Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Thanks for your feedback. We are not seeing him yet. He just got the packet. I am wondering whether we should that the " autism " labs are accurate and treat it the way they want us to. I am not sure how long we will be waiting for an appointment. We don't want to mess up anything in his protocol by treating it the wrong way or treating something that does not exist. Does anyone know what the behavioral or physical effects of having a parasite could be? Cheryl Lowrance wrote: > I agree with that Dr. G and your ped. would more than likely > treat the parasites. The only thing I wanted to add is that Dr. G > may want to do his own test, though. He doesn't trust the " autism " > labs. > > Cheryl > > On Apr 8, 2008, at 11:22 AM, Caroline wrote: > > > We just got some testing done by Doctors Data that said that our > > daughter has a parasite (Dientamoeba fragilis trophs). Does Dr. G. > > treat parasites. What does he say about it. It has been suggested that > > we put her on Metraonidazole Benzoate. We know nothing about this and > > would really appreciate any information and/or advice!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Now our daughter's pediatrician has suggested that we not treat for the parasite because it is a very common and often harmless one. And Pfeiffer (like DAN) wants us to treat it. I don't know what to do!! Any ideas?? Cheryl Lowrance wrote: > I agree with that Dr. G and your ped. would more than likely > treat the parasites. The only thing I wanted to add is that Dr. G > may want to do his own test, though. He doesn't trust the " autism " > labs. > > Cheryl > > On Apr 8, 2008, at 11:22 AM, Caroline wrote: > > > We just got some testing done by Doctors Data that said that our > > daughter has a parasite (Dientamoeba fragilis trophs). Does Dr. G. > > treat parasites. What does he say about it. It has been suggested that > > we put her on Metraonidazole Benzoate. We know nothing about this and > > would really appreciate any information and/or advice!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Thank you for sharing your experience and decision with this. What is Diflucan?? My gut feeling is to treat it. They found poor beneficial bacteria which I wonder could be compromised by the parasite. kavita mallik wrote: > this is my opinion (not being medical by nature), My son last > year had some cysts ie. eggs. His pediatrician said not too treat it, > but I went ahead while he was on Diflucan. We continued on the > protocol and had nooo problems. Its your decision but I believe its > better to get rid of anything that in the GI system that can be > harmful. Go with your gut feeling. Kavita > > Re: parasites > > Now our daughter's pediatrician has suggested that we not treat for the > parasite because it is a very common and often harmless one. And > Pfeiffer (like DAN) wants us to treat it. I don't know what to do!! > > Any ideas?? > > > > Cheryl Lowrance wrote: > > > I agree with that Dr. G and your ped. would more than likely > > treat the parasites. The only thing I wanted to add is that Dr. G > > may want to do his own test, though. He doesn't trust the " autism " > > labs. > > > > Cheryl > > > > On Apr 8, 2008, at 11:22 AM, Caroline wrote: > > > > > We just got some testing done by Doctors Data that said that our > > > daughter has a parasite (Dientamoeba fragilis trophs). Does Dr. G. > > > treat parasites. What does he say about it. It has been suggested that > > > we put her on Metraonidazole Benzoate. We know nothing about this and > > > would really appreciate any information and/or advice!! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Thank you for this feedback. This makes a lot of sense to me. I was wondering if it might be different with our kids but I hadn't heard anything specific. Kristy Nardini wrote: > The other thing I was told about parasites is that at any given time, > 1 in 5 > children has them, but they won't show any signs because their immune > systems aren't compromised. In our kids, however, they often are affected > negatively because their immune systems are compromised. > > Kristy > > Re: parasites > > Now our daughter's pediatrician has suggested that we not treat for the > parasite because it is a very common and often harmless one. And > Pfeiffer (like DAN) wants us to treat it. I don't know what to do!! > > Any ideas?? > > > > Cheryl Lowrance wrote: > > > I agree with that Dr. G and your ped. would more than likely > > treat the parasites. The only thing I wanted to add is that Dr. G > > may want to do his own test, though. He doesn't trust the " autism " > > labs. > > > > Cheryl > > > > On Apr 8, 2008, at 11:22 AM, Caroline wrote: > > > > > We just got some testing done by Doctors Data that said that our > > > daughter has a parasite (Dientamoeba fragilis trophs). Does Dr. G. > > > treat parasites. What does he say about it. It has been suggested that > > > we put her on Metraonidazole Benzoate. We know nothing about this and > > > would really appreciate any information and/or advice!! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 If there were lab results (ie elevated eosiniphils and any chronic iron anemia assuming it was a parasite known to cause anemia or other deficiencies) and illness resulting from the parasite, he would treat it. If it is a non-invasive and unharmful one, I do not know his opinion - it hasn't come up on the list before. But he would only use anti-parasitic prescriptions as opposed to a natural therapy. Regarding your pediatrician suggesting you not treat it, did she have a reason other than 'it's not important'? Few pediatricians feel that treating gut yeast is important either, and maybe in a lot of typical and healthy kids, it's not. But if there are negatives associated with the medication used, then I would wait and consult with Dr Goldberg. If it's not considered pathogenic, then there is no harm in waiting. BTW, the anemia-thing isn't a true test in our kids, because so many are anemic (maybe not found in a CBC but shows up in an iron/ferriten level) from chronic infection or inflammation. HTH- --- Caroline <carrieps@...