Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Dear all, Today my doctor told me to reduce my glivec from 400mg to 300mg, what does it mean? Is it because of my plateletes which I reported as low as 84. Or is it because of my insistent low pcv, ranging from 28-29. With Hb being 3.4. It is mix blessing for me. Could somebody tell me something, please I have been on glivec for a year. The only real side effect is the colouring of the skin. Is it also a sign of better days ahead? J. On Wed Mar 30th, 2011 5:27 PM EDT Lottie Duthu wrote: >Dear J , >Everyone is different, but I can say that my WBC stays around 2.0 and that is low. I think most of us have low hemoglobin. Mine is about 9.2, too high for a blood transfusion, but I have had many of those. Hemocratit is also low. I would not worry about the platelets unless they drop below 50. Mine went down to 30. Skip can tell you his is sometimes even lower. It's amazing how the body compensates where one thing is low, something else is high. > >I have high blood pressure, but very low pulse. The other day it was 84 and the nurse wanted me to go to the hospital. I also have very high potassium counts and the doctor said with the combination of all 3, I could drop dead at any time. >YOu are welcome to post your results any time or discuss anything, you will always have someone who has had it before you, and can comment on what their experience was. No matter where you live, or skin color or ethnic origin, it is all CML and we suffer the same problems around the world and we try and help each other understand what we are up against and what we can do and how to educate ourselves, so that you can bring up these problems to your doctor. My white blood count has gone down to 1.0 and the next week it was back up to 2.0. It doesn't mean it will stay that way that is why we have frequent blood tests. I hope you have a good, understanding doctor and a wife who attempts to understand it as well. My husband does not understand or remember everything that I tell him, but he looks at my WBC results every week and knows when I am in trouble. He even understands my mood swings and can tell in my face whether I am having a good or bad day. We are here for you if you have any questions. >Best of luck, >Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
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