Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 I had shingles years ago. Very painful! I caught them from my father. He had them on his head and face, poor man, and had given him a hug on Thanksgiving day. He had no sign of them left except a little scar here and there. But it was like a week later and I had the beginnings of this rash on my back. Within a day I was home with shingles. Gold bond powder helps alot. All you can do is wait it out. The thing I remember most is the nerve endings hurting for months afterwards. I feel your pain. Elaina/NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 I had shingles twice, about twenty years ago and then last year. Definitely go for the anti-viral medication. 20 years ago, it took months for the pain to subside; last year it took only weeks. (20 years ago, they didn't have the anti-viral.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 I wouldn't think there is a connection to CMT and shingles. I know a lot of people who've had shingles, step-father being the one who gave them to me. But out of all the people I know personally whose had shingles, I'm the only one with CMT, well that's diagnosed that is. Shingles are just a form of adult chicken pox. Very contagious, very painful for most, and the mid section seems to be the most common area effected. My mother, step father and sister has had them, but I'm the only CMTer in the family. Happy new year all! Elaina/NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 I have also had shingles. When I was pregnant with my first child. the rash actually went in circle around my middle (very painful) and being pregnant I was not able to take any medication. Funny thing is, my oldest child is the only one of my three children, who has never had chicken pox (even though exposed on more than one occasion). The Doctor mentioned she may have an immunity due to my shingles while carrying her (apparently it is the same family of virus). I find it interesting that so many people with CMT have experienced shingles (my brother also had them). Any thoughts on a connection? Warmest Wishes to All for the Holidays, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hi Allyson, If your immune system is not functioning well, then shingles could definitely flare up. Viruses in the herpes family such as shingles require a strong immune system in order to remain dormant, and if you've got implants and have noticed that your immune system has been malfunctioning ever since, then it's a good chance the implants are contributing to the flare ups. I hope all works out with the loan, it was such a relief to have mine out. Sis > > Hello ladies, > I was wondering if anyone has any info on Shingles being related to > implants. I have an auto immune condition and seem catch viruses. I'm > just wondering if this is more common in women with implants. Also, > I'm still trying to come up with a way to get approved for the loan to > have Dr. Kolb do my explant. I sceduled the date with no money. Keep > you fingers crossed that it will work out. > > > Allyson from Virginia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 This is correct...when our immune systems are overburdened and cannot fight back, (when it is depressed), those viruses will come out of dormancy and rear their ugly heads with symptoms of illness. Many women with implants complain of getting sick with every bug and flu that comes by. That is due to an immune system that can't function well anymore due to the burden the implants have placed upon our body. Reducing the viral load is important to our healing. And that means taking proactive steps to add supplements that will do the work of killing off viruses, bacteria and fungus. Raw garlic is one great supplement to help in that regard. Others include oil or oregano, grapefruit seed extract, olive leaf extract, and various healing mushrooms, to name a few. Patty > > > > Hello ladies, > > I was wondering if anyone has any info on Shingles being related to > > implants. I have an auto immune condition and seem catch viruses. > I'm > > just wondering if this is more common in women with implants. Also, > > I'm still trying to come up with a way to get approved for the loan > to > > have Dr. Kolb do my explant. I sceduled the date with no money. Keep > > you fingers crossed that it will work out. > > > > > > Allyson from Virginia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 " markgill " markgill@... m.ericgill wrote: does anyone have a remedy for shingles? Olive leaf extract. Google shingles olive leaf extract. Wanita ________________________________________________________________________________\ ____ Sucker-punch spam with award-winning protection. Try the free Beta. http://advision.webevents./mailbeta/features_spam.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 I have been told that GABA is the health food store equivalent of the pharmaceutical Neurontin. However, I have never had shingles so can't vouch for efficacy. Desh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Thanks for your thoughts on this. Here's an update. Once the rash started turning into blisters it seemed pretty clear this is shingles and I went to the ER Friday night, they agreed. I don't know how this relates, if at all to the face symptoms. But I can't imagine they have nothing to do with each other. I could have a zoster reactivation in any area of the body, why the left side of my head? Anyway, for the acute problem, I was given Percocet and Valtrex. Valtrex is an anti-viral. The Percocet makes me sick to my stomach if I try to do anything. If I don't take it, the pain makes me sick to my stomach. Guess I'll be losing some weight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 In a message dated 6/1/08 8:16:04 PM Eastern Daylight Time, lakotasiouxgrizzly2006@... writes: > Our alternative doctor said that since they have been vacinating