> wrote: > We just got some testing done by Doctors Data that > said that our > daughter has a parasite (Dientamoeba fragilis > trophs). Does Dr. G. > treat parasites. What does he say about it. It has > been suggested that > we put her on Metraonidazole Benzoate. We know > nothing about this and > would really appreciate any information and/or > advice!! > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Heck - I think our guts could be having abnormal immune responses to our own gut yeast and killing it .... that's way more likely than a parasite having that much influence over the bacteria. That's one reason we need to steadily faithfully give probiotics. I know for sure that lactobacillus and l.rhamusis trigger immune reactions in me. Whether those bacteria suffer death (I hope a rough cruel one) when they are triggering my immune system, I don't know. I have an increase in PANDAS-like symptoms when I take those probiotics more than a few days - just like the immune response to strep. They're known to increase certain cytokines (at least L.Rhamusis found in Culturelle) - which can be a positive in some autoimmune disorders like Chron's (if I remember), but a negative in PANDAS. Most of them aren't that harmful, BUT if your child has chronic diahrea or any blood in the stools, etc, or has been losing weight recently (as opposed to being chronically rail-thin like my boys - that's common in anyway and can't be blamed on parasites) ... those are good reasons to treat. However, my husband recently had a bad gut period, and our internest didn't even bother to test the stool at the time ... he simply prescribed an antibiotic and an antiparasitic at the same time. So apparently it wasn't a big deal to him. As long as there's no negatives associated with the medicine, I'd simply give it just for your own sake since you are disturbed about it, unless you'd be comfortable enough waiting for Dr G. HTH- --- Caroline <carrieps@...> wrote: > Thank you for sharing your experience and decision > with this. What is > Diflucan?? My gut feeling is to treat it. They > found poor beneficial > bacteria which I wonder could be compromised by the > parasite. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 We just started Nids protocol. My son is Anemic, homocysteine 5x norm, not metabolizing b12, blood panel and immune panels all over the place and CMV virus 7.0 HIGH IGG. We just started Anti-virals. DOes any one kiddo compare and do you have any input. <thecolemans4@...> wrote: If there were lab results (ie elevated eosiniphils and any chronic iron anemia assuming it was a parasite known to cause anemia or other deficiencies) and illness resulting from the parasite, he would treat it. If it is a non-invasive and unharmful one, I do not know his opinion - it hasn't come up on the list before. But he would only use anti-parasitic prescriptions as opposed to a natural therapy. Regarding your pediatrician suggesting you not treat it, did she have a reason other than 'it's not important'? Few pediatricians feel that treating gut yeast is important either, and maybe in a lot of typical and healthy kids, it's not. But if there are negatives associated with the medication used, then I would wait and consult with Dr Goldberg. If it's not considered pathogenic, then there is no harm in waiting. BTW, the anemia-thing isn't a true test in our kids, because so many are anemic (maybe not found in a CBC but shows up in an iron/ferriten level) from chronic infection or inflammation. HTH- --- Caroline <carrieps@...> wrote: > We just got some testing done by Doctors Data that > said that our > daughter has a parasite (Dientamoeba fragilis > trophs). Does Dr. G. > treat parasites. What does he say about it. It has > been suggested that > we put her on Metraonidazole Benzoate. We know > nothing about this and > would really appreciate any information and/or > advice!! > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Dr. G is fine with probiotics. He prefers you use kyodophilus and/or acidophilus, though. Cheryl On Apr 10, 2008, at 3:19 AM, Caroline wrote: > , > > What does Dr. G think about probiotics by the way?? > > > > wrote: > > > Heck - I think our guts could be having abnormal > > immune responses to our own gut yeast and killing it > > ... that's way more likely than a parasite having that > > much influence over the bacteria. That's one reason > > we need to steadily faithfully give probiotics. I > > know for sure that lactobacillus and l.rhamusis > > trigger immune reactions in me. Whether those > > bacteria suffer death (I hope a rough cruel one) when > > they are triggering my immune system, I don't know. I > > have an increase in PANDAS-like symptoms when I take > > those probiotics more than a few days - just like the > > immune response to strep. They're known to increase > > certain cytokines (at least L.Rhamusis found in > > Culturelle) - which can be a positive in some > > autoimmune disorders like Chron's (if I remember), but > > a negative in PANDAS. > > > > Most of them aren't that harmful, BUT if your child > > has chronic diahrea or any blood in the stools, etc, > > or has been losing weight recently (as opposed to > > being chronically rail-thin like my boys - that's > > common in anyway and can't be blamed on > > parasites) ... those are good reasons to treat. > > > > However, my husband recently had a bad gut period, and > > our internest didn't even bother to test the stool at > > the time ... he simply prescribed an antibiotic and an > > antiparasitic at the same time. So apparently it > > wasn't a big deal to him. > > > > As long as there's no negatives associated with the > > medicine, I'd simply give it just for your own sake > > since you are disturbed about it, unless you'd be > > comfortable enough waiting for Dr G. > > > > HTH- > > > > > > --- Caroline <carrieps@... <mailto:carrieps% > 40pobox.com>> > > wrote: > > > > > Thank you for sharing your experience and decision > > > with this. What is > > > Diflucan?? My gut feeling is to treat it. They > > > found poor beneficial > > > bacteria which I wonder could be compromised by the > > > parasite. > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 He doesn't like all the fancy-dancy high strain probios because he thinks 1. we don't need them and these are the gentlest and 2. with so many strains, some of them set off the immune system. FYI - your daughter may not be doing well on Culturelle because it has casein (if she's highly sensitive to dairy) or because she's sensitive to the