Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 > Hi, > I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD. > As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID. > We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time. > I get very confused as my amonnia levels are high so forgive me > for rambling. > Just wanted to say HELLO, and PEACE. > > > > > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi Dave , I have ammonia problems also . The mental function wobbles from day to day depending on the levels ,lo Are you on lactulose to reduce the ammonia ? ME AGAIN Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Oops forgot to add that if your having issues with your ammonia already then it sounds like your disease is advanced so the viral load shouldnt matter at this point . What more inportant to go on is the biopsy . ESLD= end stage liver disease , so your doc is making a mistake in not treating you now . ME AGAIN Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 >Yea I am on the Lactulose, I hate it but used to it now. THX > Hi Dave , I have ammonia problems also . The mental function wobbles from day to day depending on the levels ,lo Are you on lactulose to reduce the ammonia ? > ME AGAIN > > > Hi, > I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD. > As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID. > We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time. > I get very confused as my amonnia levels are high so forgive me > for rambling. > Just wanted to say HELLO, and PEACE. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I am glad replied, I am too new to understand all of what is going on, but I do wonder if your doctor feels you can't clear. What ARE threy going to do for you, did they say? No wonder you feel angry, I think we all are when initially diagnosed, and then that emotion sure keeps popping up.. Many Prayers, SheenaDave <d_k45050@...> wrote: > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > > > > > > > ---------------------------------> Stay in the know. Pulse on the new .com. Check it out.> Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002@...> wrote: I am glad replied, I am too new to understand all of what is going on, but I do wonder if your doctor feels you can't clear. What ARE threy going to do for you, did they say? No wonder you feel angry, I think we all are when initially diagnosed, and then that emotion sure keeps popping up.. Many Prayers, SheenaDave <d_k45050@...> wrote: > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > > > > > > > ---------------------------------> Stay in the know. Pulse on the new .com. Check it out.> Stay in the know. Pulse on the new .com. Check it out. Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Sharon your doctor was only partial correct . There has been one clinical trial failure , but as of yet the others are doing just fine . Re: Re: ME AGAIN I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: I am glad replied, I am too new to understand all of what is going on, but I do wonder if your doctor feels you can't clear. What ARE threy going to do for you, did they say? No wonder you feel angry, I think we all are when initially diagnosed, and then that emotion sure keeps popping up.. Many Prayers, SheenaDave <d_k45050 > wrote: > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > > > > > > > ---------------------------------> Stay in the know. Pulse on the new .com. Check it out.> Stay in the know. Pulse on the new .com. Check it out. Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Sharon, I think that the protease inhibitors will be released in 08,, LIZ?? am I right? Dont give up,, what you CAN do is to make sure you eat VERY healthily, get enough protein unless you have trouble with ammonia like Liz,, get enough FILTERED water,, Milk Thistle, Schizzandra, etc, NO alcohol,, watch the amount of tylenol or products containing tylenol you take,, etc,, Sharon Crosby <blubirdxoxo@...> wrote: I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: I am glad replied, I am too new to understand all of what is going on, but I do wonder if your doctor feels you can't clear. What ARE threy going to do for you, did they say? No wonder you feel angry, I think we all are when initially diagnosed, and then that emotion sure keeps popping up.. Many Prayers, SheenaDave <d_k45050 > wrote: > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > > > > > > > ---------------------------------> Stay in the know. Pulse on the new .com. Check it out.> Stay in the know. Pulse on the new .com. Check it out. Get your own web address for just $1.99/1st yr. We'll help. Small Business. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 In a message dated 10/19/2006 10:01:33 AM Central Daylight Time, d_k45050@... writes: ESLD. OK call me stupid but what is this, ? Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Sounds like you need to get a second opinion , when hep c gets to a point where the liver can no longer work with proteins and you get high blood ammonia because of it then treatment is definately necessary . Unless you the patient are not ready to treat . I know what ya mean about hating it but getting used to it ,ick ME AGAIN> > > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 > >Yea I am on the Lactulose, I hate it but used to it now. > THX > > Hi Dave , I have ammonia problems also . The mental function > wobbles from day to day depending on the levels ,lo Are you on > lactulose to reduce the ammonia ? > > ME AGAIN > > > > > > Hi, > > I am the one that introduced myself and three days later I > > had a few responces. I'm sorry If I seemed angry, as there are a > lot > > of very personal things going on with my life as well as living > with > > HCV and ESLD. > > As I previously stated I am being treated at the VA in > Cincinnati, > > and was ready to start treatment with my Hep C Specialist in > March, > > and had to quit my job, snd now trying to get SSID. > > We my Hep c specialist was going to start treatment my > viralcount > > was very low only 24,000, and when they checked it at the VA > they said > > it was really low like 6,000, so they aren't going to treat at > this > > time. > > I get very confused as my amonnia levels are high so forgive me > > for rambling. > > Just wanted to say HELLO, and PEACE. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 That's the PROJECTED time of release. This doctor, a hepatoligist and gastro with a medical pedigree tells me that we are at least 5 years yet from a successful med, protease or otherwise. I don't know who to believe, he is up to date on the research, doesn't do studies, and prefers not to treat unless you are in danger. It seems to me that having the disease is being "in danger" with the treat of cancer and all the other side problems that can arise from the presence of the Hepatitis C virus. I'm more confused than I was and am not going to change to THIS doctor simply because of his feelings about treatment. He also says that with the slight damage I have, he would choose not to do blood work but once a year. I was very disheartened when I left him. I will stay with the doc who will not treat symptoms or sides, but at least will treat the disease. I haven't drank alcohol for some 20 years, quit smoking about 12 or so years ago and drink water, bottled, by the gallon. I am lucky in that it seems the most annoying "thing" I deal with is the fatigue and low energy again.... SharonJackie on <redjaxjm@...> wrote: Sharon, I think that the protease inhibitors will be released in 08,, LIZ?? am I right? Dont give up,, what you CAN do is to make sure you eat VERY healthily, get enough protein unless you have trouble with ammonia like Liz,, get enough FILTERED water,, Milk Thistle, Schizzandra, etc, NO alcohol,, watch the amount of tylenol or products containing tylenol you take,, etc,, Sharon Crosby <blubirdxoxo@...> wrote: I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 > > End Stage Liver Disease > > In a message dated 10/19/2006 10:01:33 AM Central Daylight Time, > d_k45050@... writes: > > ESLD. > > > > OK call me stupid but what is this, ? Geri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I got the general idea that he doesn't put much faith in the papers that are written about hep research. I got the idea that I should just grin and bear what I have. He spent a lot of time trying to eduicate me to his point. I bought some of it, in that medical papers are, at best, suspect because they are a product of funding. I've pretty much decided to do nothing, stay with the doc I have and trust in my PCP to do the proper tests. I've gone h=back to the old pcp, who seems to have taken some classes in HEPC and talks much more knowledgable about it now, which is a sVERY bright spot on my horizon right now. Sharonelizabethnv1 <elizabethnv1@...> wrote: Sharon your doctor was only partial correct . There has been one clinical trial failure , but as of yet the others are doing just fine . Re: Re: ME AGAIN I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: I am glad replied, I am too new to understand all of what is going on, but I do wonder if your doctor feels you can't clear. What ARE threy going to do for you, did they say? No wonder you feel angry, I think we all are when initially diagnosed, and then that emotion sure keeps popping up.. Many Prayers, SheenaDave <d_k45050 > wrote: > Hi,> I am the one that introduced myself and three days later I > had a few responces. I'm sorry If I seemed angry, as there are a lot > of very personal things going on with my life as well as living with > HCV and ESLD.> As I previously stated I am being treated at the VA in Cincinnati, > and was ready to start treatment with my Hep C Specialist in March, > and had to quit my job, snd now trying to get SSID.> We my Hep c specialist was going to start treatment my viralcount > was very low only 24,000, and when they checked it at the VA they said > it was really low like 6,000, so they aren't going to treat at this > time.