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Shelagh, my situation was parallel to yours. I was a regular blood donor

myself, but one day my doctor sent me to the hospital for a CT scan of my

sinuses. I dropped by the blood bank of our hospital (they process their own

from donors) and they said since I was there for tests, it was possible for me

to have surgery and it was not a good idea to give blood at that time, as I may

need it myself. A little blood here and a little blood there makes a big

difference and I really miss not being a donor. I felt it was the least I could

do. Shortly after the CT scan came the bad news that there was something wrong

with my blood, but they waited another month to be sure of what it was. In

contrast, I was not dragged to the hospital. LOL I have never heard of anyone

going to the doctor, saying they thought they had leukemia.

I ran for the hills and refused to let them treat me, instead going to a board

certified oncologist. I should have had my head examined, I stayed there 4

years too long, listening to their lies before going to the real experts. I am

happy for you that you have such outstanding doctors at the research center

where you go for treatment. May I ask what you are on currently and how much,

and do you suffer side effects? You probably told me that in the past, but I

have forgotten.

I once met a young musician at a keyboard convention where there were about 100

people playing different keyboard instruments for different companies. I asked

if he was from Liverpool and he said yes and wanted to know if I thought he

looked like the Beatles. I said no, it was his accent that gave him away, and

he was shocked. Did they or did they not at one time make colored opaque glass

there? I know they were heavily into shipbuilding and probably still are.

My first trip there was a flight from Dublin to Liverpool, very short trip. We

always made the most of every trip to see everything we could. I always said we

could sleep when we returned home. Now we sit and watch TV and when we see

something we actually witnessed, we look at each other and say, " remember that? "

Another remembered pleasure.

Continue making us all laugh with your episodal anecdotes.

Carpe Diem,

Lottie Duthu

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Hi Lottie,

They used to make glass of all sorts at a place called St Helens, not far from

Liverpool. The name of the company was Pilkingtons. I think the factory's closed

now but there's a glass museum there, outside which is a big lake with the

biggest fish you ever did see. People take bread to feed them and you think Moby

Dick is gonna come leaping our of there and take your hand off. And that's about

the only good think St Helens has. The rest of it is a dump. I hope I haven't

offended anybody who lives there!

My medication is 400mg Glivec. I think it took a couple of years to achieve

PCRU. In all that time I never bought a new pair of knickers or anything in case

I didn't live to get the wear out of them. All the websites I looked at said I

only had 5 years to live after diagnosis. Thank God for you lot and groups like

this, which are full of success stories and people trogging on against all odds.

Side effects: puffy eyes and the occasional bleed that makes me look like the

creature from the black lagoon; terrible leg cramps at night so I take a hot

water bottle to bed; skimpy hair - or is that just old age? Strange bowel

habits. Bouts of the runs (I can't spell the d word) and the odd occasion of

utter bloody weariness but I try to ignore that. Oh - and I've put on weight but

maybe that's too much white wine. And I'm a bit brain dead. I don't feel as

sharp as I used to be.

In the interests on living life to the full and grabbing it by the balls etc,

we've just sold our folding camper (like a trailer tent) and bought a touring

caravan so we can extend out exploring season. I don't think we can afford to go

to Europe this year but we have lots of walking and cycling to do and also plan

to make a start on going all round the coast of Britain. One of my writerly

friends said I should write about it so I might start a blog. Mind you, caravans

are a bit middle aged, don't you think so? We started off with a tent about 4

years ago. We were in an outdoors shop buying walking boots and got talking to

the young man who works there. We were talking about long distance trails and I

mentioned one we were keen to walk but it was a bit short of campsites. He

looked at us in amazement and said, 'You're still camping?!!!' Charming. I felt

about 90 in the shade.

All for now. I suspect the dinner's buring.

Best wishes to all, Shelagh

PS: You'll all be sorry I found out how to post on this site. There'll be no

shutting me up.

>

> Shelagh, my situation was parallel to yours. I was a regular blood donor

myself, but one day my doctor sent me to the hospital for a CT scan of my

sinuses. I dropped by the blood bank of our hospital (they process their own

from donors) and they said since I was there for tests, it was possible for me

to have surgery and it was not a good idea to give blood at that time, as I may

need it myself. A little blood here and a little blood there makes a big

difference and I really miss not being a donor. I felt it was the least I could

do. Shortly after the CT scan came the bad news that there was something wrong

with my blood, but they waited another month to be sure of what it was. In

contrast, I was not dragged to the hospital. LOL I have never heard of anyone

going to the doctor, saying they thought they had leukemia.

>

> I ran for the hills and refused to let them treat me, instead going to a board

certified oncologist. I should have had my head examined, I stayed there 4

years too long, listening to their lies before going to the real experts. I am

happy for you that you have such outstanding doctors at the research center

where you go for treatment. May I ask what you are on currently and how much,

and do you suffer side effects? You probably told me that in the past, but I

have forgotten.

>

> I once met a young musician at a keyboard convention where there were about

100 people playing different keyboard instruments for different companies. I

asked if he was from Liverpool and he said yes and wanted to know if I thought

he looked like the Beatles. I said no, it was his accent that gave him away,

and he was shocked. Did they or did they not at one time make colored opaque

glass there? I know they were heavily into shipbuilding and probably still are.

> My first trip there was a flight from Dublin to Liverpool, very short trip.

We always made the most of every trip to see everything we could. I always said

we could sleep when we returned home. Now we sit and watch TV and when we see

something we actually witnessed, we look at each other and say, " remember that? "

Another remembered pleasure.

>

> Continue making us all laugh with your episodal anecdotes.

>

> Carpe Diem,

> Lottie Duthu

>

>

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