Iron deficiency

December 10, 1999

Hi ,

We read all the information too. However, Janene was borderline anaemic and her

new doctor has given her a vitamin/mineral supplement (in large doses) with iron

and Janene is definitely starting to feel better. If you do take iron, make sure

you take it at least two hours, preferably more, away from the antibiotic.

Chris.

Ethel, Dr. Chiu - someone -.............please, I need some information

about iron deficiency, and iron supplements while on AP. I understand chronic

disease anemia, so I'm not as worried about my slightly low iron count as my

doctor is. What I seem to remember is that one shouldn't supplement iron while

on the AP. Is this fact or just something I dreamed up? I'd like to have some

information about this to give to my doctor my next visit.

Any thing you can tell me will be useful. Thanks in advance.

Be well,

December 10, 1999

> Sala wrote:

>

> Ethel, Dr. Chiu - someone -.............please, I need some

> information about iron deficiency, and iron supplements while on AP. I

> understand chronic disease anemia, so I'm not as worried about my

> slightly low iron count as my doctor is. What I seem to remember is

> that one shouldn't supplement iron while on the AP. Is this fact or

> just something I dreamed up? I'd like to have some information about

> this to give to my doctor my next visit.

> Any thing you can tell me will be useful. Thanks in advance.

>

> Be well,

, if the anemia is due to the disease, then iron supplements will

not help. This should eventually correct itself as you progress on the

therapy to remission.

Dr. recommends veggie juicing that includes beets, beet tops and

spinach.

Ethel

April 24, 2000

thanks john!

i will try that.

mary margaret

October 24, 2001

,

I'd just decided on Floradix, heard great reports about it, and only one

rave about s, (much cheaper) and now you're swaying me back again. LOL

Kate

At 09:02 25/10/2001 +1300, you wrote:

>However, when I'm pregnant and my iron looked a little low, there is a

>really good iron supplement I took it was made by 's.

November 27, 2003

Yes, I do know anemia can cause the problems you listed.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

( ) iron deficiency

>

> Has any of your children have iron deficiency as a result of the meds

....?

> Is anyone also familiar with the claim that iron deficiency causes

> sleepiness, weakness, iritation , and difficulty with attention ??

> F

>

November 27, 2003

I actually have a rare blood disorder - a type of anemia. So, yes to all those

things. I know exactly when my iron levels drop, because I am more " tired " even

if I've just gotten up from more than 8 hours of sleep, I'm more irritable, and

I have trouble paying attention. And I'm NT!! lol.

laura

mom to iel, 6 yrs old son with AS

Uplift - The Beauty of Imagination in Healing <uplift@...> wrote:

Has any of your children have iron deficiency as a result of the meds ...?

Is anyone also familiar with the claim that iron deficiency causes

sleepiness, weakness, iritation , and difficulty with attention ??

F

November 28, 2003

Thank you for sharing, .

we are awaiting the results of teh retest, and if it comes out low again, he

will get supplements.

F

-- Re: ( ) iron deficiency

I actually have a rare blood disorder - a type of anemia. So, yes to all

those things. I know exactly when my iron levels drop, because I am more

tired " even if I've just gotten up from more than 8 hours of sleep, I'm more

irritable, and I have trouble paying attention. And I'm NT!! lol.

laura

mom to iel, 6 yrs old son with AS

Uplift - The Beauty of Imagination in Healing <uplift@...> wrote:

Has any of your children have iron deficiency as a result of the meds ...?

Is anyone also familiar with the claim that iron deficiency causes

sleepiness, weakness, iritation , and difficulty with attention ??

F

April 12, 2006

Are there many people out there that are anemic? If so, what are you doing

about it? My doctor has me on iron supplements, but the iron count is not

moving up too fast.

Thanks for any input!

Holley Guffey

MGB 12/20/00

April 12, 2006

I recommend seeing a hematologist. Depending on how low you are iron

infusions can make a HUGE difference and QUICKLY. Iron supplements take

longer, sometimes 3 months or so, and if you aren't absorbing iron, you

continue to get worse and feel like CRAP...but alas, S is the REAL

iron maiden and perhaps she will weigh in on this subject. She knows ALL the

tricks...

_____

From: [mailto: ] On

Behalf Of luvteaching@...

Sent: Wednesday, April 12, 2006 5:17 PM

Subject: Re: iron deficiency

Are there many people out there that are anemic? If so, what are you doing

about it? My doctor has me on iron supplements, but the iron count is not

moving up too fast.

Thanks for any input!

