extremely ill. Now...after explant I feel so much better. I am

not fully

> recovered, but I definitely think I am on my way to being 100%

again someday.

>

> How are you doing Beth?

>

>

> Christy

[Guest guest]

Hi Beth-

Glad to hear you are feeling better. I had explant four weeks ago and was surprised to have many symptoms disappear within the first week. In fact...I wondered if it was too amazing. Any doubt I had left about it being my implants was gone right away.

Just curious...you did have saline, right? Do you know if it was bacteria or the silicone shell that was making you sick?

Christy

[Guest guest]

Hi,

I have my saline implants and tissue samples that I'm going to send

to Dr. Blais. When I get the report back I'll know for sure.

It is amazing how many symptoms disappeared almost immediately! I had so much bloating and it is gone. My tingling

in my hands GONE! My feet hurt so bad that I had to hold

on to something just to walk after getting out of bed in the

morning GONE! I'm also not retaining water like I had been.

Doctors kept telling me that I wasn't retaining but sure enough

I was. I have always been a big water drinker and before explant I went about twice a day. Now I'm going at least 10 times a day. I'm just so shocked. No doubt it was the implants.

How 'bout you? Was it the bacteria or silicone shell?

Beth S.SodaRene2@... wrote:

Hi Beth-

Glad to hear you are feeling better. I had explant four weeks ago and was surprised to have many symptoms disappear within the first week. In fact...I wondered if it was too amazing. Any doubt I had left about it being my implants was gone right away.

Just curious...you did have saline, right? Do you know if it was bacteria or the silicone shell that was making you sick?

Christy

[Guest guest]

Hi Beth!

Welcome to CI Hear! This is an exciting time for you and your family.

This is a great place to come to for support and CI information. I was born

with a profound bi-lateral sensori-neural hearing loss that was not

diagnosed until I was 6 years old. Thankfully, I was born into a large and

loving

and LOUD family so I did pick up on some speech before the age of 6. I was

also born with poor vision due to being born with water on the brain. At the

age of 6, a school speech pathologist urged my parents to have me tested and I

soon was fitted with a hearing aid in my left ear. My right ear was never

aidable as it just itched when an aide was turned on. I went through the

public

school system, taking 5 years of speech therapy and 4 years of hearing

therapy in elementary school. My hearing loss got worse and worse as years went

by as did my vison but I went onto college where I earned an Associates Degree

in Early Childhood Education. Then in February 2002, I woke up with the bulk

of the rest of my aidable hearing gone! I could not hear a thing through my

hearing aid. I was put on a wait and see how it goes since they thought it

might bounce back after allergy season. When it wasn't any better in

September 2002, I went to see a CI ENT and became a candidate in October 2002

and had

the surgery that November. I got hooked up in January 2003 and let me tell

you, I am in awe with what my CI has given me in just 2 years of being hooked

up! I still rely on lipreading to communicate; BUT oh my goodness, the CI

makes lipreading even easier! One on one conversations are fantastic! I can

even converse in a dark car! I am even talking on the phone with my siblings

and closest friends without gripping the receiver to death. It's just

amazing! It took 3 months for speech discrimination to start kicking in for me

but

that was okay by me because I didn't know what speech discrimination was ever

like. There was not a dry eye in our kitchen when I responded to my dad

calling my name from a few feet behind me. It was the first time ever that I

ever

responded after being called. And I was 40 at the time. From hook up day

on, I have just enjoyed hearing what I can hear with my CI. It's awesome!

My youngest sister had her first baby in July and even though Allie is my

14th niece or nephew, she is the first baby I've heard from day one! I love

listening to all her noises when I babysit or visit her!

Good luck to you on your journey out of muffleness. Being nervous is

normal. I know I was plenty nervous about my surgery and hook up. Let me

tell you, I am really glad I went through it all. I am in awe with what my CI

has given me. Today, I am hearing better than I have ever heard in my whole

life!

Feel free to ask any and all questions you may have. This is a great

group to come to for support.

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

[Guest guest]

I would really get your neck looked at, it sounds as though you are very similar to me.One other thing I forgot to mention that works for me, when you get the numbness and your neck feels swollen wrap an ice pack covered in a light towel and just place it on the affected area on your neck,then just lie back and relax for half an hour. It really works for me and I hope it does for you. What happens is it relaxes the muscles and increases the blood flow.

Sue.

If you try it and it works let me know please.

