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I'm reading the book ADHD and Me. Great book by the way, written by a

highschooler and his point of view. I am going to read parts to my son, so he

can realize her is not the only one. I bring this up because a lot of the

issues the boy in this book deals with cross over into AS lines.

I can see how you start with one dx and then the next. My son was dx ADHD then

AS.

bobbie in NJ

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Bobby,

I am also reading a few books on ADHD. My dd was dx'ed with it a few years ago.

Both disorders share executive function deficits, so logically both would

benefit from measures to support that deficit.

Kylie in Ca.

>

> I'm reading the book ADHD and Me. Great book by the way, written by a

highschooler and his point of view. I am going to read parts to my son, so he

can realize her is not the only one. I bring this up because a lot of the

issues the boy in this book deals with cross over into AS lines.

>

> I can see how you start with one dx and then the next. My son was dx ADHD

then AS.

>

>

> bobbie in NJ

>

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  • 5 months later...

It sounds similar to my son.????? Has someone checked him for dysarthia (low

muscle tone of the face).???? If so, are they addressing it.?? Both myself and

another mom have children that were in therpay for a full year.?? Our sons both

were making slow progress.????? When our sons oral motor weaknesses were

addressed the sounds and words started coming very rapidly in comparison to the

otherwise slow progress.

Also, does he sleep well??? My son wasn't crying at night that much but when I

was pregnant and now with a new baby I realized that he was actually waking up

quite often (I'd hear him on the intercom when I was up in the night).?? I took

him to a sleep specialist and he has apnea.????? We are considering having his

adenoids/tonsils removed.?????? I am told disturbed sleep can cause a lot of

problems with speech development.

Just some thoughts.

[ ] Diagnosis

I need help! My son is now 33 months old and still is not talking. We have ran

every blood test known to man and they have shown nothing. He was diagnosed with

Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and

physical/occupational therapy for 1 1/2 yrs. The older he's getting the more

frustrating it's getting for him and for the rest of the family. He acts out on

a frequent basis and I know it's because he can't express himself in any other

way. The only word he will say is ME and that has just started maybe a month

ago. His pediatrician says she is OK as long as he is slowly progressing, but

the problem is he's not progressing at all. My husband and I want answers and

everywhere we have went we get the same explanation...give him more time. We are

really worried and don't know where else to turn.

thanks,

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The old " give him more time " is wrong.  Especially if he is getting

frustrated at not being understood.  Maybe you could ask the speech

therapist about " pecs " .  Obviously the frustration warrants some other

way to communicate for him.  Pecs is a great first step.  We started

with sign first, then did pecs because it was easier for everyone else

to communicate with my son.  There are a bunch of free sites on the web

to help with pecs symbols. 

Your therapist will be able to help you with this.    Behaviours will get

worse, not better if you " just give him time " . and maybe you could find

a developmental pediatrician instead of a regular one just as an option

to what further things to pursue.

hth

sandy

________________________________

From: m_kkirkland <m_kkirkland@...>

Sent: Wednesday, September 16, 2009 11:24:40 AM

Subject: [ ] Diagnosis

 

I need help! My son is now 33 months old and still is not talking. We have ran

every blood test known to man and they have shown nothing. He was diagnosed with

Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and

physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more

frustrating it's getting for him and for the rest of the family. He acts out on

a frequent basis and I know it's because he can't express himself in any other

way. The only word he will say is ME and that has just started maybe a month

ago. His pediatrician says she is OK as long as he is slowly progressing, but

the problem is he's not progressing at all. My husband and I want answers and

everywhere we have went we get the same explanation. ..give him more time. We

are really worried and don't know where else to turn.

thanks,

__________________________________________________________________

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He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I

honestly don't think anyone has ever said anything about his face. As I said

before, speech therapy has been going on for a year now and PT and OT have been

for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He

makes a lot of noise when he sleeps, even last night he was laughing! He usually

ends up in our bed before the night is over. Even during his naps, he is never

still. His legs, arms or something is moving or jerking. I will certainly

address the dysarthia issue w/ his doc on Friday morning. Thank you so much for

your help!

