Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 I'm reading the book ADHD and Me. Great book by the way, written by a highschooler and his point of view. I am going to read parts to my son, so he can realize her is not the only one. I bring this up because a lot of the issues the boy in this book deals with cross over into AS lines. I can see how you start with one dx and then the next. My son was dx ADHD then AS. bobbie in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Bobby, I am also reading a few books on ADHD. My dd was dx'ed with it a few years ago. Both disorders share executive function deficits, so logically both would benefit from measures to support that deficit. Kylie in Ca. > > I'm reading the book ADHD and Me. Great book by the way, written by a highschooler and his point of view. I am going to read parts to my son, so he can realize her is not the only one. I bring this up because a lot of the issues the boy in this book deals with cross over into AS lines. > > I can see how you start with one dx and then the next. My son was dx ADHD then AS. > > > bobbie in NJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 It sounds similar to my son.????? Has someone checked him for dysarthia (low muscle tone of the face).???? If so, are they addressing it.?? Both myself and another mom have children that were in therpay for a full year.?? Our sons both were making slow progress.????? When our sons oral motor weaknesses were addressed the sounds and words started coming very rapidly in comparison to the otherwise slow progress. Also, does he sleep well??? My son wasn't crying at night that much but when I was pregnant and now with a new baby I realized that he was actually waking up quite often (I'd hear him on the intercom when I was up in the night).?? I took him to a sleep specialist and he has apnea.????? We are considering having his adenoids/tonsils removed.?????? I am told disturbed sleep can cause a lot of problems with speech development. Just some thoughts. [ ] Diagnosis I need help! My son is now 33 months old and still is not talking. We have ran every blood test known to man and they have shown nothing. He was diagnosed with Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and physical/occupational therapy for 1 1/2 yrs. The older he's getting the more frustrating it's getting for him and for the rest of the family. He acts out on a frequent basis and I know it's because he can't express himself in any other way. The only word he will say is ME and that has just started maybe a month ago. His pediatrician says she is OK as long as he is slowly progressing, but the problem is he's not progressing at all. My husband and I want answers and everywhere we have went we get the same explanation...give him more time. We are really worried and don't know where else to turn. thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 The old " give him more time " is wrong. Especially if he is getting frustrated at not being understood. Maybe you could ask the speech therapist about " pecs " . Obviously the frustration warrants some other way to communicate for him. Pecs is a great first step. We started with sign first, then did pecs because it was easier for everyone else to communicate with my son. There are a bunch of free sites on the web to help with pecs symbols. Your therapist will be able to help you with this.   Behaviours will get worse, not better if you " just give him time " . and maybe you could find a developmental pediatrician instead of a regular one just as an option to what further things to pursue. hth sandy ________________________________ From: m_kkirkland <m_kkirkland@...> Sent: Wednesday, September 16, 2009 11:24:40 AM Subject: [ ] Diagnosis  I need help! My son is now 33 months old and still is not talking. We have ran every blood test known to man and they have shown nothing. He was diagnosed with Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more frustrating it's getting for him and for the rest of the family. He acts out on a frequent basis and I know it's because he can't express himself in any other way. The only word he will say is ME and that has just started maybe a month ago. His pediatrician says she is OK as long as he is slowly progressing, but the problem is he's not progressing at all. My husband and I want answers and everywhere we have went we get the same explanation. ..give him more time. We are really worried and don't know where else to turn. thanks, __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I honestly don't think anyone has ever said anything about his face. As I said before, speech therapy has been going on for a year now and PT and OT have been for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He makes a lot of noise when he sleeps, even last night he was laughing! He usually ends up in our bed before the night is over. Even during his naps, he is never still. His legs, arms or something is moving or jerking. I will certainly address the dysarthia issue w/ his doc on Friday morning. Thank you so much for your help! ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 I've never heard of PECS before. I will be sure to ask his therapist tomorrow morning about that. He does communicate w/ some sign language, just the basics mainly. Again, I sincerely appreciate your help and thoughts! ________________________________ From: sandy lehmann <mommie2chris@...> Sent: Wednesday, September 16, 2009 12:20:31 PM Subject: Re: [ ] Diagnosis The old " give him more time " is wrong. Especially if he is getting frustrated at not being understood. Maybe you could ask the speech therapist about " pecs " . Obviously the frustration warrants some other way to communicate for him. Pecs is a great first step. We started with sign first, then did pecs because it was easier for everyone else to communicate with my son. There are a bunch of free sites on the web to help with pecs symbols. Your therapist will be able to help you with this. Behaviours will get worse, not better if you " just give him time " . and maybe you could find a developmental pediatrician instead of a regular one just as an option to what further things to pursue. hth sandy ____________ _________ _________ __ From: m_kkirkland <m_kkirkland> @groups. com Sent: Wednesday, September 16, 2009 11:24:40 AM Subject: [childrensapraxiane t] Diagnosis I need help! My son is now 33 months old and still is not talking. We have ran every blood test known to man and they have shown nothing. He was diagnosed with Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more frustrating it's getting for him and for the rest of the family. He acts out on a frequent basis and I know it's because he can't express himself in any other way. The only word he will say is ME and that has just started maybe a month ago. His pediatrician says she is OK as long as he is slowly progressing, but the problem is he's not progressing at all. My husband and I want answers and everywhere we have went we get the same explanation. ..give him more time. We are really worried and don't know where else to turn. thanks, ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 We were in the same situation. Had my son's tonsils and adenoids removed and he started gaining words 10 days after surgery. In the 5 months since surgery he went from only saying up and down to talking in sentences. There is no doubt to us this helped him tremendously. He is still playing catch up and we are working on articulation but the difference is unbelievable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Please look into PECS. It really helped with our sons frustration level. Unfortunately, sign language didn't really work for us because of his fine motor delays. Get a neurologist or developmental pediatrician to diagnose him. My son was diagnosed at 2 1/2. If he has hypotonia, does he have low tone in his jaw muscles? Oral motor therapy has really helped my son strengthen his muscles and work with his lip closure, puckering, tongue movement, etc. Don't listen to your pediatrician! Jenna (mom to Larsyn 3.5 yo dx/severe verbal & oral apraxia, dyspraxia, hypotonia, sensory processing dysfunction, dysmorphic facial features AND Chance 6yo typical boy) > > I've never heard of PECS before. I will be sure to ask his therapist tomorrow morning about that. He does communicate w/ some sign language, just the basics mainly. Again, I sincerely appreciate your help and thoughts! > > > > > > > ________________________________ > From: sandy lehmann <mommie2chris@...> > > Sent: Wednesday, September 16, 2009 12:20:31 PM > Subject: Re: [ ] Diagnosis > > > The old " give him more time " is wrong. Especially if he is getting > frustrated at not being understood. Maybe you could ask the speech > therapist about " pecs " . Obviously the frustration warrants some other > way to communicate for him. Pecs is a great first step. We started > with sign first, then did pecs because it was easier for everyone else > to communicate with my son. There are a bunch of free sites on the web > to help with pecs symbols. > > Your therapist will be able to help you with this. Behaviours will get > worse, not better if you " just give him time " . and maybe you could find > a developmental pediatrician instead of a regular one just as an option > to what further things to pursue. > > hth > sandy > > ____________ _________ _________ __ > From: m_kkirkland <m_kkirkland> > @groups. com > Sent: Wednesday, September 16, 2009 11:24:40 AM > Subject: [childrensapraxiane t] Diagnosis > > > I need help! My son is now 33 months old and still is not talking. We have ran every blood test known to man and they have shown nothing. He was diagnosed with Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more frustrating it's getting for him and for the rest of the family. He acts out on a frequent basis and I know it's because he can't express himself in any other way. The only word he will say is ME and that has just started maybe a month ago. His pediatrician says she is OK as long as he is slowly progressing, but the problem is he's not progressing at all. My husband and I want answers and everywhere we have went we get the same explanation. ..give him more time. We are really worried and don't know where else to turn. > > thanks, > > > ____________ _________ _________ _________ _________ _________ _ > Looking for the perfect gift? Give the gift of