Hospital

April 23, 2001

Ginny,

Best of Luck tomorrow. Please keep us posted.

Hugs,

Bernardine

TX

> Just in case anyone is interested...

>

> My surgery tomorrow will be at Durham Regional. It's the closest to

> my home.

>

> -Ginny

April 23, 2001

our prayers are with you ---and hope all is going to be ok we want details

later gater di

Re: hospital

> Ginny,

> Best of Luck tomorrow. Please keep us posted.

> Hugs,

> Bernardine

> TX

>

> > Just in case anyone is interested...

> >

> > My surgery tomorrow will be at Durham Regional. It's the closest to

> > my home.

> >

> > -Ginny

>

January 23, 2003

My rheumy told me 'the hospital is really not a safe place to be.'

W

[ ] Re: sorry

> "I think we better send you home before we make you> any more sick!" Ruth,Had many times I have told my husband "Get me out of this hospital - I think they are killing me!"I think it is the food. :)Love,Carole K

January 11, 2006

But Jarom, lookat how much more the Freedom does compared to the 3G.

And it really is not that much bigger when you put it all in perspective.

*---* *---* *---* *---* *---*

A clear conscience is usually the sign of a bad memory.

--

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

May 16, 2006

Helen, yes a balloon dilation would be better than nothing at all if it is done correctly. The other issue is that most of us that have gone that route end up having the surgery. The dilation's can cause scar tissue to form and if the disease is not treated properly the "E" could get really distended and possibly collapse on its self. In that case a partial or full removal would need to happen. I think I would want to try and avoid that if it was me. At this point surgery seems to be the best coarse of treatment for this disease. At the end of the day though it is up to Tom and you to decide what is best for you and him.

in Suffolk

In a message dated 5/16/2006 8:53:31 PM GMT Standard Time, smith5210@... writes:

Hi I took Tom my son to another A specalist today as Hall Hospital, Dudley, England. Mr the consultant was very positive and has delt with A for the last 20 years. He no longer beleives in surgery, but does balloon dialation with 3 different size balloons. Starting with the smallest and maybe going up a size if needed later on. Mr has given us a few weeks to decided if we want Tom to go ahead with the procedure. Tom does seem keen, guess he must be getting fed up with it now!!!Will let you know what we decide, any one found the balloon dialation to be better than nothing at all.thanks Helen (mom)

May 16, 2006

Hi Helen,

As a US citizen, perhaps I am not familiar with what is meant by "Mr , the consultant?" What is he? What kind of a consultant? What is his background? Not a doctor, for sure! Why does he no longer believe in the surgery? At one time he did believe in the surgery but no longer does for some reason. Why?

And he is the one who performs the balloon dilatations? But, he is not the person who does surgery? If Tom has surgery, does Mr. get any revenue from it? Is there a profit motive, possible conflict of interest?

To answer your question as it was precisely asked: I think that everybody on this Board would agree that doing a balloon dilatation is better than doing nothing at all. Something must be done to protect the esophagus from deteriorating. This is not a disease that you can ignore. Medical intervention is essential.

I see that has once again gotten his response out faster than I did. Wait until he goes back to work and we'll see how fast he is!

My bottom line advice to you Helen is to obtain as much information on the pros and cons of balloon dilatations versus Heller Myotomy, and come to your own conclusion after doing your own due diligence. cited some good reasons in his response. Please try to read many of the posts here and get a second or third opinion if you are able to. How old is Tom?

In a message dated 5/16/2006 3:53:31 P.M. Eastern Daylight Time, smith5210@... writes:

Hi I took Tom my son to another A specialist today as Hall Hospital, Dudley, England. Mr the consultant was very positive and has dealt with A for the last 20 years. He no longer believes in surgery, but does balloon dialation with 3 different size balloons. Starting with the smallest and maybe going up a size if needed later on. Mr has given us a few weeks to decide if we want Tom to go ahead with the procedure. Tom does seem keen, guess he must be getting fed up with it now!!!Will let you know what we decide, any one found the balloon dialation to be better than nothing at all.thanks Helen (mom)

May 16, 2006

Dear Helen,

Oh, you are in a tough place trying to make decisions for your son. But I almost jumped out of my chair when you said "he no longer believes in surgery."

I have to say, I don't think I have ever heard that before. Besides the fact the word "believes" makes me think of religious things. Maybe he means recommends... just a thorn in my side.

Almost all controversies were around whether to do a dialation or surgery, and the tide is turning among the seeminly best informed gi's, who would be losing income, that surgery is the best first approach given no unusual conditions.

For us, as patients, sometimes we just can't face surgery and prefer dialations, but I haven't ever heard a gi or surgeon say surgery isn't a good option (for most people with consideration for other illnesses and age and general condition.)

I'd recommend running, running, running, don't let the door hit you in the back, to another doctor.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

Check out the above website. Type in achalasia and then later, add some other words. This is a summary of articles from all over the world.

The current opinions vary as to wrap or no wrap, type of surgery, type of wrap and those issues. Not to do surgery as a preferred treatment isn't even controversial as far as I've learned.