strain. cheryl On Apr 10, 2008, at 7:08 AM, Caroline wrote: > What does he prefer about those?? Are there any particular brands?? I > am curious because we were giving her culturell for a couple weeks and > during those weeks she was more tuned out than usual and > nonresponsive. > It did not occur to us that it would be the culturell but then we ran > out and have not given it to her in a couple days and she has been > more > tuned in again. you said something about having an immune > reaction to lactobacillus and l.rhamusis. Do you mind me asking what > symptoms you have related to this immune reaction. > > > > Cheryl Lowrance wrote: > > > Dr. G is fine with probiotics. He prefers you use kyodophilus and/or > > acidophilus, though. > > > > Cheryl > > > > On Apr 10, 2008, at 3:19 AM, Caroline wrote: > > > > > , > > > > > > What does Dr. G think about probiotics by the way?? > > > > > > > > > > > > wrote: > > > > > > > Heck - I think our guts could be having abnormal > > > > immune responses to our own gut yeast and killing it > > > > ... that's way more likely than a parasite having that > > > > much influence over the bacteria. That's one reason > > > > we need to steadily faithfully give probiotics. I > > > > know for sure that lactobacillus and l.rhamusis > > > > trigger immune reactions in me. Whether those > > > > bacteria suffer death (I hope a rough cruel one) when > > > > they are triggering my immune system, I don't know. I > > > > have an increase in PANDAS-like symptoms when I take > > > > those probiotics more than a few days - just like the > > > > immune response to strep. They're known to increase > > > > certain cytokines (at least L.Rhamusis found in > > > > Culturelle) - which can be a positive in some > > > > autoimmune disorders like Chron's (if I remember), but > > > > a negative in PANDAS. > > > > > > > > Most of them aren't that harmful, BUT if your child > > > > has chronic diahrea or any blood in the stools, etc, > > > > or has been losing weight recently (as opposed to > > > > being chronically rail-thin like my boys - that's > > > > common in anyway and can't be blamed on > > > > parasites) ... those are good reasons to treat. > > > > > > > > However, my husband recently had a bad gut period, and > > > > our internest didn't even bother to test the stool at > > > > the time ... he simply prescribed an antibiotic and an > > > > antiparasitic at the same time. So apparently it > > > > wasn't a big deal to him. > > > > > > > > As long as there's no negatives associated with the > > > > medicine, I'd simply give it just for your own sake > > > > since you are disturbed about it, unless you'd be > > > > comfortable enough waiting for Dr G. > > > > > > > > HTH- > > > > > > > > > > > > --- Caroline <carrieps@... > > <mailto:carrieps%40pobox.com> <mailto:carrieps% > > > 40pobox.com>> > > > > wrote: > > > > > > > > > Thank you for sharing your experience and decision > > > > > with this. What is > > > > > Diflucan?? My gut feeling is to treat it. They > > > > > found poor beneficial > > > > > bacteria which I wonder could be compromised by the > > > > > parasite. > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 , What does Dr. G think about probiotics by the way?? wrote: > Heck - I think our guts could be having abnormal > immune responses to our own gut yeast and killing it > ... that's way more likely than a parasite having that > much influence over the bacteria. That's one reason > we need to steadily faithfully give probiotics. I > know for sure that lactobacillus and l.rhamusis > trigger immune reactions in me. Whether those > bacteria suffer death (I hope a rough cruel one) when > they are triggering my immune system, I don't know. I > have an increase in PANDAS-like symptoms when I take > those probiotics more than a few days - just like the > immune response to strep. They're known to increase > certain cytokines (at least L.Rhamusis found in > Culturelle) - which can be a positive in some > autoimmune disorders like Chron's (if I remember), but > a negative in PANDAS. > > Most of them aren't that harmful, BUT if your child > has chronic diahrea or any blood in the stools, etc, > or has been losing weight recently (as opposed to > being chronically rail-thin like my boys - that's > common in anyway and can't be blamed on > parasites) ... those are good reasons to treat. > > However, my husband recently had a bad gut period, and > our internest didn't even bother to test the stool at > the time ... he simply prescribed an antibiotic and an > antiparasitic at the same time. So apparently it > wasn't a big deal to him. > > As long as there's no negatives associated with the > medicine, I'd simply give it just for your own sake > since you are disturbed about it, unless you'd be > comfortable enough waiting for Dr G. > > HTH- > > > --- Caroline <carrieps@... <mailto:carrieps%40pobox.com>> > wrote: > > > Thank you for sharing your experience and decision > > with this. What is > > Diflucan?? My gut feeling is to treat it. They > > found poor beneficial > > bacteria which I wonder could be compromised by the > > parasite. > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 , He only likes those probiotics (he recommended Kyodophilus to us) that contain strains that should be naturally occurring in the body anyway. Caroline G. From: Caroline <carrieps@...> Reply-< > Date: Thu, 10 Apr 2008 07:08:37 -0700 < > Subject: Re: parasites What does he prefer about those?? Are there any particular brands?? I am curious because we were giving her culturell for a couple weeks and during those weeks she was more tuned out than usual and nonresponsive. It did not occur to us that it would be the culturell but then we ran out and have not given it to her in a couple days and she has been more tuned in again. you said something about having an immune reaction to lactobacillus and l.rhamusis. Do you mind me asking what symptoms you have related to this immune reaction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 What does he prefer about those?? Are there any particular brands?? I am curious because we were giving her culturell for a couple weeks and during those weeks she was more tuned out than usual and nonresponsive. It did not occur to us that it would be the culturell but then we ran out and have not given it to her in a couple days and she has