________________________________

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I've never heard of PECS before. I will be sure to ask his therapist tomorrow

morning about that. He does communicate w/ some sign language, just the basics

mainly. Again, I sincerely appreciate your help and thoughts!

________________________________

From: sandy lehmann <mommie2chris@...>

Sent: Wednesday, September 16, 2009 12:20:31 PM

Subject: Re: [ ] Diagnosis

The old " give him more time " is wrong. Especially if he is getting

frustrated at not being understood. Maybe you could ask the speech

therapist about " pecs " . Obviously the frustration warrants some other

way to communicate for him. Pecs is a great first step. We started

with sign first, then did pecs because it was easier for everyone else

to communicate with my son. There are a bunch of free sites on the web

to help with pecs symbols.

Your therapist will be able to help you with this. Behaviours will get

worse, not better if you " just give him time " . and maybe you could find

a developmental pediatrician instead of a regular one just as an option

to what further things to pursue.

hth

sandy

____________ _________ _________ __

From: m_kkirkland <m_kkirkland>

@groups. com

Sent: Wednesday, September 16, 2009 11:24:40 AM

Subject: [childrensapraxiane t] Diagnosis

I need help! My son is now 33 months old and still is not talking. We have ran

every blood test known to man and they have shown nothing. He was diagnosed with

Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and

physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more

frustrating it's getting for him and for the rest of the family. He acts out on

a frequent basis and I know it's because he can't express himself in any other

way. The only word he will say is ME and that has just started maybe a month

ago. His pediatrician says she is OK as long as he is slowly progressing, but

the problem is he's not progressing at all. My husband and I want answers and

everywhere we have went we get the same explanation. ..give him more time. We

are really worried and don't know where else to turn.

thanks,

____________ _________ _________ _________ _________ _________ _

Looking for the perfect gift? Give the gift of Flickr!

http://www.flickr. com/gift/

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We were in the same situation. Had my son's tonsils and adenoids removed and he

started gaining words 10 days after surgery. In the 5 months since surgery he

went from only saying up and down to talking in sentences. There is no doubt to

us this helped him tremendously. He is still playing catch up and we are

working on articulation but the difference is unbelievable.

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Please look into PECS. It really helped with our sons frustration level.

Unfortunately, sign language didn't really work for us because of his fine motor

delays. Get a neurologist or developmental pediatrician to diagnose him. My son

was diagnosed at 2 1/2. If he has hypotonia, does he have low tone in his jaw

muscles? Oral motor therapy has really helped my son strengthen his muscles and

work with his lip closure, puckering, tongue movement, etc. Don't listen to your

pediatrician!

Jenna (mom to Larsyn 3.5 yo dx/severe verbal & oral apraxia, dyspraxia,

hypotonia, sensory processing dysfunction, dysmorphic facial features AND

Chance 6yo typical boy)

>

> I've never heard of PECS before. I will be sure to ask his therapist tomorrow

morning about that. He does communicate w/ some sign language, just the basics

mainly. Again, I sincerely appreciate your help and thoughts!

>

>

>

>

>

>

> ________________________________

> From: sandy lehmann <mommie2chris@...>

>

> Sent: Wednesday, September 16, 2009 12:20:31 PM

> Subject: Re: [ ] Diagnosis

>

>

> The old " give him more time " is wrong. Especially if he is getting

> frustrated at not being understood. Maybe you could ask the speech

> therapist about " pecs " . Obviously the frustration warrants some other

> way to communicate for him. Pecs is a great first step. We started

> with sign first, then did pecs because it was easier for everyone else

> to communicate with my son. There are a bunch of free sites on the web

> to help with pecs symbols.

>

> Your therapist will be able to help you with this. Behaviours will get

> worse, not better if you " just give him time " . and maybe you could find

> a developmental pediatrician instead of a regular one just as an option

> to what further things to pursue.