Flickr! > > http://www.flickr. com/gift/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Wow - your son sounds like a little twin of mine.?? I'm so glad I?took him in to the sleep dr and had the confirmation of apnea now.??? My son rolls, turns this way and that etc.????Please keep me posted on what your doc says.?? Maybe?we can figure out why symptoms are all so similar.???? My?neurologist won't agree to?take out the tonsils adenoids until they do even more genetic testing.??? My ENT sais he would do it but not without neurologist also saying yes.???? Evidently he had a rare case a few years back where if he had done it it could have been a bad bad mistake due to an overlying problem with the child revealed by the genetics.????? Very frustrating for me now that i know he has apnea.???? I did find out from a apraxia genetic specailist via email that the only known link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and am hoping to talk her into letting the ENT do the surgery without more genetics.?? If you do find someone to asses the dysarthia here is what someone good will look for (I copied it over from something I posted a while back): Well, when I saw Debra the first time she basically had her hands in his mouth for an hour and did a complete assessment of his muscle tone.???I pulled out the assessment and these are the things she checked: ? Range of movement for the lips for protrusion and elongation Lip Strenth - upper lip and lower lip Range of movement for the upper and lower cheeks bilaterally Posterior cheek strength Posterior jaw resting range Jaw alignment Jaw strength Close and hold for jaw Jaw approximation Alignment for the base of the tongue Tongue movement toward gum massage Lateral tongue movement to the left and right gum Lateral tongue movement to the cheeks and upper gums Midblade elevation Tongue tip elevation Lateral soft palate activation Hard palate vault and contour ? She could tell my one a scale (5/5) or a % for each item where he was at.???? Everything should be at 5/5 or 100%.????? Debra Beckman has a list of therapists trained in her methods on www.beckmanoralmotor.com????? You don't have to have someone doing her methods (I wouldn't think) I'm just saying that whoever does the therapy should be able to tell you how your son does on these items.?? I knew my son had low muscle tone in his face but until I saw her I had no idea how bad it truly was.??? In some of these categories my son had 0%.????? For example, my son is thin but under his chin it looked like baby fat.??? I thought this was just his face shape.??? After seeing Deborah I realized that his muscles weren't holding his tongue in the right position because there was so low of tone.????? Since June he has almost eliminated what I once thought was just baby fat because he's starting to develop the muscle.??? Also, if someone is putting their hands in his mouth and he cries on and on about it and it continues session after session - this is NOT the way it should be.??? I took him to a supposed beckman oral motor specialist before and her approach was totally wrong.?? He hated every moment of it because she didn't approach it in the rigth way.??? Children with low tone often don't like people having their hands in their mouth.?? He never cries now. Make sure someone isn't overcharging you for an assessment for dysarthia.?? Some of these docs out there are getting crazy.??? Debra charges $300 for an evaluation which is between 1-2 hours.???? Also someone I met through a friend with similar problems has her child just start and she has also seen a change in the child's facial shape/tone since seeing Debra.???? Best of luck to you! ? Re: [ ] Diagnosis He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I honestly don't think anyone has ever said anything about his face. As I said before, speech therapy has been going on for a year now and PT and OT have been for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He makes a lot of noise when he sleeps, even last night he was laughing! He usually ends up in our bed before the night is over. Even during his naps, he is never still. His legs, arms or something is moving or jerking. I will certainly address the dysarthia issue w/ his doc on Friday morning. Thank you so much for your help! ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 My dd genetics dr is at Columbia Med Ctr in NYC. We've been seeing him for five years. FoxP2 is Chromosome 7. My dd has a deletion on Chromosome 2. He told us that he has seen numerous children with her type of deletion that have speech/apraxia issues. It is a Neurological condition--so I can understand why the Neurologist would not want surgery done. Have you seen a genetics dr? A blood test would determine if there are genetic issues which might explain the speech issues without resorting to surgery. > > > I did find out from a apraxia genetic specailist via email that the only known link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and am hoping to talk her into letting the ENT do the surgery without more genetics.?