hospital stay

February 15, 2000

Gillian,

Here in the U.S. you can buy these " Medic Alert " bracelets to wear.

They will engrave information on this bracelet that is useful for

doctors in case you can't talk. This info. may include allergies to

medications, your atypical blood count, etc. If you were to wear one of

these bracelets, you wouldn't have to have your health condition's

TATTOOED on your chest!

Vicki

February 15, 2000

Well Gillian,

You can put several bracelets around both wrists, both ankles, etc., and

you wouldn't even have to remove the two ski slopes, HA!!!!

Vicki

December 22, 2000

Jack,

I'm sorry to hear that you had to go to the hospital. I

hope that you will be feeling better real soon.

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

December 22, 2000

Hi Blue

am glad u managed to get to the chatroom today *hugs*

Am so sorry to hear u been spending time in hospital but am glad u are home for chrissy!! We were wondering where u had got to, missed all ur larseoff.'s

Take care hon as always

*hugs*

Lots of love

Nerys

April 9, 2005

I stayed 4 days. It could have been longer but, with my insurance, I could only afford to stay 4 days and, the doctor said I didn't have to stay past that unless there was a problem. Since I live with my parents, they took care of me for the 6 weeks but, I couldn't stay dependent for that long. After a couple weeks, I tried doing things myself slowly. Connie

llk_kmk@... writes:

- In Joint Replacement , Debra Benscoter <debrben@y...> wrote:> Can some of you share the type of THR you had and how long your hospital stay was? I'm trying to get some sort of average even though I know each of us is different. Thanks for sharing if you can. My doc doesn't do the minimally invasive surgery, doesn't have confidence in the outcome. > > Deb

April 9, 2005

Thanks Jane, I hope I get a bit more than 3 days with my left leg being a problem as well. But I will also be more than ready to get home to familiar surroundings. I hope you are doing well after your surgery. Everyone here has been so nice and informative.

Debjane <laeticia_demorte@...> wrote:

Hi Debi have had both of my hips resurfaced with Nirmingham hip resurfacing devices. People are usually in three days in Us for similar. I am in UK and we tend to stay in longer, I was in a week both times, my wound wasn't quite dry so they kept me until it was.jane - in Wales-- In Joint Replacement , Debra Benscoter <debrben@y...> wrote:> Can some of you share the type of THR you had and how long your hospital stay was? I'm trying to get some sort of average even though I know each of us is different. Thanks for sharing if you can. My doc doesn't do the minimally invasive surgery, doesn't have confidence in the outcome. > > Deb> > > ---------------------------------> Do you

?> Small Business - Try our new resources site!

April 9, 2005

Another thing is that each hip is different, even for the

same person. I spent 3 weeks in hospital with my primary

hip (first in 1990). I had another medical condition and

was fainting regularly. They wouldn't send me home

fainting when I stood up. But that hip was pain free after

the first few days.

With the revision I was in hospital 8 days (Aug 2004). But

at 7 months I still have to manage pain, although the last

few days have been so much better.

Go at your pace, and remember it is not a competition to

get there fastest.

Exercise will help. While the exercises are painful they

are the way to strengthen the muscles. Strong muscles hold

the hip in the right place and reduce the pain levels.

Good luck, we are here for you.

Aussie Margaret

April 10, 2005

Yes I am lucky to be able to still live with them. Right now I would not be able to manage by myself with this pain. Connie

debrben@... writes:

Thanks Connie, You are lucky to have parents to help you. I have good neighbors and great kids. My hubby is sooooo helpful. Deb

April 10, 2005

Sounds like you had quite a time. Thanks for taking the time to

respond to my post. I understand that revisions are tougher to

recuperate from. I hope you have some pain free days in the future.

Deb

> Another thing is that each hip is different, even for the

> same person. I spent 3 weeks in hospital with my primary

> hip (first in 1990). I had another medical condition and

> was fainting regularly. They wouldn't send me home

> fainting when I stood up. But that hip was pain free after

> the first few days.

>

> With the revision I was in hospital 8 days (Aug 2004). But

> at 7 months I still have to manage pain, although the last

> few days have been so much better.

>

> Go at your pace, and remember it is not a competition to

> get there fastest.

>

> Exercise will help. While the exercises are painful they

> are the way to strengthen the muscles. Strong muscles hold

> the hip in the right place and reduce the pain levels.

>

> Good luck, we are here for you.

>

> Aussie Margaret

April 10, 2005

Thanks Connie, You are lucky to have parents to help you. I have good

neighbors and great kids. My hubby is sooooo helpful.

