Diagnosis

[Guest guest]

Missy,Welcome. I know this hard and I feel for you not having hubby with you to help. God Bless him, and tell him I said Thank You. The diagnosis is the same as plagiocephaly, just worded different. Maybe that will help with insurance,LOL. Have you found a provider for the helemt or band yet? I cannot help much on the Tricare issue, but we have a couple people right now working on the same issue, so maybe you can all work together. There is an insurance database here where you can look up who got Tricare to pay and how.Please know that you are doing the right thing by seeking treatment for your son. I am not sure who you will be using, my son wore the Doc Bnad by Cranial Technologies and I made him a website to help others. You can take a look at it, to get an idea of how the treatment process works and what kind of results you can expect. I have lots of pictures and talk about the associated risks, and the ups and downs of the journey you are about to embark on. It's called My Banded Baby and I hope it helps. You stay with us here and we will try our best to provide the support you want and need during this time. CAROLG >> My 5.5 month old son saw the pediatric plastic surgeon today about the > flat spot on the side of his head. The doctor said it was cause from > laying too much on that one side. His diagnosis was moderate and > about a 6 on a scale of 1-10. The doctor said that he needs a > helmet. On the paperwork that the doctor gave me to send to the > insurance he had checked that the condition was "anomilies of the face > and skull bones" instead of "plagiocephaly". What is the difference?> > Also, the insurace we have is Tricare. Does anyone have any > experience with getting them to pay? > > All of this is new to me and my husband is in Iraq. It is difficult > not having him here to help me make decisions. I would appreciate any > advice you can give me.> > Thanks in advance!> Missy>

[Guest guest]

Hi Missy

I bet your doctor wrote that for the purpose of trying to get better insurance coverage. You have to admit that "anomilies of the face and skull bones" sounds bad. It would be harder for insurance company to argue "it is just for cosmetic purposes."

I am sorry to hear that your husband is currently in Iraq. I hope he will be able to return to you in the near future. My brother just left for Iraq yesterday. My sister-in-law is just starting her journey of "single parenthood" with 3 young children. Your family is in my prayers.

(mom to Georgia, Starband)

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of missywgrahamSent: Monday, October 31, 2005 11:11 PMPlagiocephaly Subject: DiagnosisMy 5.5 month old son saw the pediatric plastic surgeon today about the flat spot on the side of his head. The doctor said it was cause from laying too much on that one side. His diagnosis was moderate and about a 6 on a scale of 1-10. The doctor said that he needs a helmet. On the paperwork that the doctor gave me to send to the insurance he had checked that the condition was "anomilies of the face and skull bones" instead of "plagiocephaly". What is the difference?Also, the insurace we have is Tricare. Does anyone have any experience with getting them to pay? All of this is new to me and my husband is in Iraq. It is difficult not having him here to help me make decisions. I would appreciate any advice you can give me.Thanks in advance!Missy

[Guest guest]

Hi Missy

I bet your doctor wrote that for the purpose of trying to get better insurance coverage. You have to admit that "anomilies of the face and skull bones" sounds bad. It would be harder for insurance company to argue "it is just for cosmetic purposes."

I am sorry to hear that your husband is currently in Iraq. I hope he will be able to return to you in the near future. My brother just left for Iraq yesterday. My sister-in-law is just starting her journey of "single parenthood" with 3 young children. Your family is in my prayers.

(mom to Georgia, Starband)

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of missywgrahamSent: Monday, October 31, 2005 11:11 PMPlagiocephaly Subject: DiagnosisMy 5.5 month old son saw the pediatric plastic surgeon today about the flat spot on the side of his head. The doctor said it was cause from laying too much on that one side. His diagnosis was moderate and about a 6 on a scale of 1-10. The doctor said that he needs a helmet. On the paperwork that the doctor gave me to send to the insurance he had checked that the condition was "anomilies of the face and skull bones" instead of "plagiocephaly". What is the difference?Also, the insurace we have is Tricare. Does anyone have any experience with getting them to pay? All of this is new to me and my husband is in Iraq. It is difficult not having him here to help me make decisions. I would appreciate any advice you can give me.Thanks in advance!Missy

[Guest guest]

Missy,

I work for a Congressman in North Carolina, I'm not sure were you are, but another congressional office might be able to help. If you don't know who your congressman is, let me know where you live and I will try to get that information to you.