>

> hth

> sandy

>

> ____________ _________ _________ __

> From: m_kkirkland <m_kkirkland>

> @groups. com

> Sent: Wednesday, September 16, 2009 11:24:40 AM

> Subject: [childrensapraxiane t] Diagnosis

>

>

> I need help! My son is now 33 months old and still is not talking. We have ran

every blood test known to man and they have shown nothing. He was diagnosed with

Hypotonia at the age of 2 yrs. He has been in speech therapy for a year and

physical/occupation al therapy for 1 1/2 yrs. The older he's getting the more

frustrating it's getting for him and for the rest of the family. He acts out on

a frequent basis and I know it's because he can't express himself in any other

way. The only word he will say is ME and that has just started maybe a month

ago. His pediatrician says she is OK as long as he is slowly progressing, but

the problem is he's not progressing at all. My husband and I want answers and

everywhere we have went we get the same explanation. ..give him more time. We

are really worried and don't know where else to turn.

>

> thanks,

>

>

> ____________ _________ _________ _________ _________ _________ _

> Looking for the perfect gift? Give the gift of Flickr!

>

> http://www.flickr. com/gift/

>

>

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Wow - your son sounds like a little twin of mine.?? I'm so glad I?took him in to

the sleep dr and had the confirmation of apnea now.??? My son rolls, turns this

way and that etc.????Please keep me posted on what your doc says.?? Maybe?we can

figure out why symptoms are all so similar.???? My?neurologist won't agree

to?take out the tonsils adenoids until they do even more genetic testing.??? My

ENT sais he would do it but not without neurologist also saying yes.????

Evidently he had a rare case a few years back where if he had done it it could

have been a bad bad mistake due to an overlying problem with the child revealed

by the genetics.????? Very frustrating for me now that i know he has apnea.????

I did find out from a apraxia genetic specailist via email that the only known

link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and

am hoping to talk her into letting the ENT do the surgery without more

genetics.?? If you do find someone to asses the dysarthia here is what someone

good will look for (I copied it over from something I posted a while back):

Well, when I saw Debra the first time she basically had her hands in his mouth

for an hour and did a complete assessment of his muscle tone.???I pulled out the

assessment and these are the things she checked:

?

Range of movement for the lips for protrusion and elongation

Lip Strenth - upper lip and lower lip

Range of movement for the upper and lower cheeks bilaterally

Posterior cheek strength

Posterior jaw resting range

Jaw alignment

Jaw strength

Close and hold for jaw

Jaw approximation

Alignment for the base of the tongue

Tongue movement toward gum massage

Lateral tongue movement to the left and right gum

Lateral tongue movement to the cheeks and upper gums

Midblade elevation

Tongue tip elevation

Lateral soft palate activation

Hard palate vault and contour

?

She could tell my one a scale (5/5) or a % for each item where he was at.????

Everything should be at 5/5 or 100%.????? Debra Beckman has a list of therapists

trained in her methods on www.beckmanoralmotor.com????? You don't have to have

someone doing her methods (I wouldn't think) I'm just saying that whoever does

the therapy should be able to tell you how your son does on these items.?? I

knew my son had low muscle tone in his face but until I saw her I had no idea

how bad it truly was.??? In some of these categories my son had 0%.????? For

example, my son is thin but under his chin it looked like baby fat.??? I thought

this was just his face shape.??? After seeing Deborah I realized that his

muscles weren't holding his tongue in the right position because there was so

low of tone.????? Since June he has almost eliminated what I once thought was

just baby fat because he's starting to develop the muscle.??? Also, if someone

is putting their hands in his mouth and he cries on and on about it and it

continues session after session - this is NOT the way it should be.??? I took

him to a supposed beckman oral motor specialist before and her approach was

totally wrong.?? He hated every moment of it because she didn't approach it in

the rigth way.??? Children with low tone often don't like people having their

hands in their mouth.?? He never cries now.

Make sure someone isn't overcharging you for an assessment for dysarthia.?? Some

of these docs out there are getting crazy.??? Debra charges $300 for an

evaluation which is between 1-2 hours.???? Also someone I met through a friend

with similar problems has her child just start and she has also seen a change in

the child's facial shape/tone since seeing Debra.????

