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In a message dated 5/31/1999 6:38:25 AM Eastern Daylight Time,

mlmccoy@... writes:

<< One solution is I could put something in the subject line

indicating it is from that forum >>

maybe if you just put SCI-MED lyme in the header....actually the double posts

do not bother me..maybe because Lyme is something I would rather read twice

than miss once ;) B

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Hi Bernadette,

That's a good idea, I am sure not everyone who subscribes here gets to

read the newsgroup. I welcome anyone who does read it and sees something

that would be of general interest to us to please copy it and post it here.

I was way behind in reading the newsgroup, it seemed insurmountable, but I

am proud to say I got all caught up this morning. It used to be my daily

ritual, now I devote most of my time here, and fear missing something

important being related on the newsgroup. From now on when I steal

something from there, I will put SCI-MED in the subject header....have to

laugh about you reading the information twice, my short term memory is so

bad, I often worry that I am posting the same stuff twice. Have you ever

gone to do something, and found to your surprise you had already done it,

yet have no memory at all that you did it? Weird feeling!

Hugs,

Marta

>From: BratDet@...

>

>In a message dated 5/31/1999 6:38:25 AM Eastern Daylight Time,

>mlmccoy@... writes:

>

><< One solution is I could put something in the subject line

> indicating it is from that forum >>

>maybe if you just put SCI-MED lyme in the header....actually the double

posts

>do not bother me..maybe because Lyme is something I would rather read twice

>than miss once ;) B

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Hi Marta,

I really don't mind what you put on here. I can't seem to get anywhere else,

so it really helps me.

Thanks for all your work,

Hugs,

Connie, MI

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Guest guest

I am not in the least bothered by any duplicate

posts. I may not get to the sci.med.diseases.lyme

group but twice a week, so I appreciate you posting

the information on Lyme Aid.

My .02 cents worth of opinion.

Wishing us all health and freedom from pain,

both physical and emotional -

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  • 2 months later...
Guest guest

--- XxMarchxX@... wrote:

> Since we are all kind of comparing things and

> looking for similarities. I was wondering if we

> should make some form or questionniare then put it

> all on a spread sheet???? I don't want to overstep

> my bounds as I am new here on this list --

No, I don't think you are overstepping your bounds,

March. And I think that the newest member on the list

should have the same say as the oldest, right? That

is one of the great things about e-communication --

race, sex, sexuality, age, religion, seniority -- none

of that matters.

As for the survey, I might be able to write a program

on the web page and feed it into a SQL database,

generate some charts and graphs and all those lovely

things that are possible using the web. Hell, in a

few years I might be able to write some code that will

produce smells over the web . . .

But that is tomorrow. Today there are ample tools to

run surveys on the web. If anyone is interested I can

look into it. Of course this is a lot of work -- If I

write the code I'll need help assembling the survey.

A group project?

===

, NJ Highlands

raharris@...

_____________________________________________________________

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In a message dated 8/3/99 9:33:09 PM, XxMarchxX@... writes:

<< I

was wondering if we should make some form or questioner then put it all on a

spread sheet???? >>

It sounds like a terrific idea!

Diane

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Hi Kim!

I sure never want anyone to think I am complaining. We waited 11

years before we were able to adopt and add a son to our family of

two daughters. God has blessed us with 2 daughters by birth and

one daughter and two sons by adoption! Far beyond what I had ever

dreamed! Now I think it really is time to quite. I always

wanted to be the Waltons! But with two who have special needs

and my recent diagnosis I think I really do need to leave it at

5. I had my heart set on more and this is difficult. In fact I

got a call two days ago about a little 3 year old with triple x

syndrome. I am going to have to say no and have them take us off

of the list. This is a call that I have not made yet - do not

want to make either. But I think I have too. As I am

understanding it, this disease is progressive - right? - so I

think it would not be wise to adopt again.

Lee Ann

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  • 3 years later...

Hi ,

Sorry about missing your post. One of the questions on the survey asks what

was the diagnosis received, so I am going by the DSM-IV diagnoses of PDDs.