been more tuned in again. you said something about having an immune reaction to lactobacillus and l.rhamusis. Do you mind me asking what symptoms you have related to this immune reaction. Cheryl Lowrance wrote: > Dr. G is fine with probiotics. He prefers you use kyodophilus and/or > acidophilus, though. > > Cheryl > > On Apr 10, 2008, at 3:19 AM, Caroline wrote: > > > , > > > > What does Dr. G think about probiotics by the way?? > > > > > > > > wrote: > > > > > Heck - I think our guts could be having abnormal > > > immune responses to our own gut yeast and killing it > > > ... that's way more likely than a parasite having that > > > much influence over the bacteria. That's one reason > > > we need to steadily faithfully give probiotics. I > > > know for sure that lactobacillus and l.rhamusis > > > trigger immune reactions in me. Whether those > > > bacteria suffer death (I hope a rough cruel one) when > > > they are triggering my immune system, I don't know. I > > > have an increase in PANDAS-like symptoms when I take > > > those probiotics more than a few days - just like the > > > immune response to strep. They're known to increase > > > certain cytokines (at least L.Rhamusis found in > > > Culturelle) - which can be a positive in some > > > autoimmune disorders like Chron's (if I remember), but > > > a negative in PANDAS. > > > > > > Most of them aren't that harmful, BUT if your child > > > has chronic diahrea or any blood in the stools, etc, > > > or has been losing weight recently (as opposed to > > > being chronically rail-thin like my boys - that's > > > common in anyway and can't be blamed on > > > parasites) ... those are good reasons to treat. > > > > > > However, my husband recently had a bad gut period, and > > > our internest didn't even bother to test the stool at > > > the time ... he simply prescribed an antibiotic and an > > > antiparasitic at the same time. So apparently it > > > wasn't a big deal to him. > > > > > > As long as there's no negatives associated with the > > > medicine, I'd simply give it just for your own sake > > > since you are disturbed about it, unless you'd be > > > comfortable enough waiting for Dr G. > > > > > > HTH- > > > > > > > > > --- Caroline <carrieps@... > <mailto:carrieps%40pobox.com> <mailto:carrieps% > > 40pobox.com>> > > > wrote: > > > > > > > Thank you for sharing your experience and decision > > > > with this. What is > > > > Diflucan?? My gut feeling is to treat it. They > > > > found poor beneficial > > > > bacteria which I wonder could be compromised by the > > > > parasite. > > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 You can get this at your local Vitamin Shoppe. It's also pretty cost effective and doesn't need to be refrigerated. All the best, Robyn Caroline Glover <sfglover@...> wrote: , He only likes those probiotics (he recommended Kyodophilus to us) that contain strains that should be naturally occurring in the body anyway. Caroline G. From: Caroline <carrieps@...> Reply-< > Date: Thu, 10 Apr 2008 07:08:37 -0700 < > Subject: Re: parasites What does he prefer about those?? Are there any particular brands?? I am curious because we were giving her culturell for a couple weeks and during those weeks she was more tuned out than usual and nonresponsive. It did not occur to us that it would be the culturell but then we ran out and have not given it to her in a couple days and she has been more tuned in again. you said something about having an immune reaction to lactobacillus and l.rhamusis. Do you mind me asking what symptoms you have related to this immune reaction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Hi - And yes Culturelle is the l.rhamuses... I have an increase in OCD, a very dull feeling - flat, sluggish, and slowly but surely I just sort of 'fade out', get more and more tired, just awful fatigue. I get anxiety along with it all, and mostly I walk around feeling like I'm in a fog ... and maybe even a little irritable. It's nowhere as intense as when I get strep. Honestly I sometimes suspect acidophilus does it mildly too so I stick to Kyodophilus... same with the boys. HTH- --- Caroline <carrieps@...> wrote: > What does he prefer about those?? Are there any > particular brands?? I > am curious because we were giving her culturell for > a couple weeks and > during those weeks she was more tuned out than usual > and nonresponsive. > It did not occur to us that it would be the > culturell but then we ran > out and have not given it to her in a couple days > and she has been more > tuned in again. you said something about > having an immune > reaction to lactobacillus and l.rhamusis. Do you > mind me asking what > symptoms you have related to this immune reaction. > > > > Cheryl Lowrance wrote: > > > Dr. G is fine with probiotics. He prefers you use > kyodophilus and/or > > acidophilus, though. > > > > Cheryl > > > > On Apr 10, 2008, at 3:19 AM, Caroline wrote: > > > > > , > > > > > > What does Dr. G think about probiotics by the > way?? > > > > > > > > > > > > wrote: > > > > > > > Heck - I think our guts could be having > abnormal > > > > immune responses to our own gut yeast and > killing it > > > > ... that's way more likely than a parasite > having that > > > > much influence over the bacteria. That's one > reason > > > > we need to steadily faithfully give > probiotics. I > > > > know for sure that lactobacillus and > l.rhamusis > > > > trigger immune reactions in me. Whether those > > > > bacteria suffer death (I hope a rough cruel > one) when > > > > they are triggering my immune system, I don't > know. I > > > > have an increase in PANDAS-like symptoms when > I take > > > > those probiotics more than a few days - just > like the > > > > immune response to strep. They're known to > increase > > > > certain cytokines (at least L.Rhamusis found > in > > > > Culturelle) - which can be a positive in some > > > > autoimmune disorders like Chron's (if I > remember), but > > > > a negative in PANDAS. > > > > > > > > Most of them aren't that harmful, BUT if your > child > > > > has chronic diahrea or any blood in the > stools, etc, > > > > or has been losing weight recently (as opposed > to > > > > being chronically rail-thin like my boys - > that's > > > > common in anyway and can't be blamed on > > > > parasites) ... those are good reasons to > treat. > > > > > > > > However, my