Best of luck to you!

?

Re: [ ] Diagnosis

He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I

honestly don't think anyone has ever said anything about his face. As I said

before, speech therapy has been going on for a year now and PT and OT have been

for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He

makes a lot of noise when he sleeps, even last night he was laughing! He usually

ends up in our bed before the night is over. Even during his naps, he is never

still. His legs, arms or something is moving or jerking. I will certainly

address the dysarthia issue w/ his doc on Friday morning. Thank you so much for

your help!

________________________________

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My dd genetics dr is at Columbia Med Ctr in NYC. We've been seeing him for five

years. FoxP2 is Chromosome 7. My dd has a deletion on Chromosome 2. He told us

that he has seen numerous children with her type of deletion that have

speech/apraxia issues.

It is a Neurological condition--so I can understand why the Neurologist would

not want surgery done. Have you seen a genetics dr? A blood test would determine

if there are genetic issues which might explain the speech issues without

resorting to surgery.

>

>

> I did find out from a apraxia genetic specailist via email that the only known

link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and

am hoping to talk her into letting the ENT do the surgery without more

genetics.??

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Isaac does not have hypotonia in his jaw muscles, at least that's what we've

been told. I honestly believe his is Verbal Apraxic. I spoke w/ his pediatrician

this morning and she agreed. She also said at this point she doesn't believe

he's just a " late talker " , and seemed more concerned when I told her he was no

longer saying the few words he was 6-8 months ago. She is going to call and

speak w/ his speech therapist and also her sister, which is a ped speech

pathologist. Maybe we will get somewhere now...I don't know...I'm crossing my

fingers that we can get a diagnosis sooner than later. I feel that we have

wasted too much time already.

________________________________

From: imcaligal <imcaligal@...>

Sent: Thursday, September 17, 2009 11:48:24 PM

Subject: [ ] Re: Diagnosis

Please look into PECS. It really helped with our sons frustration level.

Unfortunately, sign language didn't really work for us because of his fine motor

delays. Get a neurologist or developmental pediatrician to diagnose him.

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I don't think Isaac has hypotonia in his face or jaw. We went to his ped this

morning and she agreed w/ me about him having verbal apraxia. She is also going

to get in touch w/ his speech therapist and discuss some things w/ her. As far

as the unusual sleeping, she said his 2 yr molars are just coming in and that is

probably affecting his sleep. We are going to give it a couple of weeks and look

at it again.

________________________________

From: " NotefrmSue@... " <NotefrmSue@...>

Sent: Friday, September 18, 2009 3:04:34 AM

Subject: Re: [ ] Diagnosis

Wow - your son sounds like a little twin of mine.?? I'm so glad I?took him in to

the sleep dr and had the confirmation of apnea now.??? My son rolls, turns this

way and that etc.????Please keep me posted on what your doc says.?? Maybe?we can

figure out why symptoms are all so similar.???? My?neurologist won't agree

to?take out the tonsils adenoids until they do even more genetic testing.??? My

ENT sais he would do it but not without neurologist also saying yes.????

Evidently he had a rare case a few years back where if he had done it it could

have been a bad bad mistake due to an overlying problem with the child revealed

by the genetics.??? ?? Very frustrating for me now that i know he has apnea.????

I did find out from a apraxia genetic specailist via email that the only known

link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and

am hoping to talk her into letting the ENT do the surgery without more

genetics.?? If you do find

someone to asses the dysarthia here is what someone good will look for (I

copied it over from something I posted a while back):

Well, when I saw Debra the first time she basically had her hands in his mouth

for an hour and did a complete assessment of his muscle tone.???I pulled out the

assessment and these are the things she checked:

?

Range of movement for the lips for protrusion and elongation

Lip Strenth - upper lip and lower lip

Range of movement for the upper and lower cheeks bilaterally

Posterior cheek strength

Posterior jaw resting range

Jaw alignment

Jaw strength

Close and hold for jaw

Jaw approximation

Alignment for the base of the tongue

Tongue movement toward gum massage

Lateral tongue movement to the left and right gum

Lateral tongue movement to the cheeks and upper gums

Midblade elevation

Tongue tip elevation

Lateral soft palate activation

Hard palate vault and contour

?