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Isaac does not have hypotonia in his jaw muscles, at least that's what we've been told. I honestly believe his is Verbal Apraxic. I spoke w/ his pediatrician this morning and she agreed. She also said at this point she doesn't believe he's just a " late talker " , and seemed more concerned when I told her he was no longer saying the few words he was 6-8 months ago. She is going to call and speak w/ his speech therapist and also her sister, which is a ped speech pathologist. Maybe we will get somewhere now...I don't know...I'm crossing my fingers that we can get a diagnosis sooner than later. I feel that we have wasted too much time already. ________________________________ From: imcaligal <imcaligal@...> Sent: Thursday, September 17, 2009 11:48:24 PM Subject: [ ] Re: Diagnosis Please look into PECS. It really helped with our sons frustration level. Unfortunately, sign language didn't really work for us because of his fine motor delays. Get a neurologist or developmental pediatrician to diagnose him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 I don't think Isaac has hypotonia in his face or jaw. We went to his ped this morning and she agreed w/ me about him having verbal apraxia. She is also going to get in touch w/ his speech therapist and discuss some things w/ her. As far as the unusual sleeping, she said his 2 yr molars are just coming in and that is probably affecting his sleep. We are going to give it a couple of weeks and look at it again. ________________________________ From: " NotefrmSue@... " <NotefrmSue@...> Sent: Friday, September 18, 2009 3:04:34 AM Subject: Re: [ ] Diagnosis Wow - your son sounds like a little twin of mine.?? I'm so glad I?took him in to the sleep dr and had the confirmation of apnea now.??? My son rolls, turns this way and that etc.????Please keep me posted on what your doc says.?? Maybe?we can figure out why symptoms are all so similar.???? My?neurologist won't agree to?take out the tonsils adenoids until they do even more genetic testing.??? My ENT sais he would do it but not without neurologist also saying yes.???? Evidently he had a rare case a few years back where if he had done it it could have been a bad bad mistake due to an overlying problem with the child revealed by the genetics.??? ?? Very frustrating for me now that i know he has apnea.???? I did find out from a apraxia genetic specailist via email that the only known link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and am hoping to talk her into letting the ENT do the surgery without more genetics.?? If you do find someone to asses the dysarthia here is what someone good will look for (I copied it over from something I posted a while back): Well, when I saw Debra the first time she basically had her hands in his mouth for an hour and did a complete assessment of his muscle tone.???I pulled out the assessment and these are the things she checked: ? Range of movement for the lips for protrusion and elongation Lip Strenth - upper lip and lower lip Range of movement for the upper and lower cheeks bilaterally Posterior cheek strength Posterior jaw resting range Jaw alignment Jaw strength Close and hold for jaw Jaw approximation Alignment for the base of the tongue Tongue movement toward gum massage Lateral tongue movement to the left and right gum Lateral tongue movement to the cheeks and upper gums Midblade elevation Tongue tip elevation Lateral soft palate activation Hard palate vault and contour ? She could tell my one a scale (5/5) or a % for each item where he was at.???? Everything should be at 5/5 or 100%.????? Debra Beckman has a list of therapists trained in her methods on www.beckmanoralmoto r.com???? ? You don't have to have someone doing her methods (I wouldn't think) I'm just saying that whoever does the therapy should be able to tell you how your son does on these items.?? I knew my son had low muscle tone in his face but until I saw her I had no idea how bad it truly was.??? In some of these categories my son had 0%.????? For example, my son is thin but under his chin it looked like baby fat.??? I thought this was just his face shape.??? After seeing Deborah I realized that his muscles weren't holding his tongue in the right position because there was so low of tone.????? Since June he has almost eliminated what I once thought was just baby fat because he's starting to develop the muscle.??? Also, if someone is putting their hands in his mouth and he cries on and on about it and it continues session after session - this is NOT the way it should be.??? I took him to a supposed beckman oral motor specialist before and her approach was totally wrong.?? He hated every moment of it because she didn't approach it in the rigth way.??? Children with low tone often don't like people having their hands in their mouth.?? He never cries now. Make sure someone isn't overcharging you for an assessment for dysarthia.?? Some of these docs out there are getting crazy.??? Debra charges $300 for an evaluation which is between 1-2 hours.???? Also someone I met through a friend with similar problems has her child just start and she has also seen a change in the child's facial shape/tone since seeing Debra.???? Best of luck to you! ? Re: [childrensapraxiane t] Diagnosis He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I honestly don't think anyone has ever said anything about his face. As I said before, speech therapy has been going on for a year now and PT and OT have been for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He makes a lot of noise when he sleeps, even last night he was laughing! He usually ends up in our bed before the night is over. Even during his naps, he is never still. His legs, arms or something is moving or jerking. I will certainly address the dysarthia issue w/ his doc on Friday morning. Thank you so much for your help! ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 , My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing that seems to help him. His developmental pediatrician recommended it (actually I already had started him on it because I read about it on an autistic message board). Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia, hypotonia, sensory processing dysfunction and dysmorphic facial features) --- In , MELISSA KIRKLAND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 Your son has exactl the same issues that my daughter has. Have you ever had him tested for vcfs? We just met with Kaufman and she suggested getting my daughter tested. I have been to several Neuros, Developmental Peds, and geneticist and I have never heard of this. Now that I have googled it my daughter does have some of the characteristics. also said she does not believe my daughter has apraxia. This is amazing to me as she has seen by s/t, and specialists in 3 different states, New York, Florida, and Ga and they all dianosed  her with apraxia. Even my s/t here in Ga are floored she doesn't have apraxia. It does not matter as all the therapy we have been doing has made a tremendous difference in her speaking abilities. We will continue the Kaufman method as well as prompt but we will now start working more on receptive language as has suggested. ________________________________ From: imcaligal <imcaligal@...> Sent: Saturday, September 19, 2009 7:16:35 PM Subject: [ ] Re: Diagnosis  , My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing that seems to help him. His developmental pediatrician recommended it (actually I already had started him on it because I read about it on an autistic message board). Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia, hypotonia, sensory processing dysfunction and dysmorphic facial features) --- In @groups. com, MELISSA KIRKLAND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 His pediatrician seems to think his sleep has been interrupted by his two year molars that are just coming in. At this moment, only time will tell. She said to give him a couple of weeks for them to come completely in and we would go from there. My husband has sleep apnea and I've never thought of Isaac suffering from it until I joined this group. Everyone has been so helpful and we finally feel like someone understands where we are. ________________________________ From: imcaligal <imcaligal@...> Sent: Saturday, September 19, 2009 6:16:35 PM Subject: [ ] Re: Diagnosis , My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing that seems to help him. His developmental pediatrician recommended it (actually I already had started him on it because I read about it on an autistic message board). Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia, hypotonia, sensory processing dysfunction and dysmorphic facial features) --- In @groups. com, MELISSA KIRKLAND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 We have never had VCFS mentioned to us before. I will do some research on that also. We have also been to genetics, neuros and pediatrician and have never heard of that or apraxia for that matter. It is so astounding that there are so many different resources for Apraxia, yet no one has mentioned that to us...until I brought it up last week at my sons doc appt. I hope that now we can get the ball rolling in the correct direction! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 We have taken Isaac to a genetics doctor, Gainesville Florida, and he told us numerous times that there was something there but he couldn't put his finger on it. Isaac is very outgoing and doesn't meet a stranger. He is always smiling and laughing, until it comes to communication, then it's all downhill from there. ________________________________ From: mosense <mosense@...> Sent: Friday, September 18, 2009 7:13:57 AM Subject: [ ] Re: Diagnosis My dd genetics dr is at Columbia Med Ctr in NYC. We've been seeing him for five years. FoxP2 is Chromosome 7. My dd has a deletion on Chromosome 2. He told us that he has seen numerous children with her type of deletion that have speech/apraxia issues. It is a Neurological condition--so I can understand why the Neurologist would not want surgery done. Have you seen a genetics dr? A blood test would determine if there are genetic issues which might explain the speech issues without resorting to surgery. > > > I did find out from a apraxia genetic specailist via email that the only known link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and am hoping to talk her into letting the ENT do the surgery without more genetics.?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 I've met 2-3 local parents who have had their 3-5yr olds diagnosed with Selective Mutism. At first they thought it was Apraxia, but these kids do talk--but not out in public. They will talk at home, but seem to shut down in public or with strangers. just a thought. > > Isaac is very outgoing and doesn't meet a stranger. He is always smiling and laughing, until it comes to communication, then it's all downhill from there. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 Isaac tries to speak no matter if at home or in public. Trust me, when we leave a place people know Isaac was there! As I said, he is such a happy & social little boy, he just can't be verbal with anyone. When he does try to tell you something or show you something he wants the smiles quickly turn to aggression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Hi Tara, We have done some specific genetic testing and basic chromosome testing-all came up negative. We just submitted his blood for micro array chromosome testing (it is being done at a lab in Washington). It also tests for vcfs. It will be interesting to see if it picks up any deletions or abnormalities. Since he has dysmorphic facial features, his doctors all think he has something chromosomal going on, which in turns affected the development of his brain. -Jenna (mom to Larsyn and Chance) Orange County, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Hello , I understand your condition because, I see it frequently. Like Joe Montana, you've a cascading progression of post surgical adjacent level InterVertebral DIsc, Herniated Nucleus Pulposis (IVD HNP). More facts are; there's a 66% chance that another adjacent level wi become IVD HNP if you allow medics to fuse what you're already dealing with. . The alternative is Chiropractic. The only reason Chiropractic has survived 110+ years of illegal medical marketing designed to eliminate Chiropractic is because, Chiropractic works best, especially for the vast majority of spinal problems like IVD HNP. It's what Joe Montana learned after his first failed IVD HNP surgery when he consulted Dr. Nick Athens (Joe went on to win 2 more Super Bowls after he found his Chiropractic Physician :-). There's much more to learn however, I'll wait to learn what further interest you may have. I hope all goes better than well and please. let us know how we can help. regards, AQUADC, DABCN From: <ljorichardson0912@...> Subject: Diagnosis spinal problems , neck pain Date: Wednesday, October 28, 2009, 4:36 PM Â I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused also. anyone have any suggestions on what to do? Thank you ____________ _________ _________ _________ _________ _________ _ Windows 7: Simplify your PC. Learn more. http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727: :T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 , I am so sorry you are facing another surgery. I have been through three in three years. I can imagine your mental exhaustion from having to go through yet another surgery. If it were me I would definately get more than one opinion. I am not a medical professional, just a fellow sufferer. As far as what this guy is saying who purports to have a " diplomat " in chiropractic care (LMAO) ignore him. He seems to be hijacking every message posted in the group. Everyone can read where you just explained you have had two fusions already. I can not fathom ANY CHIROPRACTOR touching you, just like no reputable chiropractor will touch me other than to do physical therapy or massage. I hate to see the message boards that we utilize for support for each other turn into a personal agenda for someone. Barb > > From: <ljorichardson0912@...> > Subject: Diagnosis > spinal problems , neck pain > Date: Wednesday, October 28, 2009, 4:36 PM > > > > > > > Â > > > > > > > > I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused also. > > anyone have any suggestions on what to do? > > > > Thank you > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows 7: Simplify your PC. Learn more. > > http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727: :T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Barb, What motivates your aggression? What or who hurt you so much that you ignore facts? Stop bashing people. You've been target bashing all day and then, laugh? You deserve to feel better. Target yourself and heal. You deserve the best. . Let us discuss health. regards, AQUADC, DABCN (Diplomat American Board of Chiropractic Neurology) From: Barb <ellijaygal@...> Subject: Re: Diagnosis spinal problems Date: Wednesday, October 28, 2009, 4:58 PM Â , I am so sorry you are facing another surgery. I have been through three in three years. I can imagine your mental exhaustion from having to go through yet another surgery. If it were me I would definately get more than one opinion. I am not a medical professional, just a fellow sufferer. As far as what this guy is saying who purports to have a " diplomat " in chiropractic care (LMAO) ignore him. He seems to be hijacking every message posted in the group. Everyone can read where you just explained you have had two fusions already. I can not fathom ANY CHIROPRACTOR touching you, just like no reputable chiropractor will touch me other than to do physical therapy or massage. I hate to see the message boards that we utilize for support for each other turn into a personal agenda for someone. Barb > > From: <ljorichardson0912@ ...