Deb

> > Can some of you share the type of THR you had and how long your

> hospital stay was? I'm trying to get some sort of average even

though

> I know each of us is different. Thanks for sharing if you can. My

doc

> doesn't do the minimally invasive surgery, doesn't have confidence

in

> the outcome.

> >

> > Deb

April 10, 2005

Deb, My hospital stay was three nights, my scar is 11 inches,I have ceramic on ceramic incremented.My OP was not impressed with minimally invasive surgery said he needed room to see what he was doing. I am 70 and weigh 140 lbs.

Bobby -5 1/2 weeks PO ,OPS Dr. Don , Austin, TX.Can some of you share the type of THR you had and how long your hospital stay was? I'm trying to get some sort of average even though I know each of us is different. Thanks for sharing if you can. My doc doesn't do the minimally invasive surgery, doesn't have confidence in the outcome. Deb

April 10, 2005

> Can some of you share the type of THR you had and how long your

> hospital stay was? I'm trying to get some sort of average even though

> I know each of us is different. Thanks for sharing if you can. My doc

> doesn't do the minimally invasive surgery, doesn't have confidence in

> the outcome.

In the UK, the standard assumption for a THR is that you'll have about

a seven day stay in hospital. My last one (a revision), I was in for 10

days, because I was severely anaemic post-op and took a few extra days

to get walking because I was so dizzy when vertical.

April 10, 2005

---Deb

Not all revisions are tougher to recoup from. Mine was easier than

the original THR. But then mine was only 6 years old and the stem was

loosend due to an auto accident. The cup and liner were fine and

just the ball and cemented stem were replaced.

As for hospital stays, for the LTHR I was in 7 days. Had the THR

done Friday, had it redone on Monday night. For the RTHR I was in 3

days and for the RTHR revsision I was in overnight. For the total

shoulder replacements I was in 2 days for the LTSR and overnight for

the RTSR. For pain I used toradol in recovery or at night. Then

plan tylenol and muscle relaxers and Ativan. Pain meds make me sick

and do nothing for the pain itself. I tried them all for the first

THR since it was dislocated most of the time. Nothing was better

than the pain meds.

When my stem loosened it took the docs over a year and a half to see

it on xray. But it hurt. So I can feel for those of you whose bone

did not grow into the implant. Glad mine are cemented!

Welcome back to all who have had surgeries. Good luck to all that

are preparing for surgeries.

Sue

In Joint Replacement , " Deb " <debrben@y...>

wrote:

>

> Sounds like you had quite a time. Thanks for taking the time to

> respond to my post. I understand that revisions are tougher to

> recuperate from. I hope you have some pain free days in the future.

> Deb

>

> > Another thing is that each hip is different, even for the

> > same person. I spent 3 weeks in hospital with my primary

> > hip (first in 1990). I had another medical condition and

> > was fainting regularly. They wouldn't send me home

> > fainting when I stood up. But that hip was pain free after

> > the first few days.

> >

> > With the revision I was in hospital 8 days (Aug 2004). But

> > at 7 months I still have to manage pain, although the last

> > few days have been so much better.

> >

> > Go at your pace, and remember it is not a competition to

> > get there fastest.

> >

> > Exercise will help. While the exercises are painful they

> > are the way to strengthen the muscles. Strong muscles hold

> > the hip in the right place and reduce the pain levels.

> >

> > Good luck, we are here for you.

> >

> > Aussie Margaret

April 10, 2005

i had minim inv and was in 5 days i had 2 extra days because i was considered too young to go to rehab facility went directly homekatie cooke <heyoka@...> wrote:

> Can some of you share the type of THR you had and how long your > hospital stay was? I'm trying to get some sort of average even though > I know each of us is different. Thanks for sharing if you can. My doc > doesn't do the minimally invasive surgery, doesn't have confidence in > the outcome.In the UK, the standard assumption for a THR is that you'll have about a seven day stay in hospital. My last one (a revision), I was in for 10 days, because I was severely anaemic post-op and took a few extra days to get walking because I was so dizzy when vertical.

April 10, 2005

Thanks Bobby,

I don't have a care about the size of my scar, not planning on doing any swimsuit pagents soon.LOL At 51 I just want to be able to take a step and not be afraid of falling or having to take a pain med to do anything else. You are inspiring and I want to thank you for taking the time to share. Thanks again, DebBobby Green <bgreen@...> wrote:

Deb, My hospital stay was three nights, my scar is 11 inches,I have ceramic on ceramic incremented.My OP was not impressed with minimally invasive surgery said he needed room to see what he was doing. I am 70 and weigh 140 lbs.

