Re: Jamshid

[Guest guest]

Hi Jamshid,

I used to take 400 mg gleevec but later my oncologist reduced the dose to 300 mg

a day.  That was just over 5 years ago.  I think it is because I am a small

man

and weigh just 145 lbs.  The smaller dose seems to have worked.  I was very

ill

at the time I was diagnosed and, like your dad, couldn't eat.  The doctor in

the

hospital told me to think of food like medicine.  She said that if given

medicine I would take it and food was quite as important.  A friend made

chicken

soup  (strained before serving) and knew to just give me a small spoon at a

time

(just like you feed a baby.)  I only ate one or two spoons but slowly the

delicious smell got to me and I enjoyed it.  Remember another thing too.  When

somebody is very ill they often can't be bothered to feed themselves.  If you

prop them up and feed them they will often try.  The person wants to get well

but it may seem too much trouble to handle when you are weak.   I am  sure

your

dad has some favorite dishes (not too spicy) that you could try.

Good luck with your dad.  Let us know how he is doing.

Guy

________________________________

From: Lottie Duthu <lotajam@...>

CML < >

Sent: Mon, March 21, 2011 12:45:54 AM

Subject: [ ] Jamshid

 

Dear Jamshid,

I am relieved that you have a choice of doctors and medication where you live.

Science is producing medical marvels as we speak. It is amazing to keep up with

all of the articles, which I try to do. If I was healthy and robust, I would be

outdoors working with a flashlight; instead I do research on the internet. I

used to do that when my children were little. I had my oldest son hold a

flashlight so I could get my plants in the ground timely and he was just a

little boy. He seemed to enjoy doing it and we had some personal time together

without all the other kids cutting in. I knew some patients who could not

tolerate all of their Gleevec at once, so they took 2 in the morning with

breakfast and 2 with the evening meal. You may have already tried that, but the

thought occured to me that he might try that, as 300 mg. is not optimal. We also

have to consider QOL, so a consultation about changing meds would also be in

order. It is so wonderful that you and your countrymen put so much emphasis on

respect for the elderly, so they will always have someone to look after his

needs.

Carpe Diem,

Lottie Duthu