Thats why I phrased it as " autistic disorder " and so on because that is what

they are called in the DSM. So the survey is for parents of any child

diagnosed with any PDD. Sorry about any confusion. Again the survey can be

accessed at http://www.carleton.ca/copewell/autism/

Kerry

Re: [ ] survey

> Kerry,

>

> I think you may have overlooked a post of mine.

>

> For the purposes of your questionnaire, how are you defining Autism?

>

> Since you are asking parents here to contribute, perhaps you could define

your parameters.

>

>

> Best regards,

>

>

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  • 1 month later...

In a message dated 11/27/02 8:05:42 PM, MUGGYPC@... writes:

<< Just My View 15 yrs on AP and thank you

everyone Happy Thangsgiveing from Ohio.

>>

You mean this therapy has been around THAT long and still is (apparently)

not mainstream?

This does not make sense to me.

If it does work, and has been around for almost decades, why is it not

commonly used?

Pris

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Pris , I was on tetra afew yrs before for acne, then went to Arlington to

get IV's. This may be hard to believe but AMA wants their money for research

and drs. some for their Perks. Alot of drs. are just not willing to learn

anything new and do whatever the AMA tells them too. Change seems to be a

fight, always has been in this world. It would be a very nice world if MONEY

didn't rule it, but the big boys have and do. Just My View from Ohio.

The time and money I have wasted on Drs. is really sinful and the tears and

pain were alot. Be glad you have this line and group who will help and really

do try to educate all.

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Pris wrote:

>

> " You mean this therapy has been around THAT long and still is (apparently)

> not mainstream? This does not make sense to me. If it does work, and has

> been around for almost decades, why is it not commonly used? "

Hi Pris,

Actually, you will be even more surprised to find out that this therapy has

been around about 50 years. The sad fact is that most doctors don't want to

believe it works. It's not accepted by mainstream medicine...which to me is a

crime! But it's like antibiotics for ulcers. The doctor who discovered that

antibiotics would cure most ulcers with the h pylori bacteria (don't think I

spelled that right) was poo pooed that he was a quack until he proved it by

giving himself the bacteria, getting ulcers and curing himself. Now this

treatment is used by some doctors to help cure ulcers but there are still

quite a few doctors out there who don't or won't use it.

Dr. Brown pioneered this field of AP but was labled a quack until his dying

day. We have much to be thankful for to him for his courage in keeping on in

spite of the opposition!

Jeanette

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I am a parent of a child with autism and I am conducting research for my

Master's thesis in Communications Disorders. The title of the research is

" Familial Perceptions of the Effects of Immunizations on the child with Autism " .

Please help by filling out the survey and sending it to cbostx@... or

mailing it to Cheryl Bost, 510 on Pl, Corpus Christi, TX 78411. Thanks!

From: Binstock

Sent: Thursday, November 28, 2002 5:21 PM

Subject: [ ] Canada: Ottawa to buy smallpox vaccine

http://www.globeandmail.ca/servlet/ArticleNews/front/RTGAM/20021128/wxpox1128/Fr\

ont/homeBN/breakingnews

Ottawa to buy smallpox vaccine

By PETER CHENEY

From Thursday's Globe and Mail

Thursday, November 28 – Online Edition, Posted at 2:30 AM EST

Responding to the possibility of a terrorist attack with biological weapons,

the federal government is buying enough smallpox vaccine to inoculate

everyone in Canada.

" Given the heightened concern about terrorism, we believe it's prudent to

take steps to protect the Canadian public, " Health Canada spokesman

Gully said.

Canada was named as a potential terrorist target two weeks ago by

al-Qaeda leader Osama bin Laden in an audiotape warning of attacks on

Western countries.

Under the terms of a contract announced Wednesday, the government will

acquire 10 million doses of the vaccine. Each dose can be diluted,

producing enough for 30 million inoculations.

" Considering the advice we've received, we believe this is the right amount, "

Dr. Gully said.

Some of the vaccine will be used for a carefully planned program designed

to prevent a mass outbreak of smallpox. Five hundred people who have

been identified as being at the highest risk of contracting or spreading the

disease will be inoculated immediately, Dr. Gully said. Many of these 500

people will be doctors, nurses and others most likely to be exposed to the

disease in the event of an outbreak.