Bobby -5 1/2 weeks PO ,OPS Dr. Don , Austin, TX.Can some of you share the type of THR you had and how long your hospital stay was? I'm trying to get some sort of average even though I know each of us is different. Thanks for sharing if you can. My doc doesn't do the minimally invasive surgery, doesn't have confidence in the outcome. Deb

April 10, 2005

Hi Phyllis

The more members of this group I hear from the more ready I am to have surgery and get on with things. You give me hope for getting on with what I love to do. Right now I can't even take the puppy my hubby got me out to walk. He will be my rehab companion and which at this point I am looking forward to getting done with. Thanks Phyllis

DebPhyllis <pineledge@...> wrote:

I stayed 3 days but insurance OK'ed 4. Plan was to go to rehab but atthe last minute convinced OS to let me go home. (rehab place closedto visitors due to flu outbreak, I sure did not want to get the flu).Husband retired and able and willing to do whatever needed to keep mehome. I had ceramic/ceramic not cemented, weight bearing as tolerated.They sent me home with raised toilet and walker with in hospital 3 Ptsessions to walk and do stairs and get in and out of bed. Home pt for4 weeks 2 times a week then outpatient pt 3 times. Once to get theexersizes, 2 wks later to evaluate that I was doing them and them afinal one to be discharged from pt. I did not want any outpt pt as Ifelt I was doing eveything I needed already. We agreed on the 3 withthe plan if I was not improving I would go 2-3 times a

week like theywanted.Phyl

January 24, 2006

Dr Patti got my insurance to agree to 4 nights but I

was doing so well, alledgely, they sent me home in 24

hours. But I was happy to get out of the UCSF

hospital, it was not a comfortable place to stay. I

stayed the second night in the hotel, then went home

where I stayed in bed for several days. I was able to

control my pain much better at home.

Dave

--- Deborah L <deborah_Lattimore@...> wrote:

>> O.K. Are these guys really going to throw me out

> Thursday

> morning? Peggy! Sandy! did you get thrown out the

> next

> day? Jeesh! Seems SO fast to me.

__________________________________________________

September 20, 2006

Hi All...

Just wanted to let everyone know I just got out of the hospital. I had a DVT

in my left leg...a complication from my broken foot. Luckily the doc caught it

and now I am on blood thinners for the next 9 months. It no fun...my whole left

leg swelled up to almost twice its normal size...and yes...it was very painful.

I get to give myself shots in the stomach until Saturday...and then I am on the

blood thinner until June or so of next year. They also gave me something to

stabilize my BP...as it wasn't high...it was just irratic. One hour it was

high...then next two it was fine. So he decidede to put me on a mild BP

medicine to stabilize it...at least thats what he said.

Larry Holmack

KarLa Bichon Frise

Houston Texas Bichondaddy1057@...

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

September 20, 2006

Hi Larry,

Glad to hear the doctors caught your problem so now you can begin the

healing process. Your situation with having to be on meds for so

long and there being no quick solution must be difficult. We call

face struggles every day of our lifes and just have to adjust.

Changes in our health can be frustrating and I hope you have a good

support system to help you during this time.

I noticed that you live in Houston and I also live in the Houston

area. Right now I don't get out much, but if you need some help let

me know. I'm kind of stuck in a rut and still adjusting to being

home all the time. Correspond directly with me through my email if I

can be of any assitance.

Hope you heal quicker than the doctors predicted. You will be in my

prayers.

>

> Hi All...

>

> Just wanted to let everyone know I just got out of the hospital.

I had a DVT in my left leg...a complication from my broken foot.

Luckily the doc caught it and now I am on blood thinners for the next

9 months. It no fun...my whole left leg swelled up to almost twice

its normal size...and yes...it was very painful. I get to give

myself shots in the stomach until Saturday...and then I am on the

blood thinner until June or so of next year. They also gave me

something to stabilize my BP...as it wasn't high...it was just

irratic. One hour it was high...then next two it was fine. So he

decidede to put me on a mild BP medicine to stabilize it...at least

thats what he said.

>

> Larry Holmack

> KarLa Bichon Frise

> Houston Texas Bichondaddy1057@...

>

> ---------------------------------

> Stay in the know. Pulse on the new .com. Check it out.

>

September 5, 2010

Hi ,

Our daughter has been hospitalized for her disease several times. She is a

systemic. We have always kept a diary on n's disease and I write down any

questions that I may have in the diary. Then as the physician answers the

question, I write the answer down.