North Carolina

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of missywgrahamSent: Monday, October 31, 2005 11:11 PMPlagiocephaly Subject: DiagnosisMy 5.5 month old son saw the pediatric plastic surgeon today about the flat spot on the side of his head. The doctor said it was cause from laying too much on that one side. His diagnosis was moderate and about a 6 on a scale of 1-10. The doctor said that he needs a helmet. On the paperwork that the doctor gave me to send to the insurance he had checked that the condition was "anomilies of the face and skull bones" instead of "plagiocephaly". What is the difference?Also, the insurace we have is Tricare. Does anyone have any

experience with getting them to pay? All of this is new to me and my husband is in Iraq. It is difficult not having him here to help me make decisions. I would appreciate any advice you can give me.Thanks in advance!Missy

FareChase - Search multiple travel sites in one click.

[Guest guest]

Missy,

I work for a Congressman in North Carolina, I'm not sure were you are, but another congressional office might be able to help. If you don't know who your congressman is, let me know where you live and I will try to get that information to you.

North Carolina

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of missywgrahamSent: Monday, October 31, 2005 11:11 PMPlagiocephaly Subject: DiagnosisMy 5.5 month old son saw the pediatric plastic surgeon today about the flat spot on the side of his head. The doctor said it was cause from laying too much on that one side. His diagnosis was moderate and about a 6 on a scale of 1-10. The doctor said that he needs a helmet. On the paperwork that the doctor gave me to send to the insurance he had checked that the condition was "anomilies of the face and skull bones" instead of "plagiocephaly". What is the difference?Also, the insurace we have is Tricare. Does anyone have any

experience with getting them to pay? All of this is new to me and my husband is in Iraq. It is difficult not having him here to help me make decisions. I would appreciate any advice you can give me.Thanks in advance!Missy

FareChase - Search multiple travel sites in one click.

[Guest guest]

,

Thank you for the welcome. Sorry for the late response -- I just missed the

message. I believe I have type 2. As I have no children, I never had genetic

testing.

Looking back, my father always had foot problems. He was the only one I knew who

had foot orthotics in the 1950's. It took a neuropathy expert to diagnose CMT.

One look at my feet and my future became apparent.

My case was complicated by extensive back surgery in 1969-71 so my neurologist

couldn't make a differential diagnosis.

One interesting thing that happened was that the problems of diagnosis

may have saved my life. I consulted with companies in New York City. One was in

the World Trade Center. On September I was home in Virginia

having scheduled a myelogram and CAT scan for the afternoon. I wasn't

due at the client until 11:00 AM, but would have been in the city on

September 10. My usual habit was if I had a late appointment, I would go to the

client site and work on issues for other clients until I had my meeting or

presentation.

Joss, karma, benevolence from somewhere, I have no idea. What happened

on 9/11 opened my eyes as to all the time I have been wasting limping

through airports. I haven't flown since.

Larry

[Guest guest]

I was diagnoised with hypothroidism the first of the year and my doc

put me on synthroid. I can't loose any weight even though I exercise

and diet like a mad woman. I'm getting very discouraged. What can I do

for this problem?

[Guest guest]

My rheumie told me that there are over 100 different forms of arthritis so

if it is not RA it may be something different. They more take more blood too.

Let us know how it goes and good luck!

Joy

" Mrs. Castro " <chocolatewookie@...> wrote:

Well, my first Rheumy visit is one Wednesday and I was wondering this:

Should I expect any diagnosis right away? My RA factor and ANA are

negative and I have a normal Sed rate, but my GP thinks I have RA and

I think I also have Fibromyalgia. About how long will it be before I

have any diagnosis from the Rheumatologist?

Thanks guys!

Joy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit Joy's Homepage and Reading Room!

http://jhoormann-ivil.tripod.com

Come see My Dog Salsa!

http://www.geocities.com/jhoorm01/Salsa.html

[Guest guest]

My blood work was neg. also, but my RA doc asked me questions about my family

(father and his mother has RA). My pain where and did a physical exam he

diagnosed me by that. Good luck.

Marsha

" Mrs. Castro " <chocolatewookie@...> wrote:

Well, my first Rheumy visit is one Wednesday and I was wondering this:

Should I expect any diagnosis right away? My RA factor and ANA are

negative and I have a normal Sed rate, but my GP thinks I have RA and

I think I also have Fibromyalgia. About how long will it be before I

have any diagnosis from the Rheumatologist?

