Re: Shelagh and PCRU

[Guest guest]

Shelagh you are funny!! I laughed about your comment re the knickers.........I

am from Surrey but living in the US. I went to school in Midhurst with a girl

named Shelagh.

BTW everyone I am PCRU after only 4 mos on Tasigna, after having been hoverring

around that zero for 4 years on Gleevec. I only take 400mg a day tho. My QOL

is excellent, on the 800mg I was totally miserable.

Regards to all

Donna x

> >

> > Shelagh, my situation was parallel to yours. I was a regular blood donor

myself, but one day my doctor sent me to the hospital for a CT scan of my

sinuses. I dropped by the blood bank of our hospital (they process their own

from donors) and they said since I was there for tests, it was possible for me

to have surgery and it was not a good idea to give blood at that time, as I may

need it myself. A little blood here and a little blood there makes a big

difference and I really miss not being a donor. I felt it was the least I could

do. Shortly after the CT scan came the bad news that there was something wrong

with my blood, but they waited another month to be sure of what it was. In

contrast, I was not dragged to the hospital. LOL I have never heard of anyone

going to the doctor, saying they thought they had leukemia.

> >

> > I ran for the hills and refused to let them treat me, instead going to a

board certified oncologist. I should have had my head examined, I stayed there

4 years too long, listening to their lies before going to the real experts. I

am happy for you that you have such outstanding doctors at the research center

where you go for treatment. May I ask what you are on currently and how much,

and do you suffer side effects? You probably told me that in the past, but I

have forgotten.

> >

> > I once met a young musician at a keyboard convention where there were about

100 people playing different keyboard instruments for different companies. I

asked if he was from Liverpool and he said yes and wanted to know if I thought

he looked like the Beatles. I said no, it was his accent that gave him away,

and he was shocked. Did they or did they not at one time make colored opaque

glass there? I know they were heavily into shipbuilding and probably still are.

> > My first trip there was a flight from Dublin to Liverpool, very short trip.

We always made the most of every trip to see everything we could. I always said

we could sleep when we returned home. Now we sit and watch TV and when we see

something we actually witnessed, we look at each other and say, " remember that? "

Another remembered pleasure.

> >

> > Continue making us all laugh with your episodal anecdotes.

> >

> > Carpe Diem,

> > Lottie Duthu

> >

> >