I would bring n only to a Children's Hospital. I have never really had to

demand anything for her. Yes, I do believe you have to be an strong advocate

for anyone admitted to a hospital. We have never left our children in the

hospital alone. We double team it and stay with her around the clock. If I

become concerned with something, I nicely alert the nurses or n's

physician. We have had only very good experiences with n in the hospital.

Now I am a pretty intense, protective, anal mother. I take charge of everything

in regards to n's medical care. I usually write everything down in her

diary, etc. But the one time n was in the hospital for an extended

stay-two weeks- I realized the second day that my little, handy-dandy, diary was

not going to be any good to me in the hospital. Systemics can be very

complicated, and I just tossed the diary up in the air and put my trust in the

physicians.

The physicians did know to have a copy of all labs for me, as I followed them

very closely. But they knew which labs to order. I would always know about all

tests and why, and would be given all of the results quickly. I have a very

good relationship with n's ped rheumy, and we worked very closely together.

I think the key is to keep very open communication with the nurses and your

physician. And the nurses are on the front line. Be kind to them. We always

brought them food or candy. They are the ones really taking care of your little

angel. A good nurse is indispensable. But don't forget the respiratory

therapists, technicians, etc.

I wish you luck and hope you have as good of experience as we have always had in

the hospital. Take care, (n, 21, systemic)

On Sep 4, 2010, at 11:06 PM, Yost wrote:

>

> Hello,

>

> I need help (obviously) about what to expect and what to demand for an

upcoming hospital stay. My daughter, Lily, who turned 3 a week ago, will be

hospitalized at UCLA for 5 days (if not more). I have my list of what I want

looked at, which may not be realistic. I also don't know how they are going to

see all the things I see at home. By the time a nurse actually arrives, her

hives, temp, swelling may be gone or not as bad. I will bring a camera, but it's

just not the same as them seeing it firsthand. We are going in to find out what

is going on, head to toe, inside out.

>

> Are there tests to expect? Are there tests you wish you had done the first

time around? Since Lily was formally diagnosed a year ago (symptoms started

before she turned 1), she has not had more than a day here and there pain free.

She has progressively gotten worse, yet pushes through it more than I think she

should. I don't stop her much, but I do worry. I worry that her pain threashold

is too high and more damage is being done because of it. Lately Lily has stopped

herself sooner and complained of it hurting. MInd you, when she does complain,

she has probably done more than she should have. Three months ago she moved

non-stop, but now I cheered when she walked 2 blocks.

>

> How many of you were told your kids had cancer or leukemia first or even

during treatment issues? Cancer has come up and I'm learning that it's more

common than not to have it be an issue and ruled out.

>

> Just some of the issues I have thought of so far (aside from the joint

issues):

> serious sleeping issues (wakes up most nights, several times a night screaming

in pain and is red/hot/swollen)

> Hives on her face/neck

> Cheeks that swell and get hot for hours

> Her eyes (the swelling and hives have often surrounded the eye)

> Hives on her neck even though they have been dismissed as nothing

> Dietary issues (she has been 30 lbs since before November) The times we are

off MTX, she eats

> allergic reactions to antibiotics

> possible allergic reaction to MTX (severe mouth sores, lip sweeling, cheek

swelling even on leucovorin)

> I want Lily started on Enbrel....especially while we are monitored. Insight on

starting a toddler with allergic reactions to other stuff on it?

> Her behavior changes the 2-3 days after she takes MTX

> She has GI issues...has had from birth. But, now it's Ceclic Vomiting Sydrome

(constant throwing up, temps 106+ for days)

> How do you test organ damage other than blood tests. Her blood tests are

always off and never make sense or coralate to what it going on. Her PCP has

noted many times the inflammation at the time of draw and it doesn't show up,

vice versa.

> She has inner ear inflammtion that has created a host of other

issues....including speech delay and pain

>

> I want to get her as healthy as possible, especially before the cold season

comes. Last year was horrible as she was sick the vast majority of it.

>

> thanks for any and all help, advice, warnings, tidbits....