Thanks guys!

[Guest guest]

Lyndsay,

Your rheumatologist may want to run the labs again or add a few of his own.

He may order imaging studies of your hands and/or feet to see if there are

any signs of RA there. He will do a thorough exam and history.

If he can make the diagnosis, he will. Not everyone will get a diagnosis

immediately though. It can sometimes take a very long time. It's impossible

for us to predict when you will get a diagnosis.

Good luck! Let us know what your rheumatologist says.

Not an MD

[ ] Diagnosis

> Well, my first Rheumy visit is one Wednesday and I was wondering this:

> Should I expect any diagnosis right away? My RA factor and ANA are

> negative and I have a normal Sed rate, but my GP thinks I have RA and

> I think I also have Fibromyalgia. About how long will it be before I

> have any diagnosis from the Rheumatologist?

>

>

>

> Thanks guys!

[Guest guest]

I had a doctor who said I was sick from mold but workmens comop wouldnt

believe iyt and sent me to a quack that agrees with them. So I was denied.

Janet

**************************************

See what's free at

http://www.aol.com.

[Guest guest]

Man, that sounds like the beginning of a bad joke - lol. Sounds like you're

asking a legal rather than medical question, and without disclosing your

symptoms, not many on the list will take the question seriously.

H.

jodirego <jodirego@...> wrote: What does

a doctor have to diagnose you with to collect workermans comp

from an employers sick building full of mold?

[Guest guest]

Jodirego,

I think the question is what have you been diagnosed with, not what

you need to be diagnosed with. Maybe if you can give us a little

more background of your situation this might help.

Are you sure it's your place of employment and not your home? Is

there any visable mold or signs of water damage in either area? Both

should be tested.

Has the building been inspected recently for any reason?

What leads you to believe it is your work environment?

What are your symptoms and try to be specific with some detail. Do

you tell your physicians you've been exposed to mold or do you just

let them do their job?

There can be several factors causing your symptoms not just mold.

I'm not trying to be intrusive, just fishing so we have something

more to go on.

Is it a new building or old?

Is anyone else sick?

Have you had to leave work on short term disability, if so for what

reason?

Any information you can offer may help us lead you in the right

direction.

KC

--- In , " jodirego " <jodirego@...>

wrote:

>

> What does a doctor have to diagnose you with to collect workermans

comp

> from an employers sick building full of mold?

>

[Guest guest]

> >

> > What does a doctor have to diagnose you with to collect

workermans

> comp

> > from an employers sick building full of mold?

> >

>

[Guest guest]

I have been sick on and off for a year and a half. I

have had severe episodes of shortness of breath,

dizzyness and tingling in the extremities. Each time I

was rushed to hospital ER and treated for asthma. At

work my condition worsened. When I walked into the

building I felt like I was being strangled and I

couldn't catch my breath. My employer refused to take

responsibility even though others experienced similar

symptoms. Most of them quit right away and feel much

better today. The building in question has been

through numerous hurricanes with no cleaning from the

employer. You can see dark green and black mold

blowing from the ac duct work. I collapsed at work and

was taken to the hospital and admitted for 7 days. I

have not worked since as I am so short of breath all

the time, I almost can't function. I have inspiratory

and expiratory wheezing all the time and the least

exertion makes me vey short of breath. Some nights I

have to sit in the tripod position just to breath. I

have stomach cramps still with blood in my stool. My

extremities at times go numb. My doctor seems to think

its cardiac and has put me through every test, stress

test, carotic artery dye test, and blood work all

coming back normal. Now my BP is very high and we are

having a time controlling it. I take 15 medications

every day just to breath for a few hours normally.

__________________________________________________

[Guest guest]

Terry,

Contact this Dr.

Dr Albert F. Robbins , D.O., M.S.P.H.

Robbins Environmental Medicine Center

400 S. Dixie Hwy.

Bldg. 2, Suite 210

www.allergycenter.com

Boca Raton FL 33432-6023

Phone 561-395-3282

Fax: (561) 395-3304

E-mail: ChemREMC@...