The rest of the vaccine will be stored at a secret location, to be used for

mass inoculations in the event of what Dr. Gully referred to as " a national

health emergency. "

The contract announced Wednesday calls for the vaccine to be supplied by

Aventis Pasteur Ltd., an Ontario firm that is considered the only one in the

country capable of filling the order. Other companies will have 15 days to

contact Health Canada if they have a competitive proposal.

The cost of the vaccine will be negotiated once a decision is made on who

will be the supplier, Dr. Gully said. Observers say the cost of the Canadian

vaccine will probably be comparable to the vaccine being acquired by the

U.S. government, which paid $509-million (U.S.) for 250 million doses.

Based on that, the Health Canada stockpile will probably cost about

$30-million to $40-million (Canadian).

The decision to acquire the vaccine caps a long debate over the new risks

posed by smallpox, which has been referred to as " the poor man's nuclear

weapon. " Before the introduction of vaccination in the late 18th century, the

disease swept repeatedly across several continents, killing up to 50 per cent

of the population.

Although smallpox was declared eradicated in 1980, the virus still exists in

laboratories, raising the possibility terrorists could acquire it. That risk

has

created a new demand for the vaccine.

Officially, the virus exists only at two World Health Organization

laboratories. One is the United States, the other in Russia. But there is

widespread concern that others have managed to acquire the virus as well,

increasing the possibility that it could fall into the wrong hands.

Dr. Gully said it would take " considerable " skill for a terrorist group to

successfully introduce the disease on a widespread scale. Federal

emergency plans are based on what is known as a " search and contain "

system, where smallpox victims are isolated, while the people in the

surrounding area are inoculated.

Health officials said the vaccine is effective in treating smallpox within four

days of exposure to the virus. After that, it becomes less and less effective.

In most cases, the disease becomes fully developed within two weeks.

There are several strains of smallpox, with mortality rates that range from 30

per cent to 100 per cent.

Despite the deadly nature of the disease, universal inoculation is not

considered the best approach to combatting the current risk, experts say.

There is a one-in-a-million risk of dying from the vaccination, and a

one-in-300,000 risk of serious side effects. These risks outweigh the risk of

infection, Dr. Gully said.

He added that it was ironic that the world is once again concerned about a

disease that had been defeated by medical science: " It tells us a lot about the

heightened concern over terrorism. So it's only prudent that we take steps to

protect the Canadian public. "

Copyright © 2002 Bell Globemedia Interactive Inc.

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[ ] Canada: Ottawa to buy smallpox vaccine

http://www.globeandmail.ca/servlet/ArticleNews/front/RTGAM/20021128/wxpox1128/Fr\

ont/homeBN/breakingnews

Ottawa to buy smallpox vaccine

By PETER CHENEY

From Thursday's Globe and Mail

Thursday, November 28 – Online Edition, Posted at 2:30 AM EST

Responding to the possibility of a terrorist attack with biological weapons,

the federal government is buying enough smallpox vaccine to inoculate

everyone in Canada.

" Given the heightened concern about terrorism, we believe it's prudent to

take steps to protect the Canadian public, " Health Canada spokesman

Gully said.

Canada was named as a potential terrorist target two weeks ago by

al-Qaeda leader Osama bin Laden in an audiotape warning of attacks on

Western countries.

Under the terms of a contract announced Wednesday, the government will

acquire 10 million doses of the vaccine. Each dose can be diluted,

producing enough for 30 million inoculations.

" Considering the advice we've received, we believe this is the right amount, "

Dr. Gully said.

Some of the vaccine will be used for a carefully planned program designed

to prevent a mass outbreak of smallpox. Five hundred people who have

been identified as being at the highest risk of contracting or spreading the

disease will be inoculated immediately, Dr. Gully said. Many of these 500

people will be doctors, nurses and others most likely to be exposed to the

disease in the event of an outbreak.

The rest of the vaccine will be stored at a secret location, to be used for

mass inoculations in the event of what Dr. Gully referred to as " a national

health emergency. "

The contract announced Wednesday calls for the vaccine to be supplied by

Aventis Pasteur Ltd., an Ontario firm that is considered the only one in the

country capable of filling the order. Other companies will have 15 days to

contact Health Canada if they have a competitive proposal.