> > Subject: Diagnosis > spinedisorderssuppo rtgroup@gro ups.com, painintheneck- back@groups .com > Date: Wednesday, October 28, 2009, 4:36 PM > > > > > > > Â > > > > > > > > I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused also. > > anyone have any suggestions on what to do? > > > > Thank you > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows 7: Simplify your PC. Learn more. > > http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727: :T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Thr fact that he spells it incorrectly does give one pause. however, in the unlikely event his claim is true, and he bought himself a snazzy title, here you go, your search is now narrowed to two possibilities: _American Chiropractic Neurology Board_ (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK) Doctor Locator List of Certified Practitioners in your State (AK) Name (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_BusinessName & Dealer_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter _Dealer_BusinessName & Dealer_StateDir=DESC) Address (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_A ddress1 & Dealer_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_Address1 & Dealer_StateDir =DESC) City (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_City & Dealer_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorte r_Dealer_City & Dealer_StateDir=DESC) State (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_State & Deal er_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_State & Dealer_StateDir=DESC) Zip (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_State Order=Sorter_Dealer_Zip & Dealer_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_Zip & Deal er_StateDir=DESC) Country (http://www.acnb.org/locator/results_state.php?s_Deale r_State=AK & Dealer_StateOrder=Sorter_Dealer_Country & Dealer_StateDir=ASC) (http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\ er=Sorter_Dealer_Country & Dealer_StateDir=DESC) _Barrington, _ (http://www.acnb.org/locator/record_state.php?Dealer_ID=00000119) Phone: 907-677-1600 Fax:907-646-2212 ACNB Registration Status: Active 701 E. Tudor Rd., Suite 125 Anchorage AK 99503 United States _Robbins, Robin_ (http://www.acnb.org/locator/record_state.php?Dealer_ID=00000543) Phone: 907-562-2802 Fax:907-562-7667 ACNB Registration Status: Active 510 W. Tudor, Suite 111 Anchorage AK 99503 United States First Prev 1 of 1 Next Last ©2002-2006 ACNB | _Contact_ (http://www.acnb.org/contact.html) | _Home_ (http://www.acnb.org/) In a message dated 10/28/2009 11:08:37 P.M. Eastern Daylight Time, tpowell1977@... writes: I'm curious as to what " Diplomat " and " medic " are... --- Babbitt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 OK seriously...IVD HNP is not a medical abbreviation...that is maybe a " chiro abbreviation " ...but it is not used anywhere in the diagnosis and treatment of spine pathologies.It's like a redundant phrase designed to make you sound smart. What a scam! This is the kind of stuff I've been talking about! Such quackery!  The more you say, the more inept you sound. And since when is Inter Vertebral capitalized and seperated into two words? And since when do medics perform fusions or surgery fo any kind? In this country surgery is performed by physicans...surgeons.  --- Babbitt ________________________________ From: b p <aquadc@...> spinal problems Sent: Wed, October 28, 2009 5:49:16 PM Subject: Re: Diagnosis  Hello , I understand your condition because, I see it frequently. Like Joe Montana, you've a cascading progression of post surgical adjacent level InterVertebral DIsc, Herniated Nucleus Pulposis (IVD HNP). More facts are; there's a 66% chance that another adjacent level wi become IVD HNP if you allow medics to fuse what you're already dealing with. . The alternative is Chiropractic. The only reason Chiropractic has survived 110+ years of illegal medical marketing designed to eliminate Chiropractic is because, Chiropractic works best, especially for the vast majority of spinal problems like IVD HNP. It's what Joe Montana learned after his first failed IVD HNP surgery when he consulted Dr. Nick Athens (Joe went on to win 2 more Super Bowls after he found his Chiropractic Physician :-). There's much more to learn however, I'll wait to learn what further interest you may have. I hope all goes better than well and please. let us know how we can help. regards, AQUADC, DABCN From: <ljorichardson0912@ hotmail.com> Subject: Diagnosis spinedisorderssuppo rtgroup@gro ups.com, painintheneck- back@groups .com Date: Wednesday, October 28, 2009, 4:36 PM  I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused also. anyone have any suggestions on what to do? Thank you ____________ _________ _________ _________ _________ _________ _ Windows 7: Simplify your PC. Learn more. http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727: :T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009 Quote Link to comment Share on other sites More sharing options...
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