tasigna help or suggestions!!!!!

[Guest guest]

Hey all-

I might be switching to Tasigna due to fluid overload and reoccurring PE

in which I had a thorencentsis on Friday. They removed 1.3 Liters and I can

still fill that I have some more on board. Having a echo today. Dr. Mauro

in OSHU (per email) feels it might be time for a drug holiday and switch. I

an nervous about it as I have been PCRU on Spyrcel for 2.5 years. Athough I

have had numerous side effects with Gleevec and Spyrcel including ALL of

the non-life threatening ones. Fatigue and bone/muscle pain being the most

annoying ones. De pigmentation of my skin and hair, SOB, edema, nausea, and

such.....

What are some side effects that people suffer with on Tasigna? I have read

certain things about " fasting " and hair loss? Can anyone provide me with

maybe your experience with it. I am hoping that my PCR will remain

undetectable....Glad we have choices but makes me nervous to have to move onto

the

next drug....

I don't know why I can just reduce the drug dose since I have had such a

good response???

Thanks in advance for any suggestions!

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since