[Guest guest]

Beth,

I agree with . Knowing English well beforehand, will help you

in learning how to " hear " English for the first time. I'm slowly

recognizing /sh and /s consonants when I hear words with " sh " and " s "

in them, and that takes practice. I don't see how I am going to

attain speech discrimination, but I tell myself, " baby steps, baby

steps " (thanks to Alice!) and that " hard work will pay off. "

I'm already finding that when I use the telephone (mind you, only to

call answering machines when I know my friends are NOT AT HOME, and to

NOT use the relay service!) to leave messages " Hey, called and

please call me back when you can, bye! " , it's now easier to listen for

the beep, and that is my cue to leave a voice message myself, instead

of using the relay service... the beep already sounds different from

the words that are being spoken to me.

Just now I heard the microwave oven beep-beep-beep to let me know that

my dish is ready, from three rooms over, in the kitchen through the

foyer next to which is the living room where I am sitting. (Is this a

CI moment, guys? ) I couldn't do that with HAs.

Later, Chris

On Fri, 21 Jan 2005 00:15:15 -0500, M Jansen <nucleus24@...> wrote:

>

>

> Hi Beth,

> Sounds like you know several languages. English, ASL, ESL. Good for

> you.

> Yes, I know about Hi-Res, it is part of the implant made by Advanced

> Bionics. I have a Nucleus implant, which is made by Cochlear Corp.

> also has the Nucleus implant.

> I hope he told you that you won't just put on the speech processor and

> hear and understand everything that is being said. Your brain has to

> learn to hear with the implant, so that the sounds you get become words

> you will understand as well. Because you've been deaf from birth, you

> don' t have a lot of auditory memory. So you'll have to put a sound to

> each word you already know. It will take time, but you're young, and if

> you already know 3 languages, then learning what English sounds like

> should be easy. Sound like a smart person to me.

> check out all the features that each implant has. You can log onto

> www..com and read about the various implants, or go to their

> websites and check it out. List what is important to you, and base your

> decision upon what is available TODAY, not what is promised in the

> future, or in the works or whatever.

> Good luck,

>

>

> Nucleus Volunteer

> Post lingual - Auto Immune disorder

>

> From: Swanson <teardrops042000@...>

> Subject: Re: Beth and L

>

> Hi

> Yes I do sign language asl and esl and also I use oral too with sign

> alots.... I am very good with speech reall good.. I also very skill to

> lipreader too.. I was raise as oral but I was born deaf though... and

> also I learned sign language when I was 3yrs old... I am very smart and

> memories all sign and oral... I loves both oral and signs alots... I love

> to freak out someone who is hearing when I spoke my voice to them... they

> were like whoa are u sure u deaf??? It happened all the times... Now

> alots of my friend who is deaf and hearing.... I loves to chat with deaf

> alots... and hearing... I love to show hearing some signs... everything..

> U know, all I wnat to hear something that I never hear before... I have

> always want hear something anything... Of course when I get CI implant in

> April... I willll use my signs and vocie of course... alll the time b\c I

> loves them everything what I do.. When I get CI implant and hook up and I

> am go to Key West Island for vaction in summer to hear

> the dolphin.... I loves dolphin so I want hear them... Yes I already

> look at brand features... I was think about HI Res... have u hear of

> them?? I already know that just got his CI implant... He told me

> about it it very awesome what he heard the sound on everything... it

> amazing...I will let u know what goin on with my apt everything... thanks

> again... Hey guys, I loves Mocha... I loves to drink coffee Mocha

> " Starbuck " mmm yummmy.. thnaks..

> Thanks, Beth

>

>

>

[Guest guest]

Beth

Yup, I get those notices regarding tax exempt weeks for clothing, too.

I wonder how much money our state wastes sending those out to businesses

they KNOW aren't selling clothing. The post card even states on it that

they are aware that I don't sell clothing. So why the he__ are they

wasting tax dollars sending them to me and others???

Beth and anyone else who said they get a new tax certificate each

year......does it have an expiration date on them? I can't figure this

one out.

Re: Shaye-tax cert.

In a message dated 1/28/2005 11:39:07 AM Eastern Standard Time,

jmurray2@... writes:

I wonder why I don't get a new one sent to me each year. Does yours

come in the same packet with the yearly forms to remit the sales taxes

we collected?

~~~~~~~~~~~~~~~~~~~~~~

I get a new tax license each December. I get notices for the " no tax

on

clothing " weeks, and forms once a year to collect my sales tax. I don't

get

anything for my dba. I'm in Monroe Cty.

Beth