> I get very confused as my amonnia levels are high so forgive me > for rambling.> Just wanted to say HELLO, and PEACE.> > > > > > > > ---------------------------------> Stay in the know. Pulse on the new .com. Check it out.> Stay in the know. Pulse on the new .com. Check it out. Get your own web address for just $1.99/1st yr. We'll help. Small Business. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Well the BEST thing you can do then is to just try to get through tx and take the BEST care of yourself that you can,, and PRAY for the BEST outcome! Thats all you can do!Sharon Crosby <blubirdxoxo@...> wrote: That's the PROJECTED time of release. This doctor, a hepatoligist and gastro with a medical pedigree tells me that we are at least 5 years yet from a successful med, protease or otherwise. I don't know who to believe, he is up to date on the research, doesn't do studies, and prefers not to treat unless you are in danger. It seems to me that having the disease is being "in danger" with the treat of cancer and all the other side problems that can arise from the presence of the Hepatitis C virus. I'm more confused than I was and am not going to change to THIS doctor simply because of his feelings about treatment. He also says that with the slight damage I have, he would choose not to do blood work but once a year. I was very disheartened when I left him. I will stay with the doc who will not treat symptoms or sides, but at least will treat the disease. I haven't drank alcohol for some 20 years, quit smoking about 12 or so years ago and drink water, bottled, by the gallon. I am lucky in that it seems the most annoying "thing" I deal with is the fatigue and low energy again.... SharonJackie on <redjaxjm > wrote: Sharon, I think that the protease inhibitors will be released in 08,, LIZ?? am I right? Dont give up,, what you CAN do is to make sure you eat VERY healthily, get enough protein unless you have trouble with ammonia like Liz,, get enough FILTERED water,, Milk Thistle, Schizzandra, etc, NO alcohol,, watch the amount of tylenol or products containing tylenol you take,, etc,, Sharon Crosby <blubirdxoxo > wrote: I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: How low will we go? Check out Messenger’s low PC-to-Phone call rates. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 ESLD is End Stage Liver Disease... thats NOT good :-(us4heavenbound@... wrote: In a message dated 10/19/2006 10:01:33 AM Central Daylight Time, d_k45050 writes: ESLD. OK call me stupid but what is this, ? Geri Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I thought so too Liz,, with ESLD,, he really does NEED to tx,, and if he ends up on a tp list,, to have treated would make it easier to keep the new liver healthy!elizabethnv1 <elizabethnv1@...> wrote: Oops forgot to add that if your having issues with your ammonia already then it sounds like your disease is advanced so the viral load shouldnt matter at this point . What more inportant to go on is the biopsy . ESLD= end stage liver disease , so your doc is making a mistake in not treating you now . ME AGAIN Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 My hepatologist's name is Gish , he is a leading research doctor . His group does clinical trials in San Fransisco he is the one that told me that they would be available in 2008 . I pretty much believe him when he says 2008 it wil be then , the last time he told me about something that was in clinicals he told me when it would be available and he was right on the money . Re: Re: ME AGAIN That's the PROJECTED time of release. This doctor, a hepatoligist and gastro with a medical pedigree tells me that we are at least 5 years yet from a successful med, protease or otherwise. I don't know who to believe, he is up to date on the research, doesn't do studies, and prefers not to treat unless you are in danger. It seems to me that having the disease is being "in danger" with the treat of cancer and all the other side problems that can arise from the presence of the Hepatitis C virus. I'm more confused than I was and am not going to change to THIS doctor simply because of his feelings about treatment. He also says that with the slight damage I have, he would choose not to do blood work but once a year. I was very disheartened when I left him. I will stay with the doc who will not treat symptoms or sides, but at least will treat the disease. I haven't drank alcohol for some 20 years, quit smoking about 12 or so years ago and drink water, bottled, by the gallon. I am lucky in that it seems the most annoying "thing" I deal with is the fatigue and low energy again.... SharonJackie on <redjaxjm > wrote: Sharon, I think that the protease inhibitors will be released in 08,, LIZ?? am I right? Dont give up,, what you CAN do is to make sure you eat VERY healthily, get enough protein unless you have trouble with ammonia like Liz,, get enough FILTERED water,, Milk Thistle, Schizzandra, etc, NO alcohol,, watch the amount of tylenol or products containing tylenol you take,, etc,, Sharon Crosby <blubirdxoxo > wrote: I just had a visit with a new doctor yesterday. He tells me that those things that were soooo promising for treatment have now been scratched because they attacked other parts of the body or proved toxic in some way---in other words, they failed. I am disheartened at his news that it will be at least another 5 years before anything else is ready to be released, if then. I had looked forward to treating (if that is the word) again before I get too old. Guess it's the "best laid plans of Mice and Men....) thing again. SharonSheena <mom4possums2002 > wrote: How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Even if he doesnt treat now and ends up with a tp , he will have to treat after in order to keep the new liver from failing . Post transplant infection is `100% ME AGAIN Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi , Im so glad you didnt give up on us,, we are a great group!!!!! I hope you get feeling better soon,, and please hang with us,, we will do whatever we can to help! hugs jaxDave <d_k45050@...> wrote: Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 I know,, it would certainly be better IF he treated NOW and got rid of it before,,elizabethnv1 <elizabethnv1@...> wrote: Even if he doesnt treat now and ends up with a tp , he will have to treat after in order to keep the new liver from failing . Post transplant infection is `100% ME AGAIN Hi,I am the one that introduced myself and three days later I had a few responces. I'm sorry If I seemed angry, as there are a lot of very personal things going on with my life as well as living with HCV and ESLD.As I previously stated I am being treated at the VA in Cincinnati, and was ready to start treatment with my Hep C Specialist in March, and had to quit my job, snd now trying to get SSID.We my Hep c specialist was going to start treatment my viralcount was very low only 24,000, and when they checked it at the VA they said it was really low like 6,000, so they aren't going to treat at this time.I get very confused as my amonnia levels are high so forgive me for rambling.Just wanted to say HELLO, and PEACE. Jackie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 At end stage, doesn't treatment depend on whether one is decompensating? I remember Daryl's gastro ruling out treatment because he was already decompensating. Just curious anne Re: ME AGAIN Oops forgot to add that if your having issues with your ammonia already then it sounds like your disease is advanced so the viral load shouldnt matter at this point . What more inportant to go on is the biopsy . ESLD= end stage liver disease , so your doc is making a mistake in not treating you now . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 It depends on the severity and what stage , I believe there are 5 stages when a person hits endstage . As long as a patient has even a portion of funtioning liver then treatment is an option . But I think it's up to the doctor usually , because I know someone right now who has advanced cirrhosis and she is actually responding . It took allot of time but her viral load is finally down and it looks like she may clear . Re: ME AGAIN Oops forgot to add that if your having issues with your ammonia already then it sounds like your disease is advanced so the viral load shouldnt matter at this point . What more inportant to go on is the biopsy . ESLD= end stage liver disease , so your doc is making a mistake in not treating you now . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 I think that is true anne,, or at least they USED to think that,, but its just too bad that they didnt do some lower dose to see if they could get the inflammation down ...anne <kanga2@...> wrote: At end stage, doesn't treatment depend on whether one is decompensating? I remember Daryl's gastro ruling out treatment because he was already decompensating. Just curious anne Re: ME AGAIN Oops forgot to add that if your having issues with your ammonia already then it sounds like your disease is advanced so the viral load shouldnt matter at this point . What more inportant to go on is the biopsy . ESLD= end stage liver disease , so your doc is making a mistake in not treating you now . Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 , The sticking of the tea and honey may be temporary. I would give your insides time to heal. I had some sticking sensation for a while after surgery and was rather upset about it, but it all went away as things healed. One thing I did was, if something felt like it stuck, I waited a few minutes and then tried something I knew should go down good - water, milk etc. - and usually had good luck. Here's hoping things keep improving!mike in WI Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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