--- In , terry king <jodirego@...>

wrote:

>

> I have been sick on and off for a year and a half. I

> have had severe episodes of shortness of breath,

> dizzyness and tingling in the extremities. Each time I

> was rushed to hospital ER and treated for asthma. At

> work my condition worsened. When I walked into the

> building I felt like I was being strangled and I

> couldn't catch my breath. My employer refused to take

> responsibility even though others experienced similar

> symptoms. Most of them quit right away and feel much

> better today. The building in question has been

> through numerous hurricanes with no cleaning from the

> employer. You can see dark green and black mold

> blowing from the ac duct work. I collapsed at work and

> was taken to the hospital and admitted for 7 days. I

> have not worked since as I am so short of breath all

> the time, I almost can't function. I have inspiratory

> and expiratory wheezing all the time and the least

> exertion makes me vey short of breath. Some nights I

> have to sit in the tripod position just to breath. I

> have stomach cramps still with blood in my stool. My

> extremities at times go numb. My doctor seems to think

> its cardiac and has put me through every test, stress

> test, carotic artery dye test, and blood work all

> coming back normal. Now my BP is very high and we are

> having a time controlling it. I take 15 medications

> every day just to breath for a few hours normally.

>

> __________________________________________________

>

[Guest guest]

,

If your RA factor came back positive you have RA. I also am diabetic and

have another autoimmune disorder, I was just diagnosed in January with

RA.But as we get older, S**t happens.

marla

--

[Guest guest]

Marla, Would you agree or disagree with this statement by the American

Association of Clinical Chemistry?

" The RF test is not diagnostic or specific. It must be interpreted in

conjunction with the patient's symptoms and history to make a

diagnosis of RA, Sjögren's syndrome, or another condition. The

frequency of false positive RF results increases with age. "

Source:

http://www.labtestsonline.org/understanding/analytes/rheumatoid/test.html

I personally refused the test, not because I don't trust it at all but

for other reasons. I'm sure it has some level of trustworthy. What

level, I don't know, but what do you think of the quote above?

>

> ,

> If your RA factor came back positive you have RA. I also am diabetic

and

> have another autoimmune disorder, I was just diagnosed in January with

> RA.But as we get older, S**t happens.

> marla

> --

>

[Guest guest]

Hi ,

 Hope I am not 'butting in' but your posts have raised  some intriguing

points, and felt I would add my ' five cents ' (equals 'two pence worth' as we

say in UK!)

Just to say again I have joined  this excellent caring site as a retired doc

friend on behalf  of a computer free fairly newly struck down RA/ + related

conditions sufferer, trying to support her on her hard journey. The comment

about overlapping symptoms is so true of this spectrum of auto immune

conditions, they rarely tend to neatly 'fit the box', as shown by so many

postings here.That is what seems to be so difficult, because some physicians

seem  to expect to see only the classic pattern of disease, leaving the

unexplained,but often equally distressing  off joint symptoms seem

awkward, and not in their remit.  Your comment about treating  and

acknowledging symptoms in mental illness surely is just what should be happening

also of ALL the symptoms associated with a 'lived with' condition like RA etc

as well as giving most appropriate disease modifying treatment depending on

tests pointing to a particular diagnosis.

By the way the rheumatoid factor test is not just simply positive or

negative,When detected at low levels it means very little, at higher levels it

does show the body has mounted an immune response and if maintained at high

level it certainly does point to active RA, along side joint symptoms but is

not specific.Still sometimes this helps the doc go in with particular disease

modifying drugs earlier.

Best wishes Chris

[ ] Diagnosis

I haven't read many posts so I apologize if I am bringing up something

that has recently been covered.

We all know about overlapping symptoms. Can I ask you guys how many

of you have had a change of diagnosis? I have been diagnosed with RA

and I have the symptoms, but every now and then something else goes on

and I wonder.

Also, in mental illness, it's not so important that you know the EXACT

diagnosis since you treat the symptoms. I think that in autoimmune

disorders, however, it's important to know the exact diagnosis. What

is your opinion? and why do you have that opinion?

Just curious to know your thoughts.

__________________________________________________________

Sent from .

A Smarter Email http://uk.docs./nowyoucan.html

[Guest guest]

I don't think this is true - everything I have ever read on rheumatoid

factor says there are people who test positive but never develop RA.

>

> ,

> If your RA factor came back positive you have RA. I also am diabetic

and

> have another autoimmune disorder, I was just diagnosed in January

with

> RA.But as we get older, S**t happens.