The cost of the vaccine will be negotiated once a decision is made on who

will be the supplier, Dr. Gully said. Observers say the cost of the Canadian

vaccine will probably be comparable to the vaccine being acquired by the

U.S. government, which paid $509-million (U.S.) for 250 million doses.

Based on that, the Health Canada stockpile will probably cost about

$30-million to $40-million (Canadian).

The decision to acquire the vaccine caps a long debate over the new risks

posed by smallpox, which has been referred to as " the poor man's nuclear

weapon. " Before the introduction of vaccination in the late 18th century, the

disease swept repeatedly across several continents, killing up to 50 per cent

of the population.

Although smallpox was declared eradicated in 1980, the virus still exists in

laboratories, raising the possibility terrorists could acquire it. That risk

has

created a new demand for the vaccine.

Officially, the virus exists only at two World Health Organization

laboratories. One is the United States, the other in Russia. But there is

widespread concern that others have managed to acquire the virus as well,

increasing the possibility that it could fall into the wrong hands.

Dr. Gully said it would take " considerable " skill for a terrorist group to

successfully introduce the disease on a widespread scale. Federal

emergency plans are based on what is known as a " search and contain "

system, where smallpox victims are isolated, while the people in the

surrounding area are inoculated.

Health officials said the vaccine is effective in treating smallpox within four

days of exposure to the virus. After that, it becomes less and less effective.

In most cases, the disease becomes fully developed within two weeks.

There are several strains of smallpox, with mortality rates that range from 30

per cent to 100 per cent.

Despite the deadly nature of the disease, universal inoculation is not

considered the best approach to combatting the current risk, experts say.

There is a one-in-a-million risk of dying from the vaccination, and a

one-in-300,000 risk of serious side effects. These risks outweigh the risk of

infection, Dr. Gully said.

He added that it was ironic that the world is once again concerned about a

disease that had been defeated by medical science: " It tells us a lot about the

heightened concern over terrorism. So it's only prudent that we take steps to

protect the Canadian public. "

Copyright © 2002 Bell Globemedia Interactive Inc.

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[ ] Canada: Ottawa to buy smallpox vaccine

http://www.globeandmail.ca/servlet/ArticleNews/front/RTGAM/20021128/wxpox1128/Fr\

ont/homeBN/breakingnews

Ottawa to buy smallpox vaccine

,$30-million to $40-million (Canadian).

The decision to acquire the vaccine caps a long debate over the new risks

posed by smallpox, which has been referred to as " the poor man's nuclear

weapon. " Before the introduction of vaccination in the late 18th century, the

disease swept repeatedly across several continents, killing up to 50 per cent

of the population.

Although smallpox was declared eradicated in 1980, the virus still exists in

laboratories, raising the possibility terrorists could acquire it. That risk

has

created a new demand for the vaccine.

Officially, the virus exists only at two World Health Organization

laboratories. One is the United States, the other in Russia. But there is

widespread concern that others have managed to acquire the virus as well,

increasing the possibility that it could fall into the wrong hands.

Dr. Gully said it would take " considerable " skill for a terrorist group to

successfully introduce the disease on a widespread scale. Federal

emergency plans are based on what is known as a " search and contain "

system, where smallpox victims are isolated, while the people in the

surrounding area are inoculated.

Health officials said the vaccine is effective in treating smallpox within four

days of exposure to the virus. After that, it becomes less and less effective.

In most cases, the disease becomes fully developed within two weeks.

There are several strains of smallpox, with mortality rates that range from 30

per cent to 100 per cent.

Despite the deadly nature of the disease, universal inoculation is not

considered the best approach to combatting the current risk, experts say.

There is a one-in-a-million risk of dying from the vaccination, and a

one-in-300,000 risk of serious side effects. These risks outweigh the risk of

infection, Dr. Gully said.

He added that it was ironic that the world is once again concerned about a

disease that had been defeated by medical science: " It tells us a lot about the

heightened concern over terrorism. So it's only prudent that we take steps to

protect the Canadian public. "

Copyright © 2002 Bell Globemedia Interactive Inc.

