Re: Curing CML with imatinib�a dream come true?

[Guest guest]

Very intersting. This says much the same as the French study I heard about at a

recent CML conference. The big question is: will one have the courage to take

the chance of discontinuing imatinib? They say they can arrest the disease if it

comes back but it's a bit dodgy isn't it? I think I might be eligible for this

trial but will wait until I'm asked! It would be lovely to be rid of side

effects but I don't wanna die just yet. What do other people think? Is there

anyone else who thinks they might be able to do away with the meds?

Regards, Shelagh

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>

> See this recent article:

>

> Hematology: Curing CML with imatinib�a dream come true?

> <http://www.nature.com/nrclinonc/journal/v8/n3/full/nrclinonc.2011.17.ht\

> ml>

> February 1, 2011, Nature Reviews Clinical Oncology

> <hthttp://www.nature.com/>

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> Other link: http://www.cmleukemia.com/cure-possible-for-cml.html

> <http://www.cmleukemia.com/cure-possible-for-cml.html>

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[Guest guest]

Hi All.

My daughter, Robyn, is PCRU and does continue to suffer from the side effects of

Gleevec. However, she would not go in to the trial to eliminate Gleevec. She is

too afraid of getting out of PCRU and possibly developing a resistance to the

Gleevec when reintroduced -if need be. So, she will continue to suffer the

side-effects. However, they seem to have lessened somewhat or she is getting

used to it.

Sandi

> >

> >

> > See this recent article:

> >

> > Hematology: Curing CML with imatinib�a dream come true?

> > <http://www.nature.com/nrclinonc/journal/v8/n3/full/nrclinonc.2011.17.ht\

> > ml>

> > February 1, 2011, Nature Reviews Clinical Oncology

> > <hthttp://www.nature.com/>

> >

> >

> > Other link: http://www.cmleukemia.com/cure-possible-for-cml.html

> > <http://www.cmleukemia.com/cure-possible-for-cml.html>

> >

> >

> >

> >

> >

[Guest guest]

Hi Sandi,

Based on the STIM trial results, there is little chance that she will become

resistant to Gleevec.

My concern is her QOL. There are several other TKIs that work as well as

Gleevec without nasty sided effects. I would question her doctor as to why

he hasn't tried any of them.

It may be time to get a second opinion from a CML specialist.

Zavie

On Wed, Mar 9, 2011 at 2:51 PM, Sandy <sandi3533@...> wrote:

>

>

> Hi All.

> My daughter, Robyn, is PCRU and does continue to suffer from the side

> effects of Gleevec. However, she would not go in to the trial to eliminate

> Gleevec. She is too afraid of getting out of PCRU and possibly developing a

> resistance to the Gleevec when reintroduced -if need be. So, she will

> continue to suffer the side-effects. However, they seem to have lessened

> somewhat or she is getting used to it.

> Sandi

>

>

>

> > >

> > >

> > > See this recent article:

> > >

> > > Hematology: Curing CML with imatinib�a dream come true?

> > > <

> http://www.nature.com/nrclinonc/journal/v8/n3/full/nrclinonc.2011.17.ht\

> <http://www.nature.com/nrclinonc/journal/v8/n3/full/nrclinonc.2011.17.ht>>

> > ml>

> > > February 1, 2011, Nature Reviews Clinical Oncology

> > > <hthttp://www.nature.com/>

> > >

> > >

> > > Other link: http://www.cmleukemia.com/cure-possible-for-cml.html

> > > <http://www.cmleukemia.com/cure-possible-for-cml.html>

> > >

> > >

> > >

> > >

> > >