> marla

[Guest guest]

I've been told that as well that people can have the RA factor positive but

never develope RA. & nbsp; There are also those that test positive one month and

maybe negative the next, and then of course those that never test positive at

all. & nbsp; Overlapping symptoms can be a challenge in diagnosing. & nbsp; I have

livideo reticularius and reynauds which my dr said tend to go with Lupus (yet I

always test negative) and at times, Ive gotten the red rash on the cheeks and

nose and have extreme photosensitivity even before being put on

medications. & nbsp; Its just like FMS can mimic Lyme, Lupus, and MS. & nbsp;

From: goodbead40 & lt;goodbead40@... & gt;

Subject: [ ] Re: Diagnosis

Date: Saturday, June 14, 2008, 11:21 PM

I don't think this is true - everything I have ever read on rheumatoid

factor says there are people who test positive but never develop RA.

& gt;

& gt; ,

& gt; If your RA factor came back positive you have RA. I also am diabetic

and

& gt; have another autoimmune disorder, I was just diagnosed in January

with

& gt; RA.But as we get older, S**t happens.

& gt; marla

[Guest guest]

>

> So I have a kid (my granddaughter) that is obviously got something wrong with

her. Can I just start from scratch and try to find a true idea of what it is?

And what its cause?

Autism is complex and needs to be diagnosed by a professional. So, you are

going in the right direction. Just keep going--you're doing all the right

things. Being complex, the diagnosis is not going to happen in a day--so have

patience.

AS actually does NOT have a " huge " array of symptoms; there are specific

diagnostic criteria. Google " Asperger " and " dsm-iv " and you will get the

diagnostic criteria. That will get you started, as far as Asperger goes.

You are right, kids with Asperger often also have other conditions, but I would

say one thing at a time. Let the person currently diagnosing your granddaughter

do her job. You will end up with a detailed report when she is done that

specifies her findings and recommendations.

Ruth

[Guest guest]

Sounds familiar. We have had many different diagnoses too.

Yesterday I was told my granddaughter has most likely disassociative disorder,

which means she has a rather weak sense of who she is and the range of symptoms

does fit.

I am reading the book about the syndrome mix. It is helping.

Jill

[Guest guest]

We started with and ADHD dx. It seems now that it was incorrect as all his

symptoms are explained by Asperger's.

Becky

>

>

> Do most children receive multiple diagnosis? Perhaps diagnosed with

> one thing early on and then later changed to asperger? Or perhaps

> diagnosed with multiple things. My grandson was originally

> diagnosed with bipolar though everyone thought that was wrong except

> the doctor. Asperger was later added and the diagnosis becamse

> bipolar comorbid with asperger. Now it has been changed to drop

> bipolar and the diagnosis is asperger, OCD with anxiety disorder.

> Seems to me that alot of the characteristics associated with

> asperger include OCD and anxiety disorder.

> Just wondered if others received similar diagnosis?

> Becky

>

[Guest guest]

we started with the adhd dx as well and did not find as dx until 5yrs later but they suspected all along just took forever for the dx as my sons symptoms must not have been severe enough to catch it but the last eval we had the dr, who has 30+ yrs of expeirence in not only pscyhology but with autism itself says my son exhibited more of the symptoms for AS than he has witnessed in a child in a long time, but at that time my son was listed in crisis because the school system was doing nothing to help he was going downhill and fast, had started having accidents,finding reasons to hang with school nurse as she was only person understanding and nice to him, we were have so many meltdowns i did not know what to do, and now he is in a new school who are so caring, total different atmosphere it is nice. sherryFrom: doodlebugboodles <doodlebugboodles@...>Subject: ( ) Re: Diagnosis @...Date: Wednesday, April 1, 2009, 8:31 PM

We started with and ADHD dx. It seems now that it was incorrect as all his symptoms are explained by Asperger's.

Becky

>

>

> Do most children receive multiple diagnosis? Perhaps diagnosed with

> one thing early on and then later changed to asperger? Or perhaps

> diagnosed with multiple things. My grandson was originally

> diagnosed with bipolar though everyone thought that was wrong except

> the doctor. Asperger was later added and the diagnosis becamse

> bipolar comorbid with asperger. Now it has been changed to drop

> bipolar and the diagnosis is asperger, OCD with anxiety disorder.

> Seems to me that alot of the characteristics associated with

> asperger include OCD and anxiety disorder.

> Just wondered if others received similar diagnosis?

> Becky

>