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Hi Pris! Geoff here.

You wrote:

" You mean this therapy has been around THAT long and still is (apparently)

not mainstream? This does not make sense to me. If it does work, and has

been around for almost decades, why is it not commonly used? "

Dr. Brown was vilified by his peers because he told people about his therapy

success by publishing a book. Not the way things are done, you see. His

peers weren't able to criticize his basic work, so instead they criticized

the man personally over his choice of publication, and in private

conversations with their patients they openly called him a quack. Thousands

of peoples lives were salvaged, but his peers were sorely offended; he had

stolen their thunder, and their authority.

O'Dell, et al, got funding for the MIRA study but their protocol was

different -- higher doses, higher frequencies, lack of individual tailoring,

etc. If one was to compare the two methodologies one might could conclude

that Dr. Brown's protocol was more " patient " friendly, requiring quite a lot

of Physician time. The O'Dell method is more " practice " friendly, taking

only seconds to repeat the mantra: RA=200mg mino BID, thus minimizing the

use of physician time while maximizing profit, an important consideration

for a practice.

Anytime anyone has a question about drugs or medicine, they must include the

financial factor. Not to do so is foolishness.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

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Hi Mark,

I agree with some of what you said but Dr. Atkins just had the trials

and the news was on the news last week and all very good too. I know as I

have been on it for 2 yrs and plan to spend the rest of my life with the

diet. I really do feel that good No sugars and No starches. I think most

people think or get the impression that you just eat cheese and fatty meats,

well you can but I don't think that is too wise maybe once in awhile, but I

eat mainly fish and chicken and veggies. I also am down to almost normal

weight. You do eat more protein and some fats but seems to be a great diet

for people with a problem beats surgey.

Also about the tests drs. should do and would do if the AMA wanted it.

There is alot of money being made by you and me being in the so called system

and the big boys like that very much. Of course there are some careing drs.

like Dr. Brown, just not many and we suffer so the medical can be rich and

right. Just My View from Ohio Be Pain Free

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Geoff wrote:

" O'Dell, et al, got funding for the MIRA study but their protocol was

different -- higher doses, higher frequencies, lack of individual tailoring,

etc. If one was to compare the two methodologies one might could conclude

that Dr. Brown's protocol was more " patient " friendly, requiring quite a lot

of Physician time. The O'Dell method is more " practice " friendly, taking

only seconds to repeat the mantra: RA=200mg mino BID, thus minimizing the

use of physician time while maximizing profit, an important consideration

for a practice.

Anytime anyone has a question about drugs or medicine, they must include the

financial factor. Not to do so is foolishness. "

I can't speak for either doctor, since I have not had either doctor as my

physician. However, I would hesitate to label Dr. O'Dell as somone just out

for money. A person from this list recently wrote me privately, who has Dr.

O'Dell as their physician, and thinks he is wonderful. And it appears

O'Dell finds good results (which apparently he has according to his trials)

with his regimen.

I understand that Dr. Brown was a caring individual or so I have been led to

believe. Ethel knows much more about him than I ever will. It's too bad

that he wasn't able to combine his book with a number of published trials as

well. This would have put much of this controversy to rest. I think that's

why the medical community casts aspersions upon him, and of course due in

part to their belief that if it hasn't been proven in those confounded

double blind trials, then it's not worth considering.

The same could be said for Dr. Atkins, who also cranks out the books and may

very well care about all his patients, yet is scoffed at because he won't

spend the money or get the money to run trials. That debate goes on

forever, too.

Just my .02

Mark

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Since I too, cannot seem to access the main board, I cannot get into

the survey. I want to let everyone know.....YES this did work great for me.

Complete remission. I have had one lady I corresponded with who tried it

for four months and decided it would not work. She informed me it was " Too

late for her " . As we speak, she is in her new wheelchair taking dozens of

meds to keep the pain at a dull throb, and I am out horsebackriding. In fact

yesterday I took a 3 hour trailride...O.K. so we got lost in the park and it

took us that long to find our way out!! At any rate the only pain I had was

NOT from the RA. Hey! does anyone know if they make orthopedic saddles???

