Re: Kareem Abdul-Jabbar is 100% Cancer Free ?????

[Guest guest]

Didn't think any of us are ever cancer free?  I am PCRU but if I stop the

Gleevec it would cause my PCR to go back up.  We will always have CML just can

get PCRU where it's " not detected " on a blood test. I AM REALLY CONFUSED

NOW!!!!!!!!

                                   Dee

________________________________

From: Gilles <cousineaugilles@...>

Sent: Tue, February 8, 2011 10:31:49 AM

Subject: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

Someone totally doesn't understand cml!! Wrong info!

Sent via BlackBerry by AT & T

[ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

But aren't we considered cancer free since no bad cells r detected just like

one who has beat it with chemo treatment??

Sent via BlackBerry by AT & T

[ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

Karem Abdul-Jabbar was diagnosed in December 2008. After being PCRU (probably

February 2011), he must wait 2 years before he try to stop the medication

according to the STIM trial.

According to the news, he seem to be in good shape (very few side effects)

because he also announced that he's starting a new career as a film maker .

Congratulations Karem!

Link: http://www.facebook.com/KareemCML#!/KareemCML?v=wall

>

> But aren't we considered cancer free since no bad cells r detected just like

one who has beat it with chemo treatment??

> Sent via BlackBerry by AT & T

>

> [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

>

>  

> See

> http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

>

> For more information, see

> http://www.cmleukemia.com/kareem-abdul-jabar.html

>

> My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

> take his medication.

>

>

>

>

>

>

>

>

[Guest guest]

 By saying 100% cancer-free, he means he is in remission, testing zero on the

bone marrow test but still on Gleevec.  I am pretty sure he is not off

medication.

________________________________

From: " onthewtr@... " <onthewtr@...>

Sent: Tue, February 8, 2011 8:41:29 AM

Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

But aren't we considered cancer free since no bad cells r detected just like one

who has beat it with chemo treatment??

Sent via BlackBerry by AT & T

[ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

If you are PCRU while still on drugs, I think it's called chemical remission but

it can't be counted as cancer free as you're reliant on the drugs.

There's a trial going on in France where people who have been PCRU on drugs for

at least 4 years are given the opportunity to come off drugs but are closely

monitored. If the CML comes back,they go back onto Glivec or whatever.

Currently, some people have managed to remain in remission for 2 years, drug

free. So that's good news.

Shelagh

>

>  By saying 100% cancer-free, he means he is in remission, testing zero on the

> bone marrow test but still on Gleevec.  I am pretty sure he is not off

> medication.

>

>

>

>

> ________________________________

> From: " onthewtr@... " <onthewtr@...>

>

> Sent: Tue, February 8, 2011 8:41:29 AM

> Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

>

>  

> But aren't we considered cancer free since no bad cells r detected just like

one

> who has beat it with chemo treatment??

>

> Sent via BlackBerry by AT & T

>

> [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

>

>  

> See

> http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

>

> For more information, see

> http://www.cmleukemia.com/kareem-abdul-jabar.html

>

> My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

> take his medication.

>

>

>

>

>

>

>

>

[Guest guest]

My doctor mentioned that study when I saw him yesterday. He said he believes

that we may achieve true remission within a few years.

On Tue, Feb 8, 2011 at 11:52 AM, Shelagh <shelaghnugent@...>wrote:

>

>

> If you are PCRU while still on drugs, I think it's called chemical

> remission but it can't be counted as cancer free as you're reliant on the

> drugs.

>

> There's a trial going on in France where people who have been PCRU on drugs

> for at least 4 years are given the opportunity to come off drugs but are

> closely monitored. If the CML comes back,they go back onto Glivec or

> whatever. Currently, some people have managed to remain in remission for 2

> years, drug free. So that's good news.

>

> Shelagh

>

>

> >

> > Â By saying 100% cancer-free, he means he is in remission, testing zero

> on the

> > bone marrow test but still on Gleevec. I am pretty sure he is not off

> > medication.

> >

> >

> >

> >

> > ________________________________

> > From: " onthewtr@... " <onthewtr@...>

>

> >

> > Sent: Tue, February 8, 2011 8:41:29 AM

> > Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

> >

> > Â

> > But aren't we considered cancer free since no bad cells r detected just

> like one

> > who has beat it with chemo treatment??

> >

> > Sent via BlackBerry by AT & T

> >

> > [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

> >

> > Â

> > See

> >

> http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

> >

> > For more information, see

> > http://www.cmleukemia.com/kareem-abdul-jabar.html

> >

> > My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't

> stop to

> > take his medication.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I think someone is confused ...There is not a cure YET!!!!!