husband recently had a bad gut > period, and > > > > our internest didn't even bother to test the > stool at > > > > the time ... he simply prescribed an > antibiotic and an > > > > antiparasitic at the same time. So apparently > it > > > > wasn't a big deal to him. > > > > > > > > As long as there's no negatives associated > with the > > > > medicine, I'd simply give it just for your own > sake > > > > since you are disturbed about it, unless you'd > be > > > > comfortable enough waiting for Dr G. > > > > > > > > HTH- > > > > > > > > > > > > --- Caroline <carrieps@... > > <mailto:carrieps%40pobox.com> <mailto:carrieps% > > > 40pobox.com>> > > > > wrote: > > > > > > > > > Thank you for sharing your experience and > decision > > > > > with this. What is > > > > > Diflucan?? My gut feeling is to treat it. > They > > > > > found poor beneficial > > > > > bacteria which I wonder could be compromised > by the > > > > > parasite. > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 He is big-time pro probiotics. BUT only single or 3 strain Kydophilus. HTH- --- Caroline <carrieps@...> wrote: > , > > What does Dr. G think about probiotics by the way?? > > > > wrote: > > > Heck - I think our guts could be having abnormal > > immune responses to our own gut yeast and killing > it > > ... that's way more likely than a parasite having > that > > much influence over the bacteria. That's one > reason > > we need to steadily faithfully give probiotics. I > > know for sure that lactobacillus and l.rhamusis > > trigger immune reactions in me. Whether those > > bacteria suffer death (I hope a rough cruel one) > when > > they are triggering my immune system, I don't > know. I > > have an increase in PANDAS-like symptoms when I > take > > those probiotics more than a few days - just like > the > > immune response to strep. They're known to > increase > > certain cytokines (at least L.Rhamusis found in > > Culturelle) - which can be a positive in some > > autoimmune disorders like Chron's (if I remember), > but > > a negative in PANDAS. > > > > Most of them aren't that harmful, BUT if your > child > > has chronic diahrea or any blood in the stools, > etc, > > or has been losing weight recently (as opposed to > > being chronically rail-thin like my boys - that's > > common in anyway and can't be blamed on > > parasites) ... those are good reasons to treat. > > > > However, my husband recently had a bad gut period, > and > > our internest didn't even bother to test the stool > at > > the time ... he simply prescribed an antibiotic > and an > > antiparasitic at the same time. So apparently it > > wasn't a big deal to him. > > > > As long as there's no negatives associated with > the > > medicine, I'd simply give it just for your own > sake > > since you are disturbed about it, unless you'd be > > comfortable enough waiting for Dr G. > > > > HTH- > > > > > > --- Caroline <carrieps@... > <mailto:carrieps%40pobox.com>> > > wrote: > > > > > Thank you for sharing your experience and > decision > > > with this. What is > > > Diflucan?? My gut feeling is to treat it. They > > > found poor beneficial > > > bacteria which I wonder could be compromised by > the > > > parasite. > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Hi , I appreciate you responding to all these questions. It is really helpful as my daughter is unable to explain her symptoms to us but goes through periods of being really low energy, sleeping more and having a lot of staring spells. We were told by her current doctor to do Therbiotic complete which I think has a lot of strains of bacteria in it. Have you heard of that one? wrote: > Hi - > > And yes Culturelle is the l.rhamuses... > > I have an increase in OCD, a very dull feeling - flat, > sluggish, and slowly but surely I just sort of 'fade > out', get more and more tired, just awful fatigue. I > get anxiety along with it all, and mostly I walk > around feeling like I'm in a fog ... and maybe even a > little irritable. > > It's nowhere as intense as when I get strep. > > Honestly I sometimes suspect acidophilus does it > mildly too so I stick to Kyodophilus... same with the > boys. > > HTH- > > > --- Caroline <carrieps@... <mailto:carrieps%40pobox.com>> > wrote: > > > What does he prefer about those?? Are there any > > particular brands?? I > > am curious because we were giving her culturell for > > a couple weeks and > > during those weeks she was more tuned out than usual > > and nonresponsive. > > It did not occur to us that it would be the > > culturell but then we ran > > out and have not given it to her in a couple days > > and she has been more > > tuned in again. you said something about > > having an immune > > reaction to lactobacillus and l.rhamusis. Do you > > mind me asking what > > symptoms you have related to this immune reaction. > > > > > > > > Cheryl Lowrance wrote: > > > > > Dr. G is fine with probiotics. He prefers you use > > kyodophilus and/or > > > acidophilus, though. > > > > > > Cheryl > > > > > > On Apr 10, 2008, at 3:19 AM, Caroline wrote: > > > > > > > , > > > > > > > > What does Dr. G think about probiotics by the > > way?? > > > > > > > > > > > > > > > > wrote: > > > > > > > > > Heck - I think our guts could be having > > abnormal > > > > > immune responses to our own gut yeast and > > killing it > > > > > ... that's way more likely than a parasite > > having that > > > > > much influence over the bacteria. That's one > > reason > > > > > we need to steadily faithfully give > > probiotics. I > > > > > know for sure that lactobacillus and > > l.rhamusis > > > > > trigger immune reactions in me. Whether those > > > > > bacteria suffer death (I hope a rough cruel > > one) when > > > > > they are triggering my immune system, I don't > > know. I > > > > > have an increase in PANDAS-like symptoms when > > I take > > > > > those probiotics more than a few days - just > > like the > > > > > immune response to strep. They're known to > > increase > > > > > certain cytokines (at least L.Rhamusis found > > in > > > > > Culturelle) - which can be a positive in some > > > > > autoimmune disorders like Chron's (if I > > remember), but > > > > > a negative in PANDAS. > > > > > > > > > > Most of them aren't that harmful, BUT if your > > child > > > > > has chronic diahrea or any blood in the > > stools, etc, > > > > > or has been losing weight recently (as