Martha

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Skip...................I had been diagnosed with RA for eight years before

starting on AP. I am embarrassed to say it only took me 5 months to complete

remission. I was on a new combo offered by DR. S in Chattanooga. It worked

for me like a charm and I had NO herxes.

The only thing I can say, except to admit to being VERY, VERY lucky, was

that I fully expected this treatment NOT to work. My husband and I discussed

this before I went for my first appointment, and as I got out of the car on

that first visit my husband said to me... " just don't get your hopes up too

much, if it doesn't work we'll keep looking. " Little did we know that

something that was so simple, could work so well. We just felt surely the

medical profession would use this if it worked...right???

We were trained to believe that if it looked too good to be true, it probably

wasn't true. Thank God we were wrong. As for the medical profession turning

their noses up at a possible remission for many of its patients, it makes

you wonder. Figuring that most information a doc gets once they leave med

school comes from the drug companies via their salesmen, means to me the fox

is guarding the henhouse!!! Just my opinion of course. Martha

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Martha You have posted a few times but you have never gave us any

details. I'm sure alot of us would like to know. For instance how long did

you have RA & how severe was it.? How long before you noticed improvement &

how long before you went into remission? I'm very glad to hear about your

remission but also very curious. I think this would help alot of us to hear

more of the details of one's success. Thank you for your time if you answer

this post. I'm not looking for remission. I would be very happy if I could

just function!!.

nne

RA5Yrs.AP8Mos.

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Nice reply Martha, however, why don't you describe what you felt like in general

from the time you started the AP and the time you were in remission. I think

some of these people do not realize that it can be painful, and very long doing

the steps. 3 ahead and 2 back.

How long did you have the RA before starting the AP?

Skip

rheumatic re:survey

Since I too, cannot seem to access the main board, I cannot get into

the survey. I want to let everyone know.....YES this did work great for me.

Complete remission. I have had one lady I corresponded with who tried it

for four months and decided it would not work. She informed me it was " Too

late for her " . As we speak, she is in her new wheelchair taking dozens of

meds to keep the pain at a dull throb, and I am out horsebackriding. In fact

yesterday I took a 3 hour trailride...O.K. so we got lost in the park and it

took us that long to find our way out!! At any rate the only pain I had was

NOT from the RA. Hey! does anyone know if they make orthopedic saddles???

Martha

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Thanks for the reply, You were very lucky to get remission in such short time.

I hope it holds forever for you.

I agree with your take and the medical profession not even trying this.

Sounds like your hubby is like mine. We just kept looking until we found the

AP.

Seen Dr. Sinnott finally as we could not find anyone here to do it for us.

We now have a Dr. who works with Dr. Sinnott over the phone when we have a

problem. He has also started others on the AP also.

Just don't let stress put you down. I did this summer and am paying for it now.

Good luck

SKip

Re: rheumatic re:survey

Martha You have posted a few times but you have never gave us any

details. I'm sure alot of us would like to know. For instance how long did

you have RA & how severe was it.? How long before you noticed improvement &

how long before you went into remission? I'm very glad to hear about your

remission but also very curious. I think this would help alot of us to hear

more of the details of one's success. Thank you for your time if you answer

this post. I'm not looking for remission. I would be very happy if I could

just function!!.

nne

RA5Yrs.AP8Mos.

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  • 2 years later...

post the survey and im sure youwill get many answers which might be interersting

to your program to see how many of us are actually sufffering from the

disease....i will complete it if you post it online....Laurie

jacluwil01 <jacluwil01@...> wrote:

Would anyone mind completing a very short 10 question survey on

basic demographics and experience with Lyme disease. I am in a

Masters in Nursing program and am doing a paper for an assignment.

This group is so interesting and may indeed be the answers to my

prayers for support with this disease.

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i, too, would be glad to do your survery,

deb

email debob@...

[ ] Survey

Would anyone mind completing a very short 10 question survey on

basic demographics and experience with Lyme disease. I am in a

Masters in Nursing program and am doing a paper for an assignment.

This group is so interesting and may indeed be the answers to my

prayers for support with this disease.

Questions and/or comments can be directed to the list owner at

-Owner

------------------------------------------------------------------------------

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