Persistence

[Guest guest]

Dear Virginia,

Thank you so much for sharing that with us. It just shows that with persistence

some things either go away or get better than they were before. I hope they

don't take me off Ariad again because of low platelets like they did with SKI

606. There is some good news out about SKI now, too. If Ariad does not work,

it will be years before the SKI is approved by FDA, so either way, it is a crap

shoot for me.

I had the worst case of hives with SKI, and even with the prednisone for months,

it hung in there for a long time. Now the ring worms are coming back and it has

to be the Ariad, because they went away when I was off. Your history is a case

in point, that with patience and resolve a lot of things can be overcome.

You are so right about INF, the rest is small potatoes. May I ask how you get

your Procrit? I was given it by & , but then my counts went up a

point or two, to where I didn't qualify for it. When I was diagnosed with acute

renal failure, I was told I could get the Gleevec through Medicare, but they

said I didn't need it. I felt so much better on Procrit than getting the

transfusions, but I haven't had it in months. I take B 12 and D 3 as well.

Does anyone remember getting cod liver oil from a big brown bottle shaped like a

fish? I wish I had one of those bottles today. I love colored glass, among

another things I " collect " . Jimmy calls it " junk " . I gave some pieces to my

grandson's wife after they married because she collects colored glass pieces.

Now they are getting a divorce and she has my glass pieces. Well I can't ask

for them back, because they were a gift, but if she had any hudzpah, she would

return them. I gave him an antique piece (not colored glass) and reminded him

of it and he asked for it and she gave it to him, so now I don't feel so bad

about her lack of hudzpah. LOL.

I have anemia, too and that is something we all need to worry about. I wash my

hands often, even when I get up during the night to check my plumbing. You are

getting around so well, working and raising money for LLS and I think that is

great, that is really good hudzpah. LOL May we all live to be in the Guiness

Book of Records, along with Skip. How do you nominate someone to be in their

book, I am really serious about getting him in there. Well I looked it up and

they do not have awards for cancer patients, because there are too many kinds of

cancer is their reasoning. Well he is in our book and our hearts. Go Skip, and

you, too Virginia.

Stay well and keep running,

Carpe Diem,

Lottie Duthu