Holley Guffey

MGB 12/20/00

April 12, 2006

Hi: I am almost 6 years out and for the last year I have been on iron

injections and b12 , weekly for about a month, then When my level wasnt going

up, I had to start with weekly iron infusions for about 6 months, then went to

twice a month and now, only have to take iron supplements. I will be rechecked

in 6 month. My level at the lowest was 7 and now I am at 96! The moral of the

story is: TAKE YOUR VITAMINS, FAITHFULLY! iT WAS not FUN BEING SO TERRIBLY

ANEMIC! I was very very ill! I still will continue to get b12 shots for my

lifetime, but hopefully not have to go back to the iron infusions. NOt fun!! I

mostly got severely ill in the past 2 years. Once that level goes down, it is

very stubborn and difficult to get back up. Good luck to you. You might want to

check with your PCP to see about injections. Gloria from colorado

-------------- Original message ----------------------

From: Shook <vshook99@...>

> I am taking two chromagen forte(actually the generic of this) twice a day

along

> with 1 b12 shot every two weeks. My reading was at 7.1 and is now 9.4 after

> doing this for two months. Taking with orange juice and eating foods high in

> iron. Let me know how you are doing. I also started to retain fluid when I

> started taking the supplements. Need to get the iron up though it is so hard

on

> the body when it is low. Good Luck.

>

> 1/19/04

>

> luvteaching@... wrote: Are there many people out there that are anemic?

> If so, what are you doing

> about it? My doctor has me on iron supplements, but the iron count is not

> moving up too fast.

>

> Thanks for any input!

> Holley Guffey

> MGB 12/20/00

>

April 13, 2006

Hi Val

How is it going now? I hope the iron is better and stays that way. I have not

had any trouble except for my liver enzymes and they are high but doctors cant

figure out why. I am down 115 lbs now. Rick is here for the outage next

week. We are moving to Alabama bought 10 acres. We put our house up for sale

and I am waiting for it to sale. New changes every day right? Talk to you

later

sue

>

> From: Shook <vshook99@...>

> Date: 2006/04/12 Wed PM 07:22:12 EDT

>

> Subject: Re: iron deficiency

>

April 13, 2006

I was pretty anemic last year as well. I started taking iron supplements - at

first two tablets per day (65mg of elemental iron; 325mg ferrous sulfate). That

didn't really do anything at all. Then I bumped it to four tablets and then to

eight per day. I maintained eight per day for approximately 3 months. My iron

levels are back to normal and I've dropped the supplement down to two/three per

day. HOWEVER, my liver functions also were elevated this last time too so I

believe the 8 tablets per day was too much. My liver functions are now normal

as is my iron level. I'm 2 years out so I believe I'm doing pretty well. I

would still like to lose another 20 pounds but am only exercising three times a

week right now (1 hour of running).

1/12/04 - Rancho

246.5/160

Shook <vshook99@...> wrote:

I am taking two chromagen forte(actually the generic of this) twice a day

along with 1 b12 shot every two weeks. My reading was at 7.1 and is now 9.4

after doing this for two months. Taking with orange juice and eating foods high

in iron. Let me know how you are doing. I also started to retain fluid when I

started taking the supplements. Need to get the iron up though it is so hard on

the body when it is low. Good Luck.

1/19/04

luvteaching@... wrote: Are there many people out there that are anemic?

If so, what are you doing

about it? My doctor has me on iron supplements, but the iron count is not

moving up too fast.

Thanks for any input!

Holley Guffey

MGB 12/20/00

April 14, 2006

B <~~~~~ anemic I am tired all the time but I do not take iron

supplements like I should. When I did I got deathly ill like I was being

poisoned

January 6, 2009

Hi Limin...

I've been on this forum for a few months but haven't posted before

now.

Use caution with iron supplements as iron feeds pathogens.

Especially bacteria. If you feel you want to go ahead and supplement

with an iron booster you might try Floradix. It's available at

nearly all health food stores or online. I've used it for my family

as we are prone to aenemia and it has helped us tremendously in the

past. Traditional iron supplement can darken a child's teeth and I'm

sorry I've forgotten at what age that is no longer a worry. Floradix

is a liquid and is ideal for children. It lists children's dosages

on the box/bottle.