opposed > > to > > > > > being chronically rail-thin like my boys - > > that's > > > > > common in anyway and can't be blamed on > > > > > parasites) ... those are good reasons to > > treat. > > > > > > > > > > However, my husband recently had a bad gut > > period, and > > > > > our internest didn't even bother to test the > > stool at > > > > > the time ... he simply prescribed an > > antibiotic and an > > > > > antiparasitic at the same time. So apparently > > it > > > > > wasn't a big deal to him. > > > > > > > > > > As long as there's no negatives associated > > with the > > > > > medicine, I'd simply give it just for your own > > sake > > > > > since you are disturbed about it, unless you'd > > be > > > > > comfortable enough waiting for Dr G. > > > > > > > > > > HTH- > > > > > > > > > > > > > > > --- Caroline <carrieps@... > <mailto:carrieps%40pobox.com> > > > <mailto:carrieps%40pobox.com> <mailto:carrieps% > > > > 40pobox.com>> > > > > > wrote: > > > > > > > > > > > Thank you for sharing your experience and > > decision > > > > > > with this. What is > > > > > > Diflucan?? My gut feeling is to treat it. > > They > > > > > > found poor beneficial > > > > > > bacteria which I wonder could be compromised > > by the > > > > > > parasite. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 No I haven't heard of that one. But lots of strains runs a much higher risk of setting off the immune system, so I would go against that advice and stick to one of the two we recommend. I've always been fascinated by microbiology, ecology, biodynamic farming, etc. I'm a big believer in the gut germs and living enzymes in our food as a part of our health. I've wanted to have a diet rich in multiple probiotics. I would love to consume the elixer of raw milk with all it's enzymes and probiotics. But I had to learn acceptance that a scientific and very logical approach is harmful for me. I learned very early that high nutrient-dense foods, whole grains, vitamins and supplements make me feel worse, not better - much to my surprise (pre-Goldberg days but finding him sure explained a LOT). Maybe one day, but not when my immune system is not well, and obviously not to get it well. So no matter what literature and what reasoning suggests that we should have multiple strains, I know to keep it simple, low allergy, and hope that I'll reach a level of health in the future where I won't be so reactive. (That actually takes a level of submission for me.) As a result I've pretty much stopped studying all the different strains and all the different combinations of supplements and all that, because all the years of studying and trying answers never brought about the improvement that sticking to what Dr Goldberg recommends (so much simpler than everything else, and of course I want scientific puzzles). HTH- --- Caroline <carrieps@...> wrote: > Hi , > > I appreciate you responding to all these questions. > It is really > helpful as my daughter is unable to explain her > symptoms to us but goes > through periods of being really low energy, sleeping > more and having a > lot of staring spells. We were told by her current > doctor to do > Therbiotic complete which I think has a lot of > strains of bacteria in > it. Have you heard of that one? > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 We decided to go ahead and give her flagyl. We started it yesterday morning so she has had two days of it. After two dose, yesterday afternoon she had an intense episode where she stared shaking and looked terrified for a couple minutes after hearing a weird sound. This has happened a couple times today as well. She has, in the past, been hyposensitive, barely even noticing or responding to startling noises. Could the flagyl change her sensitivity to noise?? wrote: > No I haven't heard of that one. But lots of strains > runs a much higher risk of setting off the immune > system, so I would go against that advice and stick to > one of the two we recommend. > > I've always been fascinated by microbiology, ecology, > biodynamic farming, etc. I'm a big believer in the > gut germs and living enzymes in our food as a part of > our health. I've wanted to have a diet rich in > multiple probiotics. I would love to consume the > elixer of raw milk with all it's enzymes and > probiotics. But I had to learn acceptance that a > scientific and very logical approach is harmful for > me. I learned very early that high nutrient-dense > foods, whole grains, vitamins and supplements make me > feel worse, not better - much to my surprise > (pre-Goldberg days but finding him sure explained a > LOT). Maybe one day, but not when my immune system is > not well, and obviously not to get it well. So no > matter what literature and what reasoning suggests > that we should have multiple strains, I know to keep > it simple, low allergy, and hope that I'll reach a > level of health in the future where I won't be so > reactive. (That actually takes a level of submission > for me.) As a result I've pretty much stopped > studying all the different strains and all the > different combinations of supplements and all that, > because all the years of studying and trying answers > never brought about the improvement that sticking to > what Dr Goldberg recommends (so much simpler than > everything else, and of course I want scientific > puzzles). > > HTH- > > > --- Caroline <carrieps@... <mailto:carrieps%40pobox.com>> > wrote: > > > Hi , > > > > I appreciate you responding to all these questions. > > It is really > > helpful as my daughter is unable to explain her > > symptoms to us but goes > > through periods of being really low energy, sleeping > > more and having a > > lot of staring spells. We were told by her current > > doctor to do > > Therbiotic complete which I think has a lot of > > strains of bacteria in > > it. Have you heard of that one? > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Hi I've seen my kids have a pretty dramatic change in his sensory process after Diflucan, so I don't know why it couldn't happen w/an antibiotic. Flagyl is pretty fierce (not necessary a bad thing), and it's going to wipe out a lot of gut things, so be sure to focus on filling that " space " w/good probiotics - given 2 hours before or two hours after antibiotics - and give 3x a day. Now, it could swing the other way, increase some yeast (that's