Eva

From: Dee

Sent: Tuesday, February 08, 2011 11:24 AM

Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

Didn't think any of us are ever cancer free? I am PCRU but if I stop the

Gleevec it would cause my PCR to go back up. We will always have CML just can

get PCRU where it's " not detected " on a blood test. I AM REALLY CONFUSED

NOW!!!!!!!!

Dee

________________________________

From: Gilles <cousineaugilles@...>

Sent: Tue, February 8, 2011 10:31:49 AM

Subject: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

Come on " Cap "

I looked at the tweet- he says 100% cancer free. But the banner says- cured!(

they are both wrong.  He must be taking different lab tests than the rest of

us.  I'm PCRU and have been for a couple of years and my doc still says "

undetectable " not cancer free.  No test sensitive enough to detect all

leukemia cells.  He may be cured but there is no test to prove it.

 

I respect him as an amazing athlete, but I think it is irresponsible to send

out the message that he is cured.  Isn't that what O'Neal did a few years

back....and then the CML returned.  We are lucky to be alive and for some of

us- the cancer may actually be gone( a couple of studies where people are

stopping the meds). 

 

Hopefully, someone in the medical community will speak up and correct the

misunderstanding.  But if he is cured....I want to take what he's taking....oh

wait I am- we both take Gleevec. 

 

Anyway- I'm lurking at work so I should get back to work. I'm thankful for

every day I'm still here.  i believe there will be a cure but if there was one-

Lottie, Zavie, Tracey from Canada, Bobby, Skip or another veteran would have

told us long before Kareem.

From: Dee <dallen145@...>

Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

Date: Tuesday, February 8, 2011, 8:24 AM

 

Didn't think any of us are ever cancer free?  I am PCRU but if I stop the

Gleevec it would cause my PCR to go back up.  We will always have CML just can

get PCRU where it's " not detected " on a blood test. I AM REALLY CONFUSED

NOW!!!!!!!!

                                   Dee

________________________________

From: Gilles <cousineaugilles@...>

Sent: Tue, February 8, 2011 10:31:49 AM

Subject: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.

[Guest guest]

If there is a cure including BMT then I must have missed the boat..

Is 33 years a cure... no I just was to lazy to get too sick...

I took an old drug (Myleran)  that allowed me to turn into an old man.

just lucky I guess.. Hummmmm

SkipD

________________________________

From: china neal <chimera46@...>

Sent: Tue, February 8, 2011 9:11:34 PM

Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

Come on " Cap "

I looked at the tweet- he says 100% cancer free. But the banner says- cured!(

they are both wrong.  He must be taking different lab tests than the rest of

us.  I'm PCRU and have been for a couple of years and my doc still says "

undetectable " not cancer free.  No test sensitive enough to detect all

leukemia

cells.  He may be cured but there is no test to prove it.

 

I respect him as an amazing athlete, but I think it is irresponsible to send

out

the message that he is cured.  Isn't that what O'Neal did a few years

back....and then the CML returned.  We are lucky to be alive and for some of

us-

the cancer may actually be gone( a couple of studies where people are stopping

the meds). 

 

Hopefully, someone in the medical community will speak up and correct the

misunderstanding.  But if he is cured....I want to take what he's taking....oh

wait I am- we both take Gleevec. 

 

Anyway- I'm lurking at work so I should get back to work. I'm thankful for

every

day I'm still here.  i believe there will be a cure but if there was one-

Lottie, Zavie, Tracey from Canada, Bobby, Skip or another veteran would have

told us long before Kareem.

From: Dee <dallen145@...>

Subject: Re: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

Date: Tuesday, February 8, 2011, 8:24 AM

 

Didn't think any of us are ever cancer free?  I am PCRU but if I stop the

Gleevec it would cause my PCR to go back up.  We will always have CML just can

get PCRU where it's " not detected " on a blood test. I AM REALLY CONFUSED

NOW!!!!!!!!

                                   Dee

________________________________

From: Gilles <cousineaugilles@...>

Sent: Tue, February 8, 2011 10:31:49 AM

Subject: [ ] Kareem Abdul-Jabbar is 100% Cancer Free ?????

 

See

http://www.starzlife.com/20110204/kareem-abdul-jabbar-is-100-cancer-free/

For more information, see

http://www.cmleukemia.com/kareem-abdul-jabar.html

My opinion: I think that Kareem Abdul-Jabbar is now PCRU but he don't stop to

take his medication.