disability

[Guest guest]

At 11:14 AM 3/7/2010, you wrote:

>

>

>I'm in Michigan. And I just got approved this Thursday so now

>I guess I'll just have to wait for paperwork or whatever you

>get first.

I didn't have a lot of post approval paperwork. I got a notice saying

I was approved. Then I got a notice stating how much I would be

receiving and approximately when I would get it. finally after the

first payment arrived I received notice of Medicare eligibility

because it took me 2.5 years to win my case. Finally somewhere in

there was a notice saying that $4500 or so would be going directly to

the Lawyers, which I was more than fine with. Since it took me 2.5

years I got a back due sum of approximately $16,500 after the lawyers

were paid. I was very pleasantly surprised with that. Dave

[Guest guest]

Jeannie,

Is she not able to work because of caring for her son. i.e no child care?

Deb RN

 Debra

________________________________

From: Abbott <jeannieboo1@...>

neck pain

Sent: Sun, March 7, 2010 2:10:36 PM

Subject: Re: Disability

 

Hi all,

My daughter and her family live in Wa. state and live on welfare and SSI for my

grandson who is Autistic. They get a total of $1200. for 4 people, plus food

stamps, and their rent is $750. She asked about Sec. 8 housing, they do

something different now, first you have to get on the list for Public

housing(not in a safe area at all), then after they've moved into that, then

they can get on the list for Section 8 housing. Unreal. I know in some areas

public housing can be nice, not where she lives though, crime, gangs, drugs-all

of it is prevalent there. So she's stuck paying for a dumpy apt. that is not

weather proofed, nor will the landlady pay for anything that will help their

power bill be less, she's a slumlord. I know I'm ranting, but I feel so

helpless not being able to help her. Just being able to get on Sec. 8 list would

help their rent, but their local government changed the way that works.

 

Jeannie

____________ _________ _________ __

From: " I_ownaberner " <i_ownaberner>

" PainInTheNeck- Back@groups .com " <PainInTheNeck- Back@groups

..com>

Sent: Sat, March 6, 2010 9:12:11 PM

Subject: Re: [PainInTheNeck- Back] Disability

 

One can apply for food stamps and section 8 housing and Medicaid. I couldn't

find housing for less then 400.00 and I would probably be killed in the first

month as the areA where u can find cheap rent....it is not safe period paragraph

The system needs to change.

Deb rn

Sent from my iPhone

On Mar 6, 2010, at 10:33 PM, Jane <borlan9191962> wrote:

Lets see, $650.00 a month-$150.00 electricity, $30.00 minimum water & sewage,

$200.00 mortgage or rent (too low for most places), $30.00 phone, $40.00 cable,

$20.00 internet, that leaves $180.00 for food-medicine- gas for car-etc., etc.,

etc.. Can anyone actually live on $650.00 a month. I assure you the folks at

Social Security would not. Why do they expect antone else to. It's sad that this

is a fact of life , or fact of existence (because it's really not a life) for

many people on SSI and SSDI. I never thought at 47 this would be my future.

Jane H.

From: Debra <i_ownaberner>

Subject: Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Saturday, March 6, 2010, 4:20 PM

I believe that it is 650....you are correct.

Deb RN

Debra

____________ _________ _________ __

From: rosedragon <rosedragon@ charterm i.net>

PainInTheNeck- Back@groups .com

Sent: Sat, March 6, 2010 11:49:15 AM

Subject: Re: [PainInTheNeck- Back] Disability

I checked out the SSI site and basically if you make

more than six hundred and something dollars a month

you don't qualify for SSI. That's if I'm reading it

correctly. I live alone so just my SSDI will be

figured.

ine

Re: [PainInTheNeck- Back] Disability

Social Security does'nt care if your SSDI monthly check covers the basic living

expenses. SSI is based on income and that income can be very low for you not to

qualify. There is an income table on their website explaning income limits for

SSI. This is the reason people work a few hours, hopefully under the table,

while drawing benefits, even though they really are not able enough to do so.

It's the reason many elderly or disabled people go without the proper medicines

and good healthy food. I have known happily married couples who have been forced

to divorce then lie about their living together just so they can make ends meet.

It is very sad, yet it is a fact of life for many people.

Got on a tangent for a minute there,

Jane H.

..

[Guest guest]

NO medicare premiums DO NOT vary by state as it is a federal program.  Part B

now is 97 dollars for all UNLESS you didnt sign up when you were first able to

and there is a penalty.

Deb RN

 Debra

________________________________

From: Abbott <jeannieboo1@...>

neck pain

Sent: Sun, March 7, 2010 1:42:16 PM

Subject: Re: Disability

 

Dear ine,

I live in Vegas and get Medicare through SSDI, my premium is $97/monthly which

is taken out of my check. I also have a supplemental plan that I pay for to help

cover what Medicare won't, it includes my prescription plan, and also have a

dental plan, since Medicare won't pay for dental work. I thought Medicare

payments were the same in every state, but I guess I was wrong. I have a friend

in Oregon who also pays $97/month too. Maybe some states have different set ups

for payments amounts?

 

Jeannie

____________ _________ _________ __

From: rosedragon <rosedragon@charterm i.net>

PainInTheNeck- Back@groups .com

Sent: Sun, March 7, 2010 8:04:29 AM

Subject: Re: [PainInTheNeck- Back] Disability

 

How much are Medicare premiums? Do they vary by state?

It took two years for me to be finally approved.

ine

[Guest guest]

In 2010 the premium for Medicare part B is 110.50 it was 97.40 in 2009.  There

are some people in the very high income brackets that part b cost more....this

article explains well.

 http://bulletin.aarp.org/yourhealth/medicare/articles/part_b_premiums_in_2010_\

frozen_for_many_higher_for_some_.html

Deb RNDebra

________________________________

From: rosedragon <rosedragon@...>

neck pain

Sent: Sun, March 7, 2010 10:14:20 AM

Subject: Re: Disability

 

I'm in Michigan. And I just got approved this Thursday so now

I guess I'll just have to wait for paperwork or whatever you

get first.

Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Thursday, March 4, 2010, 5:22 PM

Just to let you all know I had my hearing today for

Social Security Disability and SSI. I didn't take all my pain

meds because I wanted to be at least semi coherent.

[Guest guest]

GREAT NEWS...

In a message dated 3/4/2010 3:47:25 P.M. Mountain Standard Time,

rosedragon@... writes:

Just to let you all know I had my hearing today for

Social Security Disability and SSI. I didn't take all my pain

meds because I wanted to be at least semi coherent.

As soon as my attorney showed up they asked her to

come in the back because the judge wanted to talk

to her. I got really worried and my friend who had

driven me down tried to keep me calm. I was laying

on my side across three chairs because that was the

only way I could keep some of the pain at bay. (and

yes I made sure everyone else had a chair).

My attorney came out and said the judge had issued

a favorable bench decision and he said he didn't

understand why my dire need decision had not been

granted back in October. He didn't even want to see

me. My attorney said to go home and take my pain

meds and relax.

So, after two years of struggling and worry and stress

I can finally relax.

Now I just have to wait for all the paperwork and then I can

go to a Neurosurgeon and hopefully get some of my pain

taken care of.

It's like the weight of the world has just been lifted.

I now know I will NOT be homeless and maybe I might

just get a few hours of real sleep tonight.

ine

[Non-text portions of this message have been removed]

[Guest guest]

I think the thing I'm going to be most confused

about is the Medicare thing. I guess they take

out my monthly payment right off the top and then

I have to get supplemental insurance?

I hope the paperwork explains everything in detail.

ine

Re: Disability

At 11:14 AM 3/7/2010, you wrote:

>

>

>I'm in Michigan. And I just got approved this Thursday so now

>I guess I'll just have to wait for paperwork or whatever you

>get first.

I didn't have a lot of post approval paperwork. I got a notice saying

I was approved. Then I got a notice stating how much I would be

receiving and approximately when I would get it. finally after the

first payment arrived I received notice of Medicare eligibility

because it took me 2.5 years to win my case. Finally somewhere in

there was a notice saying that $4500 or so would be going directly to

the Lawyers, which I was more than fine with. Since it took me 2.5

years I got a back due sum of approximately $16,500 after the lawyers

were paid. I was very pleasantly surprised with that. Dave

------------------------------------

[Guest guest]

I had backpay b4 paperwork

Deb rn

Sent from my iPhone

On Mar 7, 2010, at 10:42 AM, " Levan " <galvandr@...> wrote:

Yea lots of paperwork coming. & nbsp;Overwhelming sometimes.

-- Sent from my Palm Pixi

On Mar 7, 2010 10:38 AM, rosedragon & lt;rosedragon@... & gt; wrote:

& nbsp;

I'm in Michigan. And I just got approved this Thursday so now

I guess I'll just have to wait for paperwork or whatever you

get first.

Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Thursday, March 4, 2010, 5:22 PM

Just to let you all know I had my hearing today for

Social Security Disability and SSI. I didn't take all my pain

meds because I wanted to be at least semi coherent.

[Guest guest]

hi jeannie, i am in wa. she must be around seattle i would guess. it is not that

way in the rest of the state. perhaps they should transfer to another city in

wa, with less crime and drugs and not as large.  i would stay away from

anyplace along I-5, but not so small that she cannot get the help she needs for

her child. they are always our babies, huh. wyld

From: Debra <i_ownaberner>

Subject: Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Saturday, March 6, 2010, 4:20 PM

I believe that it is 650....you are correct.

Deb RN

Debra

____________ _________ _________ __

From: rosedragon <rosedragon@ charterm i.net>

PainInTheNeck- Back@groups .com

Sent: Sat, March 6, 2010 11:49:15 AM

Subject: Re: [PainInTheNeck- Back] Disability

I checked out the SSI site and basically if you make

more than six hundred and something dollars a month

you don't qualify for SSI. That's if I'm reading it

correctly. I live alone so just my SSDI will be

figured.

ine

Re: [PainInTheNeck- Back] Disability

Social Security does'nt care if your SSDI monthly check covers the basic living

expenses. SSI is based on income and that income can be very low for you not to

qualify. There is an income table on their website explaning income limits for

SSI. This is the reason people work a few hours, hopefully under the table,

while drawing benefits, even though they really are not able enough to do so.

It's the reason many elderly or disabled people go without the proper medicines

and good healthy food. I have known happily married couples who have been forced

to divorce then lie about their living together just so they can make ends meet.

It is very sad, yet it is a fact of life for many people.

Got on a tangent for a minute there,

Jane H.

..

[Guest guest]

hi jeannie, i am in wa. she must be around seattle i would guess. it is not that

way in the rest of the state. perhaps they should transfer to another city in

wa, with less crime and drugs and not as large.  i would stay away from

anyplace along I-5, but not so small that she cannot get the help she needs for

her child. they are always our babies, huh. wyld

From: Debra <i_ownaberner>

Subject: Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Saturday, March 6, 2010, 4:20 PM

I believe that it is 650....you are correct.

Deb RN

Debra

____________ _________ _________ __

From: rosedragon <rosedragon@ charterm i.net>

PainInTheNeck- Back@groups .com

Sent: Sat, March 6, 2010 11:49:15 AM

Subject: Re: [PainInTheNeck- Back] Disability

I checked out the SSI site and basically if you make

more than six hundred and something dollars a month

you don't qualify for SSI. That's if I'm reading it

correctly. I live alone so just my SSDI will be

figured.

ine

Re: [PainInTheNeck- Back] Disability

Social Security does'nt care if your SSDI monthly check covers the basic living

expenses. SSI is based on income and that income can be very low for you not to

qualify. There is an income table on their website explaning income limits for

SSI. This is the reason people work a few hours, hopefully under the table,

while drawing benefits, even though they really are not able enough to do so.

It's the reason many elderly or disabled people go without the proper medicines

and good healthy food. I have known happily married couples who have been forced

to divorce then lie about their living together just so they can make ends meet.

It is very sad, yet it is a fact of life for many people.

Got on a tangent for a minute there,

Jane H.

..

[Guest guest]

premium in WA is $97, wyld

From: rosedragon & amp;lt;rosedragon@ charterm i.net & amp;gt;

Subject: Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Thursday, March 4, 2010, 5:22 PM

Just to let you all know I had my hearing today for

Social Security Disability and SSI. I didn't take all my pain

meds because I wanted to be at least semi coherent.

[Guest guest]

premium in WA is $97, wyld

From: rosedragon & amp;lt;rosedragon@ charterm i.net & amp;gt;

Subject: Re: [PainInTheNeck- Back] Disability

PainInTheNeck- Back@groups .com

Date: Thursday, March 4, 2010, 5:22 PM

Just to let you all know I had my hearing today for

Social Security Disability and SSI. I didn't take all my pain

meds because I wanted to be at least semi coherent.

[Guest guest]

Kendra, I filed in like january, got denied in july, appealed, they made a

decision in 2 weeks and sent it to review board but won't tell me what the

decision is because the review board might change it. I haven't worked in over a

year and I lucked out with a lawyer that's sister has late neuro lyme...

Bridget

>

> > So I filed for disability, got denied, had my lawyers appeaal it, and now

> > they say a decision was made but they sent it to a review board, should I

> > take this as good news or bad news?

> > Thank you!

> > Bridget

> >

> >

>

>

>

[Guest guest]

It sounds like you've got a good shot. I think you've done all you can

do... I know it's hard (I went nearly 4 years w/o income - and I was

single) but hopefully you will know soon!

Is your treatment helping?

Kendra

On Thu, Aug 12, 2010 at 11:35 PM, bridget <blueyes7648@...> wrote:

> Kendra, I filed in like january, got denied in july, appealed, they made a

> decision in 2 weeks and sent it to review board but won't tell me what the

> decision is because the review board might change it. I haven't worked in

> over a year and I lucked out with a lawyer that's sister has late neuro

> lyme...

> Bridget

>

>

[Guest guest]

I wrote to my congressman, and he in turn wrote to s/s disability on my

behalf. He seemed happy to do so, and it isn't an unusual request from

a congressman. Good luck!

>

> > Kendra, I filed in like january, got denied in july, appealed, they

made a

> > decision in 2 weeks and sent it to review board but won't tell me

what the

> > decision is because the review board might change it. I haven't

worked in

> > over a year and I lucked out with a lawyer that's sister has late

neuro

> > lyme...

> > Bridget

> >

> >

>

>

>

[Guest guest]

I have been on Humira over a year and I am still waiting for it to work. I was

on Enbrel for 3 years and it quit working so I switched to Humira. I am also on

10mg Prednisone. I have a OsteoArthritis,BoneSpur,torn disk and pinched nerve in

my spine at L5/S1 and I also take percocet to help with the pain. I also see a

pain doctor. My pain doctors said that surgery is the only cure for my back

issues. Insurance issue keep me from having surgery. I wish I could give you

some hope. I have filed for social security disability.

Beth

-

[Guest guest]

I'm wondering why you continue to take Humira if it is not working for you? Why

hasn't your doctor suggested trying something else by now?

Celeste

[Guest guest]

My rheumatologist said that she wants to keep me on Humira. I am also on the max

dose of injectable Methotrexate. I take Lyrica for peripheral

neuropathy/fibromyalgia and she increased that dosage to help with pain control.

I am trying to keep track of pain to see if Lyrica helps with pain. Next appt is

Dec to possibly add Imuran if increased dosage in Lyrica does not work. I guess

she wants to try the Imuran before going taking me off of Humira.

Beth

[Guest guest]

Celeste,

> I'm wondering why you continue to take Humira if it is not working

> for you?

When I suggested to my rheumy that the Humira had quit working (the pain was

becoming difficult again), her question was: has your skin begun to break out

again?

Apparently that's an indication to her that it IS working when it keeps the skin

free of lesions.

Patty in the lovely Pineywoods of East Texas

[Guest guest]

If you feel that you may need to go on disability due to the Gleevec side

effects, why not try one of the newer drugs available for cml first?