Take care,

Suzan

>

> In preparation for staring Artemisia to treat Babesia, I run some

lab tests to understand my son's iron status. He has iron

deficiency. His level of ferritin (iron storage) is really low (10

v.s. the reference range 22 - 322). Though he does not seem to have

developed anemia, as his amount of hemoglobin in the blood is within

the reference range, so are TIBC, UIBC, serum iron, iron saturation

rate in the blood, and serum transferrin. He takes large amount of

green leafy vegetables, but dislike other iron-rich food such red

meats and egg. I think I will still need to supplement him with

iron to boost iron storage before introducing Artemisia. Do you

recommend a particular brand of iron supplement? I hope to find one

that is bio-available and highly absorbable. Thank you.

>

> Limin

>

January 6, 2009

Thank you, Suzan.

My son has gut bug issue. We had been carefully avoiding any supplements

that contain iron in the past, for the reason you mentioned below. Dr.

Schaller comments that sufficient iron storage can help artemisia

treatment to be effective. I want to give this method a try. We had used

other Floradix mineral supplements in the past and liked them. Thank you

for the reminder.

I also find another liquid iron supplement called Auxima FERA made by a

Canadian company Inno-Vite. It is a liquid organic protein-bound iron

supplement extracted from fruits. Does anyone know the differences between

protein-bound iron and non protein-bound iron supplements? Thank you.

Limin

--------------------------------------------------

From: " yunaraven22 " <mgyer@...>

Sent: Tuesday, January 06, 2009 12:45

< >

Subject: [ ] Re: Iron deficiency

> Hi Limin...

>

> I've been on this forum for a few months but haven't posted before

> now.

>

> Use caution with iron supplements as iron feeds pathogens.

> Especially bacteria. If you feel you want to go ahead and supplement

> with an iron booster you might try Floradix. It's available at

> nearly all health food stores or online. I've used it for my family

> as we are prone to aenemia and it has helped us tremendously in the

> past. Traditional iron supplement can darken a child's teeth and I'm

> sorry I've forgotten at what age that is no longer a worry. Floradix

> is a liquid and is ideal for children. It lists children's dosages

> on the box/bottle.

>

> Take care,

> Suzan

>

January 7, 2009

Hi,

To prevent the iron pills from feeding the bacteria, you can take

Lactoferrin pills.

Lactoferrin absorbs great amounts of iron and delivers it specifically only to

your own cells so that the bugs can't get it.

---from purple

March 25, 2010

I've felt overall more run down from the onset of samters but have not noticed an increase in fatigue since starting my aspirin regimen. Bianca From: <rebeebit@...>Subject: Iron deficiencysamters Date: Thursday, March 25, 2010, 6:13 PM

Has anyone had a problem with iron deficiency since going on aspirin? I've been really run down lately, and am wondering if I'm a little iron deficient. I did a little research, and saw that gastrointestinal blood loss from long-term use of aspirin and other NSAIDs can cause iron deficiency. I don't think I have GI blood loss--that seems like something you would know was happening to you. Any ideas would be great!

Cheers,

Becca

March 25, 2010

> Has anyone had a problem with iron deficiency since going on aspirin? I've

> been really run down lately, and am wondering if I'm a little iron deficient.

> I did a little research, and saw that gastrointestinal blood loss from

> long-term use of aspirin and other NSAIDs can cause iron deficiency. I don't

> think I have GI blood loss--that seems like something you would know was

> happening to you. Any ideas would be great!

>

Ongoing blood loss will certainly result in iron deficiency anemia.

It is not clear from what you said that you have either blood loss or

anemia. Blood loss is not always obvious.

It's a pretty common test for anemia.

If you are anemic, then I think it's important the cause be determined,

and if it is internal bleeding, then that definitely needs analysis as to

cause.

You can take ferrous gluconate for the anemia, if that's what you have,

but the cause still needs to be resolved.

March 26, 2010

When did you get desensitized, Bianca? Mine was done at the beginning of

February.

Becca

>

> From: <rebeebit@...>

> Subject: Iron deficiency

> samters

> Date: Thursday, March 25, 2010, 6:13 PM

>

> Â

>

> Has anyone had a problem with iron deficiency since going on aspirin?

I've been really run down lately, and am wondering if I'm a little iron

deficient. I did a little research, and saw that gastrointestinal blood loss

from long-term use of aspirin and other NSAIDs can cause iron deficiency. I

don't think I have GI blood loss--that seems like something you would know was

happening to you. Any ideas would be great!

>

> Cheers,

>

> Becca

>

March 26, 2010

This article shows that there could be a link between daily aspirin therapy and

iron deficient anemia, but the data are inconclusive. In the meantime, I will

continue to take my multivitamin and up my intake of natural sources of iron.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1313502/pdf/10756616.pdf

>

> > Has anyone had a problem with iron deficiency since going on aspirin? I've

> > been really run down lately, and am wondering if I'm a little iron

deficient.

