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I am so happy for you! This is what it's all about! Do you have RA or

another automimmune disease? If it's RA, what is your rheumatoid factor now

that it's a cure? Is it back down in the normal range? I know this is sort

of a scientific question, since how we feel is the most important thing.

Keep on keeping on, and enjoy your health.

: )

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  • 10 years later...

Hi all

finally got results of my last pcr and am again pcru, such a relief after having

shingles and being very unwell for the past 6 weeks.  As I have been zero now

for the past 3 years my doctor is going to trial me reducing the dose of Glivec

from 600 to 400mg.  I've been having severe cramping and tendant soreness on

600mg and my doctor is hopeful  the lower dose will reduce some of the nastier

side effects.  I have now been on glivec for 6 and 1/2 years so reducing the

dose is quite exciting.  It means I will go back to 3 monthly testing to be sure

I remain pcru.  If the counts begin to rise I can easily increase the dose

again.  So wish me luck !

Judy t

699 Zero Club

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Good luck. I am sure that you will do well on the lower doseage of Gleevec

which I believe most of the group takes. I'm sorry to hear that you had the

shingles. I understand that it is very painful.

Now that you are over it, I feel that things will go forward with you.

Sandi

>

> > Hi all

> > finally got results of my last pcr and am again pcru, such a relief after

having

> > shingles and being very unwell for the past 6 weeks. As I have been zero

now

> > for the past 3 years my doctor is going to trial me reducing the dose of

Glivec

> > from 600 to 400mg. I've been having severe cramping and tendant soreness on

> > 600mg and my doctor is hopeful the lower dose will reduce some of the

nastier

> > side effects. I have now been on glivec for 6 and 1/2 years so reducing the

> > dose is quite exciting. It means I will go back to 3 monthly testing to be

sure

> > I remain pcru. If the counts begin to rise I can easily increase the dose

> > again. So wish me luck !

> > Judy t

> > 699 Zero Club

> >

> >

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