I'm suggesting that only because I am now on Tasigna after being on Gleevec

for many years. I feel SO much better and have fewer side effects. It's

an option that would possibly enable you to continue working and also feel

better doing so.

in NY

[Guest guest]

Speaking from my case only. I was on gleevec when I filed for disability

and now 2 years later on Spyrcel I have the same side effects. Tasigna is

my next drug when and if I have to advance to the next one. I was just

toxic on Sprycel and took a 2 week holiday, now everything seems to be calmer

now. Its only been a month but hoping it doesn't happen again and I can

continue on Sprycel...

In a message dated 12/16/2010 8:40:13 A.M. Central Standard Time,

nchando@... writes:

If you feel that you may need to go on disability due to the Gleevec side

effects, why not try one of the newer drugs available for cml first?

I'm suggesting that only because I am now on Tasigna after being on

Gleevec

for many years. I feel SO much better and have fewer side effects. It's

an option that would possibly enable you to continue working and also feel

better doing so.

in NY

[Non-text portions of this message have been removed]

[Guest guest]

I need input! I spoke with a friend today who has a rare adult-onset genetic disorder that rendered him disabled until they were able to find ways to treat him. He's out of his wheelchair now and does well with morphine patches which allow him to walk without suddenly falling. Unfortunately, we can't get the good tables at restaurants any more. We lost that crip factor. LOL!

I finally broke down and told him a little about my situation. He was very insistent that I begin pursuing disability. Again, totally foreign to me and don't even know where to start or if I should.

Any takers on this one?

S. Colette Wise

From: theresagottlieb@...Date: Fri, 11 Mar 2011 00:33:07 -0600Subject: Re: [ ] Collette / hepc tx

When I was going thru treatment my doc's nurse called me DAILY. She checked on me and we talked about my side effects and she reminded me of my limitations.. She always told me to drink more water.... I never realized how key it was til treatment was over. I could have avoided a lot of side effects if I had just pushed more water... My nurse got me thru treatment, she really did. And I love her for it!

Hugs,Teri

On Fri, Mar 11, 2011 at 12:22 AM, Colette Wise <scwise@...> wrote:

Great !!! I think you're on to something! LOL! I believe most serious nurses are often more knowledgeable than the Doc, especially with regard to the patient. The Doc is supposed to take care of the big picture but something has gone awry. The big picture has gotten all fuzzy and ill-defined. Wait, I thought that only happened after a few too many! LOL!S. Colette Wise

__._,_

[Guest guest]

Are you able to work? On Fri, Mar 11, 2011 at 1:01 AM, Colette Wise <scwise@...> wrote:

 

I need input!  I spoke with a friend today who has a rare adult-onset genetic disorder that rendered him disabled until they were able to find ways to treat him.  He's out of his wheelchair now and does well with morphine patches which allow him to walk without suddenly falling.  Unfortunately, we can't get the good tables at restaurants any more.  We lost that crip factor.  LOL!

 

I finally broke down and told him a little about my situation.  He was very insistent that I begin pursuing disability.  Again, totally foreign to me and don't even know where to start or if I should.

 

Any takers on this one?

S. Colette Wise  

From: theresagottlieb@...Date: Fri, 11 Mar 2011 00:33:07 -0600

Subject: Re: [ ] Collette / hepc tx

 

When I was going thru treatment my doc's nurse called me DAILY.  She checked on me and we talked about my side effects and she reminded me of my limitations..  She always told me to drink more water....  I never realized how key it was til treatment was over.  I could have avoided a lot of side effects if I had just pushed more water...  My nurse got me thru treatment, she really did.  And I love her for it!

Hugs,Teri

On Fri, Mar 11, 2011 at 12:22 AM, Colette Wise <scwise@...> wrote:

 

Great !!!  I think you're on to something!  LOL!  I believe most serious nurses are often more knowledgeable than the Doc, especially with regard to the patient.  The Doc is supposed to take care of the big picture but something has gone awry.  The big picture has gotten all fuzzy and ill-defined.

 Wait, I thought that only happened after a few too many!  LOL!S. Colette Wise  

__._,_

--  

Teri Gottlieb

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

Okay, well here's the thing...  they don't want to operate on that hernia because of the hep c right?  That means you can't work.. I'd apply for Social Security.  They never approve you right away, the whole process takes about 2 years so I'd go ahead and get it started.  You'll be on treatment possibly when it comes thru.  I applied when I was 24 weeks into treatment, in January of 2005 and I was approved in October of 2007.

Hugs,TeriOn Fri, Mar 11, 2011 at 2:34 AM, Colette Wise <scwise@...> wrote:

 

That's my question!

 

I'm looking for something part time.  I don't believe I would make it all day, and if I did I'd probably be back on bed rest.  I have been accepted into the radiology program and will begin classes this summer.  So, I can work, am available for work, and am looking for work as instructed.  I just don't know yet how much stamina I will have.  Will probably improve once I have something else to think about and a different circle of people that are on the " need to know " .  My biggest pain problem is this damn hernia!  I have to do things in stages so I can lay down long enough for it to go back inside. (Temporarily.)  Wow!  If that's my biggest problem I need to shut up!

 

I refuse to take this lying down!!!!  LMAO!!!!S. Colette Wise  

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[Guest guest]

That's almost exactly what my buddy said. Guess I better get on top of it!

Thanks for the input!S. Colette Wise

From: theresagottlieb@...Date: Fri, 11 Mar 2011 02:43:58 -0600Subject: Re: [ ] RE: Disability

Okay, well here's the thing... they don't want to operate on that hernia because of the hep c right? That means you can't work.. I'd apply for Social Security. They never approve you right away, the whole process takes about 2 years so I'd go ahead and get it started. You'll be on treatment possibly when it comes thru. I applied when I was 24 weeks into treatment, in January of 2005 and I was approved in October of 2007.

Hugs,Teri

On Fri, Mar 11, 2011 at 2:34 AM, Colette Wise <scwise@...> wrote:

That's my question! I'm looking for something part time. I don't believe I would make it all day, and if I did I'd probably be back on bed rest. I have been accepted into the radiology program and will begin classes this summer. So, I can work, am available for work, and am looking for work as instructed. I just don't know yet how much stamina I will have. Will probably improve once I have something else to think about and a different circle of people that are on the "need to know". My biggest pain problem is this damn hernia! I have to do things in stages so I can lay down long enough for it to go back inside. (Temporarily.) Wow! If that's my biggest problem I need to shut up! I refuse to take this lying down!!!! LMAO!!!!S. Colette Wise

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[Guest guest]

Another question I have is, do most folks with Spondylitis have to frequently

change what they are doing? Like, I can't sit, or stand for long periods of

time. I have to constantly change what I am doing or I start getting stiff and

sore.

The reason I am asking is because we have been going through the process of

applying for disability and after meeting with a judge, I was denied. They seem

to make light of the evidence and blow my abilities out of proportion. They

state that I am " able to drive, do laundry, shop for groceries, cook, clean,

vacuum and iron. " They left out all the details like, sometimes I have to load

the dishwasher from my knees because I can't lean over, I am not " always " able

to do these things, and I can not do any of these things continuously - I need a

lot of breaks.

I once saw an interview of a guy with spondylitis and I remember him saying,

" movement is my friend " . That stuck with me because it is true for me as well.

The more I am capable of moving around, the better off I am; but then you just

reach that point where no matter how much you pace yourself, the movement has

exhausted you and you have no choice but to give in to resting, which only makes

you worse.

Guess I am just wondering if the way Spondylitis affects me is so different from

everyone else because the judge has displayed a complete lack of understanding

of the ups and downs that at least I have experienced with Spondylitis.

Thanks!

>

> Is it common for folks with Spondylitis to have intermittent symptoms for some

time before the condition reaches a chronic stage? I know there were a few

years where I would be walking around like I was 80 years old for a period of

time and then I would be completely fine for a few months.

>

> Even now, being treated with Remicade, it's like some infusions wear off

sooner than others.

>

> Thanks,

> Carol Lee

>