Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Obviously I was not talking about Dr. Druker. He did a lot of great work that we would not be here today without. Novartis, on the other hand, is a whole different animal. But then who am I to bother your nice happy bourgeois life. We should be happy and feel blessed that we are not like those other poor saps that can't afford the $1000% markup and die grizzly deaths. I'm just an angry person being angry just to be angry, because there couldn't possibly be a reason for it. [ ] Re: Happy With CML We can fight a > system that encourages the big money to be invested in treatment research, > rather than research for cures, which may effect whether we will have CML in > the future. ________________________________ Neal, we have had this conversation before and I don't expect to influence your thinking, so I am responding to your comments for the benefit of others......the more optimistic majority! surely you have noticed that your line of thinking is in the minority. I don't think anyone really said 'be happy you are living with cml' except to mean, better alive with cml then dead with cml. People can choose to be happy DESPITE having cml, and many of this list do that. When Dr. Druker, an independent University cancer researcher did all the pre-trials and then the trials on Gleevec, he was not part of BIG pharma....and he was working for a cure!!! He is still researching and working for a cure for cml and other leukemias (and maybe other cancers in his new expanded lab). Early on they realized that there would be mutations that Gleevec would not work on....and all these other drugs have been to address the mutations and now they finally have a drug that will deal with the dreaded T315I mutation. So, they won't need more of these look alike drugs to be developed and there probably won't be a market for them......but it will take new 'out of the box' thinking to figure out how to actually cure cml. Dr. Druker gave 5 years to this....then said he needed to focus elsewhere...but he has recruited new researchers to his lab (that was in the works) to bring in some fresh ideas to test. So, your anger is not really based in the facts. I think you are angry just to be angry....and I will leave it at that. When a convention of cmlers gets together at a future time, maybe to celebrate Dr. Druker and a few others getting a Nobel Prize in Medicine for the accomplishments they brought to the treatment of cml, I think I will hang out with Lottie and Tom and and..... (actually there are many cmlers on the original trials for Gleevec/STI571 who have said the are waiting for this party!!) C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Neal  Bourgeois? I am thinking that is a another name for beet soup or the organism that can be present if you don't cook it to a high enough temperature? That dish always goes well with a dash of proletariat thrown in it.  Or perhaps this is a clan of people who are fans of that funny paino player named ?  While I will continue to try to make light of your posts - I will also tell you that you have the right to say and think what you like!  I don't happen to fully agree with your position but it is one you are entitled to.  In closing I can tell you that if she had the chance to read your posts Anastasia would have alerted her family and made reservations for them on the first train out to Luxemborg.  Now if you will excuse me I am off for a cocktal with your friend Molotov! From: Neal <nwatson@...> Subject: RE: [ ] Re: Happy With CML Date: Wednesday, January 26, 2011, 12:18 PM  Obviously I was not talking about Dr. Druker. He did a lot of great work that we would not be here today without. Novartis, on the other hand, is a whole different animal. But then who am I to bother your nice happy bourgeois life. We should be happy and feel blessed that we are not like those other poor saps that can't afford the $1000% markup and die grizzly deaths. I'm just an angry person being angry just to be angry, because there couldn't possibly be a reason for it. [ ] Re: Happy With CML We can fight a > system that encourages the big money to be invested in treatment research, > rather than research for cures, which may effect whether we will have CML in > the future. ________________________________ Neal, we have had this conversation before and I don't expect to influence your thinking, so I am responding to your comments for the benefit of others......the more optimistic majority! surely you have noticed that your line of thinking is in the minority. I don't think anyone really said 'be happy you are living with cml' except to mean, better alive with cml then dead with cml. People can choose to be happy DESPITE having cml, and many of this list do that. When Dr. Druker, an independent University cancer researcher did all the pre-trials and then the trials on Gleevec, he was not part of BIG pharma....and he was working for a cure!!! He is still researching and working for a cure for cml and other leukemias (and maybe other cancers in his new expanded lab). Early on they realized that there would be mutations that Gleevec would not work on....and all these other drugs have been to address the mutations and now they finally have a drug that will deal with the dreaded T315I mutation. So, they won't need more of these look alike drugs to be developed and there probably won't be a market for them......but it will take new 'out of the box' thinking to figure out how to actually cure cml. Dr. Druker gave 5 years to this....then said he needed to focus elsewhere...but he has recruited new researchers to his lab (that was in the works) to bring in some fresh ideas to test. So, your anger is not really based in the facts. I think you are angry just to be angry....and I will leave it at that. When a convention of cmlers gets together at a future time, maybe to celebrate Dr. Druker and a few others getting a Nobel Prize in Medicine for the accomplishments they brought to the treatment of cml, I think I will hang out with Lottie and Tom and and..... (actually there are many cmlers on the original trials for Gleevec/STI571 who have said the are waiting for this party!!) C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Hi Neal, When it comes to Big Pharma, Novartis turns out to be the best of the lot when it comes to making Gleevec available to patients who can't afford it. Just look at their PAP and GIPAP programs. I haven't seen that attitude in the other Pharmas. My personal experience is only with Novartis and Bristol Meyers. Novartis has been great when it comes to CML and Bristol Meyers wouldn't even give me the time of day when I asked for help for a patient. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of Neal Sent: January-26-11 12:18 PM Subject: RE: [ ] Re: Happy With CML Obviously I was not talking about Dr. Druker. He did a lot of great work that we would not be here today without. Novartis, on the other hand, is a whole different animal. But then who am I to bother your nice happy bourgeois life. We should be happy and feel blessed that we are not like those other poor saps that can't afford the $1000% markup and die grizzly deaths. I'm just an angry person being angry just to be angry, because there couldn't possibly be a reason for it. [ ] Re: Happy With CML We can fight a > system that encourages the big money to be invested in treatment research, > rather than research for cures, which may effect whether we will have CML in > the future. ________________________________ Neal, we have had this conversation before and I don't expect to influence your thinking, so I am responding to your comments for the benefit of others......the more optimistic majority! surely you have noticed that your line of thinking is in the minority. I don't think anyone really said 'be happy you are living with cml' except to mean, better alive with cml then dead with cml. People can choose to be happy DESPITE having cml, and many of this list do that. When Dr. Druker, an independent University cancer researcher did all the pre-trials and then the trials on Gleevec, he was not part of BIG pharma....and he was working for a cure!!! He is still researching and working for a cure for cml and other leukemias (and maybe other cancers in his new expanded lab). Early on they realized that there would be mutations that Gleevec would not work on....and all these other drugs have been to address the mutations and now they finally have a drug that will deal with the dreaded T315I mutation. So, they won't need more of these look alike drugs to be developed and there probably won't be a market for them......but it will take new 'out of the box' thinking to figure out how to actually cure cml. Dr. Druker gave 5 years to this....then said he needed to focus elsewhere...but he has recruited new researchers to his lab (that was in the works) to bring in some fresh ideas to test. So, your anger is not really based in the facts. I think you are angry just to be angry....and I will leave it at that. When a convention of cmlers gets together at a future time, maybe to celebrate Dr. Druker and a few others getting a Nobel Prize in Medicine for the accomplishments they brought to the treatment of cml, I think I will hang out with Lottie and Tom and and..... (actually there are many cmlers on the original trials for Gleevec/STI571 who have said the are waiting for this party!!) C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 Zizek argues that it is the nice slaveholders who are the worst, because their niceness is used as a means to perpetuate a fundamentally unjust system. Novartis gives Indians discounted medication, after taking everything the have, right down to the poverty line, and then keeping them their by " subsidizing " their meds on a sliding scale. Then they go about making lawsuits, trying to stop the manufacture of more affordable alternatives. [ ] Re: Happy With CML We can fight a > system that encourages the big money to be invested in treatment research, > rather than research for cures, which may effect whether we will have CML in > the future. ________________________________ Neal, we have had this conversation before and I don't expect to influence your thinking, so I am responding to your comments for the benefit of others......the more optimistic majority! surely you have noticed that your line of thinking is in the minority. I don't think anyone really said 'be happy you are living with cml' except to mean, better alive with cml then dead with cml. People can choose to be happy DESPITE having cml, and many of this list do that. When Dr. Druker, an independent University cancer researcher did all the pre-trials and then the trials on Gleevec, he was not part of BIG pharma....and he was working for a cure!!! He is still researching and working for a cure for cml and other leukemias (and maybe other cancers in his new expanded lab). Early on they realized that there would be mutations that Gleevec would not work on....and all these other drugs have been to address the mutations and now they finally have a drug that will deal with the dreaded T315I mutation. So, they won't need more of these look alike drugs to be developed and there probably won't be a market for them......but it will take new 'out of the box' thinking to figure out how to actually cure cml. Dr. Druker gave 5 years to this....then said he needed to focus elsewhere...but he has recruited new researchers to his lab (that was in the works) to bring in some fresh ideas to test. So, your anger is not really based in the facts. I think you are angry just to be angry....and I will leave it at that. When a convention of cmlers gets together at a future time, maybe to celebrate Dr. Druker and a few others getting a Nobel Prize in Medicine for the accomplishments they brought to the treatment of cml, I think I will hang out with Lottie and Tom and and..... (actually there are many cmlers on the original trials for Gleevec/STI571 who have said the are waiting for this party!!) C. Quote Link to comment Share on other sites More sharing options...
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