Re: Latest QT-PCR results

[Guest guest]

Yes, my reason for being off Gleevec is because that is the only way we could

maintain my blood counts, Good question about CML being at bay or asleep. The

Dr. seems to think that my body is maintaining the counts but we really don't

know. We started by testing monthly to be sure I would not begin a blast phase

and we have now extended the tests to six months. Right now the count increase

is maintaining about a .001 increase so the math says that I will be back on

something in about 3 years. My history is pretty much covered below. I did

have some pill the month I was preparing for Gleevec. My ONC wanted my WBC to

be below 40,000 when I started Gleevec.

H.

dxd 2/2003

400mg Gleevec 3/2003

Undetectable 11/03

RT-PCR negative 11/04

QT-PCR .003 11/05

RBC 8.

Gleevec Vacation 11/06-6/07

Iron infusion 11/06

Transfusions 12/06-5/07

QT-PCR .7

Gleevec 1/08 -5/08

Procrit 8/08-11/08

Gleevec Vacation 7/08-Pressent

QT-PCR .03 4/09

QT-PCR .015 6/09

QT-PCR .021 9/09

QT-PCR .028 1/10

QT-PCR .01+ 4/10

QT-PCR .0468 10/10

> >

> > I received the results of my latest RT-PCR. Great results overall. I did

increase to .0468% but we are working with a threshold of 1% before I return to

any medication. I will do it all over in Feb. 2011. Next month is my 2 ½ year

university starting this vacation from Gleevec.

> >

> > H.

>

> ______________________________

>

> Amazingly good results .

> Just out of curiosity, were you even on Interferon? actually I just erased

your cml history which would have probably told me.

>

> Seems like you are one of the people who has a functional cure on Gleevec????

Your body alone is now keeping the cml cells at bay, or they are sound asleep

(all quiescent).

>

> I assume that you went off drug because of side effect issues? maybe low blood

counts. Maybe you could recap your whole history for us.

>

> C.

>