She could tell my one a scale (5/5) or a % for each item where he was at.????

Everything should be at 5/5 or 100%.????? Debra Beckman has a list of therapists

trained in her methods on www.beckmanoralmoto r.com???? ? You don't have to have

someone doing her methods (I wouldn't think) I'm just saying that whoever does

the therapy should be able to tell you how your son does on these items.?? I

knew my son had low muscle tone in his face but until I saw her I had no idea

how bad it truly was.??? In some of these categories my son had 0%.????? For

example, my son is thin but under his chin it looked like baby fat.??? I thought

this was just his face shape.??? After seeing Deborah I realized that his

muscles weren't holding his tongue in the right position because there was so

low of tone.????? Since June he has almost eliminated what I once thought was

just baby fat because he's starting to develop the muscle.??? Also, if someone

is putting their hands in

his mouth and he cries on and on about it and it continues session after

session - this is NOT the way it should be.??? I took him to a supposed beckman

oral motor specialist before and her approach was totally wrong.?? He hated

every moment of it because she didn't approach it in the rigth way.??? Children

with low tone often don't like people having their hands in their mouth.?? He

never cries now.

Make sure someone isn't overcharging you for an assessment for dysarthia.?? Some

of these docs out there are getting crazy.??? Debra charges $300 for an

evaluation which is between 1-2 hours.???? Also someone I met through a friend

with similar problems has her child just start and she has also seen a change in

the child's facial shape/tone since seeing Debra.????

Best of luck to you!

?

Re: [childrensapraxiane t] Diagnosis

He has been diagnosed w/ Hypotonia in his legs, arms and shoulders, but I

honestly don't think anyone has ever said anything about his face. As I said

before, speech therapy has been going on for a year now and PT and OT have been

for 1 1/2 yrs. It seems that nothing is changing. Isaac doesn't sleep well. He

makes a lot of noise when he sleeps, even last night he was laughing! He usually

ends up in our bed before the night is over. Even during his naps, he is never

still. His legs, arms or something is moving or jerking. I will certainly

address the dysarthia issue w/ his doc on Friday morning. Thank you so much for

your help!

____________ _________ _________ __

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,

My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him

fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing

that seems to help him. His developmental pediatrician recommended it (actually

I already had started him on it because I read about it on an autistic message

board).

Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia,

hypotonia, sensory processing dysfunction and dysmorphic facial features)

--- In , MELISSA KIRKLAND

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Your son has exactl the same issues that my daughter has. Have you ever had him

tested for vcfs? We just met with Kaufman and she suggested getting my

daughter tested. I have been to several Neuros, Developmental Peds, and

geneticist and I have never heard of this. Now that I have googled it my

daughter does have some of the characteristics. also said she does not

believe my daughter has apraxia. This is amazing to me as she has seen by s/t,

and specialists in 3 different states, New York, Florida, and Ga and they all

dianosed  her with apraxia. Even my s/t here in Ga are floored she doesn't have

apraxia. It does not matter as all the therapy we have been doing has made a

tremendous difference in her speaking abilities. We will continue the Kaufman

method as well as prompt but we will now start working more on receptive

language as has suggested.

________________________________

From: imcaligal <imcaligal@...>

Sent: Saturday, September 19, 2009 7:16:35 PM

Subject: [ ] Re: Diagnosis

 

,

My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him

fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing

that seems to help him. His developmental pediatrician recommended it (actually

I already had started him on it because I read about it on an autistic message

board).

Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia,

hypotonia, sensory processing dysfunction and dysmorphic facial features)

--- In @groups. com, MELISSA KIRKLAND

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His pediatrician seems to think his sleep has been interrupted by his two year

molars that are just coming in. At this moment, only time will tell. She said to

give him a couple of weeks for them to come completely in and we would go from

there. My husband has sleep apnea and I've never thought of Isaac suffering

from it until I joined this group. Everyone has been so helpful and we finally

feel like someone understands where we are.

________________________________

From: imcaligal <imcaligal@...>

Sent: Saturday, September 19, 2009 6:16:35 PM

Subject: [ ] Re: Diagnosis

,

My son is also a horrible sleeper. He takes Melatonin 3mg at night to help him

fall asleep. He also takes 500mcg (1/2 mg.) before his nap. It is the only thing

that seems to help him. His developmental pediatrician recommended it (actually

I already had started him on it because I read about it on an autistic message

board).

Jenna (mom to Larsyn 3/5 yo w/ severe verbal and oral apraxia, dyspraxia,

hypotonia, sensory processing dysfunction and dysmorphic facial features)

--- In @groups. com, MELISSA KIRKLAND

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We have never had VCFS mentioned to us before. I will do some research on that

also. We have also been to genetics, neuros and pediatrician and have never

heard of that or apraxia for that matter. It is so astounding that there are so

many different resources for Apraxia, yet no one has mentioned that to

us...until I brought it up last week at my sons doc appt. I hope that now we can

get the ball rolling in the correct direction!

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We have taken Isaac to a genetics doctor, Gainesville Florida, and he told us

numerous times that there was something there but he couldn't put his finger on

it. Isaac is very outgoing and doesn't meet a stranger. He is always smiling and

laughing, until it comes to communication, then it's all downhill from there.

________________________________

From: mosense <mosense@...>

Sent: Friday, September 18, 2009 7:13:57 AM

Subject: [ ] Re: Diagnosis

My dd genetics dr is at Columbia Med Ctr in NYC. We've been seeing him for five

years. FoxP2 is Chromosome 7. My dd has a deletion on Chromosome 2. He told us

that he has seen numerous children with her type of deletion that have

speech/apraxia issues.

It is a Neurological condition--so I can understand why the Neurologist would

not want surgery done. Have you seen a genetics dr? A blood test would determine

if there are genetic issues which might explain the speech issues without

resorting to surgery.

>

>

> I did find out from a apraxia genetic specailist via email that the only known

link to apraxia in terms of a genes is FOXP2.?? I see my neurologist on 30th and

am hoping to talk her into letting the ENT do the surgery without more

genetics.??

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I've met 2-3 local parents who have had their 3-5yr olds diagnosed with

Selective Mutism. At first they thought it was Apraxia, but these kids do

talk--but not out in public. They will talk at home, but seem to shut down in

public or with strangers. just a thought.

>

> Isaac is very outgoing and doesn't meet a stranger. He is always smiling and

laughing, until it comes to communication, then it's all downhill from there.

>

>

>

>

>

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Isaac tries to speak no matter if at home or in public. Trust me, when we leave

a place people know Isaac was there! As I said, he is such a happy & social

little boy, he just can't be verbal with anyone. When he does try to tell you

something or show you something he wants the smiles quickly turn to aggression.

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Hi Tara,

We have done some specific genetic testing and basic chromosome testing-all came

up negative. We just submitted his blood for micro array chromosome testing (it

is being done at a lab in Washington). It also tests for vcfs.

It will be interesting to see if it picks up any deletions or abnormalities.

Since he has dysmorphic facial features, his doctors all think he has something

chromosomal going on, which in turns affected the development of his brain.

-Jenna (mom to Larsyn and Chance)

Orange County, CA

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  • 1 month later...

Hello ,

I understand your condition because, I see it frequently. Like Joe Montana,

you've a cascading progression of post surgical adjacent level InterVertebral

DIsc, Herniated Nucleus Pulposis (IVD HNP). More facts are; there's a 66% chance

that another adjacent level wi become IVD HNP if you allow medics to fuse what

you're already dealing with. .

The alternative is Chiropractic. The only reason Chiropractic has survived 110+

years of illegal medical marketing designed to eliminate Chiropractic is

because, Chiropractic works best, especially for the vast majority of spinal

problems like IVD HNP. It's what Joe Montana learned after his first failed IVD

HNP surgery when he consulted Dr. Nick Athens (Joe went on to win 2 more Super

Bowls after he found his Chiropractic Physician :-).