> > I did a little research, and saw that gastrointestinal blood loss from

> > long-term use of aspirin and other NSAIDs can cause iron deficiency. I don't

> > think I have GI blood loss--that seems like something you would know was

> > happening to you. Any ideas would be great!

> >

>

> Ongoing blood loss will certainly result in iron deficiency anemia.

> It is not clear from what you said that you have either blood loss or

> anemia. Blood loss is not always obvious.

>

> It's a pretty common test for anemia.

>

> If you are anemic, then I think it's important the cause be determined,

> and if it is internal bleeding, then that definitely needs analysis as to

> cause.

>

> You can take ferrous gluconate for the anemia, if that's what you have,

> but the cause still needs to be resolved.

>

March 27, 2010

,

as Ken recommended, testing blood in the stool is easy, inexpensive and very

useful to catch occult blood loss from the GI tract - GI blood loss often is

occult (ie in small amounts).

Of course, there can be many reasons to iron deficiency.

> >

> > > Has anyone had a problem with iron deficiency since going on aspirin? I've

> > > been really run down lately, and am wondering if I'm a little iron

deficient.

> > > I did a little research, and saw that gastrointestinal blood loss from

> > > long-term use of aspirin and other NSAIDs can cause iron deficiency. I

don't

> > > think I have GI blood loss--that seems like something you would know was

> > > happening to you. Any ideas would be great!

> > >

> >

> > Ongoing blood loss will certainly result in iron deficiency anemia.

> > It is not clear from what you said that you have either blood loss or

> > anemia. Blood loss is not always obvious.

> >

> > It's a pretty common test for anemia.

> >

> > If you are anemic, then I think it's important the cause be determined,

> > and if it is internal bleeding, then that definitely needs analysis as to

> > cause.

> >

> > You can take ferrous gluconate for the anemia, if that's what you have,

> > but the cause still needs to be resolved.

> >

>

February 8, 2011

I'm curious to know if anyone is experiencing otherwise unexplained iron

loss. I'm a 66 year old male with no known bleeding and have been

experiencing iron deficiency anemia since beginning Gleevec in 2003. It's

even been noticed on my BMB.

Troxel

dx 2/2003 (eight years this Thursday)

February 9, 2011

Yes, I have Iron Deficient Anemia. That is the reason I have been on Gleevec

Vacation for two and a half years. I had transfusions every 3 weeks for six

months, an iron infusion, iron supplements. My RBC has remained at about 11.1

with a daily vitamin supplement since I have been on Vacation. My family has a

history of anemia so I think mine only became worse with Gleevec. I have no

blood history to prove that statement but they do. My last test showed that the

CML was still there but low enough to continue on, my threshhold is 1.0 before

we seriously consider returning to medication. I am experiencing a QOL that I

haven't had since I began Gleevec. I just took my blood test today and will

have the results in two weeks. My white blood count was only 5.6 so that gives

me great hope for good results. I did read somewhere that the ONCs treating CML

preferred that the RBC remained between 11-12.

H.

dxd 2/2003

400mg Gleevec 3/2003

Undetectable 11/03

RT-PCR negative 11/04

QT-PCR .003 11/05

RBC 8.

Gleevec Vacation 11/06-6/07

Iron infusion 11/06

Transfusions 12/06-5/07

QT-PCR .7

Gleevec 1/08 -5/08

Procrit 8/08-11/08

Gleevec Vacation 7/08-Pressent

QT-PCR .03 4/09

QT-PCR .015 6/09

QT-PCR .021 9/09

QT-PCR .028 1/10

QT-PCR .01+ 4/10

QT-PCR .0468 10/10

>

> I'm curious to know if anyone is experiencing otherwise unexplained iron

> loss. I'm a 66 year old male with no known bleeding and have been

> experiencing iron deficiency anemia since beginning Gleevec in 2003. It's

> even been noticed on my BMB.

>

> Troxel

> dx 2/2003 (eight years this Thursday)

>

February 9, 2011

And for those on iron pills, this was interesting to me.Â I took 3 pillsÂ Â a

day, every day, but eventually I had to have transfusions due to low hgb.Â

After 2 yrs of that, I either read or someone told me, do NOTÂ take all 3 iron

pills at once.Â Take them at least 2 hrs apart, and it has worked, I have not

had a transfusionÂ in over 2 years. Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: <dickie_64012@...>

Subject: [ ] Re: Iron deficiency

Date: Wednesday, February 9, 2011, 12:22 AM

Â