ok for the time being) and increase some sensitivity - but I wouldn't actually worry about that so much as just observe it if it happens and focus on those probiotics and low carb low sugar diet - it's possible for it to balance out quickly. But my experience w/yeast is an increase in sensitivity to noises and such. MOST likely, she is responding to the medicine, and it is making her more alert to her surroundings ... which she is NOT used to if she has low awareness (the opposite of my experience w/my kids). That would be from hypoperfusion I'd think (some kids have hyperperfusion in the lower regions of the brain from a " backup " that brings about hypersensitivity anxiety and OCD)... and it can change pretty quickly on some meds. So that would explain if she was not usually as alert to her surroundings and suddenly hearing and noticing stuff she's not accustomed to, that could be pretty disconcerting. Hope she does well and you see more awareness - antibiotics can really bring that out - it's wierd but happens time and time again. And if she regresses after the antibiotics are completed, she could be a candidate for some extended erythromycin. Keep us updated! --- Caroline <carrieps@...> wrote: > We decided to go ahead and give her flagyl. We > started it yesterday > morning so she has had two days of it. After two > dose, yesterday > afternoon she had an intense episode where she > stared shaking and looked > terrified for a couple minutes after hearing a weird > sound. This has > happened a couple times today as well. She has, in > the past, been > hyposensitive, barely even noticing or responding to > startling noises. > Could the flagyl change her sensitivity to noise?? > > > > wrote: > > > No I haven't heard of that one. But lots of > strains > > runs a much higher risk of setting off the immune > > system, so I would go against that advice and > stick to > > one of the two we recommend. > > > > I've always been fascinated by microbiology, > ecology, > > biodynamic farming, etc. I'm a big believer in the > > gut germs and living enzymes in our food as a part > of > > our health. I've wanted to have a diet rich in > > multiple probiotics. I would love to consume the > > elixer of raw milk with all it's enzymes and > > probiotics. But I had to learn acceptance that a > > scientific and very logical approach is harmful > for > > me. I learned very early that high nutrient-dense > > foods, whole grains, vitamins and supplements make > me > > feel worse, not better - much to my surprise > > (pre-Goldberg days but finding him sure explained > a > > LOT). Maybe one day, but not when my immune system > is > > not well, and obviously not to get it well. So no > > matter what literature and what reasoning suggests > > that we should have multiple strains, I know to > keep > > it simple, low allergy, and hope that I'll reach a > > level of health in the future where I won't be so > > reactive. (That actually takes a level of > submission > > for me.) As a result I've pretty much stopped > > studying all the different strains and all the > > different combinations of supplements and all > that, > > because all the years of studying and trying > answers > > never brought about the improvement that sticking > to > > what Dr Goldberg recommends (so much simpler than > > everything else, and of course I want scientific > > puzzles). > > > > HTH- > > > > > > --- Caroline <carrieps@... > <mailto:carrieps%40pobox.com>> > > wrote: > > > > > Hi , > > > > > > I appreciate you responding to all these > questions. > > > It is really > > > helpful as my daughter is unable to explain her > > > symptoms to us but goes > > > through periods of being really low energy, > sleeping > > > more and having a > > > lot of staring spells. We were told by her > current > > > doctor to do > > > Therbiotic complete which I think has a lot of > > > strains of bacteria in > > > it. Have you heard of that one? > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 Has anyone had any experience with a hair follicle mite which can cause huge losses of hair? If so, how did you treat it? --- Kristy Nardini <krnardini@...> wrote: > Hi , > > Having a parasite (or parasites) can be huge on > behavior and the body. I > would have my child treated right away. You are > *lucky* you know what > parasite is affecting your child and the treatment > for it. My son had a > parasite (or parasites) and we did not know which > one(s). I was told there > are tests for ~50, yet there are over 1000 different > parasites. We were > still able to effectively treat him, but the > discovery process was arduous > and he was suffering (severe diarrhea, lethargy, > dehydration for > daaaaayyyyys). > > Kristy > > Re: parasites > > > Thanks for your feedback. We are not seeing him > yet. He just got the > packet. I am wondering whether we should that the > " autism " labs are > accurate and treat it the way they want us to. I > am not sure how long > we will be waiting for an appointment. We don't > want to mess up > anything in his protocol by treating it the wrong > way or treating > something that does not exist. Does anyone know > what the behavioral or > physical effects of having a parasite could be? > > > > Cheryl Lowrance wrote: > > > I agree with that Dr. G and your ped. > would more than likely > > treat the parasites. The only thing I wanted to > add is that Dr. G > > may want to do his own test, though. He doesn't > trust the " autism " > > labs. > > > > Cheryl > > > > On Apr 8, 2008, at 11:22 AM, Caroline > wrote: > > > > > We just got some testing done by Doctors Data > that said that our > > > daughter has a parasite (Dientamoeba fragilis > trophs). Does Dr. G. > > > treat parasites. What does he say about it. It > has been suggested that > > > we put her on Metraonidazole Benzoate. We know > nothing about this and > > > would really appreciate any information and/or > advice!! > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > [Non-text portions of this message have been > removed] > > Barb Katsaros barbkatsaros@... ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 HI Barb, How did you find out about this mite??? Thanks, Argie On May 4, 2008, at 11:38 PM, Barb Katsaros wrote: > Has anyone had any experience with a hair follicle > mite which can cause huge losses of hair? If so, how > did you treat it? > --- Kristy Nardini <krnardini@...