There's much more to learn however, I'll wait to learn what further interest you

may have.

I hope all goes better than well and please. let us know how we can help.

regards,

AQUADC, DABCN

From: <ljorichardson0912@...>

Subject: Diagnosis

spinal problems ,

neck pain

Date: Wednesday, October 28, 2009, 4:36 PM

 

I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do

surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused

also.

anyone have any suggestions on what to do?

Thank you

____________ _________ _________ _________ _________ _________ _

Windows 7: Simplify your PC. Learn more.

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:T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009

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,

I am so sorry you are facing another surgery. I have been through three in three

years. I can imagine your mental exhaustion from having to go through yet

another surgery. If it were me I would definately get more than one opinion. I

am not a medical professional, just a fellow sufferer.

As far as what this guy is saying who purports to have a " diplomat " in

chiropractic care (LMAO) ignore him. He seems to be hijacking every message

posted in the group. Everyone can read where you just explained you have had two

fusions already. I can not fathom ANY CHIROPRACTOR touching you, just like no

reputable chiropractor will touch me other than to do physical therapy or

massage.

I hate to see the message boards that we utilize for support for each other turn

into a personal agenda for someone.

Barb

>

> From: <ljorichardson0912@...>

> Subject: Diagnosis

> spinal problems ,

neck pain

> Date: Wednesday, October 28, 2009, 4:36 PM

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

> I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do

surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused

also.

>

> anyone have any suggestions on what to do?

>

>

>

> Thank you

>

>

>

>

>

>

>

> ____________ _________ _________ _________ _________ _________ _

>

> Windows 7: Simplify your PC. Learn more.

>

> http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727:

:T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009

>

>

>

>

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Share on other sites

Barb,

What motivates your aggression?

What or who hurt you so much that you ignore facts?

Stop bashing people. You've been target bashing all day and then, laugh?

You deserve to feel better. Target yourself and heal. You deserve the best. .

Let us discuss health.

regards,

AQUADC, DABCN (Diplomat American Board of Chiropractic Neurology)

From: Barb <ellijaygal@...>

Subject: Re: Diagnosis

spinal problems

Date: Wednesday, October 28, 2009, 4:58 PM

 

,

I am so sorry you are facing another surgery. I have been through three in three

years. I can imagine your mental exhaustion from having to go through yet

another surgery. If it were me I would definately get more than one opinion. I

am not a medical professional, just a fellow sufferer.

As far as what this guy is saying who purports to have a " diplomat " in

chiropractic care (LMAO) ignore him. He seems to be hijacking every message

posted in the group. Everyone can read where you just explained you have had two

fusions already. I can not fathom ANY CHIROPRACTOR touching you, just like no

reputable chiropractor will touch me other than to do physical therapy or

massage.

I hate to see the message boards that we utilize for support for each other turn

into a personal agenda for someone.

Barb

>

> From: <ljorichardson0912@ ...>

> Subject: Diagnosis

> spinedisorderssuppo rtgroup@gro ups.com, painintheneck-

back@groups .com

> Date: Wednesday, October 28, 2009, 4:36 PM

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

> I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do

surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused

also.

>

> anyone have any suggestions on what to do?

>

>

>

> Thank you

>

>

>

>

>

>

>

> ____________ _________ _________ _________ _________ _________ _

>

> Windows 7: Simplify your PC. Learn more.