>

> Thanks:)

>

> mama to Lily, 3 who has systemic onset extended pauci JIA, ear issues, GI

issues....and who knows what else

>

September 5, 2010

just another jra mom wanting to tell you that i hope everything goes okay, and

that you get the answers you need and want. thats the bad thing about it, jra is

a sneaky little thing that likes to play hide n seek.Â one day i am going to

get him and defeat him for my 14 year old daughter.Â prayers are with you!!!!!!

shelly, mom to ciarra, sojia, 14yrs old

From: Yost <s-yost@...>

Subject: hospital stay

Date: Sunday, September 5, 2010, 2:06 AM

Â

Hello,

I need help (obviously) about what to expect and what to demand for an upcoming

hospital stay. My daughter, Lily, who turned 3 a week ago, will be hospitalized

at UCLA for 5 days (if not more). I have my list of what I want looked at, which

may not be realistic. I also don't know how they are going to see all the things

I see at home. By the time a nurse actually arrives, her hives, temp, swelling

may be gone or not as bad. I will bring a camera, but it's just not the same as

them seeing it firsthand. We are going in to find out what is going on, head to

toe, inside out.

Are there tests to expect? Are there tests you wish you had done the first time

around? Since Lily was formally diagnosed a year ago (symptoms started before

she turned 1), she has not had more than a day here and there pain free. She has

progressively gotten worse, yet pushes through it more than I think she should.

I don't stop her much, but I do worry. I worry that her pain threashold is too

high and more damage is being done because of it. Lately Lily has stopped

herself sooner and complained of it hurting. MInd you, when she does complain,

she has probably done more than she should have. Three months ago she moved

non-stop, but now I cheered when she walked 2 blocks.

How many of you were told your kids had cancer or leukemia first or even during

treatment issues? Cancer has come up and I'm learning that it's more common than

not to have it be an issue and ruled out.

Just some of the issues I have thought of so far (aside from the joint issues):

serious sleeping issues (wakes up most nights, several times a night screaming

in pain and is red/hot/swollen)

Hives on her face/neck

Cheeks that swell and get hot for hours

Her eyes (the swelling and hives have often surrounded the eye)

Hives on her neck even though they have been dismissed as nothing

Dietary issues (she has been 30 lbs since before November) The times we are off

MTX, she eats

allergic reactions to antibiotics

possible allergic reaction to MTX (severe mouth sores, lip sweeling, cheek

swelling even on leucovorin)

I want Lily started on Enbrel....especially while we are monitored. Insight on

starting a toddler with allergic reactions to other stuff on it?

Her behavior changes the 2-3 days after she takes MTX

She has GI issues...has had from birth. But, now it's Ceclic Vomiting Sydrome

(constant throwing up, temps 106+ for days)

How do you test organ damage other than blood tests. Her blood tests are always

off and never make sense or coralate to what it going on. Her PCP has noted many

times the inflammation at the time of draw and it doesn't show up, vice versa.

She has inner ear inflammtion that has created a host of other

issues....including speech delay and pain

I want to get her as healthy as possible, especially before the cold season

comes. Last year was horrible as she was sick the vast majority of it.

thanks for any and all help, advice, warnings, tidbits....

Thanks:)

mama to Lily, 3 who has systemic onset extended pauci JIA, ear issues, GI

issues....and who knows what else

September 7, 2010

HI -

Â

First - I just want to offer my hope that you get the answers you are

seeking.... and that it all results in treatment that will turn things around

for Lily.

Â

When Caitlin was hospitalized at 3 - the tests we had were part of the process

of elimination of other diseases towards the final diagnosis of systemic JIA.Â

So, since Lily has been diagnosed, I'm not sure if they will be doing any of

those tests.Â Caitlin had a spinal tap to rule out meingitis, an MRI, x-rays,

echocardiogram, ekg, bone scan and numerous blood tests.Â We were able to rule

out leukemia just before they ordered the marrow biopsy - so she didn't have to

do that.

Â

My one piece of advice is the same for any hospital stay .... You'll have

different specialists, doctors, nurses etc... all seeing your girl.Â Sometimes,

one hand doesn't know what the other is doing... and it's so frustrating when

tests aren't bundled. When you wake your little one for a blood draw... and

finally get her settled back to sleep.... and then ten minutes later somebody

comes in to do an exam or take vitals... it's very frustrating - not too mention

exhausting.Â So - I got in the habit of asking fisrt thing in the morning about

upcoming tests and seeing which could be scheduled together.Â I also was not

afraid to ask somebody to come back if they showed up while Caitlin was getting

much needed sleep.

Â

I'm sure UCLA has a great Child Life Department.Â Hopefully, they will visit

with toys, games etc to make Lily's stay easier.

Â

For you - it sounds trivial - but make sure you have plenty of water available.

The conditioned air in hospitals in dry - and you'll be repeating Lily's story

over and over again....

Â

Best hopes for great results and brighter days for Lily....

Â

Colleen - mom to Caitlin, 12, systemic

From: Yost <s-yost@...>

Subject: hospital stay

Date: Saturday, September 4, 2010, 11:06 PM