> wrote: > > > Hi , > > > > Having a parasite (or parasites) can be huge on > > behavior and the body. I > > would have my child treated right away. You are > > *lucky* you know what > > parasite is affecting your child and the treatment > > for it. My son had a > > parasite (or parasites) and we did not know which > > one(s). I was told there > > are tests for ~50, yet there are over 1000 different > > parasites. We were > > still able to effectively treat him, but the > > discovery process was arduous > > and he was suffering (severe diarrhea, lethargy, > > dehydration for > > daaaaayyyyys). > > > > Kristy > > > > Re: parasites > > > > > > Thanks for your feedback. We are not seeing him > > yet. He just got the > > packet. I am wondering whether we should that the > > " autism " labs are > > accurate and treat it the way they want us to. I > > am not sure how long > > we will be waiting for an appointment. We don't > > want to mess up > > anything in his protocol by treating it the wrong > > way or treating > > something that does not exist. Does anyone know > > what the behavioral or > > physical effects of having a parasite could be? > > > > > > > > Cheryl Lowrance wrote: > > > > > I agree with that Dr. G and your ped. > > would more than likely > > > treat the parasites. The only thing I wanted to > > add is that Dr. G > > > may want to do his own test, though. He doesn't > > trust the " autism " > > > labs. > > > > > > Cheryl > > > > > > On Apr 8, 2008, at 11:22 AM, Caroline > > wrote: > > > > > > > We just got some testing done by Doctors Data > > that said that our > > > > daughter has a parasite (Dientamoeba fragilis > > trophs). Does Dr. G. > > > > treat parasites. What does he say about it. It > > has been suggested that > > > > we put her on Metraonidazole Benzoate. We know > > nothing about this and > > > > would really appreciate any information and/or > > advice!! > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Barb Katsaros > barbkatsaros@... > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi , Can you tel me where you found your undenatured, cold processed whey proteins from downunder & which local brands provide undenatured wheys? Thanks in anticipation ) Rose > > Hi Bill > I was daignosed with Blastocystis and Candida in stool samples 6 weeks ago and have been > taking herbs to kill the blasto. 6 weeks of treatment coming to end tomorrow - yippee. I will > have another test in 3 weeks to see if Im clear. I am sure Blasto is a pathogen, though is not > recognized by a lot of Dr.s as such. It is true tht symptoms vary from person to person and > depend on general health specally of the bowel. > I have been using the whey and Inulin for about 5 weeks and am just starting to notice an > improvement. I have also been on a Candida diet and some of the herbs also kill candida, so > its difficult for me to say what exactly is working for what. > I would recommend the whey Inulin and Selenium to boost glutathoine and promote good > bowel ecology and immune strength. Look at badbugs.org for Blasto information. > I thought I'd try the herbs before resorting to antibiotics. > > ByronShire NSW Australia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi there, I got some feedback from someone about MMS by Jim Humbel for parasites. Has anyone tried this? Or heard of it? Casandra @...: cmfitness@...: Wed, 30 Jul 2008 11:46:41 -0400Subject: parasites Hi there,My boys are on a " Mito cocktail " from the metabolic specialist at Kennedy Krieger. It has co-enzymes and anti-oxidents. My homeopath says that the anti-oxidants are feeding the parasites and the parasites are causing all sorts of behavor. Is this right?Casandra[Non-text portions of this message have been removed] _________________________________________________________________ Use video conversation to talk face-to-face with Windows Live Messenger. http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_Ref\ resh_messenger_video_072008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 > > I've consulted with a naturopath for my 4 year old son and myself. And much of what she has found I do believe to be directly related to the candida. And after I consult with Bee (I'm going to hire her to consult with me because she is just a wealth of information and I need to tap into that brain one on one!) and get my son's health plan down to a science with her help then I know much of his issues will clear up in no time. > > The one area that she mentioned that I'm not certain can be helped > with the diet/health plan is the parasites she says are in his > gut/intestines. > Bee (or anyone with answers) - can the candida diet clear up this > problem or should I go ahead with the treatment she has prescribed for him? +++Hi Nell. If your naturopath didn't do a stool test he may not have parasites. If one was not done, get it done to confirm what kind of parasite he has so it can be determined what treatment should be done. However, coconut oil and the other antifungals I recommend are also antiparasitic. > > I believe I read somewhere on this forum or on Bee's site that the > diet can also cleanse the body of heavy metals and toxins...which is a concern of ours with all the vaccines he received. +++Yes, this program does clean out heavy metals and toxins, mainly because of the high good fats, along with omega-3, vitamins A, D & E. Of course the diet and supplements all work together. Depending upon your son's size/age see this article for babies and children to get the correct doses of supplements. > > So since the diet can clear the body of those I'm wondering if it can do the same for the parasites (worms?) in his body? > > Thank you for reading this terribly long winded post :--) > > Every single day that I read more online, in books or speak with > others I'm more and more thankful I've found Bee, her site, this forum and a huge key to my families health! > > Much love and blessings, +++You are so very welcome Nell. I'm happy for you and your wonderful family! You deserve it. Luv & Hugs, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Oops Nell, here's the link for the article: http://www.healingnaturallybybee.com/articles/baby.php Luv, Bee Quote Link to comment Share on other sites More sharing options...
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