>

> http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727:

:T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009

>

>

>

>

Link to comment
Share on other sites

Thr fact that he spells it incorrectly does give one pause. however, in

the unlikely event his claim is true, and he bought himself a snazzy title,

here you go, your search is now narrowed to two possibilities:

_American Chiropractic Neurology Board_

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK)

Doctor Locator

List of Certified Practitioners in your State (AK)

Name

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_BusinessName & Dealer_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter

_Dealer_BusinessName & Dealer_StateDir=DESC) Address

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_A

ddress1 & Dealer_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_Address1 & Dealer_StateDir

=DESC) City

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_City & Dealer_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorte

r_Dealer_City & Dealer_StateDir=DESC) State

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_State & Deal

er_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_State & Dealer_StateDir=DESC) Zip

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_State

Order=Sorter_Dealer_Zip & Dealer_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_Zip & Deal

er_StateDir=DESC) Country

(http://www.acnb.org/locator/results_state.php?s_Deale

r_State=AK & Dealer_StateOrder=Sorter_Dealer_Country & Dealer_StateDir=ASC)

(http://www.acnb.org/locator/results_state.php?s_Dealer_State=AK & Dealer_StateOrd\

er=Sorter_Dealer_Country & Dealer_StateDir=DESC) _Barrington,

_ (http://www.acnb.org/locator/record_state.php?Dealer_ID=00000119)

Phone: 907-677-1600

Fax:907-646-2212

ACNB Registration Status: Active 701 E. Tudor Rd., Suite 125 Anchorage

AK 99503 United States _Robbins, Robin_

(http://www.acnb.org/locator/record_state.php?Dealer_ID=00000543)

Phone: 907-562-2802

Fax:907-562-7667

ACNB Registration Status: Active 510 W. Tudor, Suite 111 Anchorage AK

99503 United States First Prev 1 of 1 Next Last

©2002-2006 ACNB | _Contact_ (http://www.acnb.org/contact.html) | _Home_

(http://www.acnb.org/)

In a message dated 10/28/2009 11:08:37 P.M. Eastern Daylight Time,

tpowell1977@... writes:

I'm curious as to what " Diplomat " and " medic " are...

--- Babbitt

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OK seriously...IVD HNP is not a medical abbreviation...that is maybe a " chiro

abbreviation " ...but it is not used anywhere in the diagnosis and treatment of

spine pathologies.It's like a redundant phrase designed to make you sound smart.

What a scam! This is the kind of stuff I've been talking about! Such quackery!

 The more you say, the more inept you sound.

And since when is Inter Vertebral capitalized and seperated into two words?

And since when do medics perform fusions or surgery fo any kind? In this country

surgery is performed by physicans...surgeons.

 --- Babbitt

________________________________

From: b p <aquadc@...>

spinal problems

Sent: Wed, October 28, 2009 5:49:16 PM

Subject: Re: Diagnosis

 

Hello ,

I understand your condition because, I see it frequently. Like Joe Montana,

you've a cascading progression of post surgical adjacent level InterVertebral

DIsc, Herniated Nucleus Pulposis (IVD HNP). More facts are; there's a 66% chance

that another adjacent level wi become IVD HNP if you allow medics to fuse what

you're already dealing with. .

The alternative is Chiropractic. The only reason Chiropractic has survived 110+

years of illegal medical marketing designed to eliminate Chiropractic is

because, Chiropractic works best, especially for the vast majority of spinal

problems like IVD HNP. It's what Joe Montana learned after his first failed IVD

HNP surgery when he consulted Dr. Nick Athens (Joe went on to win 2 more Super

Bowls after he found his Chiropractic Physician :-).

There's much more to learn however, I'll wait to learn what further interest you

may have.

I hope all goes better than well and please. let us know how we can help.

regards,

AQUADC, DABCN

From: <ljorichardson0912@ hotmail.com>

Subject: Diagnosis

spinedisorderssuppo rtgroup@gro ups.com, painintheneck-

back@groups .com

Date: Wednesday, October 28, 2009, 4:36 PM

 

I was just diagnosed with herniated nucleus pulposus c4-5 and they want to do

surgery. I just had surgery in Feb for c 6-7 and I have also had c 5-6 fused

also.

anyone have any suggestions on what to do?

Thank you

____________ _________ _________ _________ _________ _________ _

Windows 7: Simplify your PC. Learn more.

http://www.microsof t.com/Windows/ windows-7/ default.aspx? ocid=PID24727:

:T:WLMTAGL: ON:WL:en- US:WWL_WIN_ evergreen1: 102009

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