for > the chicken pox the virus has mutated..and we'll begin to see a rise in > chicken pox cases in kids that have already had them, Before the vaccine, once you had chicken pox you built an immunity and didn't get it again. ************** Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4? & amp;NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 In a message dated 6/1/08 8:16:04 PM Eastern Daylight Time, lakotasiouxgrizzly2006@... writes: > My mom had shingles years ago and the only thing she found to help with > the pain was wet cabbage leaves. What did she do with them exactly? Were they cooked or raw? ************** Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4? & amp; NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 I know that you addressed this to Skip or Cindi, but as a Chronic shingles sufferer and health care worker, I can tell you that you need to see a doctor IMMEDIATELY! Shingles in the eye area can cause severe vision problems if not blindness if left untreated. You need medication other than LDN. LDN does not cure shingles. > > Dr. Skip or Cyndi, Haven't been well for a few days, thought it was a > salivary gland infection, turns out it is shingles. It is on my face > and in my scalp, and has be worried because my eye is swollen > shut.....I have been on 3 mg pretty routinely of ldn, should I up it > to 6? How long should I up it to 6 mg.....if you think I > should....Conni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 i just got home from work at the hospital. I'm going to defer this to skip-he'll be online tomorrow. and if he is not call him at the pharmacycndi CCyndi Lenzclenz@...http://www.tdgr2productions.comhttp://www.goldenrescuesouthflorida.com"Is colainn gan cheann duine gan anam cara"The highest calling is to be a soul friend St Brigid On Oct 26, 2008, at 6:10 PM, connilawrence wrote:Dr. Skip or Cyndi, Haven't been well for a few days, thought it was a salivary gland infection, turns out it is shingles. It is on my face and in my scalp, and has be worried because my eye is swollen shut.....I have been on 3 mg pretty routinely of ldn, should I up it to 6? How long should I up it to 6 mg.....if you think I should....Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Hi Connie, I just forwarded to you all of the chats that I have saved under the category of temporarily upping dosages to get out of exasperations. Please let me know if you do not receive them. I am not certain of the duration or the amount that will work best for you. Many people have reported it works, but they have tried different dosages and different length of times. So, like everything else with LDN I guess it is a pretty individual thing. I hope that helps. Aletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Conni, Do yourself a favor and get on Valtrex for the shingles. Your doctor will have to prescribe it. I had shingles last fall in my head, face and eye and it took a while but the only thing that got rid of it was the Valtrex. Shingles can cause a real problem in your eye and head and you don't want that. Especially if you have MS like I do. I was lucky and got it on time. Good Luck Marie [low dose naltrexone] shingles Dr. Skip or Cyndi, Haven't been well for a few days, thought it was a salivary gland infection, turns out it is shingles. It is on my face and in my scalp, and has be worried because my eye is swollen shut.....I have been on 3 mg pretty routinely of ldn, should I up it to 6? How long should I up it to 6 mg.....if you think I should....Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Several years ago when I had a cold sore ( canker sore in USA I think) I asked my local health food shop if they had any the would help because Zovirax is useless. They told me that 'the herpes virus can't exist in a Lysine rich enviroment' Lysine is a naturally occuring amino acid - I got some and have never been without Lysine just incase the virus strikes again. It does but if I take Lysine as soon as I notice it starting on my lip the sore never fully develops isn't paiful and goes away much more quickly than without it. Shingles is a herpes virus and I have thought for years that Lysine would help it. No GP ever prescribes or advises it because there has been no research about it..Does that sound familiar to anyone? Today I googled it and found enough info to make me think that this info could be posted so that people who wish to check it out may find that it may be beneficial for shingles I would certainly recommend it for cold sores so it might be worth a look. > > > > Dr. Skip or Cyndi, Haven't been well for a few days, thought it was a > > salivary gland infection, turns out it is shingles. It is on my face > > and in my scalp, and has be worried because my eye is swollen > > shut.....I have been on 3 mg pretty routinely of ldn, should I up it > > to 6? How long should I up it to 6 mg.....if you think I > > should....Conni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thanks to everyone who answered, I did go to urgent care yesterday and came home equipped with all the valtrex and cortisone, and went to the eye dr today to have my eye checked. Feeling better than yesterday….did 6 mg of ldn, and I think between that and the 60 mg of cortisone, could not sleep even with a sleeping pill…….will nap today……thanks again everyone…… Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Do I go to the hospital if I suspect the Shingles? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Thank you.. I actually wentto the ER as the itching got so intense that it made me very nervous- plus I have a stye in my eye. I had a herpes/cold sore outbreak just a while ago- so it made me nervous. The doctor there said I have an acute allergy to *something* and gave me a big dose of benadryl- and I need to take anti-histamines through the day. I am so relieved. They said if it doesn't go away or if my throat hurts/hard to breathe than they need to put me on Steroids. I think this is all some bizzare yeast problem. I am so relieved my eye is ok. Jodi I will wear gloves when I sleep again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 I had a rash appear shortly after Thanksgiving. I thought it was shingls as it burned and itched and it was a postule that turned into a lesion, which this is what shingles look like. I happened to be in my cardiologist office as I am dealing with high blood pressure. the PA that works for her also works for a GP dr., and looked at the rash also. The following week I was back into the office and saw the PA. She told me she thought I had Dermatitis Herpetiformis, as a patient in the GP's office was diagnosed with this same rash and that is what it was. I researched the topic on the internet and found that it is an autoimmune reaction, and can be brought on by being sensitive to wheat. I thought this was interesting as i am sensitive to wheat, have RA, low thyroid--which are autoimmune problems. I had what was diagnosed as shingles 20 years ago, but I bet it was not shingles at all, but this DH stuff. Believe me, it will itch and burn and feel like nettles. It can be on the scalp, the lower back, the ab area. Shingles stay in one quandrant of the body. If this is what I had 20 years ago, I wasn't on the LDN at that time. I also read where taking iodine can cause the DH to show itself. I had just been put on iodine by my GP dr. to elevate my thyroid. I will say, some of the stuff we get is wierd and unexplained. I have FM & MPS. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 hi jodi go to doc and get anti-virals. need to go within 72 h of onset for it to be effective. i've had them 2x in last 2 yrs and both times 5 days of valtrex worked like a charm. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 I had been on LDN for over 4 years when I developed shingles of the face, eye and head. I was miserable. My doctor put me on Valtrex and it cleared up. Marie [low dose naltrexone] shingles Has anyone dealt with The Shingles being on LDN?I have insane itching, small little rashes in different places on mybody and I am developing what appears to be a stye eye.Wouldn't my immune system not be so suseptible to such a virus? Is itthe chickenpox virus awakening in me? When I was onimmuno-suppressants I got Sackie virus which was an utter nightmare.Any experience much appreciated..Can this be part of Hering's Law of Cure in any way?Thanks,Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 > If you suspect shingles go to the doc immediately (before 72 hours) and they can give you a shot for them and that will take care of it...otherwise it can be horribly painful for a long, long time. Shingles can be deadly...not something to play around with. My mom was in her 80's and developed shingles (I took her to doc as soon as I saw a few little spots and she was having shooting pains in her head. The doc looked at her, said " shingles " , gave her the shot and she did fine...no problem at all. I know people who didn't pay the proper attention and have had severe problem. -Biz Jodi, > It doesn't sound like shingles at all, what you describe. Shingles > are generally more localized. It sounds like an allergy of some sort. > Don't wait and see what happens, go to a doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Jodi Yes shingles can be very painful, however there are herbs that are antiviral and work specifically towards herpes virus of which shingles is one. I’ve had a few clients have very fast recovery using external st johnswort oil with a few other herbs (I’ll be happy to help, you can email me off list bonniesherbals@...) Bonnie www.bonniesherbals.com From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of biztekmom Sent: Tuesday, January 27, 2009 12:29 PM low dose naltrexone Subject: [low dose naltrexone] Re: Shingles > If you suspect shingles go to the doc immediately (before 72 hours) and they can give you a shot for them and that will take care of it...otherwise it can be horribly painful for a long, long time. Shingles can be deadly...not something to play around with. My mom was in her 80's and developed shingles (I took her to doc as soon as I saw a few little spots and she was having shooting pains in her head. The doc looked at her, said " shingles " , gave her the shot and she did fine...no problem at all. I know people who didn't pay the proper attention and have had severe problem. -Biz Jodi, > It doesn't sound like shingles at all, what you describe. Shingles > are generally more localized. It sounds like an allergy of some sort. > Don't wait and see what happens, go to a doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Thanks...I went to the doctor and I am on Sulfa...YUCK, and also a Shingle medicine at 400 Mg 2 Pills 5X a day...seeems like too much. Mende From: biztekmom <biztekmom@...>Subject: [low dose naltrexone] Re: Shingleslow dose naltrexone Date: Tuesday, January 27, 2009, 9:28 AM >If you suspect shingles go to the doc immediately (before 72 hours)and they can give you a shot for them and that will take care ofit...otherwise it can be horribly painful for a long, long time.Shingles can be deadly...not something to play around with.My mom was in her 80's and developed shingles (I took her to doc assoon as I saw a few little spots and she was having shooting pains inher head. The doc looked at her, said "shingles", gave her the shotand she did fine...no problem at all. I know people who didn't pay theproper attention and have had severe problem. -BizJodi,> It doesn't sound like shingles at all, what you describe. Shingles > are generally more localized. It sounds like an allergy of some sort. > Don't wait and see what happens, go to a doctor. > Quote Link to comment Share on other sites More sharing options...
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