I don't mean to overwhelm you, but I couldn't help but respond.

Sandy in So Cal.... tomorrow is the 2nd anniversary of my myotomy surgery. I just ate a bunch of raw celery and can eat everything... highly recommend surgery.

>> Hi I took Tom my son to another A specalist today as Hall > Hospital, Dudley, England. Mr the consultant was very positive > and has delt with A for the last 20 years. He no longer beleives in > surgery, but does balloon dialation with 3 different size balloons. > Starting with the smallest and maybe going up a size if needed later > on. Mr has given us a few weeks to decided if we want Tom to go > ahead with the procedure. Tom does seem keen, guess he must be getting > fed up with it now!!!> Will let you know what we decide, any one found the balloon dialation > to be better than nothing at all.> thanks Helen (mom)>

May 16, 2006

wrote:

And he is the

one who performs the balloon dilatations? But, he is not the person

who does surgery? If Tom has surgery, does Mr. get any revenue

from it? Is there a profit motive, possible conflict of interest?

A good point. I remember when I first talked to my PCP about doctors

that recommended dilations and surgeons that recommended myotomies. His

first response was "surgeons" are in the business of doing surgeries.

notan

May 22, 2006

-

The balloon dilation should buy you some time. How much can not be

determined. Everyone here gets a different response to the dilation.

For me it was 2 weeks, others can get many months to years. I was

greatful for it coz I went from no food and liquid in a week to be able

to eat the day after I was diagnosed with A. It gave me time to get the

follow up tests and " digest " what was happening to me and prepare for

surgery.

All the best.

-- In achalasia , " tom210491 " <smith5210@...> wrote:

>

> Hi I took Tom my son to another A specalist today as Hall

> Hospital, Dudley, England. Mr the consultant was very positive

> and has delt with A for the last 20 years. He no longer beleives in

> surgery, but does balloon dialation with 3 different size balloons.

> Starting with the smallest and maybe going up a size if needed later

> on. Mr has given us a few weeks to decided if we want Tom to go

> ahead with the procedure. Tom does seem keen, guess he must be

getting

> fed up with it now!!!

> Will let you know what we decide, any one found the balloon dialation

> to be better than nothing at all.

> thanks Helen (mom)

>

May 22, 2006

I totally agree with what said that dilatation gives you a

chance of some normality in eating while you decide on the next step

to take if that becomes necessary. I had a 2nd dilatation back in

February and I would say it was almost 100% successful in that I can

now eat & drink anything I want and have no other symptoms

i.e.coughing,regurgitating etc.

This is not to say that I think its all gone for good. I'm well

prepared now for the possibility of a day anytime in the future when

the symptoms start appearing again. Until then its given me a new

lease of life and the energy to carry on.

Good luck & best wishes for the outcome whatever decision is reached.

in Essex xxx

October 24, 2009

Dear Lynn ,There is no way that I find Your attack by these demons acceptable

and I am very sorry you are suffering this so much the past couple days or

more...That sounds excrutiating to have them in Your urethra etc....I was

feeling sorry for myself with my face being infested...really Its got to get

better and You are a good person that should not be suffering so much...My

prayers are with You and I justt hope You can get some sleep without being

attacked...Hugs Rose

>

> Hi all

>

> First let me say the bed was crawling and I had to use alot of Gold Bond and

extra vicks on private parts. Got to sleep in til 7 a.m. and went to do my

shower routine. Using the toilet I notice dark blood. After shower use the

toilet and dark blood again. Next thing I know I have to pee often and the blood

is thicker and darker each time. I end up in the emergency room and when they

had me pee into a cup it was blackish lookin pee. Scared the living hell out of

me. No pain. some intestinal discomfort and some pinching in the uritha tract as

I go potty. Well the test come back positive for an infection. Sent me home with

some hard core antibiotics that make me sick when I take them. No energy to

fight the dam bugs and diarreah from the medicine. When I first take it I feel

like a space cadet and get tremors or shivers from it. I am completely

discusted. Guess I can no longer use Vicks or vasiline to protect my private

parts. I am guessing the vasiline held in germs from going potty long enough to

start a urniary infection. I have no idea what I am going to do tonight to keep

them from climbing into body parts. At least twice in the last 8 months I have

had them try and climb into the Uritha. It hurt like hell when they tried going

into that area. I am lost today even though I do not have alot of crawling

today, but more than yesterday. I never want to see night time again, because

night time is nothing but a living hell with no exscape.

>

> In light Lynn

>

October 26, 2009

Lynn,

As crazy as this sounds, and I'm not a medical expert by any means, I believe it

really helps the entire body to hydrate more (drink more water).

I know, at first glance, this might scare you- being that the buggers have

infested your urinary tract, etc., but it might also flush the critters from

that part of your body (as well as the liver, and the rest of your system).

It might also be a good idea to support your body (after taking the

antibiotics), to ingest some probiotics (acidophilus, etc.). These will not only

help normalize digestion, but reduce internal fungal growth.

Good luck,

-D.

- In bird mites , " Lynn " <torpedolynn@...> wrote: