Re: 5 years down the road... :)

[Guest guest]

Hi Annie, I am so happy for you and your family, it is such a wonderful

feeling to finally reach that " no numbers " goal. It took me 15 years!

is a lucky guy to have you for a mom, Bobby

On Sat, Feb 12, 2011 at 11:59 PM, Annie B <ibannie@...> wrote:

>

>

> Hello everyone

>

> I have not posted on here in ages..... especially as has been doing

> great

> and handling his cml so well.

>

> Next month is his 5 year anniversary of his diagnosis and the best results

> yet

> have just come in. We send his pcr to OHSU for testing and this time it

> came back with no numbers at all - just a 'weak positive'. What a wonderful

> way to start a new year

>

> Along with the great results and the end of the first 5 years, is a huge

> thank

> you to everyone that has been there with and for us along the way. I simply

> could not have done it without everyone here, the help, information and

> friends

> found has been, and still is, priceless. Many many times over the years, I

> have

> thought that if others could reach PCRU after a good many years or at least

> be stable and live a full life, well, so could . Reading the good

> stories here has helped, hearing the rougher ones too has helped me get

> strong, get learning and take nothing for granted.

>

> is doing really well on all fronts with only minimal side effects

> occasionally. He is relaxed and is an awesome young man..... well, not so

> young

> anymore - 27 years old.. He is trying hard to catch up to me, and

> succeeding it

> seems. Results like these make me young again.

>

> So - thanks again.....you all helped keep me going these past 5 years.

> love and light

> Annie

> 's mom

> http://livingwithcml.blogspot.com

>

>

>

--

a Doyle/dob 1929

DX /CML/1995/Interferon/hydrea

2/00 - Gleevec Trial, OHSU, Dr. Druker

6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

7/04 - Sprycel Trial, MDACC, Dr. Talpaz

3/05 - CCR

12/07 - Ended trial due to Pleural Effusion

4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

#840 Zavie's Zero Club #840

[Guest guest]

Hi Annie:  So glad you have gotten so much out of our group, and that is great

news that is doing good.  We all share things all the time that helps us

to get through another day.  Sometimes its not all CML, but we all support one

another in whatever we are dealing with.

     Some have gotten to meet each other at some point, but I feel like I

know everybody anyhow.

     I can get on my computer in the middle of the night with a problem, and

by morning someone has some encouraging advice for me.

     May continue to do so well.  At his age, he will probably see

the cure before any of us old timers do that are on here.

    Take Care and Keep In Touch

A.

From: Annie B <ibannie@...>

Subject: [ ] 5 years down the road...

Date: Saturday, February 12, 2011, 11:59 PM

 

Hello everyone

I have not posted on here in ages..... especially as has been doing great

and handling his cml so well.

Next month is his 5 year anniversary of his diagnosis and the best results yet

have just come in. We send his pcr to OHSU for testing and this time it came

back with no numbers at all - just a 'weak positive'. What a wonderful way to

start a new year

Along with the great results and the end of the first 5 years, is a huge thank

you to everyone that has been there with and for us along the way. I simply

could not have done it without everyone here, the help, information and friends

found has been, and still is, priceless. Many many times over the years, I have

thought that if others could reach PCRU after a good many years or at least be

stable and live a full life, well, so could . Reading the good stories

here has helped, hearing the rougher ones too has helped me get strong, get

learning and take nothing for granted.

is doing really well on all fronts with only minimal side effects

occasionally. He is relaxed and is an awesome young man..... well, not so young

anymore - 27 years old.. He is trying hard to catch up to me, and succeeding it

seems. Results like these make me young again.

So - thanks again.....you all helped keep me going these past 5 years.

love and light

Annie

's mom

http://livingwithcml.blogspot.com

[Guest guest]

Yeah!  This is a great group and group of very positive and intelligent

thinkers!  Tell to sign up for the group.....I would love to hear from

him!

________________________________

From: Armour <suzzienovember@...>

Sent: Sun, February 13, 2011 11:50:14 AM

Subject: Re: [ ] 5 years down the road...

 

Hi Annie:  So glad you have gotten so much out of our group, and that is great

news that is doing good.  We all share things all the time that helps us

to get through another day.  Sometimes its not all CML, but we all support one

another in whatever we are dealing with.

     Some have gotten to meet each other at some point, but I feel like I

know

everybody anyhow.

     I can get on my computer in the middle of the night with a problem, and

by

morning someone has some encouraging advice for me.

     May continue to do so well.  At his age, he will probably see

the

cure before any of us old timers do that are on here.

    Take Care and Keep In Touch

A.

From: Annie B <ibannie@...>

Subject: [ ] 5 years down the road...

Date: Saturday, February 12, 2011, 11:59 PM

 

Hello everyone

I have not posted on here in ages..... especially as has been doing great

and handling his cml so well.

Next month is his 5 year anniversary of his diagnosis and the best results yet

have just come in. We send his pcr to OHSU for testing and this time it came

back with no numbers at all - just a 'weak positive'. What a wonderful way to

start a new year

Along with the great results and the end of the first 5 years, is a huge thank

you to everyone that has been there with and for us along the way. I simply

could not have done it without everyone here, the help, information and friends

found has been, and still is, priceless. Many many times over the years, I have

thought that if others could reach PCRU after a good many years or at least be

stable and live a full life, well, so could . Reading the good stories

here has helped, hearing the rougher ones too has helped me get strong, get

learning and take nothing for granted.

is doing really well on all fronts with only minimal side effects

occasionally. He is relaxed and is an awesome young man..... well, not so young

anymore - 27 years old.. He is trying hard to catch up to me, and succeeding it

seems. Results like these make me young again.

So - thanks again.....you all helped keep me going these past 5 years.

love and light

Annie

's mom

http://livingwithcml.blogspot.com

[Guest guest]

Hi Annie.

I am so happy for you and . Being parents of children that have CML , we

both understand so well the ups and downs that our children have faced. Let's

bring out the champagne and celebrate. Our children have reached the ultimate

goal.

Sandi

>

>

> From: Annie B <ibannie@...>

> Subject: [ ] 5 years down the road...

>

> Date: Saturday, February 12, 2011, 11:59 PM

>

>

>  

>

>

>

> Hello everyone

>

> I have not posted on here in ages..... especially as has been doing

great

> and handling his cml so well.

>

> Next month is his 5 year anniversary of his diagnosis and the best results yet

> have just come in. We send his pcr to OHSU for testing and this time it came

back with no numbers at all - just a 'weak positive'. What a wonderful way to

start a new year

>

> Along with the great results and the end of the first 5 years, is a huge thank

> you to everyone that has been there with and for us along the way. I simply

> could not have done it without everyone here, the help, information and

friends

> found has been, and still is, priceless. Many many times over the years, I

have

> thought that if others could reach PCRU after a good many years or at least be

stable and live a full life, well, so could . Reading the good stories

here has helped, hearing the rougher ones too has helped me get strong, get

learning and take nothing for granted.

>

> is doing really well on all fronts with only minimal side effects

> occasionally. He is relaxed and is an awesome young man..... well, not so

young

> anymore - 27 years old.. He is trying hard to catch up to me, and succeeding

it

> seems. Results like these make me young again.

>

> So - thanks again.....you all helped keep me going these past 5 years.

> love and light

> Annie

> 's mom

> http://livingwithcml.blogspot.com

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear Annie,

What wonderful news! is blessed to have you by his side. We as parents

get older, but we never stop caring for our children. Wish him well for the next

5, 10, many many more years.

 

God Bless,

Jackie S.

From: Annie B <ibannie@...>

Subject: [ ] 5 years down the road...

Date: Saturday, February 12, 2011, 10:59 PM

 

Hello everyone

I have not posted on here in ages..... especially as has been doing great

and handling his cml so well.

Next month is his 5 year anniversary of his diagnosis and the best results yet

have just come in. We send his pcr to OHSU for testing and this time it came

back with no numbers at all - just a 'weak positive'. What a wonderful way to

start a new year

Along with the great results and the end of the first 5 years, is a huge thank

you to everyone that has been there with and for us along the way. I simply

could not have done it without everyone here, the help, information and friends

found has been, and still is, priceless. Many many times over the years, I have

thought that if others could reach PCRU after a good many years or at least be

stable and live a full life, well, so could . Reading the good stories

here has helped, hearing the rougher ones too has helped me get strong, get

learning and take nothing for granted.

is doing really well on all fronts with only minimal side effects

occasionally. He is relaxed and is an awesome young man..... well, not so young

anymore - 27 years old.. He is trying hard to catch up to me, and succeeding it

seems. Results like these make me young again.

So - thanks again.....you all helped keep me going these past 5 years.

love and light

Annie

's mom

http://livingwithcml.blogspot.com